Literature Review

OSF launches new tools to help make end-of-life planning easier News25, Peoria, IL; by Liz Lape; 4/26/24 OSF Healthcare reports that thousands of patients are dying in medical facilities without end-of-life care plans. ... Sarah Overton, Chief Officer of Nursing, describes that studies show that over 70% of patients would prefer a setting other than a hospital to spend their last moments, like at home hospice or palliative care. OSF has launched self-service resources such as an Advanced Careplanning page and Patient Questionnaire on their app MyChart. Overton says the goal is to make end-of-life care planning more available to the public.

Health care workers aid community members with end-of-life care directives The Journal - Martinsburg, WV; by Tom Markland; 4/16/24Health care workers from Berkeley Medical Center and Hospice of the Panhandle came together on Tuesday to help members of the community learn and assemble various advanced directives concerning end-of-life care. According to a study by the University of Chicago, only 22% of U.S. adults have completed any advanced directive for their end-of-life care. Tuesday’s event aimed to help boost that that number in the Eastern Panhandle. As of 2 p.m. on Tuesday afternoon, more than 35 people had been through the program, completing paperwork for their medical power of attorney, living will or both for free.Editor's Note: We thank and celebrate all hospice and palliative organizations that participated in the National Healthcare Decisions Day, Tuesday April 16, 2024! Collectively, what supportive connections you have made. Individually for each person and with their families, these conversations and advance directives will continue to unfold through years ahead, when needed most.

Goals of care among patients with advanced cancer and their family caregivers in the last years of life JAMA Network; by Semra Ozdemir, PhD; Isha Chaudhry, MSc, Chetna Malhotra, MD; et al; 4/11/24 Conclusions and Relevance: In this cohort study of patient-caregiver dyads, findings suggested the importance of interventions aimed at reducing discordance in goals of care between patients and caregivers and helping them develop realistic expectations to avoid costly, futile treatments.

3 ways advance care planning empowers people TCPalm, Visiting Nurse Association, by Lauren Gruber; 4/10/24 ... National Healthcare Decisions Day on April 16th, which seeks to inspire, educate and empower the public and providers on the importance of health planning, is a prime opportunity to consider enrolling in an advance care plan. Identifying the right caregiving plans may seem daunting at first, but it’s important that patients solidify an advance care plan for the security and peace of mind of themselves and their loved ones. ... Here are three ways why choosing an advance care plan through the VNA can empower patients to ensure the best care possible during their health care journey:

Reminder: April 16 is National Healthcare Decisions Day The Conversation Project, Institute for Healthcare Improvement; ongoing until 4/16/24[Read for] specific ideas and suggestions for ways to implement National Healthcare Decisions Day (NHDD) activities in your community and at your facility. First and foremost, lead by example…be sure you have thoughtfully considered and made your own healthcare decisions known. Editor's Note: from The Conversation Project's "About Us": "The Conversation Project began 2010, when Pulitzer Prize-winning writer Ellen Goodman and a group of colleagues and concerned media, clergy, and medical professionals gathered to share stories of 'good deaths' and 'hard deaths' within their own circle of loved ones."

LTC planning’s power lies in relationships, not revenue Insurance NewsNet, by John McWilliams; 4/1/24 Long-term care planning is having a moment right now. There was a time when conversations with clients about their long-term care needs were like pulling teeth. No one wants to confront the point in their lives at which they will no longer be able to do the things they associate with independent life as an adult. Long-term care was a talk to have with people in their 60s. Now, I have those talks with folks in their 40s and 50s. What happened? 

Code status discussions; difficult but necessary The Hospitalist, by Mark Menet, MD, MPH; 4/1/24 I thought it was just where I practiced, but it turns out that, in the medical field, we’re really bad about having code discussions, which is a significant issue. When some of my patients revealed that no one had ever asked them about their code status before, I decided to conduct some research on this topic. It turns out that, at most, 41% of patients recall discussions about their code status, however, the 10.3% as documented by another study seems much more accurate.

Incurable but not hopeless: How hope shapes patients’ awareness of their advanced cancer prognosis The Conversation, by Jean Mathews and Michael Brundage; 3/24/24Hope is defined as the expectation of achieving a future good. Patients with cancer, whether it is curable or not, prioritize cure as their highest hope. ... Previous research indicates that less than half of patients with incurable cancer are aware of their prognosis. This is often attributed to a failure of communication. ... In the context of advanced cancer, the relationship between hope and hopelessness is balanced by acceptance, which can re-direct hope to new goals beyond cure, such as hope for connection with others and enjoyment of daily pleasures. 

Planning for National Healthcare Decisions Day 2024: 8 ideas to spread the word the conversation project; 3/12/24 Looking for ideas to plan and promote NHDD in your community? We’ve pulled together some ideas from the hundreds of local, state, and national groups across the country who have shared what they did last year or are planning for this April 16th. Be sure to take a peek at this roadmap to help you navigate all things NHDD, including where to find more examples. We hope the information ... will spark ideas and get you started.

Doctor with terminal cancer shares the three things everyone should consider doing to prepare for deathYour Tango, by Alexandra Blogier; 3/12/24Kim is a resident doctor who was diagnosed with metastatic sarcoma when she was 28 years old. She invites people to see what her life is like, as both a medical resident and a cancer patient, focusing on the practice of gratitude and being present. ... Kim revealed the three most important things she’s done as a cancer patient to get the administrative side of her affairs in order, which she recommends everyone do, even if they're not sick.