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Welcome to Hospice & Palliative Care Today, a daily email summarizing numerous topics essential for understanding the current landscape of serious illness and end-of-life care. Recent TCN Talks podcasts / videos reviewing Hospice & Palliative Care Today monthly content available for 2024: January; February; March; April, May, June, July, and August.
United States Power Outage Tracker: Updates automatically every 15 minutes
Retrieved from the internet 10/9/24
As severe weather or blizzards threaten, this database aggregates power outage information from more than 1,000 companies nationwide. It will automatically update every 15 minutes. [Click here.]
Companion article: Florida power outage map: Track where power is out as Hurricane Milton approaches landfall.
USA Today; by Julia Gomez and C.A. Bridges; 10/9/24
Utility providers were preparing for over a million power outages when Hurricane Milton hits Florida, which comes as the state is still recovering from Hurricane Helene. More than 25,000 outages had already been reported in Florida by 1:15 p.m. ET Wednesday, according to the USA TODAY power outage tracker, with many more expected as Milton approaches landfall late Wednesday night or early Thursday morning. [You can follow the latest outage numbers by clicking here.]
Editor's note: For all affected by Hurricane Milton--evacuees, first responders, long distance family members and friends, colleagues, businesses, more. Stay informed about power outages in areas impacted by both Milton and Helene. The companion article provides important safety information about downed power lines, reporting outages, and more. (We are highlighting the map for your fast, easy access.) See "Today's Encouragement."
Florida health-care workers exhausted as Hurricane Milton approaches
The Washington Post; by David Ovalle and Sabrina Malhi; 10/8/24
The storm shutters are up at Stephen Johnson’s house near the water in North Fort Myers, Fla. ... But Jones won’t be home when Hurricane Milton is expected to thunder ashore this week along the Gulf Coast. Instead, the paramedic — like thousands of health-care workers across Florida — intends to ride out the storm at work, then jump into action when the winds die down, the waters recede and people seek medical assistance. ... “It gets stressful. You don’t know if you’re going to come back to a home,” Johnson, 28, of Brewster Ambulance Service, said during a brief break Tuesday after two straight days of organizing evacuations of patients from hospitals and assisted-living facilities across Lee County in southwest Florida while surviving on granola bars and energy drinks. ... By Tuesday afternoon, Florida health officials had deployed nearly 600 ambulances, buses and other transport vehicles to ferry patients out of harm’s way. More than 200 health-care facilities — including 115 assisted-living facilities, 10 hospitals and five hospice providers — have reported evacuations, according to the state’s health department.
Helene will likely cause thousands of deaths over decades, study suggests
USA Today; by Doyle Rice; 10/2/24
[Note the 10/2 date of this article. Helene's death toll is now 230+ and rising. Hurricane Milton's predictions were new.] A new study ... says that hurricanes and tropical storms are far deadlier than initial death tolls suggest. ... Overall, the death toll of a tropical cyclone may be a broader public health issue than previously thought, as disasters frequently trigger a domino effect of other threats to affected populations. ... Researchers found that these excess deaths were due to causes such as diabetes, suicide, sudden infant death syndrome or another cause that was not recorded. Cardiovascular disease was the next most common cause, followed by cancer. Official government statistics record only the number of individuals killed during these storms. Usually, these direct deaths, which average 24 per storm in official estimates, occur through drowning or some other type of trauma, according to the study. "People are dying earlier than they would have if the storm hadn't hit their community," said senior study author Solomon Hsiang, a professor of environmental social sciences at Stanford University. Looking at the death and destruction from Helene, Hsiang told the Associated Press that "Watching what’s happened here makes you think that this is going to be a decade of hardship on tap, not just what’s happening over the next couple of weeks.”
Letter to health care leaders and stakeholders on impacts of Hurricane Helene from Secretary Becerra
HHS press release; 10/9/24
[Contents include]
Hospice of Central PA President Gil Brown to retire
Abel Personnel; by Rochelle Shenk; 10/9/24
After more than a decade of service at Hospice of Central PA, president Gil Brown will retire Dec. 31. According to a news release, Brown has been a driving force behind the organization’s growth, steering it through significant achievements and fostering strong relationships with health care partners and the community. Since joining Hospice of Central PA in 2014, Brown has led the organization through numerous milestones, including earning Joint Commission accreditation and securing a 5-star status in the We Honor Veterans program offered by the National Hospice and Palliative Care Organization. ... “Working with Gil has been a truly inspiring experience,” said Hank Straub, HCP Board Member. “His unwavering commitment to compassionate care and his visionary leadership have not only shaped Hospice of Central PA, but also set a high standard for excellence. Gil’s ability to lead with both heart and strategic focus has made a lasting impact, and it has been an honor to collaborate with him in serving our community.”
A guide to creating a comforting hospice facility
Cerebral Overload; by Kelly; 10/8/24
Hospice care is for patients nearing the end of their lives and wanting to do so in a comfortable, safe environment. This comfort is incredibly important, as it is integral to supporting patients’ physical and emotional needs during this time of uncertainty. If you are designing a hospice facility, here is a guide to creating a comforting space. The features we discuss will enhance the quality of care and ease the emotional journey of patients and their loved ones.
