Literature Review

Blending storytelling with education: Southampton author’s book sheds light on hospice and palliative care Daily Hampshire Gazette; by Sam Ferland; 3/3/26 When a loved one is dying, there is no specific script to freeze the flooding of emotions and decisions a family faces. But hospice nurse Maureen Groden believes bridges can be built through the power of storytelling to help guide families over the universal challenges faced as a loved one nears the end of life. “It’s about telling stories and listening to them too,” said Groden, who has more than 30 years of experience nursing in the Valley.

Hospice of Amador & Calaveras addresses statewide hospice fraud concerns, reaffirms commitment to ethical, community-based careLedger News; Press Release; 3/30/26 In response to recent national media coverage highlighting concerns regarding hospice fraud in California, Hospice of Amador & Calaveras (HOAC) is reaffirming its commitment to ethical, transparent and compassionate care for patients and families across Amador and Calaveras counties. ... “Hospice care is built on trust, dignity and compassion,” said Samantha M. Lukow, Executive Director of Hospice of Amador & Calaveras. “While the reports are deeply concerning, it is important for our community to know that not all hospice providers operate in this manner. The vast majority of hospice organizations, including ours, are dedicated to providing ethical, patient-centered care.” 

Gone from my sight: Barbara Karnes on what happens in the final days of life | part one Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Barbara Karnes; 3/25/26 Drawing from over four decades of bedside experience, Barbara shares how Hospice Care began as a movement outside the traditional medical model, rooted not in treating disease, but in caring for people and their families during life’s most vulnerable moments.  Her insights challenge modern healthcare to return to a more human-centered approach—one that prioritizes presence, education, and compassion.

Regional pediatric Education and Assistance Collaborative for Hospice nurses (REACH): A tele-educational intervention Journal of Hospice and Palliative Nursing; by Taylor Aglio, Alexa Bobelis, Ashley Autrey, Tracy Hills, Alexandra Superdock, Arshia Madni, Kelly Bien, Nidhi Mali, Erica C Kaye; 3/20/26... To address [the gaps between hospice care for seriously ill children and their families and adult-focused hospice paradigms], a multidisciplinary team comprising physicians, nurses, psychosocial clinicians, community members, and bereaved parents was convened to develop the Regional Pediatric Education and Assistance Collaborative for Hospice Nurses (REACH) initiative. Using a community-based participatory research approach, a stakeholder-driven tele-educational intervention was designed, refined, and implemented as a pilot for hospice nurses across Tennessee. Pilot data showed this hub-and-spoke model to be feasible, acceptable, and impactful, increasing hospice nurses' knowledge and comfort with provision of pediatric care in the community.

How "The Pitt" can prepare you for the end of lifeKatie Couric Media; by Maggie Parker; 3/20/26 If you're sensitive to seeing death on screen, you shouldn't watch The Pitt. Set in a major city's emergency room, on the hit medical procedural, death is inevitable, and frequent. ... The way end-of-life issues are addressed on the show was carefully thought out and intentionally diverse. ... Unfortunately, it's rare for the media to portray death and dying authentically, according to Dr. Underleider's analysis of more than 141,000 scripted TV episodes from 2010 to 2020. ... This season, The Pitt takes its quest to realistically depict death to another level, with the introduction of a terminal cancer patient, Roxie, who knows what's coming and doesn't want to go home to face it. We spoke to Dr. Ungerleider about her reaction to Roxie's final moments, her experience working with the creators, what they get right about end of life, and why it matters. ...Editor's Note: Pair this with our previous posts, "HBO’s ‘The Pitt’ inspires viewers to consider organ donation, end-of-life planning" and "How ‘The Pitt' gets death right."

Translating palliative care narratives into art: An arts-based knowledge translation pilot with young adult artists Palliative Care and Social Practice; by Kristina A. Smith, Philippe Blanchard, Susan Law, and Kelli Stajduhar; 2/25/26 Objectives: This knowledge translation project explored arts-based approaches for translating palliative care narrative data into creative forms, examining the feasibility of converting research narratives into accessible art forms that could facilitate engagement with death-related topics. Results: Over 25 artistic works illustrating death and dying experiences were created. The collaborative translation process revealed that undergraduate artists could effectively interpret and visualize complex palliative care narratives through diverse artistic approaches. Course evaluations and informal feedback indicated that artists found the experience meaningful and challenging, and expressed interest in further exploration of death-related topics. Editor's Note: Go to this article and scroll down past "Results" to see photos of these artworks and their descriptions.

