Literature Review

Anthony House advocates for comfort care homes and hospice care in the community Oswego County Today, Oswego, NY; by Step One Creative; 9/6/24 Anthony House of Wellhouse Ministries ... is advocating for the importance of comfort care and homes allowing for the care to hospice patients. Anthony House, an Oswego-based non-profit, who is finalizing construction plans for their new hospice care facility in Hannibal, New York, aims to raise awareness about the critical need for these specialized care settings... Kateri Spinella, Executive Director of Anthony House of Wellhouse Ministries, emphasized the significance of comfort care homes in the community, stating, “At Anthony House, we believe that every individual deserves to experience end-of-life care with dignity, respect, and compassion. Our new facility will provide a nurturing environment where patients and families can find solace, support, and comfort during their journey.”

Time to say a final goodbye, and thanks [from a journalist entering hospice care] Originally posted in the San Francisco Chronicle; by Kevin Fisher-Paulson ("He wrote this column shortly before he died" on September 5, 2024); 9/7/24 ... you readers came to embrace us. Moms wrote to tell us that their daughters had found new lives across the desert, grandsons had become granddaughters, sons had chosen recovery over the mountains and siblings had chosen forgiveness. If each of us has the courage to change, we all have the courage to hope. Back in May of 2023, I told you that I had been diagnosed with Stage 4 kidney cancer. ... In July, it all caught up. ... At last, on a recent Tuesday, my oncologist called with the results of my spinal tap and bone marrow analysis. The cancer had won the race, suffused throughout my body. It was, he concluded, time for home hospice. A few weeks to go. This, therefore, is my final column. Having said that, I would like to thank the family and friends who have made me the person I am, ... But it is my husband of 40 years and my sons who have made this life so worth living. ... And also you, the readers. We have become friends over the years, sharing a cup of coffee every Wednesday morning. ... I hope I have brought you wonder, and I hope you now bring wonder to others. Teach your grandson to bake chocolate chip cookies. Take your niece to high tea at the Sheraton. I stand on that baseball diamond, and I salute life. My journey is now over, and yours must continue. Years ago, I asked you to believe in my family. And you did. You lit candles. ... I am humbled. I am grateful. And now I tell you that I believe in you. So go out there. And be kind.Editor's note: This must-read article and please-share article will inspire you, with insights into the depth and breadth of dying well.

Patients are everyday heroes The Andalusia Star News, Andalusia, AL; by Vickie C. Waster; 9/2/24 One of my favorite songs is by Mariah Carey. The communication of the chorus speaks to what we in hospice and other areas of healthcare experience every day. This song always invokes empathy in my heart, and I believe many of you can truly resonate with the lyrics, as we share a common experience in our roles in healthcare. ... The heroes we encounter are our patients, families, and their caregivers. They show heroism in their resilience, their ability to find hope in difficult circumstances, and their unwavering support for each other. As hospice professionals, we acknowledge that we are entrusted to provide medical, spiritual, and emotional support to those in our care. We do this with a deep sense of humility and humbleness, always mindful of the respect our heroes deserve.  “A hero is an ordinary individual who finds the strength to persevere and endure despite overwhelming obstacles.” Christopher Reeve

Community turns out for boy in hospice's 10th birthday Cecil Whig, Cambridge, MD; 8/23/24 On Aug. 19, Jeremiah Shaw had a 10th birthday bash for the ages. The town of Cambridge turned out in droves to make sure this boy felt appreciated with a parade down Foxtail Drive. There were bikers, school buses, fire trucks and tractor trailers. The whole point was to ride by and put a smile on Shaw’s face. Shaw has struggled with Lennox-Gastaut Syndrome, a neurodegenerative disease that causes him to have seizures. His mother, Maschell Hines, said he has been recently put in to hospice care and that this could be his last fall season.

Home health care agency going through changes KSAL.com; by Todd Pittenger; 8/22/24 According to Memorial Health System of Abilene, Home Health & Hospice of Dickinson County (HH&H) has covered many miles throughout Dickinson, Morris, and Marion counties for many years. ... While it was never about profit  and more about going the extra mile to take care of the people in the community, the small agency can no longer support the supply and demand of what it takes to provide these services.  They have taken a loss for several years and can no longer sustain that loss. Home Health & Hospice of Dickinson County is not closing. Their local staff is proud to be the only agency in the community that provides the kind of quality care to neighbors, friends, and family, and  will continue to do so.  HH&H has been in contact with multiple agencies that can assist patients to locate agencies or individuals who can provide these types of services and they are ready to assist. [List of resources]

A friend until the end: The impact of hospice volunteers Parkview Health, Fort Wayne, IN; 8/16/24 The presence of a hospice volunteer offers a unique form of support that complements the effots of a care team consisting of physicians, nurses, social workers and chaplains. While these specialists focus on a patient's physical, logistical and spiritual needs, volunteers contribute the element companionship during an emotionally difficult time. Jane Sandor, retired schoolteacher and principal, and Sally Stuckway, former executive director of a medical practice in Lafayette, IN, share how their personal experiences with hospice care shaped their desire to give back.