Community making strides to reopen Owatonna's Hospice House
Owatonna People's Press, Faribault, MN; by Annie Harman; 10/8/24
... Allan and Randee Radel smiled as they remembered the days they relied on the Homestead Hospice House to care for Randee’s mother, Kaye Mahlman, during the final days of her life. “It was wonderful. It was good for her, and it was good for the family,” Randee said, looking at the house as visitors strolled inside. ... It has been more than a year since the Hospice House has cared for a patient, but there is movement being made to open the doors once again as a full-service residential hospice care facility. And thanks to the Radels, that dreaming has taken a significant step toward reality. The couple handed over a check this week to the HHH Board to put toward the $850,000 fundraising goal to reopen the house. While the couple has decided they’d rather just call it a “very generous donation,” in lieu of sharing the actual number, those involved in the fundraising efforts are not shy to say with confidence that, thanks to the Radels and others like them, they are making “significant progress” in reaching that goal. ...
[NonProfit Pro] How to develop your year-end ask strategy
NonProfit Pro; by Jeff Schreifels; 10/8/24
There’s no doubt about it — as a fundraiser, you are now in the busiest, most productive time of your year. Hopefully you’ve developed a strategic plan for your whole year and know how to approach the next couple of months to reach your organization’s financial goals.Still, even with a strong plan, developing the right year-end ask amounts can be tricky. I can’t tell you the hundreds of times I have talked to major gift officers who don’t know the details of their caseload or their donors’ interests and situations. ... And what’s worse is once that pressure to get the money starts coming down, you may find yourself asking for gifts that harm the long-term relationship with your donor. The goal is to come to your donor from an authentic place of partnership. ... These questions will form the foundation for your ask strategy. ...
Palliative care ‘ahead of the game’ in approaches to treating rare diseases
Hospice News; by Holly Vossel; 10/9/24
Researchers are ramping up efforts to better understand the complex trajectories of rare diseases, with evidence mounting around palliative care’s potential to improve outcomes among those patients. The Center for Innovation & Value Research recently launched the second phase of its Rare Disease Project, an initiative aimed at examining the diverse range of these illnesses and the patients impacted by them. The project is designed to learn more about the innovative, person-centered care models that can help address common challenges that these patients and their caregivers face — including approaches that integrate palliative care services. A pivotal point of the research for palliative care providers is understanding how their services help support patients — physically, practically and spiritually — as their diseases progress, according to Rick Chapman, chief science officer at the Center for Innovation & Value Research, which is part of the National Health Council.
Early trauma linked to more pain and loneliness at life’s end
Psychiatrist.com; by Denis Storey; 10/7/24
New research [Journal of the American Geriatics Society] links early-life trauma, particularly parental abuse, to greater pain, depression, and loneliness at the end of life. The study tracked more than 6,500 older Americans and found those with five or more traumas had higher chances of pain and loneliness. Trauma can cause long-lasting biological effects, contributing to chronic conditions and mental health issues in later life. Healthcare providers are encouraged to adopt a “trauma lens” when addressing end-of-life care.
CMS memo hints at what hospices can expect under Special Focus Program
McKnight's Home Care; by Adam Healy; 10/8/24
Hospices subjected to Special Focus Program (SFP) scrutiny will undergo frequent surveys, and noncompliant providers may face termination from the Medicare program, according to the Centers for Medicare & Medicaid Services. Under the SFP, hospices will receive surveys no less than every six months, and follow-ups may be needed, CMS said in a memo to state hospice survey agencies. Hospices that are found to have condition-level deficiencies will be required to complete appropriate enforcement remedies, which include suspension of payment, civil money penalties, directed plans of correction, directed in-service training or termination, according to CMS’ state operations manual. Hospices that have completed two SFP surveys within 18 months, have zero uncorrected condition-level deficiencies and zero pending immediate jeopardy or condition-level complaints may graduate from the SFP, CMS said. However, any hospice that does not comply with all of CMS’ requirements within the necessary timeframes may be considered for termination.
Concurrent/simultaneous services from Hospice and a Home and Community Based Services waiver
Media.Alabama.gov; State of Alabama Press Release - Medicaid; 10/8/24
The Alabama Medicaid Agency (Medicaid) updated the policy to allow concurrent services from hospice and a Home and Community-Based Services (HCBS) Waiver. However, it is vital that the hospice and HCBS waiver case manager coordinate to avoid duplication of services. The HCBS waiver person-centered care plan (PCCP) and hospice plan of care (POC) of the recipient should be coordinated between the hospice, HCBS waiver case manager, and the recipient and his/her caregiver. A conference that includes these parties must be held before concurrent services can start. The PCCP/POC conference shall be documented in both the recipient’s hospice and waiver record. The PCCP/POC should specify all concurrent services, the frequency of services, and which entity will provide the service. Each HCBS Waiver service included in the PCCP/POC should have an explanation as to why the service is not covered under hospice. [Click on the title's link for more information.]
