Literature Review

Characteristics of patients enrolled in hospice presenting to the emergency department American Journal of Emergency Medicine; by Kayla P Carpenter, Fernanda Bellolio, Cory Ingram, Aaron B Klassen, Sarayna S McGuire, Alisha A Morgan, Aidan F Mullan, Alexander D Ginsburg; 12/9/24, online ahead of print Emergency Departments (EDs) frequently care for patients with life-limiting illnesses, with nearly 1 in 5 patients enrolled in hospice presenting to an ED during their hospice enrollment. This study investigates the reasons patients enrolled in hospice seek care in the ED, the interventions they receive, and their outcomes. ... Patients enrolled in hospice most frequently presented to the ED for trauma [36%; with 15% for pain, 12% for catheter/tube malfunction]. Most received laboratory studies and imaging. Nearly half of patients were admitted to the hospital and short-term mortality was high, particularly for patients enrolled in hospice for needs for ED care? Ie.,

Key differences between palliative and hospice care in California Psychology Today; by Bob Uslander, MD; 12/3/24 ... Key Difference Between Palliative and Hospice Care in California: Whether you’re looking for support early in an illness or need end-of-life care, Californians have resources available to help. California also has some unique programs and resources, such as palliative care programs for people covered by Medi-Cal, California’s Medicaid program. Additionally, California has strict laws to protect patients’ rights, ensuring that people are fully informed about your care options and can make choices that align with your personal values and cultural beliefs. Below are some of the key differences highlighted to help you make the best choice possible for you and your family when the time comes. [Click on the title's link for more information.]Editor's note: Through recent years, too many hospice agencies have eliminated references to end-of-life care, a life-expectancy of six months or less, and references to dying, death, or grief. Various fraud and abuse cases have described that persons/caregivers did not even realize they had signed up for "hospice" care. Ethically, this is untenable. Key differences between palliative and hospice care--with applications to the person--are significant.

It takes more than love to care for a loved one Tri-Cities Area Journal of Business; guest column by Jason Erskine, AARP; 11/5/24 Chances are, if you aren’t a family caregiver, you know someone who is. Every day, more than 820,000 Washingtonians help their parents, spouses, siblings, grandparents, neighbors and other loved ones to live independently at home – where they want to be. November is National Family Caregivers Month, a time to highlight the important work these folks do. But simply thanking them isn’t enough. ... AARP and United Way have teamed up to connect caregivers with trained, compassionate people in your community who can help you find AARP caregiving resources and more. It’s called 211, it’s a free service, and you can talk to specialists who can help you find local resources for caring for your loved one … and for yourself too. ... AARP Washington is here to help with information and resources to support and connect caregivers. Go to: aarp.org/caregiverswa.

Advance Directives: How to make sure your end-of-life decisions are followed Bottom Line Inc; by Mathew D. Pauley, JD; 10/24/24 Nearly 40% of older Americans have some form of advance directives, such as a living will to communicate wishes about life-saving treatment…or a medical power of attorney appointing a loved one as proxy if they’re incapacitated.  Problem: Your wishes may not always be followed in real-world situations. Examples: Emergency paramedics typically provide CPR to restart a patient’s heart even if that patient’s living will says otherwise. And complex medical circumstances at the end of life often arise that force your loved ones to make judgment calls about what you really want. Bottom Line Personal spoke to clinical ethicist Mathew Pauley about how to make sure hospitals, medical providers and family members follow your medical wishes.

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Elder abuse is unreported. City employees will now be trained to recognize it. San Antonio Report, TX; by Iris Dimmick; 8/21/24 City of San Antonio employees will soon be trained on how to identify and report elder abuse thanks to a collaborative effort to increase awareness of the underreported “crisis” gripping the community. City Council’s Public Safety Committee greenlit the policy Tuesday, which directs the city’s Department of Human Services and Texas Adult Protective Services (APS) to develop training curricula for staff. ... The largest share of elderly abuse cases in Bexar County is reported by medical personnel, followed by relatives, community agencies and the victims themselves. In 2022, a woman died in a local hospital after her three adult children allegedly neglected her hospice care. In 2018, a caretaker in San Antonio was charged with several felonies after police found an elderly, disabled woman was languishing in soiled clothes for months at a time.Editor's Note: What elder neglect and abuse training do you require for your hospice and palliative care interdisciplinary team members and volunteers? What incident reporting and follow-up systems do you have in place? The CMS Hospice Conditions of Participation requires the patient's comprehensive assessment to include "a thorough evaluation of the caregiver's and family's willingness and capability to care for the patient." Subpart A, § 418.3 

