Literature Review

'It's not about technology or dashboards': What health systems need from IT execs next Becker's Health IT; by Laura Dyrda; 2/4/25 Health system IT leaders are entering a new era of leadership amid transformational technology platform purchases, artificial intelligence integration and cybersecurity advancements. But being the most technically proficient no longer guarantees leaders the top role. ... Healthcare IT leaders can become distracted by the bells and whistles of new technology and move forward without considering the patient experience. ... Staying close to the health system's mission is critical for IT leaders, and [Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health] ties the technology back to patient care. He prioritizes his teammates and colleagues, listening carefully to what they need. Notable mentions: James Forrester, Chief Technology Officer at University of Rochester (NY) Medical Center; Donna Roach, CIO of University of Utah Health; and Christopher Hutchins, senior vice president and chief data and analytics officer at Lifepoint Health 

Father keeping a promise to son to 'never miss a baseball game' despite entering hospice Fox 13 - Tampa Bay, FL; by Briona Arradondo; 1/30/25 A father diagnosed with cancer left hospice Thursday to spend the evening making final memories with his family on a baseball diamond in Tampa. Family and friends surrounded Steve Uhal and his wife Amy with love and support as he arrived to see his 9-year-old son Charlie play one last game.  ... 

Reflection on the Potomac River Crash Hospice & Palliative Care Today; by Joy Berger, Editor in Chief; 1/30/25We are absorbing unfolding news about Thursday night’s tragic plane and helicopter crash at the Potomac River. As with many of you, I’m flooded with memories of flying in and out of this same airport: gazing out the plane’s window to delight in DC’s historic sites; delighting in the diversity of my fellow travelers and whatever their stories might be. Many of these Washington DC trips were to be with our hospice and palliative colleagues at the (then) NHPCO Conferences or other related meetings. Today, I’m grateful for our safe journeys then. Today, I hope for renewed connections: the joy of each person’s unique life-journey; the relationships we’ve developed in moments at meetings, meals, and follow-up communications; the sacredness of this profound work we are privileged to share. And—with these current Potomac River tragic deaths—we are reminded of icy currents of own traumatic losses. For me, I’m struck with the pains of a beloved family in my childhood’s home church, whose adult son was killed in the 1982 Potomac River plane crash; with the heart-wrenching death of my grandfather when he was killed by a drunk driver; and more. For you? As news continues to unfold, may we treasure anew the unknown measure of our time on this earth. Of our connections with each other—whatever our differences—profit or nonprofit, political, and more. May we sensitively tune into the life-altering traumas carried within those we serve—and the healing compassion we can give. Humbly, Joy

The iatrogenic consequences of medicalising grief: Resetting the research agenda Sociology of Health & Illness: by Sarah Gurley-Green, Lisa Cosgrove, Milutin Kostic, Lauren Koa, and Susan McPherson; published 11/28/25, distributed via Evermore 1/28/25When the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was published in 2013, there was a firestorm of controversy about the elimination of the bereavement exclusion. Proponents of this change and of the proposed “complicated grief” designation believed that this change would help clinicians recognise major depression in the context of recent bereavement. Other researchers and clinicians have raised concerns about medicalising grief. In 2022 “prolonged grief disorder” (PGD) was officially included in the DSM-5-TR in the trauma- and stressor-related disorders section. ... As human rights activists have argued, bereavement support is an inalienable human right, one that is centered on the right to health and well-being, for “bereavement health is as intrinsic to our humanity as any other aspect of health and citizenship” (Macaskill 2022). That is why there are increasing calls for investing in bereavement as a public good and for “cultivat[ing] a bereavement-conscious workforce.” (Lichtenthal et al. 2024, e273). As Lichtenthal notes, it is not only clinicians but also institutions and systems that must “shift bereavement care from an afterthought to a public health priority.”Editor's note: "Iatrogenic" refers to unintentional consequences/condition from a medical intervention. In the hospice context, this means bereavement/grief from the hospice death. How many patients do you serve? The CMS Hospice Conditions of Participation identify "bereavement" and/or "grief" 155 times. What priority do you give to bereavement care before, at and after your patients' deaths?

Stillwater Hospice CFO: A winning recipe for improving rural hospice care Hospice News; by Holly Vossel; 1/23/25 Montana-headquartered Stillwater Hospice has found a successful rhythm to strategic rural-based growth and sustainability. The strategy hinges on building culture, staffing resources and a reputation for quality, according to CFO and Co-founder Chris Graham. Launched in 2017, the hospice company serves predominantly rural-based populations in Montana, northern Wyoming and South Dakota. ... What are the most significant concerns among rural-based hospice providers currently? How have the challenges of rural care delivery evolved in recent years? "Staffing is very hard. You’ve got to find staff who are willing and like to travel because they have a lot of windshield time. It’s also the logistics of remote care. We have patients that live 75 miles or more outside of a town, then once you get there it’s another 20 miles on a dirt road that could be covered in snow and ice. ..." [Click on the title's link to continue reading.]

