Literature Review

Disability advocates challenge Illinois ‘aid-in-dying’ law llinois Public Media | NPR | PBS; by Brian Mackey; 6/23/26 Illinois aid-in-dying law is set to take effect in September. It’s meant to give terminally ill patients a medical way to end their lives. But opponents call it “assisted suicide,” and they’ve joined with disability advocates trying to block the law in court. We’ll hear from people on both sides of that debate. [This article provides links to multiple sources, addressing "both sides of that debate."]

Dying patients shouldn’t have to choose between dia­lysis care and com­fort The Boston Globe, Boston, MA; by Patricia Ramsden; 6/22/26 ... Medi­care cur­rently requires most end-stage kid­ney fail­ure patients to choose between dia­lysis and hos­pice bene­fits. ... People dying from other ter­minal ill­nesses do not face this harsh choice. For sev­eral years, Dia­lysis Clinic, Inc. (DCI), the only national not-for-profit dia­lysis organ­iz­a­tion, has col­lab­or­ated with not-for-profit hos­pice organ­iz­a­tions to offer con­cur­rent pal­li­at­ive dia­lysis and hos­pice care to selec­ted patients in Ten­nessee and West­ern Pennsylvania. A 2026 col­lab­or­a­tion between DCI and Care Dimen­sions, the largest hos­pice pro­vider in the state, expan­ded that model to East­ern Mas­sachu­setts. However, this innov­at­ive pro­gram, rely­ing on phil­an­thropic fund­ing, remains avail­able only to a few patients.

Hospice, ethics & capitalism:  a powerful conversation with  UVA Darden School of Business — part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Lauren Kaufman and Stephen Maiden; 6/17/26 Few topics spark more debate in healthcare than the intersection of compassionate care, ethical responsibility, and financial sustainability. Will mission-driven hospice organizations survive—and thrive—in a healthcare landscape increasingly dominated by for-profit providers? In Part One of this compelling conversation, host Chris Comeaux welcomes Lauren Kaufmann, Assistant Professor of Business Administration at the University of Virginia Darden School of Business, and Stephen Maiden, Managing Director of the Darden Case Writing Research Group. Together, they discuss the groundbreaking business case developed around Teleios Collaborative Network and the evolving hospice industry.

The pain of caring for a parent who abused youDNYUZ; 6/16/26 It started in January 2024, with a call from her father’s eye doctor. Did Carole know that Andre was still driving, even though his vision was so poor? Even though it was illegal to drive with eyesight so bad? Well, no, she didn’t; she made a point not to know this sort of thing about her father. Also, she didn’t really care. Still, Carole drove to his house, on the outskirts of Santa Rosa, Calif., down long dirt roads surrounded by vineyards. ... And there was her father, 93, standing by the front door, on that filthy rug, next to the maroon-colored walker that he hated to use. Looking small, looking weathered. ... 

Who are hospital ethics consultants, and why should you care? The Conversation; by Jennifer McCurdy; 6/2/26 Imagine the following scenarios:

First do no harm: communication surrounding non-beneficial treatments American Journal of Hospice and Palliative Medicine; by Cassie Stanzler, MD, Adam Marks, MD, MPH, and Laura Taylor, MD, MSc; 5/21/26 Despite a consensus in the medical community that clinicians should not offer non-beneficial treatments (NBTs) to their patients, little guidance exists on the particular communication needs around this fraught topic. While intended in the spirit of non-maleficence, setting limits around NBTs can be seen by patients and families as abandonment, resulting in conflict. In this paper, we propose a framework to guide Palliative Care clinicians in communicating about these complex issues with patients and families. ... Our framework emphasizes proactive relationship building with patients and families, close attention to their values, and compassionate limit-setting when medically appropriate. 

UChicago expands its offerings in biomedical ethics NewsWise; by University of Chicago Medical Center; 5/22/26 The University of Chicago Biological Sciences Division is expanding its educational opportunities in biomedical ethics with two new offerings: a biomedical ethics concentration within its Master of Science in Biomedical Sciences (BMS) program and a new online biomedical ethics certificate through the MacLean Center for Clinical Medical Ethics. Together, the offerings are designed to meet growing demand from students and healthcare professionals seeking formal training in how to navigate ethical questions in medicine, research, and patient care. ... 

Mass General Brigham claims 1,400 lives saved hoodline, Boston, MA; by Benjamin Cortez; 5/21/26 Mass General Brigham says a two year, systemwide push to standardize safety checks, expand hospice and roll out predictive analytics sharply cut inpatient deaths, tallying more than 1,400 lives saved in two years by the health system’s own math. Several front line physicians inside those hospitals are not buying it. They argue that shifts in hospice placement and clinical documentation, not overnight miracles in bedside care, probably explain much of the improvement. The result is a rare, very public tug of war between executives celebrating quality rankings and clinicians who say the numbers do not line up with what they see on the wards.

Proposing a framework to license autonomous clinical AI: as autonomous clinical AI continues to evolve, we need uniform regulatory standards, says LDI Fellow Penn LDI - Leonard Davis Institute of Health Economics; by Alon Bergman, PhD; 5/15/26 Late last month, Utah’s Medical Licensing Board called for the immediate suspension of the state’s pilot program with the AI company Doctronic. The program lets a chatbot evaluate patients and recommend prescription renewals for nearly 200 chronic condition drugs, with the state planning to phase out physician review of each case. The board said that it only learned about the pilot after it had launched. Its warning was blunt: proceeding without proper clinical oversight “potentially places Utah citizens at risk.” ... Utah is one of at least 47 states now considering more than 250 bills governing clinical AI, producing a patchwork of rules on bias audits, payment policy, and patient consent.Editor's Note: See related article by the same author Alon Bergman, AI doctors should be licensed. Here’s a framework to do that: Utah's pilot program with Doctronic shows that federal action is necessary. 

The professional guest: Ethical challenges in home-based end-of-life care among interprofessional teamsNursing Ethics; Inbal Halevi Hochwald, Gila Yakov, Moran Weiss, Liron Inchi, Inbal Mayan, Ron Sabar; 4/26Home-based end-of-life palliative care presents unique ethical challenges that differ fundamentally from those in institutional settings. Healthcare professionals navigate the complex role of being both clinical experts and guests in patients' domestic environments, operating in a context where professional authority is continuously negotiated rather than institutionally established. Home-based palliative care places professionals at the intersection of clinical responsibility and domestic sovereignty, a position for which existing frameworks offer insufficient guidance. Addressing these structural and relational challenges requires both individual-level preparation, including training in ethical decision-making in low-control environments, and systemic policy reform.

AI ethical minefields in clinical decision-making Hospice News; by Holly Vossel; 5/11/26 ... Quickly evolving AI technologies will play a role in hospices’ sustainability as demand rises and workforce resources dwindle. Hospices need innovative care models, which involves leveraging AI in different ways, said Dr. Kimberly Curseen, the new board of directors president at the American Academy of Hospice and Palliative Medicine (AAHPM). ... Ensuring accurate data and safeguarding patient privacy and autonomy can lead companies to run into certain AI ethical “danger zones.” Hospices need to understand the limitations of AI, particularly when considering the use of these technologies to augment clinical decision making, according to Dr. Javier Zaglul, hospice and palliative care fellow at Florida Atlantic University.