Literature Review

A guiding light: hospice care social workers provide support for dealing with the idea of death Scot Scoop - Carlmont High School's Student News Site; by Rei Baxter; 11/20/24 Death is a natural part of life, yet it is also terrifying. Being young and dying is especially difficult to accept. Regina Tong, a hospice social worker, has to deal with difficult cases. "The hardest parts for me are the young patients, like the moms with children, or younger people who are just not ready to die, but they get this terminal illness, and their parents are grieving. Those are really hard for me,” Tong said. ... Before starting in hospice, Tong worked in nursing homes and palliative care patients, who are people that aren’t quite hospice level but have chronic illnesses. However, when her mom died, she realized that she needed to stretch her boundaries and learn more about something she was uncomfortable with: death. “That’s why I’m here. The more I work in hospice, the more I realize how important inner peace is. I see a lot of patients who are at the end of their lives, and they really struggle with the idea of death, even though it’s a natural process of everything that has a life. So people who resisted end up suffering so much towards the end,” Tong said. Tong’s work doesn’t just help her patients and their families; it helps her connect more with herself. ...Editor's note: Rei Baxter--this article's author--is a high school senior. This beautiful article gifts us with a prelude into Thanksgiving week, as we gather with intergenerational families and tune into what matters most.

‘Like Christmas to me’: Parade of classic cars celebrates hospice patient in Hudson WJW, Hudson, OH; by Rex Smith; 11/16/24 A parade of classic cars made its way through Hudson Saturday to pass by one particular house on Boston Mills Road. They were there for James Gay, a lover of classic cars who also collects miniature classics. He is receiving end-of-life care. “I think this is more like Christmas to me. Whoever can’t get out has to leave the cars here,” he said with a laugh. Gay had the chance to get a close-up look at some of the cars he remembers so well because, in his words, he was around when they were made. Surrounded by family and friends, it was an emotional but special moment. This was all possible because of the “Gift of a Day” program provided by Crossroads Hospice and Palliative Care. For the “Give of a Day,” the question is: if you had one day to live, what would that day look like? “It’s the greatest feeling in the world to make somebody smile, and thinking that may be their last time to enjoy this with their family,” said Rhonda Kissner, the coordinator of the program.

Facing the tomorrows: Finding comfort, care and courage in hospice Concord Monitor, Concord, NH; by Rachel Wachman; 11/16/24 Yvette Lascelle has a favorite saying: “It is what it is.” “Whatever happens, happens,” Lascelle said with a faint smile. “They try to prevent it, but you can’t always prevent it.” The 81-year-old has been fighting multiple myeloma, or plasma cell cancer, for over a year and a half. In the past month, however, her condition has rapidly declined. Not knowing how many days she has left, she takes each one as it comes and savors the small moments – sitting with her brothers in the morning or sipping on eggnog in the afternoon. Her room at the hospice house in Concord is rarely quiet. Nurses check on her frequently and help maintain her comfort. Her priest comes by to guide her in prayer. Family and friends fill the space. Her daughter, Karen, sometimes sets up a small makeshift office and works remotely from the red chair by the window. Her son, Dan, visits after work with his wife and son. Lascelle lays underneath her lilac quilt, watching the world unfold from her bed and cherishing this time with her loved ones while it lasts. “Every day I’m happy to wake up,” the grandmother of four said. “You face the tomorrows. That’s it. It’s better than what I expected.” ...

Navigating the aftermath of natural disasters Teleios Collaborative Network (TCN); by Lara McKinnis; 11/15/24 This morning I woke up to two bears outside, a little cub sitting on our front steps eating the pumpkin that my daughter recently carved, the mom nearby completely sprawled out lounging in the sun in a bed of freshly fallen yellow and orange oak leaves.  This is the “fall” that I look forward to every year in Asheville. I wanted to hold onto this feeling, all of us standing at our screened-in window talking to the bears as if they understood us, our dog enthusiastically joining in the conversation.  This feeling is alive and vibrant; however, so is the visceral awareness of the horrific despair that has engulfed my beloved community and so many communities in Western North Carolina. ...  Adjusting to a natural disaster is nuanced and layered.  [Click on the title's link to continue reading this hospice leader's reflections and professional guidance.]

