Literature Review

[United Kingdom] Assisted dying bill: further protections for nurses proposed Nursing Times, London, UK; by Edd Church, source Roger Harris, House of Commons; 5/7/25 No nurse who declines to aid in assisted dying procedures will be at risk of “any detriment” to their careers under a new amendment to the Terminally Ill Adults (End of Life) Bill, the MP behind the draft legislation has claimed. Kim Leadbeater, MP for Spen Valley, announced earlier this week that she would be proposing to extend the “opt-out” provisions in her bill for healthcare workers who work in settings where assisted dying may take place. Ms. Leadbeater said, in a statement released this week, that she understood that “not all people working in and around” healthcare would want to participate in the provision of assisted dying. "Nobody will be at risk of any detriment to their careers if, for any reason at all, they chose not to take part." The bill currently already states that healthcare professionals can conscientiously object to taking part and that employers “must not” subject employees to detriment for exercising this right.

Understanding grief: A journey with Belize Hospice and Palliative Care AssociationChannel 5 Belize; by Sabreena Daly; 5/2/25Grief is often seen as something that begins after a loss, but for many, it starts much earlier. Whether it’s the loss of a loved one, a role, a routine, or even a sense of identity, grief can take many forms and often arrives long before death itself. At the heart of this journey is the Belize Hospice and Palliative Care Association, which offers compassionate care not only for those nearing the end of life but also for their loved ones who walk that path with them. The organization provides support for anticipatory grief and healing, embracing the whole person—physically, emotionally, socially, and spiritually. This week, and for the rest of the month, Sabreena takes a deep dive into understanding grief. She brings us this week’s story and a look on the Bright Side, exploring how the association helps individuals navigate their grief journey with care and compassion.

[Sweden] A human right to assisted dying? Autonomy, dignity, and exceptions to the right to lifeNursing Ethics; Jon Wittrock; 4/25 Debates on assisted dying remain controversial and call out for conceptual clarification. What is the moral basis for assessing competing arguments, and what is the best way to frame these arguments in terms of actual and potential human rights? This article aims to investigate whether autonomy alone suffices as a moral source for human rights and whether, on this basis, there should be a positive human right to assisted dying, and a negative human right to assist others in dying. Drawing upon discussions in political theory, medical ethics, and human rights scholarship, the article develops an account of autonomy as multidimensional and subject to trade-offs.

[United Kingdom] New UK Centre hopes to change public attitudes towards grief University of Bristol, Bristol, UK; Press Release; 4/24/25 Grief affects everyone but is still very much a taboo subject in the UK. A new Centre - the first of its kind in the UK - hopes to shift public attitudes towards grief and create communities that are compassionate and connected in their support of people who are bereaved. The Centre for Grief Research and Community Engagement (Grief Centre) at the University of Bristol is launched today [24 April]. The Grief Centre will focus on interdisciplinary and multidisciplinary research into grief, death and loss, aiming to increase understanding of these fundamental aspects of being human and provide the space for new thinking, ideas and approaches.

[Switzerland] Comforting styles of serious illness conversations: a Swiss wide factorial survey studyBMC Medicine; by Robert Staeck, Carsten Sauer, Steven M. Asch & Sofia C. Zambrano; 4/14/25 Background: Serious illness conversations can cause discomfort in patients, potentially impeding their understanding and decision-making. Identifying ways in which physicians can reduce this discomfort may improve care. This study investigates which physician communication styles and characteristics individuals perceive as comforting in physician–patient serious illness conversations. ...  Methods: We conducted a nationwide online factorial survey in German, French, and Italian with 1572 Swiss participants from the public (51.4% women) aged 16 to 94. ...Conclusions: Taking time, providing clear information, and ensuring continuity of care are pivotal in enhancing comfort. Also relevant are the expression of sadness, physician self-disclosure, and a prior relationship with the patient.

Portugal: Government signs contracts for 3,000 palliative care beds MacauBusiness.com; by LUSA; 4/18/25 The government on Thursday [4/17/25] signed 90 financing contracts worth €88 million with the private and social sectors to create 3,300 places in the National Network for Integrated Continuing Care (RNCCI). ... The government on Thursday signed 90 financing contracts worth €88 million with the private and social sectors to create 3,300 places in the National Network for Integrated Continuing Care (RNCCI). ... The minister added that “the government’s determination is not to slow down the pace of implementation of the RRP”, emphasising that another 800 contracts will be signed in the coming weeks, in different areas.

