Literature Review

Blue Ridge Care expands bereavement care with new Center for Hope & Healing Hospice News; by Jim Parker; 11/1/24 Blue Ridge Care has unveiled its new Center for Hope & Healing, a facility dedicated to offering comprehensive grief care. The Virginia-based nonprofit hospice, palliative care and PACE provider financed the center through philanthropic donations. The facility is located in the same building as Blue Ridge’s PACE program, according to CEO Jason Parsons. At the center, Blue Ridge bereavement care staff will offer specialized programs, workshops, support groups and individual counseling. “The center is a central organizing unit of our mission fulfillment in the areas of grief, family support and loss in a place people can come to that’s welcoming, inviting and centered around hope and healing,” Parsons told Hospice News. ... The center was built to create a relaxing atmosphere to help put visitors at ease, according to Parsons, with a sky blue color palette and several murals depicting natural scenes. In one display, a collection of rocks symbolizes the weight of grief. Visitors can write a message on the rocks to “leave that weight behind,” Parsons said. They can also paint their loved ones’ names on a mural of a branching tree in the lobby area. 

National Care at Home Month 2024: Celebrating Care at Home in November National Alliance for Care at Home (formerly NAHC and NHPCO); 10/31/24 National Care at Home Month celebrates and supports paid and unpaid caregivers and builds on the existing work of National Family Caregivers Month. Customizable templates are available now. ... The National Alliance for Care at Home brings together two legacy organizations – the National Association for Home Care & Hospice and the National Hospice and Palliative Care Organization – representing, advocating for, educating, and connecting providers of care in the home for millions of disabled, elderly, and dying Americans who depend on that care. ... To represent this strength in unity, the Alliance is introducing National Care at Home Month, an annual observance recognized each November to inspire outreach to communities, media, and policymakers, recognize the valuable contributions of provider staff and volunteers, and continue building awareness of the home care continuum. To this end, we are paying special attention to different types of care at different points throughout November.

Aging Mastery: 10 weeks, 10 topics to empower seniors for healthy living New Hampshire Union Leaders; by Kathleen D. Bailey; 10/20/24 Jen Brechtel, director of Community Health for the Granite VNA, said one of the biggest issues in the agency’s “Aging Mastery” program” is sleep. “It’s the topic people come in most for,” she said. “We partner with a sleep center to help them out. Another big one? Community engagement.” The Granite VNA and Hospice is interested in all factors affecting their senior clients. With a menu of data-driven programs, the agency is reaching out to help seniors master aging. The “Aging Mastery” program is a project of the National Council on Aging, according to Brechtel. ... The 10-week class, ongoing now in Sanbornton, has sessions devoted to the concepts that please (or plague) elders: navigating longer lives, exercise, sleep, healthy eating/hydration, financial fitness, advance planning, healthy relationships, medication management, community engagement and falls. Experts from the community take turns teaching the topics, with a VNA staffer as moderator.

Top questions people ask about hospiceThe Star News, Medford, WI; 10/9/24

Palliative and hospice care in the prehospital setting

Community Crisis and Grief: Public service video for communities, healthcare orgs, and persons whose "normal" hospice bereavement can be amplified and/or disenfranchised Composing Life Out of Loss; by Joy Berger; originally 5/30/22 in response to Uvalde's shootings, updated 9/29/24 in response to Hurricane/Storm Helene September 29, 2024 – We send support to the many communities, families, and individuals affected by Hurricane/Tropical Storm Helene’s devastation and loss. This public service education video defines different kinds of community crises; different groups of persons impacted with basic roles and tasks before and during a community crisis; community grief; and potential effects of community crisis/grief for persons who are already experiencing the “normal” bereavement of a loved one. Editor's note: Disclosure, I am the author/producer of this video; Composing Life Out of Loss is a sponsor for this newsletter. To immediately share with this free, public service video, click here for the link. To embed this video on your website (and thus eliminate any Composing Life branding), click here and complete this contact form. Be sure to leave a phone number for faster turnaround. 

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Guidelines for supporting the dying and their families Psychiatric Times; by Ken Druck, PhD; 9/19/24 There are few subjects that most of us, including those who work in mental health, avoid more than death and dying. Meeting the needs of the dying and their families requires a deep and clear understanding of competent and compassionate care for health care professionals and caregivers. Since the death of my 21-year-old daughter several decades ago, I have had the honor and privilege of helping countless individuals, families, and communities that have suffered losses. I have also been given the opportunity to teach and train mental health professionals and developed several programs and guidelines for supporting the dying and their families. My top 7 guidelines to share with patients and their families are as follows:

The persistent stigma attached to dementia encourages denial InForum; by Carol Bradley Bursack; 9/14/24 Dear Carol: ... At age 70, I was diagnosed with mild cognitive impairment (MCI). Theoretically, that diagnosis means that I have a few more memory glitches than normal for my age. A percentage of people with MCI will develop Alzheimer’s disease, but not all. Yet, some family members treat me like I shouldn’t make decisions beyond what I want for dinner. ...Dear Al: The stigma attached to mental illness, cognitive decline, and even aging, illustrates widespread ignorance of facts. The more people like you speak up the better the future will be for others. ... For now, work on educating your family about MCI.  ... Here's a start: 

Simon Boas’ ‘inspirational’ book A Beginner’s Guide to Dying is published posthumously Jersey Evening Post; by Rod McLoughlin; 9/13/24 Friends and family of the late Simon Boas gathered ... to celebrate the posthumous publication of his book, A Beginner’s Guide to Dying. The former Jersey Overseas Aid chief executive – who died from throat cancer on 15 July at the age of 47 – spent his last months developing into a book ideas first explored in articles for the Jersey Evening Post. Described by the Daily Mail as “an inspirational paean to the joy of life”, Mr Boas’ words reached a huge audience after they were reprinted in the national press and broadcast on the BBC’s Today programme. A proportion of the proceeds are being donated to the African Palliative Care Association and the International Children’s Palliative Care Network. Mr Boas’ inspiring writings in the face of his terminal diagnosis saw him awarded the Bailiff’s Silver Medal in May. Shortly before his death, he also received a personal letter from the King and Queen ahead of their visit to Jersey.

Marshall medical students volunteer for Day of Service CBS WOWK-13 News, Huntington, WV; by Jessica Patterson; 9/11/24 On a day of reflecting and honoring lives lost to a horrific tragedy, people across the country are commemorating the services and sacrifices people made on Sept. 11, 2001, by volunteering in their communities. According to AmeriCorps, America’s National Day of Service and Remembrance is designed to honor and commemorate the heroes of 9/11 including armed forces, first responders, volunteers and countless others, for their acts of service during the terror attacks and in the aftermath. In Huntington, some college students are stepping up to do their part in the local community. Residents from the Marshall University Joan C. Edwards School of Medicine General Surgery Program spent the day volunteering at a local hospice house. The Emogene Dolin Jones Hospice Facility welcomed all the students’ hard work helping to prepare the grounds and gardens for the end of summer. “They are here today to help beautify and plant flowers here at our inpatient unit, the Emogene Dolin Jones Hospice House, which is part of Hospice of Huntington,” said Melanie Hall, Hospice of Huntington president and CEO.

Why so many patients are confused about CPR and do-not-resuscitate orders STAT; by Lindsey Ulin; 9/11/24 Inherently difficult conversations are made more so by a lack of physician training. When a patient is admitted to the hospital in the U.S., there’s a standard question physicians like me are supposed to ask: “If your heart stops beating, do you want us to do CPR?” On the surface, this may seem like a mechanic asking a customer, “If your car stalls, do you want us to jumpstart the engine?” Who would say no to this, especially in a hospital? The problem is that this exchange, which we call asking about “code status” in medicine, centers around a closed-ended question. Talking to a patient about their preferences for cardiac resuscitation, intubation, and/or other life-sustaining treatments needs to be a complete, often lengthy discussion, not just a box to check. ...

Death Cafe' creates safe space to talk about death, dying and beyond in Missoula KPAX-8 Missoula & Western Montana; by Jill Valley; 9/5/24 Sometimes, the most important conversations we can have involve topics we don’t really want to talk about — such as money, politics, or death. We recently went to have coffee with a group of people who are talking about some of life’s scariest issues. It was the last Thursday in August and about a dozen people were enjoying coffee and talking about death. This is Death Café. Maurika Moore — the CEO and owner of Hestia Advantage, a locally-owned hospice and palliative care provider — told MTN, “I think it’s something we all want to talk about but don’t often get to." The Death Café was founded decades ago. Now, there are meetings worldwide to create a safe space to talk about all aspects of death and dying. Its objective is "to increase awareness of death to help people make the most of their (finite) lives."