Literature Review

It takes more than love to care for a loved one Tri-Cities Area Journal of Business; guest column by Jason Erskine, AARP; 11/5/24 Chances are, if you aren’t a family caregiver, you know someone who is. Every day, more than 820,000 Washingtonians help their parents, spouses, siblings, grandparents, neighbors and other loved ones to live independently at home – where they want to be. November is National Family Caregivers Month, a time to highlight the important work these folks do. But simply thanking them isn’t enough. ... AARP and United Way have teamed up to connect caregivers with trained, compassionate people in your community who can help you find AARP caregiving resources and more. It’s called 211, it’s a free service, and you can talk to specialists who can help you find local resources for caring for your loved one … and for yourself too. ... AARP Washington is here to help with information and resources to support and connect caregivers. Go to: aarp.org/caregiverswa.

Patient, staff satisfaction biggest ROIs of trauma-informed hospice care Hospice News; by Holly Vossel; 10/23/24 Improved patient and staff satisfaction are among the most significant returns on investment for hospices that are pouring greater resources into trauma-informed training. The ability to build a trusting relationship with patients and their families is a key skill set for any hospice professional to possess, but one that takes on a profoundly different meaning when caring for survivors of abuse, violence and trauma. This is according to Amber Ash, pediatric hospice and palliative care social worker at Ohio-based Hospice of the Western Reserve. Trauma-informed education should be a normalized part of hospice’s interdisciplinary training to help staff recognize and respond to a range of experiences, Ash indicated. This type of training can help provide opportunities for improved goal-concordant care while also aligning with staff’s professional goals and personal values, she stated. 

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Elder abuse is unreported. City employees will now be trained to recognize it. San Antonio Report, TX; by Iris Dimmick; 8/21/24 City of San Antonio employees will soon be trained on how to identify and report elder abuse thanks to a collaborative effort to increase awareness of the underreported “crisis” gripping the community. City Council’s Public Safety Committee greenlit the policy Tuesday, which directs the city’s Department of Human Services and Texas Adult Protective Services (APS) to develop training curricula for staff. ... The largest share of elderly abuse cases in Bexar County is reported by medical personnel, followed by relatives, community agencies and the victims themselves. In 2022, a woman died in a local hospital after her three adult children allegedly neglected her hospice care. In 2018, a caretaker in San Antonio was charged with several felonies after police found an elderly, disabled woman was languishing in soiled clothes for months at a time.Editor's Note: What elder neglect and abuse training do you require for your hospice and palliative care interdisciplinary team members and volunteers? What incident reporting and follow-up systems do you have in place? The CMS Hospice Conditions of Participation requires the patient's comprehensive assessment to include "a thorough evaluation of the caregiver's and family's willingness and capability to care for the patient." Subpart A, § 418.3 

Homecare Homebase opens nominations for 2024 Home Care Aide Scholarship Program PRNewswire-PRWeb; 7/23/24 Homecare Homebase (HCHB) ... and the National Association for Home Care & Hospice (NAHC) are proud to announce the opening of nominations for the 2024 Home Care Aide Scholarship Program. This annual program awards $1,000 scholarships to 15 deserving home care aides across the country, recognizing their dedication to providing exceptional care and supporting their professional development. The scholarship program helps address the growing need for aides in the home care workforce, enabling these essential workers to pursue further education and advance their careers. ... Nominations for the 2024 Home Care Aide Scholarship Program are now open and will be accepted through September 30th, 2024.

Dementia decisions: Making tough choices about hospice, palliative care Being Patient; by Katy Koop; 6/25/24 In the later stages of Alzheimer's, palliative and hospice care can be necessary. But how do you find a facility designed for dementia patients? ... Dr. Maribeth Gallagher, director of Arizona’s Hospice of the Valley dementia program, joins Being Patient video reporter Mark Niu to discuss how to make these difficult decisions and what makes a palliative or hospice care program “dementia-capable.” Gallagher’s work directing the Hospice of the Valley’s dementia program has received national and international awards for its innovative approaches. Her focus on dementia care was initially inspired by her personal experiences as a family caregiver, sharing the journey with her loved one from diagnosis to death. [Click on the title's link for the full conversation, in both audio and text.]

