Literature Review

‘Those who have made death their life’ Part 2: Family The Daily Yonder - Keep It Rural; by Hannah Clark; 1/16/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. Editor's note: Click here for Part 1, which we posted 1/16/25. 

Introduction: ‘Those who have made death their life’The Daily Yonder - Keep It Rural; by Hannah Clark; 1/15/25 Hannah Clark spent six months riding along with the nurses and certified nursing assistants (CNAs) of Hearth Hospice who provide in-home care to those living in Northwest Georgia and Southeast Tennessee. These hospice workers often drive up to a hundred miles a day to visit a handful of patients scattered across the Appalachian landscape in both rural towns and urban centers. What will follow this introductory essay is her photo reportage in three parts, documenting what she has witnessed accompanying these caregivers. The intimate portraits and vignettes show tender moments at different stages towards the end of one’s life. Their beauty lies in the companionship Clark captured in moments of need and vulnerability. 

Hospice centers: Balancing comfort and controversy Crossroads Today, Victoria, TX; by Amaya Norman; 1/9/25 Hospice centers play a critical role in providing care for patients with terminal illnesses, focusing on comfort, dignity, and peace during life's most challenging moments. These centers are designed to support both patients and their families, but public opinions about their services often vary. ... While many see hospice centers as an essential support system offering much-needed relief and care, others express concerns about the quality of services or the emotional toll they can bring to families. These differing perspectives have sparked ongoing discussions about the role and perception of hospice care in society.

Iowa Finance Authority okays more than $500,000 for North Iowa homeless assistance [$66k to Cedar Valley Hospice] KIMT3 News, Des Moines, IO; by Mike Bunge; 1/9/24 Over $500,000 in grants from the Iowa Finance Authority is going to homeless assistance programs that cover North Iowa. $18,189 will go to Community Kitchen of North Iowa, Inc. in Cerro Gordo County.  Cedar Valley Hospice covering Allamakee, Black Hawk, Bremer, Buchanan, Butler, Chickasaw, Fayette, Floyd, Grundy, Howard, Mitchell, and Winneshiek counties will receive $66,565.  $474,108 will go to Primary Health Care covering [28 counties] ...

[UK] Hospice to run Christmas tree removal fundraiser BBC News, United Kingdom; by Jacob Panons; 1/1/25 A hospice in Kent is once again offering Christmas tree removals to help raise funds. In 2023, Heart of Kent Hospice raised more than £9,000 by receiving donations to recycle Christmas trees. Between 3-5 January, the Aylesford-based charity will run the service for the third time, collecting in and around Chatham, Maidstone, Staplehurst, Paddock Wood, Borough Green and the surrounding areas. A donation of £15 for each tree is suggested and people are urged to book a slot online before the new year. 

CDC weekly US map: Influenza summary update U.S. Centers for Disease Control and Prevention (CDC) - HHS.gov; retrieved from the internet 1/2/25, with most current data from 12/21/24 A Weekly Influenza Surveillance Report Prepared by the Influenza Division: Outpatient Respiratory Illness Activity Map Determined by Data Reported to ILINet. This system monitors visits for respiratory illness that includes fever plus a cough or sore throat, also referred to as ILI, not laboratory confirmed influenza and may capture patient visits due to other respiratory pathogens that cause similar symptoms. Editor's note: Click here for the map and bookmark it to regularly monitor your service areas through this flu season.

Jimmy Carter delivered a positive message about hospice care Atlanta Journal and Constitution; by Shelia Poole and Ariel Hart; 1/1/25Hospice advocates said the end-of-life journey of former President Jimmy Carter was a “powerful” message to terminally ill patients and their families about the benefits of hospice care. Carter, the nation’s 39th president, died Sunday at his home in Plains after being in home hospice care for 22 months. “It’s pretty remarkable that he got to celebrate his 100th birthday, he got to vote and, as I understand, it was important to him that he was able to do these things with the support of hospice,” said Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine. “It was powerful.”A day after Carter’s death was announced, Jackson said it was helpful to have someone as notable as a former president to be open about his hospice care during the later stages of his life. During his almost two years of home hospice care, Carter helped raise awareness about the service, which focuses on comfort of the patient and support for both the patient and the family.Notable mentions: Dr. Vicki Jackson, president of the board of the American Academy of Hospice and Palliative Medicine; Jacqueline Lopez-Devine, Gentiva’s chief clinical officer; Megan Friedman, Gentiva spokesperson; Rev. Tony Lowden, Carter’s personal pastor; Amy Tucci, president of the Hospice Foundation of America; Dr. Tammie E. Quest, director for Emory University’s Palliative Care Center and a professor at Emory University’s School of Medicine; Dr. Folashade Omole, the chair of the Department of Family Medicine at the Morehouse School of Medicine; Ben Marcantonio, the National Alliance for Care at Home.

MCS students make gifts for Iowa River Hospice patients Times-Republican; by Lana Bradstream; 12/26/24 Marshalltown Christian School students put their creativity to work and brought some Christmas cheer to Iowa River Hospice patients this year. “This is the first time we have initiated this type of request,” said Pamela Wells, Iowa River Hospice volunteer coordinator and community liaison. “We thought it would be a wonderful collaboration for the holidays. I’m hoping that we can continue to work with them throughout the year.” Seventeen first-grade students gave 40 patients cards or door hangers, using designs they created. Before the holiday arrived, the handmade gifts were delivered to the patients via chaplains, nurses, aides, social workers and volunteers. 

