Hospice care experiences among Medicare decedents with and without COVID-19, 2020–2021

Hospice care experiences among Medicare decedents with and without COVID-19, 2020–2021
Journal of Pain and Symptom Management, by Ann Haas MS, MPH; Rebecca Anhang Price PhD; Marc N. Elliott PhD; Joan M. Teno MD, MS; Maria DeYoreo PhD; 2/24
COVID-19, the third leading cause of death in the U.S. in 2020–2021, affected hospice care for all patients and their caregivers in many ways; patients with COVID-19 faced additional restrictions on visitations as well as direct effects of the disease. Using CAHPS Hospice Survey data from 3274 hospices nationally, we found that caregivers of Medicare decedents without COVID-19 diagnoses in 2020–2021 reported slightly worse hospice care experiences than caregivers prior to the pandemic. However, experiences for decedents with COVID-19 early in the pandemic (Quarters 2–4 of 2020) were 3.2 to 4.3 points lower than for decedents without COVID-19; these are medium-to-large differences, and larger than observed among any of the 20 most common primary diagnosis groups for the 2 overall assessments of care.