Literature Review

An age-old fear grows more common: ‘I’m going to die alone’ Miami Herald; by Judith Graham, Kaiser Health News; 10/17/25 This summer, at dinner with her best friend, Jacki Barden raised an uncomfortable topic: the possibility that she might die alone. “I have no children, no husband, no siblings,” Barden remembered saying. “Who’s going to hold my hand while I die?” ... It’s something that many older adults who live alone — a growing population, more than 16 million strong in 2023 — wonder about. ... More than 15 million people 55 or older don’t have a spouse or biological children; nearly 2 million have no family members at all.

Traumatic brain injury in late life tied to elevated dementia risk Medscape; by Liz Scherer; 10/13/25 Traumatic brain injury (TBI) in late life is associated with a significant increase in the risk for new-onset dementia. The risk is especially elevated (by as much as 69%) within the first 5 years following the injury, according to newly published study findings. Though TBI, which results from direct impact or indirect force to the head, has long been recognized as a midlife risk factor for dementia, the risk that TBI poses in adults aged 65 years or older has been unclear.

Why are more older people dying after falls? KFF Health News; by Paula Span; 9/30/25 ... Public health experts have warned of the perils of falls for older people for decades. In 2023, the most recent year of data from the Centers for Disease Control and Prevention, more than 41,000 Americans over 65 died from falls, an opinion article in JAMA Health Forum pointed out last month. More startling than that figure, though, was another statistic: Fall-related mortality among older adults has been climbing sharply. ... [Death] rates from fall injuries among Americans over 65 had more than tripled over the past 30 years. Among those over 85, the cohort at highest risk, death rates from falls jumped to 339 per 100,000 in 2023, from 92 per 100,000 in 1990.  ...

Adult Protective Services work with clients at the end of life: Challenges and support needsJournal of Elder Abuse and Neglect; by Wei-Lin Xue, Joy Swanson Ernst, Pi Ju Liu; 9/25Adult Protective Services (APS) professionals frequently interact with clients who are seriously ill or dying as they investigate cases of elder abuse and self-neglect. This study explored the unique challenges and support needs of APS workers in these end-of-life contexts. Thematic analysis identified two overarching domains: (1) challenges – including family conflict, limited caregiver preparedness, client self-determination, challenges to service access, and emotional strain on professionals; and (2) support needed – such as improved interagency collaboration, peer and organizational support. Participants emphasized the emotional toll of witnessing client decline and death, and highlighted gaps in training, coordination, and workplace support. Findings highlight the need for targeted policy and practice reforms to better equip APS professionals addressing elder abuse and self-neglect at the end of life.

Serious falls resulting in hospitalization among Medicare-enrolled nursing home residents, July 2022–June 2023HHS Office of the Inspector General; Report number: OEI-05-24-0018; 9/18/25This OIG data snapshot accompanies the report, Nursing Homes Failed To Report 43 Percent of Falls With Major Injury and Hospitalization Among Their Medicare-Enrolled Residents, OEI-05-24-00180. The snapshot found that between July 1, 2022, and June 30, 2023, more than 42,000 Medicare-enrolled nursing home residents experienced serious falls resulting in major injury and hospitalization, and 1,911 died during their hospital stays. The data indicated that most residents had known fall risk factors prior to their injuries, and falls were more common among female, older, and short-stay residents. Nursing homes with lower nurse staffing levels and lower quality ratings had higher fall rates. These preventable events reduced residents’ quality of life and cost Medicare and enrollees over $800 million, underscoring the need for stronger fall prevention and quality improvement efforts in nursing homes. 

An organ donor saved my life. But fear of unlikely botched donations hurts others.  USA Today; by Kaitlyn Wells; 9/18/25 As someone who is alive today because of an organ donation, I was alarmed by the news that Donate Life America, a nonprofit that oversees a national registry of organ donors, saw a 700% increase in donor registration withdrawals since July. That startling drop in donors followed reporting by The New York Times offering horrifying details of how in extremely rare instances, teams rushed to secure organs from patients who still showed a flicker of life. 

