Literature Review

What is death positivity? Healthline; by Sarah Choi, medically reviewed by Joslyn Jelinek, LCSW, ACSW, RDDP; 3/28/25 Death positivity involves acknowledging death as simply the final phase of life. It emphasizes open discussions around death and education on the options, rights, and choices surrounding it. ... The Death Positivity Movement was coined in 2011 by funeral director Caitlin Doughty, but the sentiment existed long before — the movement’s origins date back to the 1970s, drawing on the hospice movement. ... Elements of the Death Positivity Movement:

Port St. Lucie Police honor 10-year-old with badge for his birthday celebration TCPalm, Port St. Lucie, FL; by Eric Hasert; 3/29/25 William Rivero enjoys a 10th birthday with family, friends, and Port St. Lucie Police at his parent’s home on S.E. Nancy Lane on Saturday, March 29, 2025, in Port St. Lucie. William Rivero has muscular dystrophy and is under hospice care, and wanted to be a police officer, so the Port St. Lucie Police got him a small uniform, along with a badge, and swearing in with Chief Leo Niemczyk.

My Stories program preserves cherished memories of patients in hospice The Alpena News, Alpena, MI; by Reagan Voetberg; 3/8/25 The Hospice of Michigan in Alpena preserves the stories of patients, not in a book or photo album, but on a flashdrive. It’s called the My Stories program. Patients in hospice are given the opportunity to video record their stories and memories for their loved ones to hear once they’ve passed. Patients do not have to pay a dime to record their life stories. Alpena’s Hospice of Michigan Volunteer Program Coordinator Kristie Lukes talked about how meaningful the My Stories project is to patients and their families. Lukes coordinates volunteers to help patients with their recordings. Lukes explained further what My Stories is. “It’s a recording of the patient’s life and the stories that they want to share with family and patients,” she said. “So it becomes kind of a legacy project.” 

Local teen helps patients at the end of life preserve memories 10 Tampa Bay YouTube channel; 3/6/25 A bittersweet and beautiful story this morning. A local teen is helping  patients at the end of life preserve memories to pass on to family. The Lifetime Legacies program through Empath Health can be in the form of a journal or a video, too. ... It's hard to think about, losing a loved one, but this is a great way to celebrate their lived experience. ... While chipping away at Bright Futures Community service hours, Zoe Lazanowski found purpose and passion. ... A volunteer with Suncoast Hospice (a member of Empath Health), Zoe helps interview patients who want to be part of the Lifetime Legacies program. Memories are documented from their childhood, family history, and sharing special stories. "One of my favorite things to ask was what advice they would have for the family ..."

Bride rushes wedding so dying dad can walk her down aisle Doniphan Herald, Doniphan, NE; by TImogen Howse; 3/4/25  A bride planned her wedding in less than 24 hours - so her dying dad could walk her down the aisle. Maurice Haynes, 69, is currently being cared for at St. Giles Hospice in Whittington, Staffs. [UK], ... His daughter Hannah Haynes, 29, was desperate for him to be present at her upcoming wedding - and knew Maurice had always wanted to walk her down the aisle. So she made sure her dad's dream came true. With the help of the hospice staff, Hannah and her partner, Josh, also 29, organized their special day in less than 24 hours. Carers transformed the hospice's chapel into a beautiful venue - complete with bunting and candles - and Hannah managed to secure a wedding dress on the morning of the ceremony. Just hours later, on February 18, Maurice, from Cannock, Staffs. [UK], walked Hannah down the aisle ... Hannah said: "What St Giles have done for my dad is unbelievable.

How boomers are personalizing their last chapter Broadview; by Larry Krotz; 2/19/25 From death doulas to digital legacies, this generation is flipping the script on end-of-life traditions. ... I confess that I don’t generally think much about dying, though many in my generation do. Baby boomers, that great bulge in the population whose concerns for so long have dominated the culture, have moved from preoccupations with creative retirement or the adequacies of the health-care system to a fascination with death. Witness the immense popularity last year of the Royal Ontario Museum’s multisensory exhibit Death: Life’s Greatest Mystery or the growth of death cafés ... For my contemporaries, death has become the next item on the to-do list. What it will look like. How to prepare for it. How to make it your own. ...

Delivery driver’s heartbreaking realization after he picks up hospital job Newsweek Life; by Lydia Patrick; 2/13/25 A food delivery driver's shift took an unexpected and poignant turn when he accepted a hospital order that carried a heartbreaking significance. Reddit user u/ondasher808, who chose to remain anonymous, shared that delivering to hospitals is common, as many staff members place orders. However, this particular request included a room number in the ICU, which does not allow direct deliveries. ... He called the customer upon arrival. ... The woman who answered thanked him and assured him that someone would come down to retrieve the food. Then, she added something that left him stunned-it was "someone's final meal." ... Five minutes later, a nurse arrived to collect the bag. ... "I noticed that the bag contained a Happy Meal and that was a bit of a shock because I didn't expect it." ... Later that night, he turned to Reddit to process his emotions, surprised by the outpouring of support from fellow drivers, customers who had ordered final meals for loved ones, and health-care workers who had witnessed similar moments.

Escambia County Fire Rescue grants a hospice wish to a 17-year-old Cantonment resident Pensacola News Journal; by Tony Giberson; 1/6/25Escambia County Fire Rescue Deputy Chief Paul Williams and Lt. Darren Snipes visit with 17-year-old hospice patient Dalton Harvey and his family in the Cantonment area on Friday, Jan. 3, 2025. During the visit, the ECFR presented Dalton with gifts, including a real firefighter's helmet.

