Literature Review

[Uganda] This hospice has a bold new mission: saving lives Alabama Public Radio / NPR; by Joanne Cavanaugh Simpson, Brian Simpson; 1/16/26 Deborah Nantenza learned about cervical cancer screening at a hospital in eastern Uganda, a rural region where early diagnosis is rare. ... The cancer screening, education and treatment were led by a hospice — an institution traditionally limited to easing the pain of the dying. The team at Rays of Hope Hospice Jinja in Uganda had long wanted to do more. Even with liquid morphine and other pain medications the hospice provided to ease symptoms, women with cervical cancer "didn't just die a normal death. They died after suffering, suffering," says Sylvia Nakami, executive director of the 20-year-old nonprofit.

[United Kingdom] One in five hospice beds closed, report warns in end of life care crisis Express - Health and Social Affairs; by Lucy Johnston; 1/10/26 Almost one in five hospice beds in England is now closed or standing empty, despite growing demand for end-of-life care, a study by Oxford University researchers has found. The analysis exposes a deepening funding crisis in the hospice sector - which its authors have described as “a national scandal.” ... [Oxford University professors describe that] ... increasing numbers of frail and elderly patients are dying “in pain, alone, often hungry and dehydrated,” while others are being admitted to hospital in emergency situations, adding pressure to already stretched NHS services.

[UK] "The system doesn't really cater for the trauma that Black people have experienced" - Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative studyDeath Studies; by Lucy E Selman, Oliver Clabburn, Yansie Rolston, Karl Murray, Tracey Stone, Lesel Dawson, Michelle Farr, Sabi Redwood, Debi Lewinson-Roberts; 12/25People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. This qualitative, co-produced study aimed to explore experiences of grief and bereavement among people of Black British and Black Caribbean heritage in England. Through community conversations and interviews with 35 participants, the study illuminates how structural inequities, cultural norms, and systemic racism intersect to shape grief experiences. Participants highlighted the importance of extended family and community in grief, which often clashed with the individualistic norms of white British society. Cultural customs that discouraged emotional expression made grieving harder, while rituals like Nine-Night and storytelling provided crucial communal support. 

'I want to carry on mum's legacy after her death' BBC News; by Lynette Horsburgh; 1/3/26 A man whose mother spent her final days in a hospice has described how it has inspired a decade of fundraising challenges with the latest his "toughest yet" - to climb Mount Kilimanjaro. David Clarke's mother, Margaret, of Blackburn, died aged 69 in East Lancashire Hospice in 2014. The next year he started challenges to raise funds for the hospice which provided "incredible" care to his mother who was known for her charity work and "carry on her legacy". ... "It costs £10,000 a day to run the hospice and that was my original target. "But my mum spent three days there so now I really want to raise £30,000."

[Saudi Arabia] Comparison of end-of-life care between patients with hematological malignancies versus solid tumors: A retrospective analysisJournal of Palliative Care; by Salma Almusaed, Kim Sadler, Walaa Abdulmutaali, Gassan Abudari, Steven Callaghan, Mahmoud Sroor, Muneerah Almutairi, Mohammed AlGhamdi, Muruf Zaid Alshalwah, Sameer Desai, Nessreen Abu Alsalhm, Khloud Alzain; 11/25While specialized palliative care (PC) is well-established for managing STs [solid tumors], its integration into HMs’ [hematological malignancies] care remains less common despite evidence of its benefits. The cohort consisted of 350 adult patients, of whom 86 (24.6%) had HMs and 264 (75.4%) had STs. Overall, HMs patients received more aggressive end-of-life care, including higher rates of Intensive Care Unit (ICU) admissions (81.4% vs 17.8%), intubation (36% vs 8.3%), disease-modifying treatments (23% vs 3.8%), as well as more enteral feeding, dialysis, blood transfusions, and antimicrobial use. Their resuscitation discussions occurred closer to death (3 vs 16 days ... ). Additionally, HMs patients had fewer referrals to PC services (43% vs 79.2% ... ), and most of them died in the ICU (59.3% vs 18.2% ... ).

[South Korea] Factors influencing burnout among hospice and palliative care ward nursesJournal of Hospice & Palliative Nursing; by Young-Mi Kim, Chieun Song, Jeoungmin Park; 11/25This study aimed to identify the factors influencing burnout among nurses in hospice and palliative care units. This descriptive correlational study investigated the effects of nursing practice environment, resilience, and nurses' character on burnout among hospice and palliative care ward nurses. The participants were 217 nurses working in hospice wards of 20 institutions selected from the 88 inpatient hospice and palliative care institutions designated by the Ministry of Health and Welfare in South Korea, as of 2021. The results showed that a better nursing practice environment and higher resilience were positively associated with lower burnout. Among hospice and palliative care nurses, being in their 30s and having fewer than 5 years of total clinical experience were associated with higher burnout.

IAHPC photo contest: We have our winners! International Association for Hospice & Palliative Care (IAHPC); 12/18/25 Our members submitted an incredible array of images that expressed moving moments, illustrated challenges, and showed the beauty of palliative care in their daily work. It required four rounds of judging by our five-member panel, plus a Zoom meeting at the end, to narrow the selection of 186 photos sent in and settle on the winners. [View]

[Europe] Muslims often don’t trust palliative care. A new charity aims to change that  Hyphen; by Weronika Stryzyzynska; 12/15/25 Al-Amal, founded by a doctor and a chaplain, is informed by the Muslim view of a good death — something they say is lacking in mainstream care. A new charity to support Muslims navigating palliative care is preparing to launch after Ramadan. As well as providing an emotional support telephone line, Al-Amal will also offer practical advice on accessing culturally and religiously appropriate care.  The Muslim view of what a good death looks like is informed by values beyond the medical. … This can affect the way Muslim patients include their families in the decision-making process or their approach to pain management.

[Canada] Rethinking palliative care through three institutional ethnographic stories of people living with homelessness and life-limiting illnessINQUIRY: The Journal of Health Care Organization, Provision, & Financing; by Courtney R. Petruik, Katrina Milaney; 11/25Fifteen to thirty percent of Canadians have access to palliative care, with even fewer access opportunities for people with experiences of homelessness. Part of a larger study, this paper examines how health and social systems shape the need for community-based palliative and end-of-life care, using 3 stories from clients of the Community Allied Mobile Palliative Partnership (CAMPP). Findings reveal systemic demands like renewing insurance for medical equipment, restrictive housing rules, and standardized hospital protocols that overwhelm capacities of many people with experiences of homelessness. Community-based palliative teams like CAMPP fill critical gaps in mainstream services by tailoring care to complex social realities.

[United Kingdom] Oakhaven Hospice's Santa Dash raises more than £30,000Daily Echo, United Kingdom; by Deb Gayen; 2/9/25 More than 1,160 Santas braved the rain for this year's Oakhaven Santa Dash. The festive 3km fun run through Lymington's streets took place on Sunday, December 7. Oakhaven Hospice's fundraiser has already brought in more than £30,000, with more sponsorships still being added. 

[United Kingdom] Hospice donation a 'no-brainer' after lottery win BBC News; by Patrick Barlow; 12/6/25 A lottery winner who donated thousands of pounds to a hospice after the death of her husband said the decision was a "no-brainer" given the care he received there. Linda Styles, donated £25,000 to the Heart of Kent Hospice, in Aylesford, Kent, after winning £250,000 in the People's Post Code Lottery. Ms Styles' husband, Owen Styles, died in March aged 60 having been cared for at the hospice after being diagnosed with terminal liver cancer six weeks before.