Hospice of Marion County trains first responders to care for dementia patients Hospice News; by Jim Parker; 6/18/24 Florida-based Hospice of Marion County, an affiliate of Empath Health, is training first responders in its community on how to treat dementia patients. For several years, the nonprofit hospice has been educating family caregivers and others in their community about the experiences of dementia patients and how to better interact with them. More recently, Hospice of Marion County [Ocala, Florida] has been expanding that training to include local law enforcement and fire departments, as well as medical students and staff at assisted living facilities, among others. The training uses a series of tools to simulate symptoms of dementia, related to visual, tactile, auditory senses, their ability to process information and perform certain tasks. The education helps first responders address the unique challenges associated with caring for dementia patients, according to Dr. Mery Lossada, chief medical officer of Hospice of Marion County.Editor's Note: Bravo, Hospice of Marion County!

The Aging Revolution: Growing old in America becoming more dignified, but with senior population booming, is nation’s health system prepared?BusinesssWire; 6/4/24A half-century after renowned gerontologist, psychiatrist and author Dr. Robert Butler ridiculed the nation’s medical establishment for ignoring the suffering of older Americans, Northwell Health today announced the publication of The Aging Revolution: The History of Geriatric Health Care and What Really Matters to Older Adults, which chronicles the significant advancements made in improving the physical and emotional health of the nation’s rapidly aging population. 

19 myths about dying people need to stop believing Million Dollar Sense; by Anuradha Supun; 5/29/24 

Educating the future of hospice and palliative carePortage.life; by Center for Hospice Care; 5/21/24This spring students at the University of Notre Dame gained insight into the delivery of care to patients and families dealing with serious advanced illnesses. The university, in partnership with Center for Hospice Care (CHC), once again offered the course “Introduction to Hospice and Palliative Care” that was designed by Dr. Dominic Vachon, Director of Ruth M. Hillebrand Center for Compassionate Care in Medicine and Mike Wargo, COO and vice president of the Hospice Foundation. The five-week class covered a variety of topics focused on hospice and palliative care and was taught by CHC staff including physicians, social workers, chaplains, bereavement counselors and other hospice and palliative care support staff.

Paris in spring, Bali in winter. How ‘bucket lists’ help cancer patients handle life and death The Conversation; by Vivan Lam; 5/8/24 In the 2007 film The Bucket List Jack Nicholson and Morgan Freeman play two main characters who respond to their terminal cancer diagnoses by rejecting experimental treatment. Instead, they go on a range of energetic, overseas escapades. Since then, the term “bucket list” – a list of experiences or achievements to complete before you “kick the bucket” or die – has become common. ... But there is a more serious side to the idea behind bucket lists. One of the key forms of suffering at the end of life is regret for things left unsaid or undone. So bucket lists can serve as a form of insurance against this potential regret. The bucket-list search for adventure, memories and meaning takes on a life of its own with a diagnosis of life-limiting illness. Editor's Note: Health acuity (especially for hospice patients), finances, and other practical factors can prevent acutalization of the person's bucket list wishes. Yes, fulfilling items can happen! And when not possible (perhaps the most common response), the clinician's sensitive presence, validation of the person's hope, and gentle exploration of why it matters can bring relevant, meaningful support. Involving family members (with the patient's permission) can inspire other generations to fulfill the person's wish, bringing new purpose to mourning and grief-restoration processes ahead.

What every family should know about navigating hospice care: The keys to experiencing a peaceful, gentle, and dignified death Psychology Today; by Bob Uslander, MD; 5/7/24... As a physician with 35 years of experience, including 25 years as an emergency physician and 10 years as a palliative and end-of-life care specialist, I've witnessed firsthand the stark realities of palliative and hospice care.  ... Let me be clear: Hospice care is an enormous benefit to many people, and I am often awed by the level of compassion and commitment I witness among some hospice staff I encounter. Despite this, there are many gaps, the care can be inconsistent, and hospice care is frequently not the appropriate option for people who are encouraged down that path.

Exploring unmet concerns in home hospice cancer care: Perspectives of patients, informal caregivers, palliative care providers, and family physicians Cambridge University Press; by Eran Ben-Arye, Noah Samuels, Yael Keshet, Miri Golan, Erez Baruch, and Jama Dagash; 4/8/24 Objectives: The study examines perspectives of patients in home hospice care; their informal caregivers; palliative health-care providers (HCPs); and family physicians, all regarding patients’ unmet needs and quality of life (QoL)-related concerns.Conclusions: While the 4 groups were similar in their scoring of patient QoL-related concerns, there were discrepancies for some concerns (e.g., patient fatigue) and expectations regarding the need to discuss emotional and spiritual concerns, including on death and dying. Educational initiatives with programs providing training to all 4 groups may help bridge this gap, creating a more open and collaborative hospice care environment.