3 keys to palliative care marketing Hospice News; by Jennifer Murtoff; 8/16/24 While palliative care is an important part of medical care for many patients and providers, marketing messaging for these services must be carefully crafted. ... Given the rampant misconceptions about palliative care, education is an essential component of a marketing strategy, including for patients and families, referral partners and payers. A key point is to distinguish palliative care from hospice, according to Tony Kudner, chief strategy officer for Transcend Strategy Group. ... [Marketers] need to educate patients, family members, and payers as to the specific suite of services their organizations offer and how they can benefit patients. 

Aligning local marketing strategies with organizational vision Forbes; by Emily Burroughs; 8/15/24 ... In today’s interconnected world, achieving a cohesive and impactful narrative requires that local marketing strategies align with the organization’s broader vision. However, silos within a company can complicate this process, impeding clarity and effectiveness. Here’s how to bridge these gaps and foster a unified message. 

Hospices leverage community resources to serve vulnerable homeless populations Hospice News; by Holly Vossel; 8/13/24 Hospices are increasingly collaborating with community organizations to better address the end-of-life needs of the homeless population. Isolated homeless senior populations are reaching concerning levels nationwide. Many medical and nonmedical issues can be exacerbated at the end of life among unhoused and homeless seniors compared to others, according to James Patrick Hall, executive director of Rocky Mountain Refuge. The Denver-based nonprofit organization offers shelter for people with end-of-life care needs. ... Homeless populations have increased across the country in recent years, with seniors among those reaching “record-high” volumes and outpacing other demographic groups, Harvard University’s Joint Center for Housing Studies research recently reported. Editor's Note: For data specific to your state, click here for The U.S. Department of Housing and Urban Development's "The 2023 Annual Homelessness Assessment Report (AHAR) to Congress."

Hospices build community partnerships to better serve patients, employees Hospice News; by Jim Parker; 7/29/24 Hospice care does not occur in a vacuum, and many operators find themselves building partnerships with other community organizations to better serve patients and support their staff. Providers work with other institutions to provide general inpatient and respite care, address social determinants of health and improve health equity, among other initiatives. Some also partner with medical and nursing schools to ensure students in health care fields gain exposure to hospice and palliative care principles. Notable Mentions: Skelly Wingard, CEO of By the Bay Health; Mary Shankster, Chief Development Officer at Stillwater Hospice; Altonia Garrett, COO of Blue Ridge Hospice

Caregivers of end-of-life patients reveal the last words they hear most often and the most common regrets from patients WhatsNew2Day; by Alexander; 7/27/24... While each person’s final moments are different, chaplains and palliative care nurses have said most people approach their death with “radical acceptance.” People who are actively dying also often have a new sense of clarity about the universe and may even have a temporary burst of energy or sudden moments of clarity if they have dementia. The last words patients usually say to their families are to tell them they love them... [Often, people] who are in the midst of dying want to be surrounded by their loved ones and pets. Their final words are often words of love and pleas for forgiveness, as well as expressions of regret, ... [Another described that people show] "a desire for connection" with loved ones and faith. Editor's Note: This article provides a balanced scope of descriptions from several professionals, notably Catherine Duncan, Annemarie Switchulis, Neal Shah, and Zackary Price. In this day of social media, some hospice professionals (past or present) tout definitive, authoritative descriptions of what all dying persons experience, with too many assumptions and generalizations. Beware what you read and distribute, especially if the tone and language (of other articles) are sensationalized in a way to garner social media "expertise," followers and Shares--at the expense of more balanced, sensitive, diverse, personalized experiences.

‘I never thought I’d live to see it’: Veterans honored at WTRC’s Hospice of the Big Country thank you dinnerKTAB/KRBC Abilene, TX; by Noah McKinney; 7/19/24 Fellowship and reverence filled the West Texas Rehab’s Hospice of the Big Country boardroom Thursday evening. The organization opened its doors once more to local Veterans for its annual ‘We Honor Veterans’ thank-you dinner. ... Veterans of every branch spanning the decades showed up to sit with each other and break bread. The evening started with the Dyess Honor Guard presenting the flag and the singing of the national anthem. Following that, a POW/MIA or “Missing Man table” was set as a tribute to those who never returned. The attendees were then served dinner, and lively conversations filled the room. Notable Mention: Angie Lane, Director of Hospice Services, Hospice of the Big Country 

Bereaved families face ‘devastating’ impacts of hospice fraud Hospice News; by Holly Vossel; 7/16/24 Fraudulent activity in the hospice space may be leaving some families without sufficient bereavement support. Fraudulent hospice schemes can take a tremendous toll on families that have lost loved ones who received poor or negligent end-of-life care, according to Cheryl Kraus, director of government affairs and policy at the Hospice & Palliative Care Association of New York State (HPCANYS). ... “It’s tragic if you’re already grieving the loss of a loved one to have your suspicions confirmed that they did not receive the level of care that they were entitled to because of bad actors in the hospice space,” Kraus said. “It just shocks the conscience what these fraudulent hospices are doing to people. It’s going to take a long time to restore not just the individuals’ trust who have experienced this firsthand, but also the public’s.”