Literature Review

Hospice provider Navian Hawaii receives $4.3M gift from Weinman Foundation Pacific Business News; by Janis Magin; 2/25/25 Navian Hawaii formerly known as Hospice Hawaii has received a $4.3 million gift from the Weinman Foundation that the Honolulu based nonprofit is calling transformational. The donation from the foundation founded by the late Barrie and Virginia Weinman will allow Navian Hawaii to expand its residential care services ... [Access to the full article is behind a paywall.]Editor's note: Congratulations to Navian Hawaii for this significant--yes--"transformation" gift. 

Patients without family or health care proxies face overtreatment or limbo in hospitals WHYY - PBS; by Maiken Scott; 2/24/25 A program matches unrepresented patients with volunteers who can make care decisions for them during health care crises. ... [Intensive care physician David] Oxman says unrepresented patients are a small, but growing group. Some have outlived their family members, or are estranged from them. Maybe they’ve moved a lot, sometimes substance use or homelessness plays a role. The situation is especially complicated with patients who have dementia, or who can’t communicate their wishes for other reasons. ... Most states have provisions where medical guardians and medical decision makers can be appointed by a court, but that takes a long time. In the meantime, a search for relatives begins. David Sontag, director of ethics for Beth Israel Lahey Health in Massachusetts, ... created a matching program where health care professionals volunteer to represent patients, not within their own hospital systems because that could cross ethical boundaries, but at other hospitals. “This is an opportunity for us to help some of the most vulnerable members of our communities, those who have nobody to speak for them when they can no longer speak for themselves. And that allows us to respect their autonomy throughout their lives,” he said.

The green ICU: how to interpret green? A multiple perspective approach Critical Care; by Elisabeth Smale, Heather Baid, Marko Balan, Forbes McGain, Scott McAlistar, Jan J. de Waele, Jan Carel Diehl, Erik van Raaij, Michel van Genderen, Dick Tibboel & Nicole Hunfeld; 2/18/25Mitigating environmental impacts is an urgent challenge supported by (scientific) intensive care societies worldwide. However, making green choices without compromising high-quality care for critically ill patients may be challenging. ... To put this challenge of achieving quality care standards with sustainable use of resources into perspective, the current paper pinpoints a three-step approach towards a green ICU by (I) measuring environmental sustainability, (II) outlining strategies to improve sustainability and (III) elaborating on how to communicate results to create a synergy of sustainability initiatives within ICUs. Editor's note: With its focus on care for critically ill patients, how might this three-step approach be applied to hospice GIP settings?

Death Matters: The gift of presence: Tips for visiting someone who is dying Squim Gazette, Squim, WA; by Jeanette Stehr-Green, Volunteer Hospice of Clallam County; 2/12/25 We sometimes avoid visiting friends or family members who are terminally ill. We make lots of excuses. We don’t know what to say. We don’t know how to act. We don’t want to be a bother. The hard truth is that dying, the final stage of life, can be a lonely experience without the presence of family and friends. A visit during this time can bring comfort to the dying person and their family. It can also provide an opportunity to share feelings, reminisce, and say goodbye. Visiting a dying person seems difficult because most of us lack experience. It only takes a little courage and a few ideas to create a meaningful moment. ... Editor's note: These excellent guidelines empower hospice patients' families and friends--and protect patients' vulnerable energies and emotions--in multiple settings across the trajectory of dying. How might you adapt these for your own patient/caregiver support and community outreach?

'We’re seeing these struggles.' Rainbow works to support end-of-life caregivers Daily Jefferson County Union, Jefferson, WI; by Hannah Brock; 2/10/25 Rainbow Community Care is facing a growing need in Dodge and Jefferson counties: the overwhelming burden placed on caregivers, both family members and healthcare workers, as they navigate end-of-life care. “There’s this need in the community to support caregivers, where whoever they are,” said Carol Brown, president and CEO of Rainbow Community Care. The backbone of the healthcare system isn’t just hospitals or insurance plans—it’s the unpaid, often invisible labor of family caregivers. ... The newest initiative, the respite care program, is being designed to give caregivers much-needed breaks. Many family caregivers go months—or even years—without a full night’s rest, a doctor’s visit for themselves, or even an afternoon off, according to Rainbow Community Care. To help address this, Rainbow Community Care secured the necessary funding for the program. 

New hospice center in Missoula prepares for grand opening Times-Leader, Missoula, MT; by Taylor Richardson; 1/24/25 The Partner Hope Foundation has completed construction on its new hospice center in Missoula, offering critical services to the region. This facility is only the second of its kind in Montana and aims to provide high-quality care for elders in western Montana. ... The center features 12 patient care rooms equipped with amenities such as a spa, a full kitchen, and a space for spiritual practices. Melro highlighted the design of the patient rooms: "We tried to make them oversize so that family could gather here and stay with the patient as needed. We tried to encompass some things that will help make the patients more comfortable, such as additional storage and their own refrigerator. ... The center's creation was made possible by a $15.4 million fundraising campaign which is 95% funded so far. 