Is end-of-life care consistent with wishes of patients with dementia?
Oklahoma University News, Oklahoma City, OK; by April Wilkerson; 10/8/24
Soon after a dementia diagnosis, many people document their preferences for medical care near the end of their lives, often stipulating that they want to avoid hospitalizations and aggressive interventions. A new University of Oklahoma study aims to discover whether the actual care they receive aligns with their preferences. Lee Jennings, M.D., a geriatrician and associate professor in the OU College of Medicine, recently received a $2.3 million grant from the National Institutes of Health to analyze the end-of-life experiences of about 550 people with dementia, as well as their caregivers. The findings will advance medical knowledge of how best to care for people with an incurable disease that often robs them of their cognition, causes swallowing disorders, and leads to immobility and falls. An estimated 5 million Americans are affected by Alzheimer’s disease and related dementias, a number that is expected to increase to 10.5 million over the next 25 years.
Home health sector leads healthcare job growth in September: BLS
McKnight's Home Care; by Adam Healy; 10/7/24
Last month, the number of jobs in home healthcare increased by 13,000. That compares with employment gains of 12,000 in hospital care and 9,000 in nursing and residential care facilities. Meanwhile, medical and diagnostic laboratories saw roughly 1,400 workers leave the field. There were approximately 1.8 million home healthcare workers in the US as of September, according to the BLS. That represents a roughly 8.6% increase in the number of home health jobs over the past 12 months.
Managers play crucial role in retaining long-term care staff, expert says
McKnight's Senior Living; by Kathleen Steele Gaivin; 10/9/24
Managers play a crucial role in retaining direct care workers in long-term care for older adults, Philip Taylor, PhD, FGSA, said Monday during a webinar hosted by the Gerontology Institute at Georgia State University and the Southern Gerontological Society... “The essence of the project was that amid concern about the sector’s workforce, there’s a need to problematize leadership and management to think about their skills deficits and how we might go about addressing them, and to consider the impact of that on the workforce and also ultimately on care quality,” Taylor said. “So I’m interested in these people managing facilities or managing their services.”
Ransomware attack at Texas health system spreads
Becker's Health IT; by Giles Bruce; 10/9/24
When hackers strike a health system, it can have far-reaching effects beyond just the original target. That's been the case with the Sept. 26 ransomware attack against Lubbock, Texas-based UMC Health System. That event has also ensnared Lubbock-based Texas Tech University Health Sciences Center and Texas Tech Physicians, which share IT systems with UMC Health. The medical school and its affiliated physician group are now in downtime, unable to access their EHR or receive patient portal messages or faxes. Their phone lines are experiencing intermittent outages as well. However, their clinics remain open, as do their pharmacies, albeit with reduced capacity.
Indianapolis Moms: How furry friends can help with grief and depression
WISHTV.com, Indianapolis, IN: by Ashley Fowler; 10/9/24
Our four-legged friends can bring us laughter, joy, and love. But one Indianapolis woman says they can also help us heal. Roleen Demmings has written about her challenges with depression and grief after the death of her mother. ... “My mom was in hospice. She had cancer. My sister and I were her caretakers, and throughout that time, we noticed that we were gaining weight,” Demmings said. “We didn’t want to get out of bed; we had to force ourselves to and we realized the depression setting in even before she died.” She says she knew she needed to exercise more, eat better, and go to therapy, but then she found a non-traditional way of coping: a handsome Newfoundland/Poodle mix named Remy. “Those days where I didn’t want to get out of bed, I knew I had to walk him ... He doesn’t understand depression, but, y’know, he’s really helped me with mine,” Demmings said. “While we were going through our sadness, he really was a light for us. I call him our lifeboat in the sea of depression.”
Immediately after hurricane Maria hit Puerto Rico, I was extremely concerned about my family, friends and all the people in Puerto Rico. I felt helpless and could not concentrate not knowing if my family and loved ones were safe. I wanted to help my people as fast as I could. ~ Yadier Molina
Editor's note: As we wake to breaking news this morning about Hurricane Milton, we send care for all who are there, the many who have evacuated, and the millions who have family and friends in affected areas. Hurricane See this issue's "Breaking News." Helene victims: you are not forgotten.
The Fine Print:
Paywalls: Some links may take readers to articles that either require registration or are behind a paywall. Disclaimer: Hospice & Palliative Care Today provides brief summaries of news stories of interest to hospice, palliative, and end-of-life care professionals (typically taken directly from the source article). Hospice & Palliative Care Today is not responsible or liable for the validity or reliability of information in these articles and directs the reader to authors of the source articles for questions or comments. Additionally, Dr. Cordt Kassner, Publisher, and Dr. Joy Berger, Editor in Chief, welcome your feedback regarding content of Hospice & Palliative Care Today. Unsubscribe: Hospice & Palliative Care Today is a free subscription email. If you believe you have received this email in error, or if you no longer wish to receive Hospice & Palliative Care Today, please unsubscribe here or reply to this email with the message “Unsubscribe”. Thank you.