Exploring parent experiences with early palliative care practices in the NICU
04/13/24 at 03:00 AM
Exploring parent experiences with early palliative care practices in the NICU
Advances in Neonatal Care, by Megan Quinn, Sheila Gephart, Janice Crist; 4/24
Parents' descriptions of decision-making were contextualized in gathering information to make a decision, the emotional impact of the decision, and influences on their decision-making. In experiences with care planning, parents described learning to advocate, having a spectator versus participant role, and experiencing care planning as communication. Key themes expressed regarding parental coping were exposure to trauma, survival mode, and a changing support network.