Nonprofit opens home-based care facility for hospice patients Fox KNWA-24/KFTA, Lowell, AR; by Justin Trobaugh; 1/17/25 A nonprofit organization introduced a new resource Jan. 17 for those in Northwest Arkansas who need home-based care. Circle of Life provides hospice and in-and-out patient care services, and it opened its Joey Feek Center for Home-Based Care in Lowell. The facility will serve 93% of the non-profit’s patients and was donated by the Willard and Pat Walker Charitable Foundation. 

‘No One Dies Alone': How KMOX's Dave Glover turned personal loss into a mission of hope NBC 5, St. Louis, MO; by Mike Bush; 1/19/25 For 25 years, Dave Glover's voice has been a familiar presence on KMOX radio, but it was a personal tragedy that led him to his most meaningful role yet – as a volunteer bringing comfort to those in their final hours. ... While spending countless hours at his mother's bedside, Glover discovered something remarkable – an organization called NODA (No One Dies Alone). When his family was exhausted from their bedside vigil, the nursing staff told them, "You need to go home. And we have this organization of volunteers, called NODA." Julie Strassman, manager of Support Services with Bethesda Hospice Care, explains NODA's mission: ...

Hospice of the Chesapeake expands inpatient care with high-flow oxygen therapy Southern Maryland News Net; by Hospice of the Chesapeake; 1/13/25 Hospice of the Chesapeake is proud to announce the addition of high-flow oxygen therapy to its inpatient care centers, enhancing the quality of care for patients with complex respiratory needs. ... High-flow oxygen therapy is designed to deliver precise oxygen levels, improving breathing efficiency and overall comfort for patients. ... “Adding high-flow oxygen therapy to our inpatient care centers represents our commitment to providing comprehensive, patient-centered care,” said Dr. Sonja Richmond, Vice President of Medical Affairs & Hospice Medical Director. “This advancement enables us to better meet the needs of our patients and their families during a challenging time.”

No place like home: Oscar the pug reunites with owner in hospice KOAT 7 Action News, Albuquerque, NM; by Cristiana Ramos; 1/8/25 It was all smiles and licks Wednesday at Veteran Affairs in Albuquerque. Bob Knevitt, a Marine veteran and his pup, Oscar, reunited after Knevitt suffered a brain bleed during Christmas. Knevitt has been in hospice ever since. He recently had to do the unimaginable and put Oscar up for adoption. "It's hard to lose a dog, but in my situation, I had no choice, and I'm glad he's going to a good family," he said. ... It was a friendship too strong to break. Although Oscar has a new family now, he still comes to visit his dad ...

Family advocates for hospice care, says it doesn't always mean end-of-life: Highlights case of the late Former President Jimmy Carter who spent nearly 2 years in hospice CBS WTKR 3, Hampton Roads | Northeast NC; by Jay Greene; 12/20/24 Dana Romano's mom, Marilyn, headed home from the Dozoretz Hospice House of Hampton Roads in Virginia Beach on Monday evening after spending a few days in respite care while her family was out of town. "The whole reason not to have my mom in a facility is we want her with us. But when you're doing long periods of time, every once in a while, you need a break, so having a place where you know they're going to take care of her and treat her like, almost like family," Dana said. "We kind of look at this more like a resort than a hospice." ... When at home Marilyn receives hospice care, but it's not because she needs care, the Romano's said. It's because she needs supervision. ... The family told News 3's Jay Greene this is a case where hospice does not mean end-of-life. It actually helped alleviate some stress. ... The Romano's told News 3's Jay Greene hospice ["has no time limit"] is all about extending life as comfortably as possible, citing Former President Jimmy Carter who died at the age of 100 this weekend.Editor's note: These misunderstandings by the family about hospice care is both alarming and expected. Throughout Jimmy Carter's extended hospice Length Of Stay (LOS), far too many hospice organizations misused messaging for its marketing purposes. We have addressed this discrepancy in a dozen posts throughout the year. Click here for the CMS "Face-to-Face Requirement Affecting Hospice Recertification." Disclaimer: We do not specifics about what this hospice communicated with this family. We simply refer readers to this as publicly reported news story.

As a hospice nurse, Jaffrey's Nancy Folsom helps make the journey easier The Keene Sentinel, Keene, NH; by Elijah de Castro; 12/28/24 Nancy Folsom has been working around death since she was a teenager in her family’s funeral home, where she was an embalmer apprentice. From there, she took a step back, pursuing a career as a home hospice nurse in the Monadnock Region, where she helps those who are dying confront death. “Death is never easy, at any age or any time,” Folsom said. “We want to make it as human as possible. I’ve always been comfortable with death.” ... Folsom, 62, of Jaffrey, “has never had a boring day” on the job. When she’s not out in the community working, she’s in the Peterborough office of Home Healthcare, Hospice and Community Services, a local nonprofit provider of home health services that also has offices in Keene and Charlestown. ... Over the years, Folsom has gained experience in how to best read a situation when she gets a new patient. Building trust between a hospice nurse and a patient, Folsom said, takes time, something many of her patients don’t have. Folsom resolves this dilemma by first making sure she is comfortable herself and cultivating a calm, abiding presence. ...