Literature Review

Iowa introduces "Mason's Law" to become 1st state to have a pediatric palliative care center license Cision PRWeb, Des Moines, IA; by Children's Respite Homes of America; 3/31/25 In a historic move, the Iowa State Legislature has taken a groundbreaking step to support families with medically fragile children by introducing House File HF 933 (formerly HSB 267). This legislation, known as "Mason's Law," would make Iowa the first state in the nation to establish a dedicated "Pediatric Palliative Care Center" license, laying the foundation for a new model of care for children with chronic, complex, and life- threatening illnesses.

White House cuts $12B in health funds: 5 updates Becker's Hospital Review; by Madeline Ashley and Kristin Kuchno; 3/26/25 HHS has abruptly canceled more than $12 billion in grants to state health departments that supported efforts to track infectious diseases, expand mental health services and modernize outdated systems, according to The New York Times. Late March 25, state health departments started receiving notices that $11.4 billion in grants from the CDC and roughly $1 billion in funds from the Substance Abuse and Mental Health Services Administration were being canceled immediately. “No additional activities can be conducted, and no additional costs may be incurred, as it relates to these funds,” the notices said, according to the Times. [Continue reading ...]

Dana Trabulsy bill aims to help families get death certificates faster Florida Politics; by Gabrielle Russon; 3/27/25  'This will solve a problem and be able to help these families move on sooner with the things that they need to do to start healing.'Families whose loved ones die in hospice are often stuck waiting for death certificates because of a backlog. One lawmaker wants to speed up the process to help them get the documents they need. Fort Pierce Republican Rep. Dana Trabulsy is pushing a bill that would allow advanced practice registered nurses providing hospice care to sign death certificates with a physician’s protocol. HB 647 passed its first committee stop Thursday with a 17-0 vote in front of the Health Professions and Programs Subcommittee.

The Healing of America with T.R. Reid TCNtalks Podcast; podcast by Chris Comeaux with T.R. Reid; 3/26/25 In this episode of TCN Talks, host Chris Comeaux interviews NY Times bestselling author T. R. Reid.  They discuss T. R. Reid’s experiences and insights from researching healthcare systems around the world, particularly focusing on the need for universal coverage and the various models of healthcare delivery. ... This is a great listen as the U.S. spends more on healthcare, yet we are not even in the top 10 in the world.  It’s hard to make one aspect of healthcare successful, like Hospice and Palliative Care, if the broader ecosystem it resides in is flawed and unsustainable.  Join us; this is very timely.

Utah funeral home is first in state to offer "human composting" as a green alternative to traditional burials Salt Lake City Weekly, Salt Lake City, UT; by Aimee L. Cook; 3/19/25 ... Jason and Shayneh Starks, who opened [Starks Funeral Parlor in Millcreek] in 2005, offer their clients an innovative and environmentally conscious option—natural organic reduction (NOR), often called human composting. This process transforms the deceased into nutrient-rich soil over a period of 8 to 12 weeks. While the concept may sound unconventional to some, it's gaining traction with families in Utah and beyond, ... "We're seeing a lot of interest from environmentally conscious individuals who want a natural, meaningful way to return to the earth," observed Shayneh Starks, who has worked in funeral services since 1995. Natural organic reduction has already been legalized in states like Washington, Oregon and California, but Utah has yet to officially approve this process.  Currently, Starks Funeral Parlor assists families who wish to choose this option by transferring remains out of state to Seattle, ensuring that those who value NOR have access to it.

Disparities in end-of-life symptom burden linked to complex interplay among wealth, health, and social supportJAMA Network Open; Peter A. Boling, MD; 3/25On average, US health care spending in the last year of life alone was $80,000, with 12% ($9,500) being out of pocket and mostly incurred before the final 6 months. This problem worsened in the past decade when the nonspecific diagnosis of failure to thrive was removed as a condition eligible for hospice care and more stringent definitions were applied for dementia, which became the next bubble as the hospice balloon was squeezed. Hospice care is a means of reducing symptom burden, but the Medicare payment model discourages prolonged enrollment during slowly progressing advanced chronic illness and effectively limits funding of social support during hospice care, which is particularly problematic for patients with cognitive and functional impairment and for their friends and families. Considering suffering as a medical condition warranting treatment rather than a social problem requiring support services might help with the evolution of a Medicare policy that might provide a more graduated approach to end-of-life care.

Hospice community responds to proposed DEA telehealth prescribing rule Hospice News; by Jim Parker; 3/20/25 A proposed rule by the U.S. Drug Enforcement Administration (DEA) could impede timely access to medications for hospice and palliative care patients, according to members of the hospice community. ... If finalized, this proposed rule would require prescribers to register with the DEA before they are allowed to prescribe schedule II-V controlled substances, along with some monitoring and other requirements.  ... Implementation of the proposed rule would have adverse consequences for hospice and palliative care patients, according to the National Alliance for Care at Home. ... The Alliance made several recommendations to the DEA regarding the proposal: 

Congress extends telehealth flexibilities: 5 notes Becker's Health IT; by Naomi Diaz; 3/17/25 Congress has passed a federal spending bill that extends telehealth provisions through Sept. 30, 2025. ... Here are five key telehealth-related elements of the bill:

Congress passes telehealth, hospital-at-home in funding bill Modern Healthcare; by Michael McAuliff; 3/14/25 Congress completed work on a government funding bill Friday that modestly trims spending, gives President Donald Trump greater flexibility to cut programs and extends expiring healthcare priorities. In a 54-46 vote, the Senate approved legislation the House passed Tuesday that prevents the partial government shutdown that would have commenced at midnight EDT. ... The "continuing resolution," or CR, funds government operations through fiscal 2025, which ends Sept. 30, and extends and finances key healthcare programs for the same duration. Those include reauthorizing Medicare reimbursements for telehealth and hospital-at-home services, originally authorized during the COVID-19 pandemic; ...

MedPAC’s flawed recommendations would harm patients and increase costs National Alliance for Care at Home, Alexandria, DC and Washington, DC; Press Release; 3/14/25 The National Alliance for Care at Home (the Alliance) released the following statement on the Medicare Payment Advisory Commission’s (MedPAC) March 2025 Report to Congress: Medicare Payment Policy. ... “MedPAC’s recommendations are based on flawed and incomplete analyses with conclusions unsupported by all the available facts. These recommendations severely undervalue the critical role that home health and hospice providers play in ensuring the health and well-being of Medicare beneficiaries,” said Alliance CEO Dr. Steve Landers. “Recommending unthinkable cuts for home health and stagnant payment rates for hospice in the face of workforce shortages and inflation threaten access to these vital services for our aging population and undermine the dedicated providers who support them. ..."

Empath Health CEO to Congress: Invest in home-based care Hospice News; by Jim Parker; 3/11/25The federal government must invest further in home-based care, Empath Health CEO Jonathan Fleece told lawmakers at a hearing with the U.S. House of Representatives Ways & Means Health Subcommittee. leece was among several post-acute care leaders who appeared at the hearing, representing home health, hospice, skilled nursing facilities, rehabilitation hospitals and other stakeholders. In opening remarks, Fleece pointed to the benefits of home-based care for patients and families, as well as the sector’s ability to reduce health care costs. 

Amid huge growth in Southern Nevada’s hospice industry, lawmaker pushes for more oversight The Nevada Independent; by Tabitha Mueller; 3/5/25 The number of licensed hospice providers in Southern Nevada jumped by more than 350 percent since 2020 — a proliferation combined with minimal industry regulation that health care experts warn harms patients and leads to fraud. To address the issue, Assm. Rebecca Edgeworth (R-Las Vegas) is sponsoring AB161, which is scheduled for a hearing Wednesday. The measure, Edgeworth said, is a way to “raise the bar” for hospice providers and protect patients. “In the last few years, there has been this horrendous influx of charlatans and flimflam artists,” Edgeworth told The Nevada Independent.

Here's how the federal funding freeze is impacting Kodiak organizations KMXT, Kodiak, AL; by Davis Hovey; 2/28/25 Billions of dollars in federal funding going to Alaska nonprofits and other entities are in jeopardy after a funding freeze implemented by the Trump administration. The fallout in Kodiak is impacting domestic violence shelters, agriculture programs and many other organizations. ... And then there are indirect impacts. For example, Hospice & Palliative Care of Kodiak relies partially on money from entities who have had their funding frozen. Hospice is a non-medical entity and the only one providing end-of-life services for those experiencing serious illness, death and bereavement in Kodiak. Executive director Diane Ibarra explained the organization’s funding structure during a local public affairs show, ... "So although we’re not directly reliant on federal funds, the people that often donate to us are. So if federal funding goes out the window, there goes our funding," Ibarra explained.