Literature Review

Kirk Greene: Why every family needs an estate planning ‘lifeboat drill’ Noozhawk, Santa Barbara County, CA; by Kirk Greene; 11/21/25 Over many years, my financial services firm conducted “lifeboat drills” with our clients. Some of the drills were focused on trying to help clients understand how much market volatility they could really handle. But we also ran “lifeboat drills” about estate planning. We would typically meet with a married couple and pretend that one of the spouses (often the husband) had just died or become incapacitated. The unfortunate spouse was encouraged to just listen as we worked through what his or her spouse would have to deal with. 

Unique ethical dilemmas occur in long-term care settings: Staff need ethics resources  Medical Ethics Advisor; by Stacey Kusterbeck; online ahead of print 12/1/25 issue ... “The position paper was developed in response to concerns from our members about the ethical challenges of the changing environment in long-term services,” says Jason M. Goldman, MD, MACP, president of the American College of Physicians. ... Discharge disposition, communication issues (either among the clinical team or between clinicians and parents), behavior problems, and goals of care were the top ethical issues reported. Lack of caregiver support was another frequent unique ethical concern. Editor's Note: Your hospice is in a unique role to provide ethics trainings for end-of-life care, and thus building trust, clinical best practices, and referrals. The CMS Hospice Conditions of Participation require: Hospices That Provide Hospice Care to Residents of a SNF/NF or ICF/MR (§ 418.112) (f) Standard: Orientation and training of staff. Finally, this rule requires a hospice to assure the orientation of SNF/NF and ICF/MR staff caring for hospice patients. Staff orientation must address the following topics: hospice philosophy; hospice policies regarding patient comfort methods, pain control, and symptom management; principles about death and dying; individual responses to death; patient rights; appropriate forms; and record keeping requirements.

Finding their "why": Women in healthcare share their journeys at Alys Smith Symposium The Parthenon; by Abby Ayes; 11/13/25 ...  This year, the [seventh Alys Smith Symposisum on Women Professionals] celebration centered on Melanie Hall, Hospice of Huntington CEO and Marshall University alumna, whose keynote address offered a glimpse into resilience, loss and purpose. ... Hall’s story began with a spark of curiosity. “In early high school, you’re trying to figure out what you’re going to do,” she said. “So, I signed up to be a candy striper.” ... In 2013, Hall’s husband encouraged her to apply for the CEO position at Hospice of Huntington. A few months later, tragedy struck when a house fire destroyed everything her family owned. “Thankfully, all my family made it out,” Hall said. “But life changed in just a few hours.” ... As she wrapped up her keynote, Hall left the audience with a reminder about finding purpose in the unexpected turns of life. [Continue reading.]Editor's Note: Thank you Melanie for your leadership both through Hospice of Huntington and throughout your community. This article ends with, "Students, faculty, and community members were given the chance to ask questions, connect, and learn about nontraditional pathways in healthcare, a fitting close to an evening dedicated to women whose care, courage and conviction define what it means to serve."

End-of-life care and health promotion in Black and African American religious communities: A systematic reviewThe Journal of Aging & Social Change; by Chesney Ward; 10/25Blacks and African Americans have the highest mortality rates of any racial or ethnic group, yet they are less likely to complete advanced directives in the United States.  This systematic review found that faith-based health promotion for end-of-life planning is an effective strategy for engaging Black Americans in discussing end of-life care despite Black and African Americans’ preference for treatment. By implementing faith-based health promotion in churches, Black Americans are more likely to engage in end-of-life care discussions and complete advanced directives, enhancing their quality of life as they age.

HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning WBOG Country 101.3; by Ozzy; 10/28/25 A University of Southern California study reveals HBO’s Emmy-winning The Pitt motivates viewers toward organ donation and end-of-life preparations. Research examining two multi-episode storylines shows 26.9% of surveyed audiences sought organ donation information while 17.2% shared donation details with others. The organ donation narrative particularly resonated with Black viewers, a demographic overrepresented on transplant waiting lists yet underrepresented as donors. Editor's Note: The Pitt's storyline involving organ donation is from Season 1, Episode 6, titled' 12:00 P.M."

Natalie’s Notes: Dad’s weekend needs events for grieving students The Post, Athens, OH; by Natalie Saddler; 10/31/25 This weekend is Ohio University’s Dads weekend, filled with events, ... throughout campus. Although many students enjoy these events, some students could be grieving a deceased loved one from afar, and this weekend may affect them negatively. ... However, the only hospice program in Athens doesn’t offer any support groups or community bereavement services. Many grieving Athens residents can’t access a proper support group, especially students with family members in hospice care. ... [A support event was created] through the Honoros Tutorial College called  AlternaDad’s.

