Literature Review

Milton Village Open House builds community to support caregivers of individuals with Alzheimer's, dementia, or other cognitive conditions GreatNews.Life; by Lauren Grasham; 10/6/25 To help healthcare providers better understand the numerous resources available, Milton Village hosted an open house on Tuesday, September 30. Milton Village is a collaborative effort between Milton Adult Day Services (a program of the Center for Hospice Care) and Alzheimer’s & Dementia Services of Northern Indiana (a REAL Services program) to provide comprehensive care and support to individuals living with Alzheimer’s or other cognitive conditions and their caregivers. “Inviting healthcare providers to see our facility and learn more about our programs is a great way to help them understand our unique model,” said Sarah Youngs, director of Milton Adult Day Services. “As providers tour the facility and hear how our guests engage in the programming, it’s so satisfying to see them recognize what this can mean for their patients and the patients’ caregivers.”

Alzheimer's Association: New telenovela series highlights Alzheimer’s in Hispanic and Latino communities Alzheimer's Association, Chicago, IL; Press Release; 9/15/25In conjunction with National Hispanic and Latino Heritage Month, the Alzheimer’s Association is premiering "Memories of My Grandfather" ("Recuerdos de mi abuelo"), a five-episode mini telenovela aimed at encouraging Hispanic and Latino families to have open discussions about memory loss, diagnosis and caregiving across generations. The series, available in both English and Spanish, follows the emotional journey of a multigenerational Hispanic family in the United States after their grandfather’s Alzheimer’s diagnosis. The telenovela will be screened during two webinars hosted by the Alzheimer’s Association: one in English on Sept. 30 and one in Spanish on Oct. 7. Both webinars will feature a moderated discussion hosted by actress, film producer and Telemundo news anchor Gabi Del Moral. ... Both webinars are free and open to the public. Register for the English-language webinar or the Spanish-language webinar.

Ground-breaking pilot brings medical students into nursing homes in Hampshire University of Southampton, United Kingdom; by the University of Southampton; 9/18/25 Third-year medical students are undertaking placements in local social care settings in a new pilot programme developed by the University of Southampton and the Hampshire Care Association. The initiative aims to bridge the gap between health and social care by providing the next generation of doctors with real-world insight into the care sector and the critical role it plays in people’s lives. 

[UK] Key themes and approaches in palliative and end-of-life care education for the general public: A systematic reviewBMC Palliative Care; by Muzeyyen Seckin, Rumandeep Tiwana, David Fry, Cara Bailey; 8/25 These [twenty] studies involved a total of 10,307 participants and identified 16 different educational programmes for the public, volunteers, and lay caregivers. The analysis revealed six main themes: foundational concepts and philosophies, communication and decision-making, planning and preparation, symptom management, end-of-life care practices, and caregiving support. This review highlights the importance of training programmes to improve community involvement in caregiving and enhance the quality of care for individuals with life-limiting conditions. Expanding access to such educational resources can empower more people to contribute confidently to end-of-life care in their communities.

Improving community-based palliative care explanations: Insights from persons declining servicesAmerican Journal of Hospice & Palliative Care; by Kira G Sheldon, Kathryn H Bowles, Elizabeth A Luth; 8/25Beneficiaries and caregivers had mixed understandings of palliative care, including: no knowledge, belief that it was the same as or pre-hospice, and accurate, but often one-dimensional understandings of it. Participants recommended providing individualized, tailored explanations focused on the person's health concerns in simple language with follow-up materials to improve engagement with palliative care. Small adjustments to how palliative care is explained may increase understanding among older adults and caregivers, particularly among those with limited or inaccurate knowledge. Among those familiar with palliative care, providing accessible and clear explanations customized to the person's specific care needs can further broaden understanding and increase perceived relevance.

Training and practice gaps in nursing home palliative care: A cross-sectional study Journal of the American Geriatrics Society (AGS); by Manali Saraiya, Molly A. Nowels, Rose L. Carlson, Jerad H. Moxley, Catherine A. Riffin, Evan Plys, M. Carrington Reid, Isabella Hastings, Taimur Mirza, Ronald D. Adelman, Daniel Shalev; 9/7/25 We conducted a cross-sectional survey of clinical employees (N = 398) at seven NHs within a single integrated health system in New York State to (1) gauge attitudes toward and knowledge about palliative care, (2) estimate the extent of engagement with advance care planning, and (3) elicit perceptions of the most valuable components of palliative care for NH residents. ... Despite support for palliative care, gaps in knowledge and clinical engagement persist and vary by discipline. Discipline-tailored training and program design may improve palliative care delivery in NHs and help ensure more consistent, value-aligned care for residents with serious illness.