Homecare Homebase opens nominations for 2024 Home Care Aide Scholarship Program PRNewswire-PRWeb; 7/23/24 Homecare Homebase (HCHB) ... and the National Association for Home Care & Hospice (NAHC) are proud to announce the opening of nominations for the 2024 Home Care Aide Scholarship Program. This annual program awards $1,000 scholarships to 15 deserving home care aides across the country, recognizing their dedication to providing exceptional care and supporting their professional development. The scholarship program helps address the growing need for aides in the home care workforce, enabling these essential workers to pursue further education and advance their careers. ... Nominations for the 2024 Home Care Aide Scholarship Program are now open and will be accepted through September 30th, 2024.

Dementia decisions: Making tough choices about hospice, palliative care Being Patient; by Katy Koop; 6/25/24 In the later stages of Alzheimer's, palliative and hospice care can be necessary. But how do you find a facility designed for dementia patients? ... Dr. Maribeth Gallagher, director of Arizona’s Hospice of the Valley dementia program, joins Being Patient video reporter Mark Niu to discuss how to make these difficult decisions and what makes a palliative or hospice care program “dementia-capable.” Gallagher’s work directing the Hospice of the Valley’s dementia program has received national and international awards for its innovative approaches. Her focus on dementia care was initially inspired by her personal experiences as a family caregiver, sharing the journey with her loved one from diagnosis to death. [Click on the title's link for the full conversation, in both audio and text.]

Hospice of Marion County trains first responders to care for dementia patients Hospice News; by Jim Parker; 6/18/24 Florida-based Hospice of Marion County, an affiliate of Empath Health, is training first responders in its community on how to treat dementia patients. For several years, the nonprofit hospice has been educating family caregivers and others in their community about the experiences of dementia patients and how to better interact with them. More recently, Hospice of Marion County [Ocala, Florida] has been expanding that training to include local law enforcement and fire departments, as well as medical students and staff at assisted living facilities, among others. The training uses a series of tools to simulate symptoms of dementia, related to visual, tactile, auditory senses, their ability to process information and perform certain tasks. The education helps first responders address the unique challenges associated with caring for dementia patients, according to Dr. Mery Lossada, chief medical officer of Hospice of Marion County.Editor's Note: Bravo, Hospice of Marion County!

The Aging Revolution: Growing old in America becoming more dignified, but with senior population booming, is nation’s health system prepared?BusinesssWire; 6/4/24A half-century after renowned gerontologist, psychiatrist and author Dr. Robert Butler ridiculed the nation’s medical establishment for ignoring the suffering of older Americans, Northwell Health today announced the publication of The Aging Revolution: The History of Geriatric Health Care and What Really Matters to Older Adults, which chronicles the significant advancements made in improving the physical and emotional health of the nation’s rapidly aging population. 

19 myths about dying people need to stop believing Million Dollar Sense; by Anuradha Supun; 5/29/24 

Educating the future of hospice and palliative carePortage.life; by Center for Hospice Care; 5/21/24This spring students at the University of Notre Dame gained insight into the delivery of care to patients and families dealing with serious advanced illnesses. The university, in partnership with Center for Hospice Care (CHC), once again offered the course “Introduction to Hospice and Palliative Care” that was designed by Dr. Dominic Vachon, Director of Ruth M. Hillebrand Center for Compassionate Care in Medicine and Mike Wargo, COO and vice president of the Hospice Foundation. The five-week class covered a variety of topics focused on hospice and palliative care and was taught by CHC staff including physicians, social workers, chaplains, bereavement counselors and other hospice and palliative care support staff.