The number 1 mistake people make when trying to live a meaningful life with zero regrets, from a hospice doctor NBC 7 San Diego, CA; by Dr. Jordan Grumet; 1/24/25... As a hospice doctor, I spend a lot of time with people facing the end of their lives. I've seen firsthand why this belief can lead to anxiety in up to 91% of people at some point in their lives. My response is always the same: You don't find purpose — you create it. It's not about stumbling upon a fully formed sense of purpose. Instead, it's about identifying the inklings in your life that light you up. I call them "purpose anchors" — and they're clues you can use to build a meaningful life with few or no regrets.  ...

DeKalb library to host memorial pillow workshops Jan. 25 Shaw Local News Network, Dekalb, IL; by Kate Santillan; 1/19/25 The DeKalb Public Library will partner with Northern Illinois Hospice to host two workshop sessions for patrons to create pillows out of a loved one’s shirt. ... Participants can create up to two pillows out of a T-shirt or button-down shirt. Seamsters will be available to assist. Attendees should not bring jackets, thick fabrics or denim. Bereavement support and information will be provided.Editor's note: Do you know that healing grief actually begins with "accepting realities" and its later, ongoing "Task of Mourning" is to develop "enduring connections" or "continuing bonds" with the person or thing that has been lost? [J. William Worden, Grief Counseling & Grief Therapy; 5 editions since 1982] Similar memorials have been created by other hospices using the deceased person's clothing (ie., teddy bears, etc.). This simple, practical method can be adapted easily, with years of meaningful connection and generations of storytelling ahead.

Knoxville nurses bring wedding to UT Medical Center for bride’s dying mother WATE Knoxville, TN; by Molly O'Brien; 1/15/25 Nurses on the Progressive Care Unit at UT Medical Center planned a wedding for one of their patient’s daughter. Samantha Barry and her now husband, Phillip Bastelica, were supposed to get married in a few months. Barry, like most daughters, always planned on her mother being at her wedding day. Her mother, Lynn, is battling a terminal illness and was recently released from the Progressive Care Unit to hospice. ... It seemed unlikely that Lynn would be able to attend the wedding planned for August, so Barry and Bastelica decided to move the day up. ... The nurses who cared for Lynn jumped into action to plan a wedding for Barry.

Introduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. 

Hospice centers: Balancing comfort and controversy Crossroads Today, Victoria, TX; by Amaya Norman; 1/9/25 Hospice centers play a critical role in providing care for patients with terminal illnesses, focusing on comfort, dignity, and peace during life's most challenging moments. These centers are designed to support both patients and their families, but public opinions about their services often vary. ... While many see hospice centers as an essential support system offering much-needed relief and care, others express concerns about the quality of services or the emotional toll they can bring to families. These differing perspectives have sparked ongoing discussions about the role and perception of hospice care in society.

Digital marketing tips for hospice and senior care services Dot Com Media; Blog post by Vlad Blits; 1/2/25 In the susceptible and competitive field of hospice and senior care, effective digital marketing strategies can be pivotal in reaching families who need these essential services. ... Here are some crucial tips on leveraging hospice marketing strategies, senior care digital marketing, building trust in healthcare marketing, and local SEO for senior care.

In Memoriam: Jimmy Carter helped build the hospice community Hospice News; by Jim Parker; 12/30/24 ... During his tenure as president, Carter was essential to the establishment of the Medicare Hospice Benefit. His administration launched the U.S. Centers for Medicare & Medicaid Services’ demonstration project to test the model, leading to passage of a law establishing the benefit during the subsequent Reagan presidency. Prior to these efforts, hospice care was delivered predominantly by volunteers who relied on philanthropy to operate. The scale of these early providers was very limited due to lack of payment, as was access to their services. “For decades, the Carter family has championed open dialogue about the needs of patients at the end of life,” Dr. Vicki Jackson, board president of the American Academy of Hospice and Palliative Medicine (AAHPM), told Hospice News in an email. “Their vocal support for hospice care over the past year has made an immeasurable impact and brought information about this essential subspeciality of medical care to a national audience.”

Increasing awareness of hospice services among Latinos on the border YouTube - Borderzine Reporting across fronteras; features Hospice El Paso; 12/25/24 El Paso's Latino Community is seeing a rise in the use of hospice care ... Hospice in Mexico is a place and so a lot of Hispanics--true Mexicans--feel that you're going to take a loved one out of their home when it comes to hospice care. ... Latino families make up a growing portion of hospice users, reflecting national efforts in bilingual outreach and cultural sensitivity programs I had heard. The term "hospice"--I didn't know I didn't know what it meant. I didn't know what it involved but after my dad was enrolled in hospice ... I realized [that it] provided emotional and medical support ... [and] comfort that respects their cultural values. We were very fortunate that the individuals that came in that met with us beforehand and after were bilingual. I noticed that they spoke in English and in Spanish so that they would look between myself, my mom my sister to make sure we were nodding, agreeing, listening, hearing. I think that made a difference. It was very comforting. My dad at one point even said, "They gave me a bath but they didn't get the bed wet." That was our big joke and the fact that he was very comfortable. As more Hispanic families turn to hospice they're finding it offers not just medical care, but a way to honor their loved ones with dignity respect and familiar comforts in their final days.Editor's note: For data on the Hispanic population in the areas you serve, click here for the