[Netherlands] A care ethical perspective on family caregiver burden and supportNursing Ethics; Maaike Haan, Jelle van Gurp, Marianne Boenink, Gert Olthuis; 3/25Family care-when partners, relatives, or other proxies care for each other in case of illness, disability, or frailty-is increasingly considered an important pillar for the sustainability of care systems. Especially in a palliative care context, however, family care can be challenging. Witnessing caregivers' challenges may prompt compassionate nurses to undertake actions to reduce burden by adjusting tasks or activities. The question is then whether self-sacrifice is a problem that nurses should immediately solve. Therefore, we suggest that caregiver experiences should always be interpreted in an explorative dialogue, focused on what caring means to a particular family caregiver. Nurses do not have to liberate family caregivers from the situation but should support them in whatever overwhelms or drives them in standing-by their loved ones until the end.

[China] Asian family members' participation in advance care planning: An integrative reviewPalliative Medicine; Jing-Da Pan, Ka Yan Ho, Gui-Fen Guan, Min-Min Chang, Cui-Rong Tan, Xin-Yan Qiu, Hong-Li Liu, Ke-Lan Lin, Wen-Ting Xu, Shan Pan, Qi Liu, Ting Mao, Katherine Ka Wai Lam, Dong-Lan Ling; 3/25The willingness of Asian family members to participate in advance care planning is high, while their actual engagement remains low. Based on the barriers, facilitators, and Asian family members' roles influencing participation identified in our study, a six-dimensional conceptual model was developed: Asian family members' roles, problem-solving skills, communication, affective responsiveness, affective participation, and controlling behavior in advance care planning. Barriers to effective participation were identified: inadequate advance care planning legislation, insufficient public education, and influences from Confucianism or traditional beliefs. Additionally, filial piety was shown to have a paradoxical effect on Asian family members' participation in advance care planning in Asian countries. 

Global study finds 1 in 5 people with dementia receive no care McKnights Long-Term Care News; by Donna Shryer; 4/7/25 A comprehensive global study led by Yale School of Public Health researchers has revealed that at least 20% of people living with dementia receive no care helping them with daily living, regardless of their country’s wealth or development status. As the world’s population rapidly ages, this alarming care gap has persisted for years, creating what researchers describe as “a public health crisis.” The study analyzed data from over 10,000 individuals across the United States, England, 18 European nations, Israel and China. [Continue reading ...]

[Germany] Do we have a knowledge gap with our patients?-On the problems of knowledge transfer and the implications at the end of lifeInternational Journal of Environmental Research and Public Health; Nils Heuser, Hendrik Heers, Martin Gschnell, Fabian Urhahn, Severin Schrade, Christian Volberg; 2/25Cancer patients are often unaware of their exact diagnosis, stage of disease, and prognosis. In the patients observed, it was found that many of them were unaware of their stage of disease, which can have a huge impact on their end-of-life decisions, such as the type of treatment they want. Many patients were also unaware of their own treatment. There is a risk that false hopes of cure may be attached to therapies and that, as a result, patients may be less likely to opt for palliative care with a focus on maintaining quality of life.

Palliative Care ECHO on health system strengthening: Advancing global collaboration and integration ehospice; by Mark Stoltenberg, Clayton Richards, Chris Piromalli; 3/24/25The World Health Organization (WHO) Working Group on Palliative Care has introduced an innovative digital initiative utilising the ECHO Model to enhance global collaboration in palliative care. Officially launched on March 5, 2025, this programme will facilitate knowledge exchange and promote best practices for the integration of palliative care into health systems worldwide. The ECHO (Extension for Community Healthcare Outcomes) Model connects healthcare professionals globally in virtual communities of practice to support contextualised implementation of best-practice care through mentorship and guided practice.  [Continue reading ...]

[Switzerland] The use of artificial nutrition at the end-of-life: a cross-sectional survey exploring the beliefs and decision-making among physicians and nursesSupport Care Cancer; by Christophe Pala, Claudia Gamond, Steffen Eychmuller, Francois Herrmann, Sophie Pautex; 3/17/25 Background: The use of artificial nutrition in the last month of life raises many concerns for patients, relatives, and healthcare professionals. Conclusion: Whereas decisions on artificial nutrition at the end of life are common they may be mostly guided by physicians and nurses' beliefs, and patients' requests more than by robust evidence. Fostering palliative care education is pivotal. Our results emphasize the need to improve physicians and nurses' awareness of the complex interplay between values and evidence when decisions concerning artificial nutrition are taken.

[England] Mother, 79, excited to skydive for hospice BBC; by Susie Rack; 3/22/25 A 79-year-old woman planning a skydive to raise funds for a hospice charity that is caring for her friend said she was not "scared at all." Adventure-seeker Shirley Warnes, from Rugby, Warwickshire, who said she loved rock climbing and helicopter rides, described the jump for Myton Hospice as a "bucket-list challenge." ... She has already raised more than £600 for the charity, which supports people with life-limiting illnesses across Coventry and Warwickshire, to thank them for providing respite care for her friend Gordon, who has motor neurone disease.