Processes and lessons learned in establishing the Palliative Care Research Cooperative's Qualitative Data Repository in Serious Illness and Palliative Care

Processes and lessons learned in establishing the Palliative Care Research Cooperative's Qualitative Data Repository in Serious Illness and Palliative Care
OSF Preprints, by Salimah H. Meghani, Kim Mooney-Doyle, Amber Barnato, Kathryn Colborn, Riley Gillette, Krista Harrison, Pam Hinds, Dessi Kirilova, Kathleen Knafl, Dena Schulman-Green, Kathryn Pollak, Christine S. Ritchie, Jean Kutner, and Sebastian Karcher; 12/23
Data sharing is increasingly an expectation in health research since implementation of the National In-stitutes of Health Data Management and Sharing Policy. Qualitative studies are not exempt from this data sharing requirement. Recognizing this trend, the Palliative Care Research Cooperative Group (PCRC) realized the value of creating a de-identified qualitative data repository to complement its existing de-identified quantitative data repository.