Literature Review

Improv for Caregivers receives a grant from the New Hampshire State Council on the Arts EINPressWire; by A. A. Cristi; 9/23/24 The New London Barn Playhouse received an arts in health grant from the New Hampshire State Council on the Arts to continue and expand their Improv for Caregivers program through a larger umbrella program titled “Improv for a Cause.” “Improv for a Cause” will encompass two communication programs that use a similar process to reach different communities. The first, Improv for Caregivers, in partnership with Lake Sunapee Region VNA & Hospice, is an ongoing communication workshop series for those who care for loved ones with dementia and Alzheimer's. ... Each improv workshop session combines insight from healthcare professionals with improvisational theatre techniques, with a goal of developing new communication skills, strategies to cope with stress, flexibility in relationships, and an understanding of loved ones' changing perspectives. With guidance from the VNA and caregivers in the community, the team of actors prepare short scenarios that portray situations caregivers commonly face, such as sundowning, taking away car keys, collaborating with care staff, and hallucinations. ...

Guidelines for supporting the dying and their families Psychiatric Times; by Ken Druck, PhD; 9/19/24 There are few subjects that most of us, including those who work in mental health, avoid more than death and dying. Meeting the needs of the dying and their families requires a deep and clear understanding of competent and compassionate care for health care professionals and caregivers. Since the death of my 21-year-old daughter several decades ago, I have had the honor and privilege of helping countless individuals, families, and communities that have suffered losses. I have also been given the opportunity to teach and train mental health professionals and developed several programs and guidelines for supporting the dying and their families. My top 7 guidelines to share with patients and their families are as follows:

Gran comforted by cat in final moments at hospice: 'Never leaving her side' Newsweek; by Alice Gibbs; 9/17/24 A woman has shared the heartwarming moment her grandmother's final wish was fulfilled when hospice staff allowed her beloved cat to spend her last day with her. In a video with more than 2 million views on TikTok, Allison Kuhn shared the beautiful way her grandmother Elaine got to spend her final moments with her cat, named Baby. "I'll never stop thinking about how all my grandma wanted during her last month in hospice was her cat," Kuhn said in the video. "The same cat, who during that month started dying and was diagnosed with a 'heartbreak' from being away from grandma. Hospice let the cat stay with my grandma on her last day. The cat didn't leave that bed for 24 hours."

Simon Boas’ ‘inspirational’ book A Beginner’s Guide to Dying is published posthumously Jersey Evening Post; by Rod McLoughlin; 9/13/24 Friends and family of the late Simon Boas gathered ... to celebrate the posthumous publication of his book, A Beginner’s Guide to Dying. The former Jersey Overseas Aid chief executive – who died from throat cancer on 15 July at the age of 47 – spent his last months developing into a book ideas first explored in articles for the Jersey Evening Post. Described by the Daily Mail as “an inspirational paean to the joy of life”, Mr Boas’ words reached a huge audience after they were reprinted in the national press and broadcast on the BBC’s Today programme. A proportion of the proceeds are being donated to the African Palliative Care Association and the International Children’s Palliative Care Network. Mr Boas’ inspiring writings in the face of his terminal diagnosis saw him awarded the Bailiff’s Silver Medal in May. Shortly before his death, he also received a personal letter from the King and Queen ahead of their visit to Jersey.

What is hospice?JAMA Patient Page; by Vanessa Wagner, Adam Marks; 9/11/24Hospice is a specialized model of medical care for people with terminal illness. The goal of hospice is to provide compassionate care to maximize a person’s comfort and quality of life during the natural dying process. Hospice care teams are composed of doctors, nurses, social workers, chaplains, and other individuals who work together to address the physical, emotional, social, and spiritual needs of people with a terminal illness and to support their families. This generally includes alleviating symptoms (such as pain, shortness of breath, or anxiety), establishing a comfortable and peaceful environment, and facilitating meaningful time with loved ones.Publisher's note: Written by two physicians and appearing in JAMA, this "hospice introductory piece" might be helpful for new employee orientation or community outreach.

Living your best life means embracing the last years, too UCSF - The University of California - San Francisco; by Suzanne Leigh; 9/9/24 UC San Francisco is working with nonprofits that serve seniors and patients with serious medical conditions to raise awareness about palliative care and advance care planning. The partnerships are the result of a collaboration between the UCSF Division of Palliative Medicine and the San Francisco Palliative Care Work Group (PCWG), which is working to address inequities among communities of color in accessing palliative care and advance care planning.