Engaging community health workers in Advance Care Planning  Hospice News; by Jim Parker; 10/24/25 Three organizations have developed an advance care planning training program in Illinois for community health workers that could potentially be adapted for other states. The seeds for the project were planted when the Illinois Public Health Association (IPHA) was awarded a grant by the Health Resources & Services Administration (HRSA). IPHA proceeded to engage the Illinois Hospice & Palliative Care Organization (IL-HPCO) and the HAP Foundation as subject matter experts to help develop the curriculum, as well as the education company Hospice Media, which filmed and designed the modules and workbooks.

From mom-care to action: Identifying the crises in eldercare Minnesota Women's Press; by Amy Gage; 10/15/25 “I didn’t set out to write a book,” author Judy Karofsky said. ... “My mom was my inspiration.” ... DisElderly Conduct: The Flawed Business of Assisted Living and Hospice (New Village Press, 2025) ... began as a notebook of jokes and one-liners that her mom would toss off during their time together. A one-time amateur comedienne, Lillian Deutsch “was an amazing personality,” Karofsky says. DisElderly Conduct walks readers through Karofsky’s journey through six assisted living facilities and eventual hospice care before her mother’s death in 2018. Several themes emerge in the well-researched book:

Milton Village Open House builds community to support caregivers of individuals with Alzheimer's, dementia, or other cognitive conditions GreatNews.Life; by Lauren Grasham; 10/6/25 To help healthcare providers better understand the numerous resources available, Milton Village hosted an open house on Tuesday, September 30. Milton Village is a collaborative effort between Milton Adult Day Services (a program of the Center for Hospice Care) and Alzheimer’s & Dementia Services of Northern Indiana (a REAL Services program) to provide comprehensive care and support to individuals living with Alzheimer’s or other cognitive conditions and their caregivers. “Inviting healthcare providers to see our facility and learn more about our programs is a great way to help them understand our unique model,” said Sarah Youngs, director of Milton Adult Day Services. “As providers tour the facility and hear how our guests engage in the programming, it’s so satisfying to see them recognize what this can mean for their patients and the patients’ caregivers.”

Alzheimer's Association: New telenovela series highlights Alzheimer’s in Hispanic and Latino communities Alzheimer's Association, Chicago, IL; Press Release; 9/15/25In conjunction with National Hispanic and Latino Heritage Month, the Alzheimer’s Association is premiering "Memories of My Grandfather" ("Recuerdos de mi abuelo"), a five-episode mini telenovela aimed at encouraging Hispanic and Latino families to have open discussions about memory loss, diagnosis and caregiving across generations. The series, available in both English and Spanish, follows the emotional journey of a multigenerational Hispanic family in the United States after their grandfather’s Alzheimer’s diagnosis. The telenovela will be screened during two webinars hosted by the Alzheimer’s Association: one in English on Sept. 30 and one in Spanish on Oct. 7. Both webinars will feature a moderated discussion hosted by actress, film producer and Telemundo news anchor Gabi Del Moral. ... Both webinars are free and open to the public. Register for the English-language webinar or the Spanish-language webinar.

Ground-breaking pilot brings medical students into nursing homes in Hampshire University of Southampton, United Kingdom; by the University of Southampton; 9/18/25 Third-year medical students are undertaking placements in local social care settings in a new pilot programme developed by the University of Southampton and the Hampshire Care Association. The initiative aims to bridge the gap between health and social care by providing the next generation of doctors with real-world insight into the care sector and the critical role it plays in people’s lives. 

[UK] Key themes and approaches in palliative and end-of-life care education for the general public: A systematic reviewBMC Palliative Care; by Muzeyyen Seckin, Rumandeep Tiwana, David Fry, Cara Bailey; 8/25 These [twenty] studies involved a total of 10,307 participants and identified 16 different educational programmes for the public, volunteers, and lay caregivers. The analysis revealed six main themes: foundational concepts and philosophies, communication and decision-making, planning and preparation, symptom management, end-of-life care practices, and caregiving support. This review highlights the importance of training programmes to improve community involvement in caregiving and enhance the quality of care for individuals with life-limiting conditions. Expanding access to such educational resources can empower more people to contribute confidently to end-of-life care in their communities.