Literature Review

Dr. Sean O’Mahony aims to expand UTMB’s Division of Palliative Care UTMB Health - The University of Texas Medical Branch at Galveston;  3/18/25 Palliative care should be more accessible, bridge gaps in health care environment. ... Dr. Sean O’Mahony, director of the Palliative Medicine division, came to UTMB in June, having served as professor and Director of Supportive Oncology and Section Chief at Rush University Medical Center in Chicago, and in key roles at Albert Einstein College of Medicine and Memorial Sloan-Kettering Cancer Center. ... O’Mahony said, “I was attracted to UTMB’s commitment to underserved patients, its prison health population, and its large population of underinsured patients. I’m also interested in the opportunity to develop palliative medicine from the ground up in the mainland hospitals.” ... 

Why aging parents make DNR choices before crisis strikes Rolling Out 25; by Khalil Best; 3/17/25The conversation typically begins quietly. ... An aging parent mentions their desire for a Do Not Resuscitate order—commonly known as a DNR—and the atmosphere in the room shifts. For many adult children, this moment arrives unexpectedly, triggering complex emotions ranging from denial to grief. Yet these discussions, uncomfortable as they may be, represent one of the most meaningful exchanges families can share. Understanding why many elderly parents choose to sign DNR orders in advance illuminates not just practical healthcare concerns, but deeper values about dignity, autonomy, and what constitutes a meaningful life.

The 1 truly difficult part about being a caregiver that often gets overlooked HuffPost; by Kimberley Richards; 3/13/25 Emma Heming Willis, wife of actor Bruce Willis, recently talked about the needs of caregivers on social media. Experts share what to know about the vital role. ... Among the different ways society may overlook the various caregiving experiences, there’s one aspect of it that isn’t often talked about: Many times it’s an “invisible” job. ... Hemings Willis’ post sparked conversations online about caregivers and the many struggles that come with it. And experts say perhaps one of the most isolating is the issue of “invisibility. ... She said that caregiving is often seen as a “family duty,” which prevents it from “being recognized as a broader issue requiring systemic attention.” “This view is often compounded by gendered expectations, where women are traditionally expected to take on caregiving roles, leading to feelings of guilt and pressure when they seek assistance,” she said. “The lack of formal policies ... only deepens the invisibility of this vital role, making it even harder for caregivers to balance their responsibilities with their own well-being.”

Partners In Care hosts A Year to Live book discussion group starting April 5 Cascasde Business News; by CBN; 3/11/25 The Bereavement Department in conjunction with leadership at Partners In Care is hosting a community group to explore messaging in Stephen Levine’s book A Year to Live through a series of monthly sessions in 2025 and early 2026. In A Year to Live, Stephen Levine, author of the perennial bestseller Who Dies? teaches us how to live each moment, each hour, and each day mindfully—as if it were all that was left. On his deathbed, Socrates exhorted his followers to practice dying as the highest form of wisdom. Levine decided to live this way himself for an entire year, and now he shares with us how such immediacy radically changes our view of the world and forces us to examine our priorities. 

Local pharmacist advising Ohio health director on palliative care Herald-Star, Steubenville, OH; by Christopher Dacanay; 3/10/25 A local pharmacist hopes to “expand utilization” of palliative care in Jefferson County and increase patients’ quality of life from her new position as an adviser to the Ohio Department of Health director. Steubenville resident Mary Mihalyo, doctor of pharmacy, was appointed Dec. 10 to the Palliative Care and Quality of Life Interdisciplinary Council. Bringing her own expertise, Mihalyo joins a diverse, 20-person group of professionals with experience in the provision of palliative care. ... Mihalyo, who founded Steubenville’s A&B Pharmacy with her husband, is the former CEO of Delta Care Rx LLC. She now serves as chief clinical officer for the company, which has been rebranded as Dragonfly Health. ... Her professional work, since [1999], has focused on serving hospice and palliative care patients locally and nationally as part of interdisciplinary teams. ... [Council members] ... actively consult with and advise the director on palliative care initiatives in the state, identify standards of practice, pinpoint initiatives at the state or national level integrating palliative care into the healthcare system and developing its practice and lay out patient identification guidelines for health care providers.

"The hospice heart": Hospice industry battles misconceptions, staffing shortages as expectations grow Pharos-Tribune, Logansport, IN; by  Josh Flynn Pharos; 3/9/25 ... There are a lot of misconceptions about hospice care and one of the largest is that entering hospice care is equal to giving up. ...Hospice care is one of the fastest growing industries as the Baby Boomer generation continues to age. The hospice care industry was valued at $34.5 billion in 2022 and is expected to grow in value to $67.7 billion by 2030. But misconceptions about hospice care and nursing shortages could threaten that future success. ... Maria Rogers is the public relations liaison at Guardian Angel Hospice in Logansport and she has devoted herself to tackling the misconceptions that surround hospice care. ... “You don’t have to be actively passing away to receive our services,” Rogers said. ... Jennifer Edwards, executive director of Heart to Heart in Mishawaka and Logansport, said many families don’t understand the role of medicine in hospice care. While something like chemotherapy would be discontinued, a hospice staff would never discontinue medications or fail to treat new problems that came up. ...