What do physicians want at the end? An international qualitative study on physicians’ personal end-of-life preferences and what influences them Palliative Care and Social Practice; by Sarah Mroz, Frederick Daenen, Sigrid Dierickx, Freddy Mortier, Ludovica De Panfilis, Luca Ghirotto, Toby Campbell, Kenneth Chambaere, and Luc Deliens; 7/4/25 Research Results: ... Most physicians prefer to avoid aggressive and life-prolonging treatment, physical and mental suffering, and being a burden. They prioritize being in a peaceful environment and communication with loved ones. Various factors influence preferences including cultural, social, and religious beliefs, and legislative environment, but most significant are the deaths of loved ones and clinical practice. Death and dying become normalized the more they are reflected upon and discussed, and this process can also provide personal growth which helps physicians provide better care to patients and families.

Simulation, flipped classroom, and reflective dialogue in socioemotional training in end-of-life care: Perspectives of nursing students Journal of Hospice & Palliative Nursing (HPNA); by María Lanza, Rebeca Abajas, Mar Aparicio Aparicio, Ángeles Melero, Carmen Ortego; 8/1/25The implementation of active methodologies in end-of-life education can play a crucial role in stimulating participatory learning and facilitating the acquisition of socioemotional competencies. ... From the students’ perspective, simulation, reflective dialogue, and flipped classroom enhance the conceptual learning process and facilitate students’ socioemotional preparation to face this complex and challenging professional situation. Editor's Note: Today’s tech-savvy nursing students show that simulation, reflective dialogue, and flipped classrooms build the person-centered qualities hospice and palliative care need. Use these methods—inside and outside the classroom—to improve patient/family care, teamwork, and self-care. For more information: 

Would you go to a local Death Cafe? It's a chance to eat cake and talk end-of-life issues Times Telegram, Utica, NY; by Amy Neff Roth; 8/12/25 Key Points:

Benefis’ Life After Support Group helps families heal after traumatic loss Times-Leader, Great Fall, MT; by Joee Taylor; 8/8/25 The grief that follows the sudden, unexpected loss of a loved one is overwhelming and isolating. For those navigating that painful reality, Benefis Peace Hospice of Montana offers a place to turn with the "Life After" support group. "We offer a private, confidential, safe place to gather people who have experienced this particular type of loss because these losses tend to be much more difficult because the losses were sudden and they were unexpected." said Jeanne Dussault, a volunteer who facilitates the group. The Life After Support Group is designed specifically for individuals who have experienced a death by suicide or another traumatic loss.Editor's Note: Bravo to Benefis Peace Hospice for providing this crucial service. Though bereavement support for traumatic, non-hospice deaths had been a standard service for many hospice bereavement services, this has be being cut. For extensive traumatic grief counseling education and resources, go to www.ADEC.org and enter "trauma" in its search engine.

S.2287 - Palliative Care and Hospice Education and Training Act Congress.gov, 199th Congress (2025-2026); bill sponsored by Sen. Tammy Baldwin; introduced 7/15/25 Introduction: To amend the Public Health Service Act to increase the number of permanent faculty in palliative care at accredited allopathic and osteopathic medical schools, nursing schools and other programs, including social work, physician assistant, and chaplaincy education programs, to promote education and research in palliative care and hospice, and to support the development of faculty careers in academic palliative and hospice care. [Click on the title's link the full document.]

Be on the lookout for this new Medicare scam Las Vegas Review-Journal; by Toni King; 7/24/25 Dear Toni: A hospice agent recently came knocking on the doors in my neighborhood saying he represented Medicare. He was giving away hospice gifts and told me that I could receive these Medicare services at no charge for me and my husband. I told him that I did not give out personal information to anyone that I do not know. Now, I’m concerned that I could have made a mistake. Should I call and ask if this Medicare service is still available? —Deidre, Katy, Texas Dear Deidre: Medicare is not giving away anything free! This is a new scam that is targeting America’s Medicare population.  ...Editor's Note: Though we’ve addressed this topic repeatedly in recent months, ongoing awareness and community education remain essential. Please continue seeking opportunities to collaborate with media outlets in your service areas to help inform and protect vulnerable populations. Use the following articles—previously featured in our newsletter—as reference points: