Literature Review

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care. 

Experts discuss what hospice and palliative care are and how they can help ideastream public media; by Leigh Barr; 5/21/25Contemplating a life-limiting or life-changing illness or even death can be difficult topics for Americans.  Last year, USA Today conducted a survey which found about 30% of Americans surveyed found it difficult to talk about or even contemplate their own mortality. When it comes to managing serious illness or the final phase of life, surveys show that a majority of Americans say they have at least heard of hospice or palliative care but most admit they may not know a lot about either topic. We're going to talk about both to begin Wednesdays “Sound of Ideas” and try to dispel some of the myths that may surround hospice and palliative care. 

6 ways to successfully implement clinical communication tools Forbes; by Judit Sharon; 5/19/25 In the high-stakes environment of healthcare, communication breakdowns can have life-or-death consequences. Yet too often, hospitals and healthcare systems assume that simply deploying new clinical communication and collaboration (CC&C) tools will solve the problem. The reality is more complex: Successful implementation depends just as much on operational alignment, cultural change and thoughtful execution as it does on the technology itself. To turn communication tools into real transformation, here are six ways to drive successful CC&C adoption.

Professor teaches student physicians how to use art to connect with end-of-life patients Thomasville Times-Enterprise, Moultrie, GA; by Staff Reports; 4/23/25Richard Curtis of Thomasville teaches art classes at Thomas University, but he’s also an end-of-life doula who volunteers with patients through Archbold Hospice, integrating his artistic skills into his volunteer work. Earlier this month, Curtis showcased his blend of art, medical care, and human interaction during a session of the Medical Humanities course at PCOM South Georgia. Led by faculty member Thomas Last, PhD, the course aims to help student physicians transcend the science of medicine. “The Medical Humanities course supports students’ growth into humanistic, socially conscious physicians by providing reflective opportunities and meaningful experiences that deepen their understanding of diverse patient perspectives,” Dr. Last said.Editor's note: Do you dismiss this? Does it seem too "out there"? For stronger context, Sandra Bertman, PhD, FT pioneered Arts Medicine with medical students and other healthcare clinicians. For most of her career, Bertman was Professor of Humanities in Medicine at the University of Massachusetts Medical School and Graduate School of Nursing, where she founded and directed the Program of Medical Humanities and Arts in Healthcare. (More personally, I've been blessed to know Sandra as my colleague and friend.) Dr. Bertman was awarded the Robert F. Kennedy Award for Social Justice (2018). Her primary publications include ...

When they don't recognize you anymore The New York Times - The New Old Age; by Paula Span; 4/20/25 People with dementia often forget even close family members as the disease advances. "It can throw people into an existential crisis," one expert said. [Additional access may require subscription.]

Family Hospice partners with Alzheimer’s Association to expand educational outreach EIN Presswire.com, Atlanta, GA; by Brittany Brown; 4/8/25 Family Hospice announces an official partnership with the Alzheimer’s Association, Georgia Chapter, to enhance educational outreach and raise awareness of available resources for individuals facing Alzheimer’s or other dementia.This collaboration will provide families, caregivers, and healthcare professionals with critical information on hospice and Alzheimer’s and dementia-related support. As part of this effort, Family Hospice and the Alzheimer's Association are planning an upcoming statewide initiative in Georgia aimed at expanding awareness and support. Both organizations will share educational materials at community events and through social media to ensure families and caregivers have access to the guidance they need. [Continue reading ...]

What to do if a loved one is evacuated from a nursing home or assisted living AARP; by Emily Paulin; 1/10/25, updated 1/23/25 Running from a wildfire is a terrifying ordeal for anyone. But there’s added fear for those who have limited mobility, rely on medical equipment or suffer from dementia and struggle to comprehend what is happening. ... Evacuating these vulnerable, high-needs residents is a complex and precarious operation. Family members may be unsure of how to find their loved one or what to do to support them in a disaster situation. We’ve gathered advice from disaster response and long-term care experts on five topics to help family caregivers navigate these situations.

Hospices must ‘evolve’ to better support next generation of caregivers Hospice News; by Holly Vossel; 3/31/25 Individuals in the millennial and generation Z (Gen Z) age groups represent a swelling proportion of today’s family caregivers. They face unique challenges when providing support for hospice patients compared to others, recent research has found. ... Understanding the competing, complex priorities of these generations is pivotal for hospices’ ability to deliver quality care, according to Nicole McCann-Davis, senior client advisor and research director at Transcend Strategy Group. [Continue reading ...]

Niagara Hospice to offer free community presentation for National Healthcare Decisions Day Niagara Frontier Publications; Press Release; 3/28/25 April 16 is National Healthcare Decisions Day, which is a day set aside to educate and empower individuals to discuss and document their end-of-life health care wishes. Niagara Hospice invites the community to attend the free presentation, “Advance Care Planning: Advance Directives for Health Care,” ... Advance care planning includes advance directives like health care proxies, do not resuscitate (DNR) orders, and living wills. Advance directives help to ensure end-of-life care wishes are followed if one is unable to make necessary decisions for themselves. [Continue reading ...]Editor's note: For more information about National Healthcare Decisions Day (NHDD), explor The Conversation Project, at the Institute for Healthcare Improvement. 

Study raises questions about GUIDE model’s helpfulness for caregivers of loved ones with dementia McKnights Home Care; by Adam Healy; 4/1/25 The Guiding an Improve Dementia Experience may need to be fine-tuned to better serve caregivers of those living with dementia, according to a new study published in Alzheimer’s & Dementia. The researchers identified 565 older adults and 555 caregivers eligible for GUIDE using data from the 2022 National Health and Aging Trends Study and National Study of Caregiving. They found that approximately half of GUIDE-eligible people with dementia received care from two or more caregivers, and about a third of these caregivers reported experiencing high caregiving strain. [Continue reading ...] 

What to know about palliative and hospice care Association of Health Care Journalists (AHCJ); by Liz Seegert; 3/28/25 ... [Palliative care] is fundamental to health and human dignity and is a basic human right, according to the FXB Center for Health and Human Rights at Harvard.  When reporting on serious illnesses, journalists can help demystify palliative care and encourage more people in need to take advantage of it by clearly explaining the differences, and benefits, and incorporating anecdotes to further illustrate how these types of care make a difference in the lives of patients and their families. [Continue reading ...] Editor's note: Share this article--written for health care journalists--with your communications and marketing leadership, with your community newspapers' journalists, and your employee/volunteer educators. Too often, new hospice/palliative care employees at all levels of roles and responsibilities begin their roles without clear knowledge, comprehension, and application of distinctions between standard healthcare, palliative care, and hospice care.  

The COVID mistake no one talks enough about The Atlantic; by Sunita Puri; 3/25/25 Deaths in isolation have been treated as a painful memory, not as a problem that hospitals need to address. He was one of the few ICU patients whose face I saw in early 2021, when COVID raged through Los Angeles. As a palliative-care physician, my job was to meet, over Zoom, with the families of intubated patients to ensure that they had complete medical updates and to help them make difficult medical decisions on behalf of their loved one, particularly when that person faced death. But in a surreal departure from my usual practice, I’d never once seen these patients myself: At the time, to minimize exposure to COVID, the only people permitted to enter the ICU regularly were members of the ICU team. ... His wife told me that during his many previous illnesses, she had slept every night in his hospital room, making sure he asked for pain medications and watching movies with him to pass the time. “He fought harder to live when I was there,” she told me. [Continue reading ... full access may require a free trial or subscription]

Carolyn Hax: Does sibling love justify traveling to abusive mom’s deathbed?The Washington Post, Washington, DC; 3/24/25 Sister asks the letter writer to join her at their dying mom’s bedside — despite their PTSD-inducing childhoods. [The rest of this article may require a subscription to The Washington Post.]Editor's note: Even if you're not able to access the full article, what does this question stir in you? Be aware that many family caregivers (or simply family members) face complex, conflicted relationships with the persons they are tending--or in this case, even considering visiting or not. Be attuned to these common, everyday occurrences that your direct care interdisciplinary team members regularly navigate. What family systems' education and support do you provide for them?