'We do more than just pray': Chaplains take active role at Milwaukee VA and in community U.S. Government Veterans Administration; by David Walter; 12/23/24 If you think hospital chaplains just pray at bedsides, think again. At the Milwaukee VA Medical Center, chaplains are much more than comfort providers. They are fully integrated into the everyday workings of the hospital, serving on committees, participating in numerous events and consulting with other subject matter experts. Their work also goes beyond the walls of the hospital, interfacing with the community to help better reach those Veterans who may not venture into the hospital. And while they continue to meet one-on-one with patients on a daily basis, they also extend their services to hospital staff, providing solace and support for those dealing with the emotional toll that caregiving can sometimes take on health care professionals. “There’s been a really big shift here,” said Chaplain Robert Allen, chief of the Milwaukee VA’s Chaplain Services, adding that for too long chaplains were “put in this corner, thinking that we only just pray.” Editor's note: To strengthen your understanding of chaplaincy roles, standards, training, and certification, examine the national Association of Professional Chaplains.

House of Goshen makes history as Chicago’s first black-owned independent inpatient hospice house G20 News Today, Flossmoor, IL; 12/21/24 House of Goshen, a state-of-the-art inpatient hospice facility and the first Black-owned independent hospice center in the Chicago Southland area, is now officially accepting patients. Located at 19810 Governors Highway in Flossmoor, the center represents a pivotal advancement in equitable, compassionate end-of-life care in Chicagoland, the South Suburbs and beyond. The 14,000-square-foot facility offers 14 private suites designed to provide comfort, dignity, and peace for patients and their families. ... “Our goal is to create a sanctuary where every patient and family member feels supported, seen, and cared for,” said Sade Bello, co-founder of House of Goshen. “Being the first Black-owned hospice center in the region comes with immense pride and responsibility. We are committed to setting a standard of care that reflects the diversity and humanity of the communities we serve.”

An innovative take on transforming hospice spaces with Buildner for better well-being Arch Daily; 12/19/24 Buildner has announced the results of its Hospice - Home for the Terminally Ill competition, the third in a series of architectural idea challenges focused on creating compassionate spaces for individuals facing terminal illnesses. This competition encouraged architects to move beyond traditional medical models, designing environments that prioritize comfort, dignity, and community. Participants were tasked with envisioning a facility for up to 15 visitors and five staff members, incorporating essential spaces such as a library-equipped common area, gathering room, chapel, kitchen, dining area, nurse's station, and therapy room for psychological support. Designs were grounded in theoretical sites within participants' home countries, allowing for the integration of local cultural, social, and environmental contexts. The competition highlighted how innovative, thoughtful design can provide solace and strength during life's most difficult moments. ...

Mom, 26, dies days after choosing to enter hospice following 13 years of living with kidney failure (exclusive) People; by Zoey Lyttle; 12/18/24 Though she left behind a 4-year-old daughter, Sara Long told PEOPLE her feelings about death were "more certain" than they'd ever been when she started end-of-life care. “I think a lot of people spend a lot of time thinking about what it means to have a good life. And don't get me wrong, I did that too,” Sara Long, 26, told PEOPLE over the phone just shy of a week before she died at the hospice facility into which she had just recently moved. ... Long said she’s spent “the last two or three years” deliberating about her idea of a “good death.” She decided that it wasn’t just about how she would experience these last expected few weeks of her life in hospice. What Long really wanted was to be surrounded by her most precious loved ones — including her husband Justin, 32, and their 4-year-old daughter Riley Jean — but she didn't want them to watch her die while intubated and attached to hospital equipment as she was half of her life. “I just feel like if I pushed it any harder, then I was going to get to a place where it was going to be outside of my control,” said the mom of one. “I was going to wind up dying in a hospital alone, afraid, full of tubes, scared. My daughter wouldn't be able to be part of the process, and it would just be really lonely, and that's really not the goal.” Detached from the familiar yet foreign medical equipment, Long told PEOPLE she was freed from fear knowing she would only survive another couple of weeks in hospice. (She died with a week less than anticipated.) Editor's note: This another follow-up post to this profound young woman's story that we post on 

Michigan Center for Rural Health announces new program focused on improving rural based palliative care PRLOG - Press Release Distribution, East Lansing, MI; by Michigan Center for Rural Health - Amanda St. Martin; 12/16/24 The Michigan Center for Rural Health (MCRH) has announced Phase Two of its palliative care programming. Palliative care provides relief from symptoms, pain, and stress associated with serious illnesses and can be administered alongside curative treatments. It is suitable for patients of any age or illness stage. The program titled "Cultivating Comfort: Enhancing Palliative Care in Rural Michigan," funded by the Michigan Health Endowment Fund, will launch on January 1, 2025, and continue through December 2026. ...  Rural adults tend to experience a higher prevalence of chronic conditions compared to their urban counterparts, as they are often older, poorer, and more likely to have multiple chronic illnesses. MCRH's new program seeks to address this need through a community driven approach.