Literature Review

Sexual function in serious illness: Areej El-Jawahri, Sharon Bober, and Don DizonGeriPal Podcast; Eric Widera, Alex Smith, Areej El-Jawahri, Sharon Bober, Don Dizon; 6/6/24As Eric notes at the end of today’s podcast, we talk about many difficult issues with our patients. How long they might have to live. Their declining cognitive abilities. What makes their lives meaningful, brings them joy, a sense of purpose. But one issue we’re not as good at discussing with our patients is sexual health. On today’s podcast Areej El-Jawahri, oncologist specializing in blood cancers at MGH, says that sexual health is one of the top if not the top issue among cancer survivors. Clearly this issue is important to patients.

Health equity: Insights on the CMS Framework and Leadership in HealthcareCHAP Podcast; by CHAP and Marisette Hassan; 5/23/24As a nurse, witnessing the pervasive disparities in healthcare access was a profound wake-up call. Our conversation with Marisette Hassan takes us on a journey through the challenges and aspirations of achieving health equity, a mission that has never been more critical than in the shadow of the COVID-19 pandemic. When systems fail to serve everyone equally, the consequences are dire, and our discussion underlines the urgency of this issue. With Marisette's insights on the CMS health equity framework, we unpack the layers of this complex issue, from the importance of data collection to the necessity of culturally tailored services.

Families are often unaware of benefits of palliative hospice care, says retired oncologist KSMU Ozarks Public Radio; radio segment by Linda Regan; 5/5/24 In this episode of our local program Making Democracy Work, host Linda Regan speaks with returning guest Dr. Robert Carolla, retired medical oncologist and board member for Hospice Foundation of the Ozarks. Carolla discusses palliative hospice care and says that families often sign up too late to receive all of the supportive benefits. He says “death is a part of life” and explores common misconceptions associated with hospice care.

Palliative care nursing: Podcast with Betty Ferrell about ELNECGeriPal Podcast; by Alex Smith, Eric Widera, and Betty Ferrell; 4/26/24As Betty Ferrell says on our podcast today, nurses play an essential role in care of people with serious illness. Who spends the most time with the patient in the infusion center? Doing home care? Hospice visits? In the ICU at the bedside? Nurses. ELNEC (End-of-Life Nursing Education Consortium) celebrates it’s 25th anniversary in 2025. We talk today with Betty Ferrell, who has been a nurse for 47 years, and is the founder and PI of ELNEC.

The Sunday Read: 'What deathbed visions teach us about living' New York Times Podcasts, 4/7/24 Chris Kerr was 12 when he first observed a deathbed vision. His memory of that summer in 1974 is blurred, but not the sense of mystery he felt at the bedside of his dying father. ... Kerr now calls what he witnessed an end-of-life vision. His father wasn’t delusional, he believes. ... Kerr followed his father into medicine, and in the last 10 years he has hired a permanent research team that expanded studies on deathbed visions to include interviews with patients receiving hospice care at home and with their families, deepening researchers’ understanding of the variety and profundity of these visions.

Good Sam Center of Caring opens half of new home this week WFIR News Talk Radio and WDBJ 7 TV, Roanoke, VA; by Gene Marrano (text) and Aaron Housch (tv); 4/1/24Perhaps today or sometime in the next few days half of the new Good Sam Hospice Center for Caring on Cove Road northwest will be open for business; a wing dedicated to office staff and volunteers. An update from WFIR’s Gene Marrano: [audio]. See video tour of Center for caring here.

Healthcare execs need to 'iterate faster' for success, says CIO Becker's Health IT, by Laura Dyrda; 3/13/24 Baton Rouge, LA-based Franciscan Ministries of Our Lady Health System embarked on a journey last year to incorporate more artificial intelligence into its operational and clinical systems. Will Landry, senior vice president and CIO of the system, said while the organization doesn't want AI making decisions, there is a lot of value in supporting caregivers and team mates. He joined the "Becker's Healthcare Podcast" to share the health system's strategy for governance and his push for more innovative thinking around AI applications.

Podcast: Dr. Robert Carolla’s reflections on life and mortality Springfield Daily Citizen; 2/28/24 Dr. Carolla, a pioneer in his field, sheds light on the delicate balance between life and mortality that oncologists navigate daily.  Through his work with the Hospice Foundation of the Ozarks and national recognition from StoryCorps broadcasts, he and his wife, Peg, have touched countless lives with their compassion and dedication. Dr. Carolla’s journey offers a profound perspective shift on life, death, grief and the human experience. 

The future of hospice according to Peter (Benjamin)Podcast from TCN Talks with Chris Comeaux and Peter Benjamin; 2/28/24.Peter Benjamin, partner at the Huntington Consulting Group, discusses pivotal shifts occurring in hospice care.Publisher's note: Peter, as always, provides provocative insights and compelling discussion.

How one hospice owner got convicted of healthcare fraud and how you can avoid that fateHospice Insights: The Law and Beyond, by Husch Blackwell; 2/21/24The owner of a Louisiana hospice was indicted and then convicted of healthcare fraud. How did that happen? In this [podcast] episode, Husch Blackwell's Meg Pekarske and Jonathan Porter talk about how a routine audit led to a whistleblower complaint by a hospice employee, which then led to the hospice owner’s criminal conviction following trial in November 2023. Most importantly, the pair discuss how other hospices can avoid that fate.

Top news stories of the month January 2024TCN Talks Podcast, with Chris Comeaux, Mark Cohen; 2/6/24Publisher's note: A summary of Hospice & Palliative Care Today's top news stories in January.

The power of the patient’s voice: Enhancing end-of-life careMedriva, by Ayanna Amadi; 1/31/24End-of-life care is a delicate and complex area of healthcare, requiring a balanced blend of clinical expertise, emotional sensitivity, and communication skills. The End-of-Life Essentials team at Flinders University has created a stirring video titled ‘The Patient’s Perspective,’ focusing on the importance of patient input in improving end-of-life care. The video presents a moving narrative from the vantage point of a patient dealing with serious illness, highlighting the profound impact of healthcare staff interactions.

RCT of Palliative Care for Heart Failure and Lung DiseaseGeriPal Podcast, by Eric Widera, Alex Smith, David Bekelman, Lyndsay DeGroot; 1/25/24In a JAMA 2020 systematic review of palliative care for non-cancer serious illness, Kieran Quinn found ... gaps, including very few studies of patients with lung disease, and little impact of trials on quality of life. The article we discuss today, also published in JAMA, addresses these two gaps. David Bekelman conducted a RCT of a nurse and social worker telephone intervention (ADAPT intervention) for people with heart failure and lung disease (COPD or ILD).