Mom of 4 is placed in hospice care 2 weeks before son's wedding. On his big day, she's on the dance floor with a smile (exclusive) People; by Jordan Greene; 11/14/24 ... In October, before entering hospice care, Liv recalls how her mom was in the hospital, and all she could talk about was attending the wedding. With Olivia's health deteriorating, Liv says her brother Salvatore and his fiancée Kelsey had even considered holding the wedding ceremony in the hospital room if necessary. But that contingency plan quickly became unnecessary. On Nov. 2, their mom defied expectations and arrived at Basilica Hudson in Hudson, New York, alongside the other 105 guests to watch her son walk down the aisle — turning the hopes of her kids and everyone else in attendance into a reality. In fact, Liv says her mom exceeded even the best-case scenario the family had imagined. ...

Teen honored with Meritorious Civilian Award after rescuing grandparents in house fire [grandmother in hospice care] Chattanoogan.com, Chattanooga, TN; 11/12/24The Whitfield County Fire Department awarded the Meritorious Civilian Award for Bravery to 15-year-old José Fernando Espinoza on Monday in recognition of his exceptional courage during a house fire on Oct. 19. The award honors civilians who show extraordinary heroism in life-threatening situations, celebrating Fernando’s selfless actions that saved his grandparents. Shortly after midnight on Oct. 19, firefighters were dispatched to a fire on Ricky Drive, where flames had rapidly overtaken the home. Though most of the family managed to escape safely, Fernando’s grandparents remained trapped inside. His grandmother, bedridden and in hospice care, and his grandfather, who chose to stay with the grandmother, were unable to make it out on their own. In an extraordinary display of bravery, Fernando reentered the burning home through a window and, pushing through thick smoke and flames, managed to pull both grandparents to safety.

A doctor’s life-changing realization about empathy after becoming a patient [podcast] MedPage Today's KevinMD.com; podcast by KevinMD; 11/10/24 Join us for a conversation with Fazlur Rahman, a hematology-oncology physician and author of Our Connected Lives. In this episode, we explore how Fazlur’s journey from physician to patient transformed his understanding of empathy. He reflects on the importance of personal connection in medicine, the impact of a lack of empathy on both doctors and patients, and the need for medical education to include the humanities to foster compassionate care. This episode dives deep into the role empathy plays in improving patient outcomes and doctor-patient relationships. Fazlur Rahman is a hematology-oncology physician and author of Our Connected Lives. He discusses the KevinMD article, “From doctor to patient: a life-changing lesson in empathy.”

After Hurricane Helene, the VA in Western NC is making sure that no veteran is left behind  Southern Living; by Abigail Wilt; 11/11/24The agency has contacted 100% of the high-risk veterans they identified before the storm—some visits requiring mile-long hikes up unstable mountainous terrain. As Western North Carolina continues to pick up the pieces on a long road to recovery following the devastation of Hurricane Helene, teams from the local VA are going above and beyond to care for veterans. ... That service extended deep into the mountains. Prior to the storm, the VA identified over 2,600 vulnerable veterans at highest risk, including patients going through chemo treatments and those with spinal cord injuries, mobility issues, and home oxygen needs. When the floodwaters hit, the Emergency Department never closed. Immediately following Helene, the VA began addressing the oxygen needs of 1200 vulnerable veterans, Young shared, and a task force was mobilized to perform wellness checks. But as many roads were washed out and phone and internet service inconsistent, these wellness checks often took the form of compassion on foot. “We contacted 100% of the high-risk veterans, either by phone or in person at their homes,” Young said. “Some visits required mile-long hikes up unstable mountainous terrain to reach veterans, including those determined to stay in their homes."