[United Kingdom]  'My son died at 24 - now I'm doing his bucket list' BBC News; by Adam Eley and Alison Holt; 12/16/24 Alex Spencer's son Declan - who had Duchenne muscular dystrophy - died last year at the age of 24, and she admits she has still not gone a day without crying. "I think society has a misconception that a carer gets their life back [when a loved one dies]," she said. Declan had drawn up a bucket list but died before he could finish it. Now Alex, who wants to raise awareness of the difficulties disabled people face in getting the right care, is taking up the challenge - including visiting Paris, getting a tattoo Declan designed and taking his adapted van around a famous German race track.

Mom in hospice opens up after video of her dancing with son at wedding goes viral ABC News - GMA; by Yi-Jin Yu; 12/16/24A New York mom is opening up after a video of her dancing with her son at his wedding went viral. In the clip shared on TikTok, which has already picked up over half a million views since it was posted on Nov. 3, Olivia Armao hugs her son Sal Armao as they share a dance on his wedding day. But as the text overlaid on the video explains, what viewers see isn't your typical mother-son wedding dance. The difference is that Olivia Armao is in hospice care. She told "Good Morning America" she was diagnosed with breast cancer for a second time in 2021. Olivia Armao said the special memory with her 30-year-old son was "really sweet" and one she can't put into words. "I was just happy that I was there and I was able to wait to dance with him. ..." the 62-year-old mom of four told "GMA."

Nurse diagnosed with blood cancer fulfills dying wish to see new ‘Wicked’ movie Fox 13 Tampa Bay, FL: by Jennifer Kveglis; 11/26/24 A Tampa Bay area nurse who was diagnosed with blood cancer had one dying wish – to see the new movie "Wicked" in theaters. With the help of friends and family, that wish was fulfilled on Monday. Misty Steffen is a wife and mother, and she was also HCA Florida South Shore's chief of nursing. "I've loved every day of my life being a nurse," she said. "Twenty-six years that I got to be one and serve and love and decrease anxiety and increase trust and explain." ... [Description of her serious illness trajectory ...] "It's not what I thought would be the end of my story, but I'm at peace knowing whether I live or whether I die," she said. Steffen said she, her daughter and her husband always sang songs from "Wicked" in the car. Together, they've seen the musical on Broadway twice. Her last wish was to see the new movie in theaters. "The next thing I know he's [her husband] rented out the whole room in the theater," she said. HCA Florida Brandon paramedics, where Steffen worked too, as the assistant chief of nursing, transported her in their ambulance at no charge. "He's like we've got people who are going to come take you in an ambulance to ‘Wicked,’" she said. "I just started balling and I go...'what? Why am I so deserving of that?'" Steffen will spend the coming days surrounded by loved ones, many of whom flew in from all over the country. Editor's note: While this story appears to be focused on the movie "Wicked," it's more about relationships, meaning-making, quality of life, and ... her husband rented out the "whole room in the theater"! If you--like I--enjoy this movie weekend, Misty Steffen's story gives a new meaning to giving thanks, creating new memories from old for now and ahead. From Part 2 of Wicked, "... because I knew you, I have been changed for good."

‘Like Christmas to me’: Parade of classic cars celebrates hospice patient in Hudson WJW, Hudson, OH; by Rex Smith; 11/16/24 A parade of classic cars made its way through Hudson Saturday to pass by one particular house on Boston Mills Road. They were there for James Gay, a lover of classic cars who also collects miniature classics. He is receiving end-of-life care. “I think this is more like Christmas to me. Whoever can’t get out has to leave the cars here,” he said with a laugh. Gay had the chance to get a close-up look at some of the cars he remembers so well because, in his words, he was around when they were made. Surrounded by family and friends, it was an emotional but special moment. This was all possible because of the “Gift of a Day” program provided by Crossroads Hospice and Palliative Care. For the “Give of a Day,” the question is: if you had one day to live, what would that day look like? “It’s the greatest feeling in the world to make somebody smile, and thinking that may be their last time to enjoy this with their family,” said Rhonda Kissner, the coordinator of the program.

Community carolers share love with Bartlesville's 'Santa' on his final journey home Oklahoma Association of Broadcasters - Bartlesville, Oklahoma; by Nathan Thompson; 11/9/24 He's been known as Bartlesville's very own Santa for more than three decades, and on Saturday night dozens of community members showered Ron Adams with the blessing of love and Christmas carols as he faces the final moments of his life.  Earlier this year, Adams was diagnosed with stage-four liver cancer. His health has rapidly deteriated and he is in hospice care at The Journey Home between Bartlesville and Dewey. Debbie Neece, a friend of the family, says she received a phone call from Adams' daughter, Lindsey, Saturday morning with a special request.  Neece made it happen as a fitting tribute to a Bartlesvile icon and his family. ... Saturday's love from the community gathering and singing more than 20 minutes of Christmas carols had a profound impact on Ron, his wife Debi and his daughter Lindsey. Lindsey came outside and in tears, thanked the gathered crowd. A small blessing of Christmas music. A large outpouring of love from the community. But not as large as Ron Adams' heart and his devotion to bringing joy as Bartlesville's Santa.