Literature Review

[Updates] New York expected to enact medical aid in dying law in 2026 Nixon Peabody; Press Release; 12/29/25 Explore key amendments and compliance steps in the amended bill, which is expected to take effect in 2026. What’s the impact?

Translating the value of palliative transfusions for patients with blood cancers into high-quality end-of-life careJAMA Network Open; by Pamela Egan, Dana Guyer; 11/25Studies have described how patients with blood cancers enroll in hospice care at lower rates than patients with solid tumor cancers, receive more futile chemotherapy, are more likely to seek emergency care at the EOL [end of life] , are more likely to be treated in intensive care units, and are more likely to die in hospital settings than their counterparts with solid tumors. The Medicare hospice benefit is structured in such a way that providing transfusions is cost prohibitive for hospice agencies. It is time to heed the call from the American Society of Hematology and palliative care and hospice agencies nationwide to revise the Medicare hospice benefit such that patients with blood cancers can receive hospice care as soon as their cancer-directed treatments are no longer valuable without sacrificing the quality-of-life–sustaining transfusions. This will be an important step toward ensuring high-quality EOL care for patients with hematologic malignant neoplasms.

Gov. Hochul reaches agreement with NY Legislature to pass Medical Aid in Dying Act NBC News 10, Rochester/Albany, NY; by Evan Bourtis; 12/17/25 Gov. Kathy Hochul has reached an agreement with the New York State Legislature to allow medical aid in dying for terminally ill people. ... Hochul announced the agreement and published an op-ed in the Times Union on Wednesday. In the op-ed, Hochul said she proposed changes to the bill’s language, which sponsors and legislative leaders have agreed to include. She said she’ll sign the bill once the legislature returns to Albany. You can read the op-ed here. ...  Hochul wanted more protections in the bill’s language. Here is the updated list of safeguards in the bill: ...

House passes legislation that extends acute hospital care at home program through 2030 Health IT Answers | Industry News; 12/15/25 ATA Action, the advocacy arm of the American Telemedicine Association, comments on the U.S. House passing the U.S. House of the Hospital Inpatient Services Modernization Act (H.R. 4313) recently, which extends the Acute Hospital Care at Home (AHCaH) program through 2030. This is an important step to avert another lapse of essential care for Medicare patients on January 30, 2026. ... “In a solid show of bipartisan support, the House passed legislation under suspension, to ensure that millions of Medicare beneficiaries will continue to have access ..."

GUIDE and beyond: Strategies for comprehensive dementia care integrationJournal of the American Geriatrics Society; by Kristin Lees Haggerty, David B Reuben, Rebecca Stoeckle, David Bass, Malaz Boustani, Carolyn Clevenger, Ian Kremer, David R Lee, Madelyn Johnson, Morgan J Minyo, Katherine L Possin, Quincy M Samus, Lynn Spragens, Lee A Jennings, Gary Epstein-Lubow; 10/25The Centers for Medicare & Medicaid Services' (CMS) Guiding an Improved Dementia Experience (GUIDE) Model represents a landmark opportunity to improve outcomes for persons with dementia and their caregivers and scale comprehensive dementia care through a structured service delivery and alternative payment approach.  Drawing from the experiences of six previously tested programs ... we describe a four-step approach to enable successful adoption and implementation: identifying key leaders and partners, preparing a tailored value proposition, initiating program start-up, and ensuring sustainable implementation. We highlight practical tools and resources to address operational challenges, including electronic health record integration, reimbursement strategies, and staff training. By focusing on evidence-based models, health systems and other providers can accelerate implementation, reduce costly emergency and institutional care, and deliver high-quality, person-centered support. This approach can help to empower GUIDE participants and others to build effective, durable, scalable comprehensive dementia care systems, ultimately advancing the goal of establishing such care as a permanent Medicare benefit.

New Jersey organ procurement organization under congressional investigation after ‘alarming’ whistleblower claimsCNN; by Jen Christensen; Story by Jen Christensen, 11/24/25 The US House Ways and Means Committee said Wednesday that it is investigating the organ procurement organization for the New Jersey region for what it called “extreme abuse of public trust” and possible illegal activity, including trying to procure organs from people who didn’t volunteer to be donors and, in at least one case, trying to continue with the organ recovery process in a patient who had “reanimated.”