At the end of life, doctors’ actions and patients’ wishes may be misaligned, according to a Rutgers Health study Rutgers; by Greg Bruno; 2/28/25 For terminally ill cancer patients, the final days of life are immensely personal, having the choice to continue cancer treatments, or to stop treatments and prioritize a more comfortable passing. What a patient wants, however, isn’t always what they receive, according to a Rutgers Health study published in the journal Cancer. “A patient's end of life is often not a reflection of what they want, but rather, who their oncologist happens to be,” said Login S. George, a health services researcher at the Rutgers Institute for Health, Health Care Policy and Aging Research, and lead author of the national study. “The data doesn’t indicate patient-centered treatment decisions, but rather, more habitual or default ways of treating patients,” says George, who is also a member of the Cancer Prevention and Control Program at Rutgers Cancer Institute, the state’s only National Cancer Institute-designated Comprehensive Cancer Center. ... [Click on the title's link for more statistics, insights, and recommendations.]

Helios Care honors hospice social workers Allotsego,Oneonta NY; by Dan Ayres, President and Chief Executive Officer of Helios Care; 3/6/25March is National Social Work Month, a time to recognize and honor the invaluable contributions of social workers across the country. The theme for National Social Work Month this year is “Compassion and Action,” which 100 percent sums up our team of social workers at Helios Care, the hospice for Otsego, Delaware and Schoharie counties. All social workers are indeed special, but hospice social work is very unique. ... Hospice social workers at Helios Care are trained to provide a holistic approach to end-of-life care, helping patients and their families navigate emotional, psychological, and practical challenges. Community education, bereavement counseling, bearing witness to those at end of life, practical assistance in the home and advanced care planning are just some of the duties of a hospice social worker. Thank a social worker this month—their work is truly remarkable.

VNA Hospice NWI celebrates staff, volunteers and community at annual dinner banquet NWI.Life; by Garrett Spoor; 3/4/25 For more than half a century, VNA Hospice NWI has been assisting seniors in Northwest Indiana with hospice care and the Meals on Wheels program. The organization hosted its Annual Dinner and Awards banquet on Monday, March 3, ... “The big purpose of the annual dinner is to thank all the people who made last year possible,” [Maria Galka, director of development] said. “It’s a great opportunity for us to show our appreciation for the staff, volunteers and our supporters. We present our annual report from the past fiscal year and look forward to what's coming in the new year.” ... VNA Hospice NWI was presented with a check for $32,798 from Don Quijote Restaurante to support VNA Meals on Wheels. The Legion Riders Post #94 provided a check for $12,500 for the VNA Hospice NWI. The dinner presented plenty of awards and scholarships to recognize some of the attendees ...Editor's note: What appreciation events and awards/recognitions do your organization regularly provide for your employes, volunteers, and community? Click on this article's title to explore the scope of this organization's highly valued Annual Dinner and Awards. When you have events such as these, remember to take provide "take-out" food for your employees who are duty elsewhere, like your on-call office and hospice inpatient care.

Local care specialists launch first-ever ‘memory cafe’ in the Upstate WSPA Greenville, SC; by Simone Jameson; 3/3/25 Some Upstate care providers are bringing a new concept to the region they said will benefit families of adults with dementia. The Blake at Hollingsworth Park Assisted Living and Think Different Dementia are two partners behind a first of its kind ‘memory cafe’ in Greenville. ‘The Upstate Memory Cafe’ provides a community setting where people living with dementia and their caregivers can bond. ... Organizers told 7NEWS the ‘memory cafe’ offers a space where attendees play cards, make flowers and do other activities together. They said ten to twelve home health care and hospice representatives are present for each meeting and educate families on best dementia care practices, while offering them support and respite services.

Candice Bergen’s caregiving journey and how estate planning can help FindLaw; by Catherine Hodder, Esq.; 2/20/25 Candice Bergen is a movie and television star and comedienne best known for her role as Murphy Brown. ... Bergen’s husband of over 20 years, Marshall Rose, recently passed after battling Parkinson’s disease. Her first husband, director Louis Malle, died from lymphoma. In Bergen’s memoir “A Fine Romance,” she describes the struggle of caregiving for someone who is critically ill. She writes, “It really costs you to take care of someone who is critically ill day after day.” Many caregivers can relate. According to the NIH, 50 million people care for a disabled, older adult, or chronically ill family member or friend. ... However, there are estate planning tools available that can help caregivers manage the health and support of their critically ill loved ones. ... 

Hospice workers in Tampa experience what it feels like to live with dementiaFox 13 Tampa Bay, FL; by Kailey Tracy; 2/19/25 Keosha Simmons says her father, who died in 2018, was a hard worker and an amazing man. ... "He did live with dementia. It was an early onset of dementia. He ended up with cancer, and it was a later stage when we found out about it, and that's when he came under the care of Empath Health Suncoast Hospice," Simmons said. Simmons is now the Director of Empath’s Community Engagement team. On Wednesday, Simmons and her team did a different kind of training. It was a hands-on simulation to experience what someone with dementia feels. [From this article's "The Brief" Summary.]

Juniper House on National Historic Register K103, Portland, OR; 2/18/25 The Juniper House is among Oregon's latest entries in the National Register of Historic Places ... for its statewide significance as Oregon's first end-of-life care home dedicated exclusively to residents with HIV/AIDS [May 1987] and for its substantial impact on statewide healthcare and LGBTQ+ history. ... In addition to caring for residents, the work of Juniper House included advocacy and educational efforts that were crucial in shaping public opinion and responses to HIV/AIDS.