Literature Review

Best of Beth Ashley: After a life well lived, facing the sadness together Marin Independent Journal; by Beth Ashley, this IJ is reprinting some of the late Beth Ashley’s columns. This is from 2014; 10/27/25 A dear friend is now being cared for by hospice. Like so many others, she has trusted hospice to see her through the last days of her life. Knowing that she may soon die is a blow to the heart. But it’s not as though I haven’t known that for all of us, life ends sometimes. That doesn’t make it any easier. By now, a huge assortment of dear ones have left my here and now. My parents are gone. My beloved second husband. My two sisters. My precious son Jeff. And so many friends I’ve lost count, including my best friend and fellow traveler for years and years, my Stanford classmate Skid. I still talk to them all. My mom has not really left my life; I’m just with her in a different way. ... Whenever these endings come near, it’s important to express our love, and face the final sadness together.

Letters without limits: Linda McDaniel The Johns Hopkins News-Letter; by Max Siauw and Linda McDaniel; 10/18/25 Letters Without Limits, founded by students at Johns Hopkins and Brown University, connects volunteers with palliative care and hospice patients to co-create “Legacy Letters.” These letters capture memories, values and lessons that patients wish to share, preserving stories that might otherwise be lost. By honoring these voices and preserving legacies, Letters Without Limits hopes to affirm the central role of humanism in medicine, reminding us that every patient is more than their illness and that their voices deserve to be heard. As you read these powerful Legacy Letters, we invite you to pause, reflect and recognize the beauty in every life.

Healthcare AI in the United States — navigating regulatory evolution, market dynamics, and emerging challenges in an era of rapid innovation The National Law Review; by Nadia de la Houssaye, Andrew R. Lee, Jason M. Loring, Graham H. Ryan of Jones  Walker LLP; 10/2/25 The use of artificial intelligence (AI) tools in healthcare continues to evolve at an unprecedented pace, fundamentally reshaping how medical care is delivered, managed, and regulated across the United States. As 2025 progresses, the convergence of technological innovation, regulatory adaptation (or lack thereof), and market shifts has created remarkable opportunities and complex challenges for healthcare providers, technology developers, and federal and state legislators and regulatory bodies alike. ...

Living with dementia: To improve lives, we need to change how we think and talk about this experience in aging societies EurekAlert! - AAAS (American Association for the Advancement of Science); peer reviewed publication by The Hastings Center; 9/24/25 To experience or even contemplate dementia raises some of the most profound questions: What does it mean to be a person? How does someone find meaning in life while facing progressive neurological deterioration? ... To improve the lives of our fellow citizens who are living with dementia or providing dementia care, all of us need to pay attention to how we imagine and talk about these interwoven and increasingly common experiences, concludes Living with Dementia: Learning from Cultural Narratives in Aging Societies, a special report published by The Hastings Center for Bioethics. This report responds to calls from health care and social service practitioners for new ways to depict and talk about dementia, a collective term for Alzheimer disease and related dementias. Editor's Note: Click here for free access to multiple articles in this crucial report, such as

Raising the standard of Arizona’s dementia care Lovin' Life; by Lin Sue Flood; 9/7/25 Arizona is setting a bold new standard to better support families impacted by dementia. A groundbreaking state mandate requires all memory care facilities to provide up to 12 hours of specialized dementia training to their staff, plus four hours of continuing education each year. This extensive training combines online video modules with hands-on, in-person skills sessions. Hospice of the Valley’s experienced Dementia Team is leading the way as one of the agencies the Arizona Department of Health Services has approved to deliver this comprehensive training. The nonprofit organization is unique in offering it as a free community service.

Top 5 leadership shifts to watch after the summer break Hunt Scanlon Media; by Scott A. Scanlon and Dale M. Zupsansky; 8/4/25 ... Drawing on insights from its global network, the International Executive Search Federation (IESF) has identified five key leadership transitions that are gaining momentum. These changes promise to redefine how executives think, adapt, and drive impact as organizations head into the latter half of 2025 and beyond. ...

Why terminal cancer patients still receive aggressive treatment MedPageToday; by M. Bennet Broner; 7/31/25 Recently, researchers examined whether there had been any changes in the way terminal cancer patients died from 2014 to 2019, given the increased information available on hospice, palliative care, and advanced end-of-life planning (EOLP). They asked whether those who were terminal continued aggressive treatment until their demise. The authors anticipated a decrease in this, but found that the frequency of cancer patients who continued aggressive therapy had not declined. The study did not examine decision-making. Still, the researchers, based on other studies, theorized that the lack of change resulted from a confluence of physician and patient factors. ... [Physicians] might predict a more optimistic prognosis than justified, avoid discussing EOLP, support (over)intensive treatment, and/or overemphasize treatment effectiveness while minimizing its side effects. Oftentimes, given their statements, physicians will offer treatments they know to be of little value, believing that patients expect them to propose something rather than admit there was nothing realistic left to offer.Editor's Note: Pair this with our recent post, Doctors’ own end-of-life choices defy common medical practice.

10 questions to help you plan for the end of life Time; by Angela Haupt; 7/21/25 Talking about death doesn’t have to be morbid. If you approach the conversation the right way, “it makes us more awake to our lives,” says Dr. Shoshana Ungerleider, founder of End Well, a nonprofit that aims to change the way people talk about and plan for the end of life.  “When we avoid this discussion, we rob ourselves of one of life's most clarifying forces—and that's the awareness that our time is finite.” There are other benefits to planning ahead. ... We asked experts to share 10 essential questions to ask yourself—and your loved ones—to plan for the end of life.

51 healthcare leaders’ takes on doing more with less Becker's Hospital Review; by Allie Woldenberg, Kelly Gooch, Mariah Taylor, Giles Bruce, Kristin Kuchno, and  Andrew Cass; 7/17/25 It’s a directive that hospitals and health systems of every size know well — whether sprawling academic medical centers, multistate nonprofit systems or rural, independent 25-bed hospitals. While the phrase isn’t new, the urgency behind it is intensifying. The nation’s healthcare workforce remains fragile, forcing leaders to distinguish between staffing gaps that are temporary hurdles or structural limitations. Revenue projections for health systems have shifted dramatically ... Against this backdrop, Becker’s set out to understand how health system leaders across the U.S. are interpreting and enacting the mandate to “do more with less” today. From June 9 to July 15, we spoke with executives across the country, in every type of market, hospital, and health system, to hear how they are navigating this evolving landscape. ...Editor's Note: Scan through these with a sharp eye toward improving the quality of patient care while "doing more with less." I applaud many of these leaders for not just focusing on cutting costs, but for using these crucial changes as a vehicle to improve patient care.

Elderly people look at their younger reflections in this beautiful photo series by Tom Hussey Digital Synopsis; photos by Tom Hussey; retrieved from the internet 7/10/25 'Reflections of the Past' is an award-winning photo series by commercial advertising photographer Tom Hussey. The photographs show an elderly person looking pensively at the reflection of his/her younger self in the mirror. Hussey was inspired by a World War II veteran who said "I can't believe I'm going to be 80. I feel like I just came back from the war. I look in the mirror and see this old guy." It's beautiful, touching ... Editor's Note: Click here to view this touching series. The phrases "every photo tells a story" and "a picture is worth a thousand words" come to life. This award-winning campaign was used in a marketing campaign by Novartis for a treatment of Alzheimer's disease. [Our newsletter has no disclosures to report.] These photos are under strict copyright laws with strict enforcement. They can be shared easily via social media links at the top of its webpage. 

[United Kingdom] Grandson to run 120km over 24 hours for hospice BBC News, Bristol, UK; by Clara Bullock; 6/28/25 A 31-year-old man is training to run 120km (75 miles) in 24 hours, in memory of his grandmother and to raise awareness of palliative care. Mary Lerway died in October 2023 and now Josh Galea, her grandson who lives in Bristol, is running the equivalent of almost three marathons to support St Peter's Hospice. Mr Galea, who became Ms Lerway's informal carer when her health declined, said: "Unfortunately, the end of my Nan's life was very difficult, not only for her, but also for the wider family who had to care for her. ... Ms Lerway was first seen by nurses from St Peter's Hospice 48 hours before she died. Mr Galea said that within an hour of them arriving the whole situation improved and the family could "breathe a sigh of relief"."It put us at ease knowing that she was being looked after, and it allowed us to say goodbye to her peacefully," he said.

‘Because I Knew You’: OHSU pediatric physician’s memoir reveals how treating kids helped him healOregon Public Broadcasting (OPB), Portland, OR; by Geoff Norcross, with Robert Macauley; 6/10/25 About 200 pages into Robert Macauley’s memoir, he takes up the big question of why God — if there is one — allows kids to suffer and die. “The best answer I’ve come up with — with three graduate degrees in theology from places like Oxford and Yale, followed by three decades as a physician-priest—is…” The next two pages are blank. This is what he writes next. “In other words, I don’t know. I don’t know why God lets such terrible things happen, which even someone as tragically flawed as me would make absolutely sure to prevent, given a pinch of omnipotence and a nanosecond to act.” Macauley deals with dying kids for a living. He’s a pediatrician at OHSU, and one of the few in the country certified in hospice and palliative care. He’s also an ordained Episcopal priest. His new memoir is called “Because I Knew You: How Some Remarkable Sick Kids Healed A Doctor’s Soul.” He spoke with OPB’s “All Things Considered” host Geoff Norcross. 

Father keeping a promise to son to 'never miss a baseball game' despite entering hospice Fox 13 - Tampa Bay, FL; by Briona Arradondo; 1/30/25 A father diagnosed with cancer left hospice Thursday to spend the evening making final memories with his family on a baseball diamond in Tampa. Family and friends surrounded Steve Uhal and his wife Amy with love and support as he arrived to see his 9-year-old son Charlie play one last game.  ...