[United Kingdom] Warning issued as palliative care in England is ‘failing to meet people’s needs’ Independent; by Ella Pickover; 11/27/59 Palliative care services in England are "failing to meet people’s needs", a new parliamentary report has warned. Commissioned by MPs on the House of Commons Health and Social Care Committee, the findings attribute these shortcomings primarily to "insufficient funds" for services providing end-of-life and life-limiting condition care. The report highlighted that bereavement support for loved ones, while "valuable", is "frequently inaccessible". It also noted that palliative care patients and their families are "too rarely given the opportunity to plan effectively for the future". Painting a picture of services under "significant strain", the document cautions that health and care provisions are "ill-equipped" to address end-of-life needs, citing "insufficient" education and training.Editor's Note: Our ongoing distribution of posts from the United Kingdom report financial cuts from the UK government, resulting in insufficient funds to provide adequate staffing, facilities, supplies, and more. Want to learn more? Subscribers can login to your account and use the "Search Articles" field to find other posts, based on keywords you enter.

States’ promising practices to improve care of serious illness National Academy for State Health Policy (NASHP); by Stacie Sinclair (Center to Advance Palliative Care) and Wendy Fox-Grage; 11/17/25 Every state has taken meaningful action in some capacity to improve care for residents facing serious illness, affirms a recent publication from the Center to Advance Palliative Care (CAPC). The report documents how states are using a wide array of policy levers — such as legislation, Medicaid innovation, public education, and workforce development — to improve access to and quality of palliative care. 

Hospital-at-home programs gripped by uncertainty Modern Healthcare; by Diane Eastabrook; 11/17/25 ... Stopgap legislation signed into law last week continues the Centers for Medicare and Medicaid Services Acute Hospital Care at Home waiver until the end of January. The short extension is creating more confusion and uncertainty for health systems hoping to start or scale hospital-at-home, said Dr. Stephen Dorner, chief of clinical operations and medical affairs at Mass General Brigham’s Healthcare at Home program. Guest Editor’s Note, by Judi Lund-Person: Health systems who had Hospital-at-Home programs are rethinking their plans to reopen their programs, largely due to the very short waiver extension until January 30,  2026. According to Modern Healthcare, a bill has been introduced, titled the “Hospital Inpatient Services Modernization Act.” The waiver for Hospital-at- Home would be extended for five years, through the end of 2030.

Federal government re-opens CHAP; Press Release; 11/13/25 On November 12, the U.S. House passed the Senate Amendment to H.R. 5371, ending the 43-day government shutdown. The continuing resolution (CR) provides funding for most agencies through January 30, 2026, at current levels, and grants full-year 2026 funding to select departments, including Agriculture, FDA, Legislative Branch, military construction, and Veterans Affairs. It also contains measures relevant to the home care community. 

National Alliance CEO Steve Landers on hospices’ top policy priorities Hospice News; by Jim Parker; 11/6/25Medicare advantage and telehealth are key hospice policy priorities for the National Alliance for Care at Home. On the home health front, the organization is also embroiled in efforts to stave off proposed payment and Medicaid cuts. The Alliance came into being last year with the merger between the National Hospice and Palliative Care Organization and the National Association for Home Care & Hospice. Hospice News spoke with Alliance CEO Dr. Steven Landers about how the two legacy organizations are integrating, the hospice public policy landscape and how providers can get involved at a grass roots level.

Spain proposes major expansion of bereavement and palliative care leave Spanish News Today; 10/21/25 The Spanish Ministry of Labour has presented a draft Royal Decree that would significantly extend the amount of paid leave workers can take following the death of a close relative or when caring for a loved one receiving palliative care. Under the proposal, employees would see their bereavement leave increased from the current two days to ten working days in the event of the death of a spouse, common-law partner, child, parent, sibling, grandparent, or grandchild. One of the most important changes is flexibility: these ten days would not need to be taken consecutively.Editor's Note: For ongoing bipartisan advocacy for bereavement leave legislation throughout the United States, visit Evermore.org/advocacy.