New van opens doors for Hospice of West Alabama clients Tuscaloosa News, Tuscaloosa, AL; by Gary Cosby, Jr.; 9/8/25 A new Hospice of West Alabama transport van is rolling through the streets, courtesy of the generosity of community donors. Hospice Executive Director Latrelle Hallum said the new vehicle will greatly expand the services they can offer to their clients. Before purchasing the new Toyota Sienna minivan, the organization did not have the ability to take clients places they needed to get to. "It's going to allow us to do a lot of extras. We will do Christmas lights tour for our patients and families in December, take them to graduations, or to see a newborn baby, or a Thanksgiving gathering, or to doctor's appointments. The only requirement is that it is not an ambulance. We can only transport people who are in a wheelchair," Hallum said.

Irish man uses ChatGPT for sore throat advice, later diagnosed with stage 4 cancer TimesNow; by Ashima Sharda Mahindra; 9/1/25 A 37-year-old Irish man from Kerry sought advice on ChatGPT on chronic sore throat and swallowing difficulties – and was ultimately diagnosed with stage 4 esophageal adenocarcinoma, a rare and aggressive throat cancer. Warren Tierney said ChatGPT had reassured him that cancer was “highly unlikely,” which led him to a delay in seeking professional medical care. Months later, Warren was diagnosed with cancer, which has a five-year survival rate between five and ten per cent globally.

Family Hospice, Alzheimer’s Association partner on ‘Check In’ program for dementia patients Hospice News; by Jim Parker; 8/11/25Family Hospice is working with the Alzheimer’s Association, Georgia Chapter, to improve safety for dementia patients through a new collaborative campaign. The #ICheckedIn campaign calls on community members to check on seniors in their community, particularly those who suffer from dementia or memory loss, through phone calls, visits or other modes of communication. Editor's Note: This article by Hospice News was reposted by the American Academy of Hospice and Palliative Medicine (AAHPM) under the title, "Hospice encourages public to check on older neighbors."

Amazon documentary exposes 'neglect and pain' in many nursing homes. It's only going to get worse. Morningstar; by Jessica Hall; 8/9/25  Susie Singer Carter's mom, Norma Pecora, suffered from Alzheimer's disease for 16 years and spent the last five years of her life in a nursing home. She died at age 89 after enduring sepsis, urinary-tract infections, bed sores and dehydration at a five-star facility in Los Angeles. ... In a new three-part documentary streaming on Amazon Prime (AMZN) called "No Country for Old People: A Nursing Home Expose," Carter walks viewers through her mom's early life, including her time as a singer for Capitol Records, as well as her final months - when she suffered from infections and other complications that required emergency hospitalizations while being cared for at a nursing home. 

Sovereign Hospice highlights nutrition's role in hospice home care services News Channel Nebraska (NCN), reprinted from Aubrey, TX; Press Release; 8/8/25 Eating becomes more than a necessity during serious illness—it becomes a part of daily care that supports comfort, strength, and emotional connection. At Sovereign Hospice in Aubrey, Texas, nutrition is integrated into the services hospice offers, especially for patients receiving hospice at home services. The goal is to use food as a gentle tool to improve quality of life. Serious illnesses can change how patients eat. Appetite loss, difficulty swallowing, and taste changes are common, but they can be managed through small adjustments. 

Assisted living fire with multiple fatalities a reminder to have evacuation plan, expert says McKnights Senior Living; by Kimberly Bonvissuto; 7/15/25 A five-alarm fire at a Massachusetts assisted living community in which nine people died and at least 30 were injured is a “realistic reminder” for senior living providers to make sure they have evacuation plans that are practiced and up to date, according to one expert. Stan Szpytek, president of Fire and Life Safety Inc. and a former deputy fire chief and fire marshal, told McKnight’s Senior Living that he was “horrified” to see the death toll, adding that multiple fatalities in buildings equipped with properly working fire suppression systems “has never occurred,” according to statistics from the National Fire Protection Association. ... “Smoke kills more people than fire does everyday in America,” Fall River Fire Chief Jeffrey Bacon said during a press conference.