Hospice patient who held toy drive for community has died:  Celebrating the life of 7-year-old Kenia Medina ABC KVIA-7, El Paso, TX; by Armando Ramirez; 3/3/26 Kenia Marisol Huerta Medina, the 7-year-old hospice patient who held a toy drive for the other children during the holidays, has died according to the Hospice of El Paso. The Hospice of El Paso has released an update on the family of Kenia's behalf providing an update of her passing. ... Robert Enriquez, Interim CEO of Hospice El Paso, said "Kenia’s heart was a reflection of the very best of El Paso. Through our Butterfly Program, we aim to bring peace and joy to our youngest patients, but Kenia reversed that gift and gave it back to our entire community. Her decision to use her final wish to bring smiles to other children is something we will never forget."

Navigating end-of-life decisions with Islamic ethics WisconsinMuslimJournal.org; by Sandra Whitehead; 2/20/26 Medical College of Wisconsin Professor Aasim I. Padela, M.D., founder and president of the Initiative on Islam and Medicine, discussed Islamic bioethics during a January workshop on end-of-life decisions at the Islamic Society of Milwaukee. ... About 50 people attended the four-hour workshop, Islamic Bioethics & End-of-Life Healthcare Decisions, held Jan. 31 at the Islamic Society of Milwaukee. It featured experts with backgrounds in medicine, palliative care, hospice and Islam. Speakers made presentations and led discussions about practical steps, resources and strategies to help Muslims “transition from a state of uncertainty about end-of-life healthcare to thoughtful preparation for it,” a workbook given to participants stated.

The cost of dying: How rising funeral, end of life expenses leave families struggling long after goodbye NBC WBIR-10, Knoxville, TN; by Ellis Rold; 2/23/26 From five-figure funeral costs to long-term care that can run more than $10,000 a month, the price of dying in Tennessee is leaving many families financially strained long after they say goodbye. Planning for death is something many families put off. But experts say that delay can come at a high financial cost.

Connected care for older adults: A pilot intervention engaging community health workers to advance age-friendly care in rural OregonJournal of the American Geriatrics Society; by Bryanna De Lima, Lindsay Miller, Elizabeth Foster, Jodi Ready, Elizabeth Eckstrom; 1/26Aging in a rural setting presents unique challenges including limited access to in-home care, lack of social support, language and cultural barriers, and the lack of transportation. We conducted a pilot study embedding community health workers (CHWs) into rural primary care teams to assist with implementation of the 4Ms of the Age-Friendly Health System: What Matters, Mentation, Medication, and Mobility. The program made a positive difference for 95% of responding patients (n = 120) and 100% of responding providers (n = 19) were "very satisfied" with the program. Clinicians cited the CHWs' ability to support resource connections, address social isolation and social needs, provide regular check-ins, and help to get patients and families engaged in care as positive components of the model.

[Hong Kong] HKUMed building chatbot for end-of-life comms training MobiHealth News; by Adam Ang; 2/10/26 Powered by conversational AI, the tool aims to plug Hong Kong's palliative care workforce gap – with fewer than one specialist per 100,000 people – as advance medical directive legislation takes effect in May 2026. University of Hong Kong researchers are developing an AI-powered chatbot for training healthcare professionals in facilitating end-of-life communications at scale, ahead of new legislation making advance medical directives legally binding across the city of Hong Kong. 

The most important thing you need to know about end of life planning Forbes; by Peter Ubel; 1/22/26 ... Many experts say I should document my preferences clearly and unambiguously in my medical records so that, in the case of mental incapacity, my doctors can look at what I say and honor those preferences. According to the AARP, leaving ahead detailed instructions about your end-of-life preferences means “that you remain the captain of your own ship.” ... I respect these experts. And I do not begrudge anyone who has filled out such a document. But I worry that this approach won’t work and could even backfire. That is why I prefer a different approach, which I will describe shortly. But first, I need to explain why these kind of detailed advanced directives could backfire. ...