Literature Review

Community invited to see Edina Thespians' one-act play, 'Wit' Sun Current, Coon Rapids, MN; by Alex Kautzman; 1/20/25Edina High School Thespians are ... looking forward to showing off their hard work to the community in two performances at the Edina Performing Arts Center. ... "Wit" centers on Vivian Bearing, a brilliant poetry professor, as she undergoes an experimental and extremely aggressive chemotherapy treatment. As Vivian undergoes treatment at the hands of impersonal doctors, she discovers that human compassion may be more important than intellectual wit.Editor's note: This Wit telepay is based on the 1999 Pulitzer Prize-winning play by Margaret Edson. Its 2001 television drama film was directed by Mike Nichols, written by and starring Emma Thompson. Wit has been used extensively for community and clinical education, fostering conversations about ethics, palliative care/hospice, advance directives, quality of life, and more. Click here for more information. Wit can be streamed via Max and the Max Prime Video Channel.

Sovereign Hospice empowering young adults to understand hospice Fox-40; Press Release by Sovereing Hospice; 1/20/25 Sovereign Hospice ... in Aubrey, Texas, is shedding light on the essential role young adults play in understanding and supporting hospice and palliative care services. Through their latest blog, “Spreading Insight: What Young Adults Should Know About Hospice & Palliative Care,” the organization aims to debunk myths, explain key differences between hospice and palliative care, and emphasize why early awareness is critical for families navigating complex health journeys. Many young adults assume caregiving responsibilities earlier than expected, often balancing personal and professional commitments. Studies show that nearly 1 in 4 adults aged 18–34 provide care for a loved one, underscoring the need for awareness about hospice and palliative care. 

Introduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. 

10 Years of making the world a more livable place for all bereaved people Evermore; by Joyal Mulheron, Executive Director; 12/21/24   Fourteen years ago today, I was sitting on my couch, trying to make sense out of what just happened to our family. Our terminally ill daughter, Eleanora, had died a few weeks prior. While others sang holiday songs and gleefully exchanged gifts, it was a profoundly painful, dark, and isolating time for me. Within a few short years, I quit my career because I saw tragedies saturating our national headlines, leaving a trail of unseen and unsupported bereaved people in their wake, and I believed our nation should prioritize the needs of all bereaved people. ... This is what I set out to change. ... Evermore’s groundbreaking advocacy efforts resulted in our nation’s first Report to Congress, which provided an overview of grief and bereavement services in the United States. Next year, a report analyzing more than 8,000 scientific studies will be published, reviewing the highest quality interventions for bereaved people — which was championed by Evermore and endorsed by Congress. Editor's note: Click on the title's link to continue reading Evermore's trailblazing, state-of-the-art leadership and advocacy with Congress, the government's Substance Abuse and Mental Health Services Administration (SAMHSA), Newsweek, PBS, Harvard's Public Health magazine, Penn State, the University of California, and more. Click here to join Evermore's mailing list, and to learn from Joyal Mulhuron, Evermore's inspiring, soulful Founder/Executive Director. 

[United Kingdom]  'My son died at 24 - now I'm doing his bucket list' BBC News; by Adam Eley and Alison Holt; 12/16/24 Alex Spencer's son Declan - who had Duchenne muscular dystrophy - died last year at the age of 24, and she admits she has still not gone a day without crying. "I think society has a misconception that a carer gets their life back [when a loved one dies]," she said. Declan had drawn up a bucket list but died before he could finish it. Now Alex, who wants to raise awareness of the difficulties disabled people face in getting the right care, is taking up the challenge - including visiting Paris, getting a tattoo Declan designed and taking his adapted van around a famous German race track.

You heard that correctly: Scammers are committing hospice fraud Federal Trade Commission - Consumer Advice; by Kira Krown, Consumer Education Specialist; 12/13/24 Did someone reach out and offer free, in-home perks like cooking and cleaning in exchange for your Medicare number? Don’t give it. That could be a scammer trying to commit hospice fraud.Scammers are targeting older adults — with calls, texts, emails, fake ads, and even door-to-door visits — claiming they’ll set you up with services like free cooking, cleaning, and home health care. What they likely won’t tell you is how: They want to commit fraud by signing you up for Medicare hospice — that’s right, hospice — care. Then, they can bill Medicare for all kinds of services in your name. Here’s what to know: ..Editor's note: Share this crucial information information from the Federal Trade Commission with communities you serve, your employees, and your volunteers. 

Marin County Office of Education, Novato Unified School District & By the Bay Health partner to address healthcare talent shortage PR Newswire, San Rafael, CA and Novato, CA and Larkspur, CA; by By The Bay Health; 12/3/24The Marin County Office of Education (MCOE), the Novato Unified School District (NUSD), and By the Bay Health, Northern California's largest independent nonprofit hospice provider, are joining forces to launch a strategic workforce initiative to address the growing healthcare talent shortage in the County. Starting in Spring 2025, MCOE, NUSD, and By the Bay Health will pilot a new Career Technical Education (CTE) course at San Marin High School in Novato to introduce students to healthcare careers. The CTE course, Introduction to the World of Healthcare, will be the first high school course of its kind in the County designed to provide a comprehensive introduction to career opportunities in the healthcare field, including a focus on careers in community-based care in the home. An elective for 11th and 12th grade students, the curriculum will cover a range of topics from healthcare professions to medical ethics, communication, public health, and emerging trends in healthcare.

Hospice of Northeast Missouri marks 30 years, eyes future growth KBUR, Burlington, MO; by collinleddy; 11/25/24 Hospice of Northeast Missouri recently marked 30 years of service, expanding from its original focus in Adair County to cover a ten-county region. This growth addresses the critical need for end-of-life care in rural areas, providing support for patients and their families in managing symptoms and caregiving responsibilities. The organization has seen an increase in demand for its services, particularly among Medicare recipients in rural areas. Between 2010 and 2022, the percentage of rural Medicare beneficiaries using hospice care rose from 34% to 42%, reflecting broader trends in aging populations and the growing importance of caregiving. ... As the hospice looks ahead, it plans to further expand its resources and focus on community education, ensuring that more families are aware of the benefits hospice care provides during difficult times.Editor's note: Per the ongoing number of hospices that celebrate decade-marker anniversaries, we typically do not post those articles. However, the growth patterns in these descriptions reflect hospice organizational trends nationwide: expanding geographical access, rural utilization, increased priorities for caregivers, snf the importance of community education.

How to start the most difficult conversation in the world this holiday season EIN Presswire, Philadelphia, PA; by Cremstar; 11/25/24 According to a Caring.com Survey only 32% of Americans have a will. This Thanksgiving take advantage of this year’s holiday gatherings to plan for the inevitable. ... “There isn’t one right way to approach this topic. It really depends on the person you’re talking with,” says J.G. Sandom, CEO of Cremstar, a leading online cremation service. For example, if you know your person doesn’t like to be taken by surprise, give them a heads up, says Kate DeBartolo of the Conversation Project, an initiative of the Institute for Healthcare Improvement. Planning a visit with your parent(s)? Let them know beforehand that this topic is on your mind and that you’d like to talk about it with them. This gives them the opportunity to think about what they want, if they haven’t already. Here are Four Tips to ensure a successful dialogue:

How to manage sibling relationships strained by family caregiving AARP; by Christine A. Di Pasquale; 11/25/24 ... Conflict around caregiving is not unusual, especially between sisters, says Megan Gilligan, Ph.D., an associate professor of Human Development & Family Science at the University of Missouri. Gilligan is a co-author of the longitudinal Within-Family Differences Study that looks at understanding the “relationships between parents and their adult children and grandchildren, as well as between siblings in adulthood.” Gilligan and her colleagues found that sisters tend to be more critical of one another than sons when it comes to parental caregiving. “Daughters are raised with a sense of expectation, obligation, of wanting to provide that care and wanting that care to look a certain way,” she explains. “And we found that when multiple daughters were involved in care, maybe sometimes they’re kind of stepping on each other’s toes whereas … sons were more likely to kind of step back and let sisters navigate that,” she says. ... Gilligan suggests that we replace the idea of equality with equity in caregiving. Siblings should ask what the parents want each child to do and then divide that work equitably if not equally in order to reduce sources of stress for the ailing parent and among siblings.

There aren't enough dementia providers in Arizona. This unique campus offers training KJZZ Phoenix, AZ; by Kathy Ritchie; 11/15/24 Arizona has the fastest growth rate of Alzheimer’s disease in the country. Yet there are not enough paid caregivers or even geriatricians — only 92 in the entire state — for this population. So how do you educate, even inspire, health care students to care about dementia? As the saying goes, if you build it, they will come. Judy Ward is chatting with three nursing students from Creighton University when a group of preschoolers toddle on by. ... The children attend a care center located at Hospice of the Valley’s Dementia Care and Education Campus in Arcadia. That’s also where Judy’s adult day club for people living with dementia is situated, along with a 12-bed assisted living community and a hospice unit. ...

It's not just pumpkin spice time--it's time for the family conversation! Dunlap Bennet & Ludwig; by George Reilly; 11/13/24 “Quality family time” is a phrase often heard in the period from Thanksgiving to New Year’s, sometimes even with air quotes, to describe what many people believe to be a necessary, but not necessarily enjoyable, time of family togetherness. ... Whatever your perspective on this “quality family time,” chances are that for most of you, it was/will be a missed opportunity to discuss very important matters with your loved ones—namely what happens in the event of disability or death; who takes care of what; a parent’s (or grandparents, or your own) wishes on the end of life medical care and funeral/burial/cremation choices; your wishes on guardians for minor children; and other critical, but admittedly sensitive and gloomy topics. ...  Consider these statistics from surveys conducted by the Conversation Project: ... 92% of Americans say it’s important to discuss their wishes for end-of-life care, but only 32% have had such a conversation! [Click on the title's link to continue reading.]

Governor proclaims Home Care, Hospice, Palliative Care Month 2024Governor.nc.gov - an official website of the State of North Carolina; by Governor Roy Cooper; 11/1/24A PROCLAMATIONWHEREAS, the State of North Carolina recognizes the importance and value of home care, home health, hospice, and palliative care in enhancing the well-being and quality of life for individuals and their families; andWHEREAS, home care, home health, hospice, and palliative care providers offer essential services and support to individuals of all ages, ensuring their ability to receive necessary care in the comfort and familiarity of their own homes; andWHEREAS, being able to receive care and support in the comfort of one's own home allows individuals to maintain a sense of dignity, independence, and quality of life; andWHEREAS, the dedicated professionals of the home care, home health, hospice, and palliative care industry work tirelessly to improve the lives of North Carolina residents, providing compassionate care, emotional support, and necessary medical assistance; and ...WHEREAS, North Carolina's home care, home health, hospice, and palliative care providers play a crucial role in promoting patient independence, reducing hospital readmissions, and minimizing the burden on our healthcare system; NOW, THEREFORE, I, ROY COOPER, Governor of the State of North Carolina, do hereby proclaim November, 2024, as “HOME CARE, HOSPICE, PALLIATIVE CARE MONTH” in North Carolina, and commend its observance to all citizens. [Click here to read the full proclamation.]