Literature Review

Ready or not: Rapp at Home program is changing aging’s last chapter Rappahannock News, Washington, VA; by Daphne Hutchinson; 1/4/26 Huntly resident Gwen Bates is good at getting people together. So when Rapp at Home (RaH), the county’s “senior village,” learned of a new program designed to help older adults navigate and plan for later life, Bates volunteered to organize the multi-faceted effort in Rappahannock.  “She took the ball and ran with it,” RaH president Joyce Wenger says. Called Ready or Not (RON), the program was developed by Queen Anne’s at Home (QAH), a senior village located in Queen Anne’s County, Md. on the Eastern Shore of the Chesapeake Bay.

Tiny tree reappears along Lititz Pike to brighten the holiday season Lancaster Online, Lancaster, PA; by Claudia Esbenshade; 12/23/25 ... Anderson, a social Worker with Hospice & Community Care, took the initiative that year to give "Charlie," which is what Anderson called her tree, some love and adorned it with a little blue blanket and one red ornament. She named the tree in honor of the beloved tree from "A Charlie Brown Christmas." ... "Charlie had become more than a weed in a crack. He was a symbol. A pause. A quiet reminder that resilience exists even when conditions are ugly, and hope can show up where you least expect it," she wrote in her post. "My work centers around people who are often really fragile and facing limited life expectancy," Anderson said in an email. "So sometimes the smallest, most overlooked things end up meaning the most, especially to people who are tired, grieving, or just trying to get through the day. That little tree’s resilience has always been really special to me."

The hidden influence of social narratives on end-of-life decisionsJournal of Applied Social Science; by Stephanie Smith; 11/25Widespread exposure to idealized and distorted portrayals of death across news media, entertainment, and advertising has reshaped societal understandings of mortality. Often depicted as rare, swift, conquerable, or emotionally distant, death is stripped of realistic representation, obscuring the complexities of the dying process. Drawing on social cognitive theory, this interdisciplinary conceptual analysis examines how such portrayals function as behavioral models—shaping individual attitudes toward mortality, influencing end-of-life care decisions, and informing public health policy and resource allocation. Addressing these distortions requires a cross‑disciplinary shift in cultural attitudes, bringing together storytellers, clinicians, educators, and policymakers to integrate authentic portrayals of dying into public discourse, reframe aging as a valued stage of life, and expand access to death education. Such efforts can dismantle harmful myths, support informed decision-making, and guide healthcare systems toward practices that balance medical possibility with human dignity. In doing so, society may cultivate a more honest, empathetic, and developmentally appropriate relationship with mortality.

Terminally ill Stanford professor teaches class about dying from cancerCBS News, Bay Area, CA; by Elizabeth Cook; 3/13/25 A Stanford University professor's new curriculum explores the multiple aspects and phases of a person dying of cancer, and it comes from a person with first-hand knowledge. Dr. Bryant Lin has been a professor for almost two decades. He's used to being the teacher, not the subject of his classes. But that all changed in 2024 when he was diagnosed with stage 4 lung cancer. ... The diagnosis was a dose of cruel irony. Lin co-founded the Center for Asian Health Research and Education. One of the priorities for the foundation is researching non-small cell adenocarcinoma, also known as "never-smoker lung cancer," the same cancer diagnosis that Lin received. ... The class is called "From diagnosis to dialogue: A doctor's real-time battle with cancer." Within minutes of being posted, the class and the waitlist were full. ... The 10-week course covers the entire spectrum of cancer as seen through the eyes of someone who is living it. ... Stanford University recorded every session of the class so that they could live on for future physicians. If you would like to watch them, they can be found on YouTube. 

Center for Hospice Care's lifePACT program promotes inclusive opportunity for managing emotions and palliative care in the community GreatNewsLife.com, Valparaiso, IN; by Garrett Spoor; 12/16/25 ... [The] lifePACT program is a unique opportunity open those who aren’t patients at Center for Hospice Care. Laura Baker, lifePACT coordinator and mental health counselor, encourages community members who are dealing with overwhelming emotions to enroll. “lifePACT is a series of psychoeducational courses that teach coping skills in the face of overwhelming emotions – such as anxiety and depression,” Baker said. “In the course of a normal life, we all struggle, even suffer, with heavy and difficult emotions. The lifePACT courses teach skills and frameworks to manage these difficulties. Instead of reacting to each difficulty, we teach how to choose responses that most align with the value system of each individual.”

GUIDE and beyond: Strategies for comprehensive dementia care integrationJournal of the American Geriatrics Society; by Kristin Lees Haggerty, David B Reuben, Rebecca Stoeckle, David Bass, Malaz Boustani, Carolyn Clevenger, Ian Kremer, David R Lee, Madelyn Johnson, Morgan J Minyo, Katherine L Possin, Quincy M Samus, Lynn Spragens, Lee A Jennings, Gary Epstein-Lubow; 10/25The Centers for Medicare & Medicaid Services' (CMS) Guiding an Improved Dementia Experience (GUIDE) Model represents a landmark opportunity to improve outcomes for persons with dementia and their caregivers and scale comprehensive dementia care through a structured service delivery and alternative payment approach.  Drawing from the experiences of six previously tested programs ... we describe a four-step approach to enable successful adoption and implementation: identifying key leaders and partners, preparing a tailored value proposition, initiating program start-up, and ensuring sustainable implementation. We highlight practical tools and resources to address operational challenges, including electronic health record integration, reimbursement strategies, and staff training. By focusing on evidence-based models, health systems and other providers can accelerate implementation, reduce costly emergency and institutional care, and deliver high-quality, person-centered support. This approach can help to empower GUIDE participants and others to build effective, durable, scalable comprehensive dementia care systems, ultimately advancing the goal of establishing such care as a permanent Medicare benefit.

Kirk Greene: Why every family needs an estate planning ‘lifeboat drill’ Noozhawk, Santa Barbara County, CA; by Kirk Greene; 11/21/25 Over many years, my financial services firm conducted “lifeboat drills” with our clients. Some of the drills were focused on trying to help clients understand how much market volatility they could really handle. But we also ran “lifeboat drills” about estate planning. We would typically meet with a married couple and pretend that one of the spouses (often the husband) had just died or become incapacitated. The unfortunate spouse was encouraged to just listen as we worked through what his or her spouse would have to deal with. 

Unique ethical dilemmas occur in long-term care settings: Staff need ethics resources  Medical Ethics Advisor; by Stacey Kusterbeck; online ahead of print 12/1/25 issue ... “The position paper was developed in response to concerns from our members about the ethical challenges of the changing environment in long-term services,” says Jason M. Goldman, MD, MACP, president of the American College of Physicians. ... Discharge disposition, communication issues (either among the clinical team or between clinicians and parents), behavior problems, and goals of care were the top ethical issues reported. Lack of caregiver support was another frequent unique ethical concern. Editor's Note: Your hospice is in a unique role to provide ethics trainings for end-of-life care, and thus building trust, clinical best practices, and referrals. The CMS Hospice Conditions of Participation require: Hospices That Provide Hospice Care to Residents of a SNF/NF or ICF/MR (§ 418.112) (f) Standard: Orientation and training of staff. Finally, this rule requires a hospice to assure the orientation of SNF/NF and ICF/MR staff caring for hospice patients. Staff orientation must address the following topics: hospice philosophy; hospice policies regarding patient comfort methods, pain control, and symptom management; principles about death and dying; individual responses to death; patient rights; appropriate forms; and record keeping requirements.

Finding their "why": Women in healthcare share their journeys at Alys Smith Symposium The Parthenon; by Abby Ayes; 11/13/25 ...  This year, the [seventh Alys Smith Symposisum on Women Professionals] celebration centered on Melanie Hall, Hospice of Huntington CEO and Marshall University alumna, whose keynote address offered a glimpse into resilience, loss and purpose. ... Hall’s story began with a spark of curiosity. “In early high school, you’re trying to figure out what you’re going to do,” she said. “So, I signed up to be a candy striper.” ... In 2013, Hall’s husband encouraged her to apply for the CEO position at Hospice of Huntington. A few months later, tragedy struck when a house fire destroyed everything her family owned. “Thankfully, all my family made it out,” Hall said. “But life changed in just a few hours.” ... As she wrapped up her keynote, Hall left the audience with a reminder about finding purpose in the unexpected turns of life. [Continue reading.]Editor's Note: Thank you Melanie for your leadership both through Hospice of Huntington and throughout your community. This article ends with, "Students, faculty, and community members were given the chance to ask questions, connect, and learn about nontraditional pathways in healthcare, a fitting close to an evening dedicated to women whose care, courage and conviction define what it means to serve."

End-of-life care and health promotion in Black and African American religious communities: A systematic reviewThe Journal of Aging & Social Change; by Chesney Ward; 10/25Blacks and African Americans have the highest mortality rates of any racial or ethnic group, yet they are less likely to complete advanced directives in the United States.  This systematic review found that faith-based health promotion for end-of-life planning is an effective strategy for engaging Black Americans in discussing end of-life care despite Black and African Americans’ preference for treatment. By implementing faith-based health promotion in churches, Black Americans are more likely to engage in end-of-life care discussions and complete advanced directives, enhancing their quality of life as they age.

Health Talk: National Care at Home Month Rutland Herald, Rutland, VT; by Nicole Moran; 11/1/25 Throughout the month of November, VNA & Hospice of the Southwest Region (VNAHSR) will join organizations across the nation in recognizing and celebrating National Care at Home Month.Editor's Note: This article demonstrates great community outreach and education through local new outlets and national observances. For more visit our post, "November 2025 Healthcare Observances," and our ongoing Healthcare Observances webpage for additional dates.

Natalie’s Notes: Dad’s weekend needs events for grieving students The Post, Athens, OH; by Natalie Saddler; 10/31/25 This weekend is Ohio University’s Dads weekend, filled with events, ... throughout campus. Although many students enjoy these events, some students could be grieving a deceased loved one from afar, and this weekend may affect them negatively. ... However, the only hospice program in Athens doesn’t offer any support groups or community bereavement services. Many grieving Athens residents can’t access a proper support group, especially students with family members in hospice care. ... [A support event was created] through the Honoros Tutorial College called  AlternaDad’s.