Literature Review

Lanterns shine light on spiritual, financial help Fort Worth nonprofit gives to terminally ill FWR - Fort Worth Report, Fort Worth, TX; by Marissa Greene; 2/16/26 Nestled within a grove of trees, more than 300 lanterns twinkled around the perimeter of the Keith House on a recent evening in the Clearfork neighborhood. The pulsing glow of the tealight candle inside each white paper bag illuminated a first name and last initial inscribed into the front of the lantern. Each name represented a patient served by Project 4031, a faith-based nonprofit aiming to provide peace and comfort to terminally ill children, adults and families facing end-of-life challenges by easing financial burdens and fulfilling last wishes. 

Metro East hospice aide caring for her own son with rare terminal disorder First Alert 4, Collinsville, IL; by Jeffrey Bullard; 3/13/26 A Collinsville mother has worked as a hospice care aide for more than 13 years, and soon she will be placing her son in that care. “She is the best,” said Brenda McGarvey of Amber Mers, her coworker at Unity Hospice Care. “If you didn’t know Amber personally, you would never know what she is going through,” explained Beverly Lee. Amber is facing a mother’s worst nightmare. Her son Emil is dying.

Religion and spirituality in pediatric end-of-life: A systematic reviewJournal of Pediatric Psychology; by Kara Jackson, Alyssa Marchetta, Barry Nierenberg, Jessica M Valenzuela; 2/26Spirituality is a recognized element of palliative care, with documented benefits for adult patients. However, limited research exists on how religion and spirituality affect children at end-of-life (EOL) and their parents. Findings revealed diverse religious and spiritual practices among families, including faith stability, spiritual care use, and prayer. Key outcomes associated with spirituality included enhanced coping, acceptance, meaning-making, hope, caregiver spiritual well-being, decision-making, and improved parent-child communication. Across studies, spiritual support emerged as a vital component of the pediatric EOL experience.

Use of nebulized tranexamic acid (TA) in combination with nebulized recombinant coagulation factor VIIa to treat hemoptysis in pediatric patients with cancer at end-of-life (EOL)Journal of Pain and Symptom Management; by Santosh Yatam Ganesh, Nelda Itzep, Eduardo Bruera; 2/26Hemoptysis is a distressing symptom for both patients and families at end of life (EOL). In the acute care setting, this can be managed surgically or medically. However, research regarding interventions, such as nebulized tranexamic acid (TA) and nebulized factor VIIa, for palliative management of hemoptysis at EOL is limited. In our case series, we found that combination of nebulized recombinant factor VIIa and nebulized TA relieved hemoptysis in both pediatric cancer patients at the end of life. This case series highlights the potential use of this combination to reduce suffering and distress secondary to hemoptysis in the palliative setting.

Volunteers prepare bears to offer comfort and hope to hospice families CBS WKNB News - 27; by Austin Caroline; 2/28/26 Making a difference, one bear at a time. That was the mission Saturday morning at Hanoverton Christian Church in Columbiana County. Volunteers spent the morning creating Burden Bears for hospice families and the Jacob’s Heart nonprofit at Akron Children’s Hospital. These small bears are made to offer comfort, hope and a tangible reminder that no one walks through hard seasons alone. Pamela Lattimer says she holds these sessions as a way for her to continue her mother’s legacy. 

Medicare, Medicaid, and Children's Health Insurance Programs: Nationwide Temporary Moratoria on enrollment of durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) supplier medical supply companies Federal Register; by the Centers for Medicare & Medicaid Services; 2/27/26 Summary: This notice announces the imposition of a 6-month nationwide moratorium on the Medicare enrollment of DMEPOS supplier medical supply companies. Background: ... Under the Patient Protection and Affordable Care Act (Pub. L. 111-148), as amended by the Health Care and Education Reconciliation Act of 2010 (Pub. L. 111-152) (collectively known as the Affordable Care Act), Congress provided the Secretary with new tools and resources to combat fraud, waste, and abuse in Medicare, Medicaid, and the Children's Health Insurance Program (CHIP).

