Literature Review

BAYADA unveils the first Home Intensive Care Unit (HICU®) for infants and children PR Newswire, Philadelphia, PA; by BAYADA Home Health Care; 1/20/26 BAYADA Home Health Care ... is proud to announce its pioneering Home Intensive Care Unit (HICU®) program for infants and children with high-acuity medical needs. Following a successful pilot of this unique care delivery model, BAYADA's HICU® services are now available in three states—Delaware, New York, and Pennsylvania—with growing interests to expand nationwide.

"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residentsClinical Pediatrics; by Erin Hickey, Erica L Jamro; 12/25Educational interventions to prepare pediatric residents to care for grieving people are rare.  Pediatric residents completed a survey conducted from March to April 2022 that assessed their experience, attitudes, skills, and knowledge of organizational support related to caring for grieving patients and families.  Despite improvements in competence with delivering difficult news with years in residency ... , only 35.7% felt competent by PGY3/4 [post-graduate year 3]. Only 19.5% of residents overall believe adequate grief support exists within their training program. Opportunities for residents to receive formal grief training are inadequate.

Trends in pediatric palliative care - A newsletter Trends; by the Siden Research Team; 1/20/26 In 2024 TRENDS published it’s 100th issue and enrolled its 1000th newsletter subscriber, the newsletters growth shows no signs of stopping. The Siden Research Team continues to center ways to foster the pediatric palliative care community and ultimately improve care for our patients. ... ith no journal dedicated to pediatric palliative care, finding relevant articles required scouring pediatric journals for palliative literature and palliative journals for paediatric literature – clearly there was a gap in effective dissemination of relevant articles. ... The Siden Research Team took initiative to bridge this gap. In June 2016 the first search and resulting citation list was compiled.

'It’s comfort, dignity and time': Agrace receives CuddleCot donation from JackPack GazetteXtra, Janesville, WI; by Kylie Balk-Yaatenen; 1/4/26 For nearly a decade, a Janesville family has worked to ensure that parents facing the loss of a baby are given something they themselves never had: Time. Through The Jack Pack, a local nonprofit founded after the stillbirth of their son, Jack, in 2015, Jackie Harwick and her husband, Garrick, have donated 14 CuddleCots to hospitals and hospice providers across southern Wisconsin. Their most recent donation went to ... Agrace’s pediatric hospice program. A CuddleCot is a temperature-controlled bassinet insert that slows natural changes after death, allowing families to spend extended time with their baby; ... That time can allow parents to hold their child, invite loved ones to meet the baby, create memories and begin grieving in a more supported way.

Pediatric respite homes provide a survival mechanism for struggling families [podcast]Medpage Today's KevinMD.com; by KevinMD; 1/1/26Certified coach and professor Kathleen Muldoon and co-founder of Ryan House and Children’s Respite Homes of America Jonathan Cottor discuss the article “The need for pediatric respite care.” Kathleen shares the personal story of raising her son Gideon who lives with over 42 medical diagnoses and explain why the family had to move across the country to find safety. They highlight the critical difference between taking a break and surviving the relentless cycle of 24/7 medical vigilance required for medically complex children. 

Laramie Car Club hosts private show for 11-year-old boy fighting cancer Cowboy State Daily, Laramie, WY; by Dale Killingbeck; 12/22/25 Like many 11-year-olds, Wyatt loves cars, especially tricked-out classic rides that are blinged-out to the max. But as a cancer patient in hospice care, he can’t get out to the car shows he loves. So, the show came to him Sunday. Wyatt got to watch from hospice as a parade of classic cars and trucks slowly cruised by. Jimmy Mora, a member of the Rollerz Only Car Club and owner of a 1936 Plymouth P2 Deluxe Coupe, helped organize the private parade for Wyatt.

Seven-figure estate gift bolsters hospice care: Madeline Childs' generous bequest honors her late husband Hometown News, Rockledge, FL; Press Release; 12/7/25 The Health First Foundation is honored to announce a transformational seven-figure planned gift from the late Madeline Childs to support the William Childs Hospice House in Palm Bay and Hospice of Health First’s inpatient hospice programs. Madeline’s final act of generosity reflects a commitment that began more than two decades ago. In 2002, her husband, Bill, received hospice care during his final days. The experience was brief, but it left a lasting imprint on her. Out of that moment of personal loss, Madeline chose to give back by establishing an irrevocable estate gift that would ultimately lead to the naming of the William Childs Hospice House in Bill’s memory.

[United Kingdom] Children's hospice to shut days before Christmas BBC News, London, England; by Amy Clarke; 12/12/25 A children's hospice that has supported children living with complex life-limiting conditions for 25 years is due to close just days before Christmas. Richard House in Newham, east London, provides specialist care to more than 300 families - offering services such as residential care, transition from hospital to home, bereavement support and end-of-life care. 

Adolescents' and young adults' perspectives on decision-making and the emotional experience of having advanced cancerJournal of Pain and Symptom Management; by Nelda Itzep, Jessica Moore, Colleen Gallagher, Michael Roth, Peyton Martin, Mike Hernandez, Karen M Moody; 12/25Adolescents and young adults (AYAs) with advanced cancer represent a unique and vulnerable population. Little is known about the optimal approach to support their medical decision-making needs... Most participants reported acceptance and peace with their illness, yet many struggled with changes in physical appearance, the unfairness of getting cancer, and angry feelings related to their illness. Participants also reported high levels of therapeutic alliance with their doctors. These AYAs reported remaining hopeful and future oriented despite their prognosis. They also reported a strong belief that AYAs should be involved in decision-making.

Pediatric imminent death donation: Is it ethical?Journal of Pain and Symptom Management; by Gabriel Chain, Laura Pucillo, Mindy Dickerman, Richard James, Stephen Dunn, Elissa G Miller; 12/25Imminent death donation (IDD) is a form of organ donation that would occur just prior to the withdrawal of life-sustaining technology (WOLST). While IDD may offer a valuable opportunity for organ donation, for example when donation after circulatory death (DCD) is not feasible, it raises significant ethical concerns, particularly in pediatric cases... Clinicians from critical care, transplant surgery, palliative care and our hospital ethics committee offer differing views on how to address [a complex case].

Hospice El Paso pediatric patient to spread joy with Toy Drive for local children ABC KIVA-7, El Paso, TX; by Armando Ramirez; 12/1/25 7-year-old Kenia Marisol Huerta Medina, a participant of Hospice El Paso's Butterfly Program, has a wish to help others this holiday season. According to Hospice El Paso, Kenia is battling diffuse intrinsic pontine glioma, a cancer that affects the central nervous system to include the brain and spinal cord. As apart of her holiday wish, Kenia is asking for Christmas toys and other gifts for undeserved children in the El Paso region.

5.2 consultation-Liaison perspectivesJournal of the American Academy of Child & Adolescent Psychiatry; by Julia A. Kearney;10/25Parents suffer loss and anticipatory grief, struggle with complex medical decision-making, and bear the primary burden of talking to their children about illness, death, and loss. Clinical intervention can: 1) improve communication around child prognosis and medical decision-making; 2) support parents in having open conversations with their children; and 3) directly assess and address parent mental health. Parents and caregivers appreciate resources to address their mental health in pediatric settings, need expertise from clinicians experienced in pediatric illness and palliative care, and need programs to overcome barriers such as parents’ unwillingness or inability to leave their child and the unpredictability of the child’s illness. While nothing can eliminate the suffering and grief of families facing a child’s terminal illness, clinicians can increase hope by helping enhance meaning, connection, trust, and love while reducing guilt and regret.