Parent priorities in end-of-life care for children with cancer

Parent priorities in end-of-life care for children with cancer
JAMA Network, by Prasanna Ananth, MD, MPH; Meghan Lindsay, MPH; Sophia Mun, MPH; Sarah McCollum, MPH; Veronika Shabanova, PhD; Sophia de Oliveira; Sarah Pitafi, BA; Rebecca Kirch, JD; Xiaomei Ma, PhD; Cary P. Gross, MD; Jackelyn Y. Boyden, PhD, MPH, RN; Chris Feudtner, MD, PhD, MPH; Joanne Wolfe, MD, MPH; 5/15/23
Question What do parents who lost a child to cancer prioritize in measuring end-of-life care quality? Findings In this survey study of 61 bereaved parents, respondents prioritized end-of-life quality measures focused on symptom management and goal-concordant care, characterizing quality measures assessing their own psychosocial support and their child’s hospital resource use as substantially less important.