[UK] Parental experiences of perinatal loss, with a focus on hospice provision: A thematic analysisPalliative & Supportive Care; Rhiannon Latham, Katrina Williams, Keeley Guest, Fauzia Paize, Robyn Lotto; 1/26Perinatal palliative care (PPC) offers holistic support to families of babies with life-limiting conditions, addressing emotional, psychological, and practical needs alongside ensuring dignity for the baby. Five key themes were identified [in this study]: the significance of language used by healthcare professionals when discussing the baby's condition; the importance of timely introduction to hospice care; recognition that grief is a personal and evolving process; the role of shared experiences in building relationships; and the importance of creating lasting memories. Findings highlight the importance of improving healthcare professionals' communication skills and integrating multidisciplinary palliative care services early in the care pathway. Parents expressed gratitude for the hospice support, particularly the opportunity to spend quality time with their baby and make lasting memories.

Bono residents donate blood in honor of boy battling cancer KAIT-8 News, Bono, AR; by Alejandra Hernandez; 2/16/26 A community blood drive honored 7-year-old Jacob Garland, who is battling cancer and currently in hospice care. ... Doctors told the family they had done everything possible, but the cancer was too aggressive. Jacob is now in hospice care at home. ... While hospitalized, Jacob received nearly one blood transfusion per week. ... Several family members would travel to Memphis to donate blood, even though not all of the blood would go to Jacob directly—it was still helping a patient who needed it. ... Garland’s aunt, Sharon Hill, approached the family about hosting a blood drive, and they agreed. “There’s a lot of people out there that need life-saving blood, so if it helps other families,” Garland said. “Se’re happy to be here and support that need.”

The impact of religious and spiritual care on parents or caregivers in pediatrics: A scoping reviewJournal of Health Care Chaplaincy; by Salvador Leavitt-Alcántara, Samantha Summers; 1/26This scoping review examines the literature on the impact of spiritual and religious care on parents or guardians of children admitted to high acuity pediatric hospital units. Results reveal themes of positive impact of spiritual or religious care on several components of parents/caregivers' in the areas of emotional coping, grief and bereavement, positive parental perception of the impact of chaplains in high acuity settings, and outside spiritual/religious guidance and support during the medical decision-making process.

‘Behind the Blue’: Lindsay Ragsdale on growing pediatric health care and supporting Project ADAMUK Now, University of Kentucky, Lexington, KY; by Allison Perry and Kody Kiser; 2/6/26 From College of Medicine research labs to the halls of UK HealthCare, Lindsay Ragsdale, M.D., has spent much of her career at the University of Kentucky. Now the chief medical officer for Golisano Children’s at UK, she oversees a growing team of specialists and subspecialists dedicated to providing the most complex care for the children of Kentucky. In this episode of “Behind the Blue,” Ragsdale discusses her career at UK, the role of palliative care, the growth of the children’s hospital and her own son’s experience as a pediatric cardiology patient.

National policy framework for Pediatric Palliative Care Homes National Center for Pediatric Palliative Care Homes; email and webpage; 2/3/26The NCPPCH recently formally released its National Policy Framework for Pediatric Palliative Care Homes, and has begun early engagement with key national partners. This framework is intended to help policymakers at the state and federal level better understand the structural, licensing, and reimbursement pathways needed to support Pediatric Palliative Care Centers nationwide. Review the Policy Framework and Executive Summary here: https://www.ncppch.org/national-policy-framework.

[United Kingdom] Parents to open 'virtual hospice' after unit shuts BBC News, London, England, UK; by Chris Slegg; 1/31/26 Families of seriously ill children in east London say they are setting up their own hospice service after being left without adequate care following the closure of local hospice, Richard House. The facility in Newham closed on 18 December despite a campaign by parents to keep it open in December. Parents, working with former Richard House chief executive Paul Richards, now plan to open East London Hospice, in order to provide care to families in their homes. 

Sanofi Collective - Foundation S stands behind transformative children's palliative care project in Kenya Global Treehouse Foundation; Press Release; 1/27/26 A significant grant from the Foundation S - the Sanofi Collective will enable a transformative three-year project delivering comprehensive grief and bereavement care to families affected by childhood cancer in Kenya. This is about more than funding: it’s about ensuring families are seen, supported and not left to navigate their most challenging moments alone. Foundation S’s investment is a significant milestone in integrating grief and social-emotional support into healthcare systems - an area too often overlooked, yet essential to the dignity and well-being of children and those who love them.