“I’m 68 and totally alone”: 50 people share what it’s like being seniors AOL.com - Bored Panda; by Dominyka; 11/9/24 People are different in their upbringing, in their tastes, even in their looks. But all people do have one thing in common: we're all heading towards the same end. With the exception of Bryan Johnson, maybe. Still, we're all aging, whether we like it or not. And with aging comes social isolation; according to a 2024 Medicare report, 57% of adults aged 65 and older report feeling lonely. The users of Quora recently tackled this problem when one person wrote: "I'm 63 years old and so lonely. Does it matter to anyone?" Many older people rushed to the comments to share their stories, highlighting the sad realities they face today. Bored Panda sought the expertise of the anti-ageism activist Jacynth Bassett, Founder and CEO of Ageism Is Never In Style about how important social connections are to us as we age. We also spoke with her about the right terminology when referring to older people and how we can all spot ageist attitudes in ourselves. 

Specialized hospice care program honors and supports veterans facing terminal illness NBC 10 News - WSLS, Southwest and Centeral Virginia; by Kelly Marsh; updated 11/7/24 In Southwest Virginia, a quarter of people with a terminal illness is a veteran, a statistic that highlights the unique challenges many former service members face in their final days. In response to this, several specialized hospice programs in the region have been developed to offer care that specifically addresses the needs of veterans as they navigate the end-of-life journey. For many veterans, the experience of facing terminal illness is compounded by the physical and emotional toll of their military service, particularly conditions like Post-Traumatic Stress Disorder (PTSD), depression, and anxiety. ... The We Honor Veterans program, created through a partnership between the National Hospice and Palliative Care Organization and the U.S. Department of Veterans Affairs, encourages hospice centers to offer a heightened level of care for veterans. Across Southwest Virginia, multiple hospice programs have achieved the highest level of recognition—Level 5—demonstrating their commitment to providing veterans with the best possible care. One such program is based in Franklin County. Despite its size, Carilion Hospice in Franklin County has earned a five-star status for its exceptional veteran services ...Editor's note: We thank and recognize all hospice organizations that find meaningful ways to support and honor your veterans. Click here for more information about NHPCO/The Alliance for Care at Home's We Honor Veterans program.

[England] Woman doing race for hospice that helped husband BBC News; Lorna Bailey and Andrew Dawkins; 11/4/24 A woman is taking part in a 120km (75-mile) race over four days through the deserts of Jordan for a hospice that helped care for her husband. Charlotte Rochenard-Taylor, from Warwick, said running became a way for her to cope with grief, after Jamie died from a brain tumour in June last year. She is participating in the Marathon des Sables to raise money for Myton Hospice, which has sites in Coventry, Warwick and Rugby. Ms Rochenard-Taylor said it was "just a way to keep alive, if that makes sense, getting again out of my comfort zone to just feel like fully alive". One of her husband's last wishes was to die at home, stated the runner, who made it her "mission for this to happen". She added: "Thanks to the Myton Hospice, the at-home team... that was made possible." ... "I [found] that running actually became for me a way to cope with the grief, just to get out there and just get the rage out and just... mental wellbeing really." Ms. Rochenard-Taylor, who broke her pelvis a few years ago, said the charity was close to her heart, and the race starting on Tuesday was an ideal way to support it.

PositivelyJAX Award - The purple bench of compassionate St. AugustineNews4JAX; by Melanie Lawson; 11/1/24 This month’s PositivelyJAX Award goes to something unique: a bench. But it’s no ordinary bench—it’s The Purple Bench, powered by people and conversation. The concept was brought to life by a group called Compassionate St. Augustine, sparking empathy and understanding in anyone willing to sit down and listen. This purple bench, located just outside the gates of the Lincolnville Community Garden in St. Augustine, often sits empty, waiting for someone to take a seat and begin a conversation.  When I approached, Eileen Reid was happy to join me. In just a short 10-minute conversation, I got to know her—a retired hospice nurse ... “I’ve been around a lot of endings, and endings are beginnings, but now, now I’m beginning a whole different phase of my life, and it’s interesting. ...”Editor's note: Click on the title's link for the community news article. Click here for a photo and description of this Purple Bench Initiative: "The Purple Bench initiative was formed to challenge the community to engage in compassionate practices despite different backgrounds, religions, ethnicities, and views. In a world divided by polarizing opinions, it is increasingly important to find common ground to help those in need."