Anthony House advocates for comfort care homes and hospice care in the community Oswego County Today, Oswego, NY; by Step One Creative; 9/6/24 Anthony House of Wellhouse Ministries ... is advocating for the importance of comfort care and homes allowing for the care to hospice patients. Anthony House, an Oswego-based non-profit, who is finalizing construction plans for their new hospice care facility in Hannibal, New York, aims to raise awareness about the critical need for these specialized care settings... Kateri Spinella, Executive Director of Anthony House of Wellhouse Ministries, emphasized the significance of comfort care homes in the community, stating, “At Anthony House, we believe that every individual deserves to experience end-of-life care with dignity, respect, and compassion. Our new facility will provide a nurturing environment where patients and families can find solace, support, and comfort during their journey.”

Time to say a final goodbye, and thanks [from a journalist entering hospice care] Originally posted in the San Francisco Chronicle; by Kevin Fisher-Paulson ("He wrote this column shortly before he died" on September 5, 2024); 9/7/24 ... you readers came to embrace us. Moms wrote to tell us that their daughters had found new lives across the desert, grandsons had become granddaughters, sons had chosen recovery over the mountains and siblings had chosen forgiveness. If each of us has the courage to change, we all have the courage to hope. Back in May of 2023, I told you that I had been diagnosed with Stage 4 kidney cancer. ... In July, it all caught up. ... At last, on a recent Tuesday, my oncologist called with the results of my spinal tap and bone marrow analysis. The cancer had won the race, suffused throughout my body. It was, he concluded, time for home hospice. A few weeks to go. This, therefore, is my final column. Having said that, I would like to thank the family and friends who have made me the person I am, ... But it is my husband of 40 years and my sons who have made this life so worth living. ... And also you, the readers. We have become friends over the years, sharing a cup of coffee every Wednesday morning. ... I hope I have brought you wonder, and I hope you now bring wonder to others. Teach your grandson to bake chocolate chip cookies. Take your niece to high tea at the Sheraton. I stand on that baseball diamond, and I salute life. My journey is now over, and yours must continue. Years ago, I asked you to believe in my family. And you did. You lit candles. ... I am humbled. I am grateful. And now I tell you that I believe in you. So go out there. And be kind.Editor's note: This must-read article and please-share article will inspire you, with insights into the depth and breadth of dying well.

Patients are everyday heroes The Andalusia Star News, Andalusia, AL; by Vickie C. Waster; 9/2/24 One of my favorite songs is by Mariah Carey. The communication of the chorus speaks to what we in hospice and other areas of healthcare experience every day. This song always invokes empathy in my heart, and I believe many of you can truly resonate with the lyrics, as we share a common experience in our roles in healthcare. ... The heroes we encounter are our patients, families, and their caregivers. They show heroism in their resilience, their ability to find hope in difficult circumstances, and their unwavering support for each other. As hospice professionals, we acknowledge that we are entrusted to provide medical, spiritual, and emotional support to those in our care. We do this with a deep sense of humility and humbleness, always mindful of the respect our heroes deserve.  “A hero is an ordinary individual who finds the strength to persevere and endure despite overwhelming obstacles.” Christopher Reeve

Community turns out for boy in hospice's 10th birthday Cecil Whig, Cambridge, MD; 8/23/24 On Aug. 19, Jeremiah Shaw had a 10th birthday bash for the ages. The town of Cambridge turned out in droves to make sure this boy felt appreciated with a parade down Foxtail Drive. There were bikers, school buses, fire trucks and tractor trailers. The whole point was to ride by and put a smile on Shaw’s face. Shaw has struggled with Lennox-Gastaut Syndrome, a neurodegenerative disease that causes him to have seizures. His mother, Maschell Hines, said he has been recently put in to hospice care and that this could be his last fall season.

Home health care agency going through changes KSAL.com; by Todd Pittenger; 8/22/24 According to Memorial Health System of Abilene, Home Health & Hospice of Dickinson County (HH&H) has covered many miles throughout Dickinson, Morris, and Marion counties for many years. ... While it was never about profit  and more about going the extra mile to take care of the people in the community, the small agency can no longer support the supply and demand of what it takes to provide these services.  They have taken a loss for several years and can no longer sustain that loss. Home Health & Hospice of Dickinson County is not closing. Their local staff is proud to be the only agency in the community that provides the kind of quality care to neighbors, friends, and family, and  will continue to do so.  HH&H has been in contact with multiple agencies that can assist patients to locate agencies or individuals who can provide these types of services and they are ready to assist. [List of resources]

A friend until the end: The impact of hospice volunteers Parkview Health, Fort Wayne, IN; 8/16/24 The presence of a hospice volunteer offers a unique form of support that complements the effots of a care team consisting of physicians, nurses, social workers and chaplains. While these specialists focus on a patient's physical, logistical and spiritual needs, volunteers contribute the element companionship during an emotionally difficult time. Jane Sandor, retired schoolteacher and principal, and Sally Stuckway, former executive director of a medical practice in Lafayette, IN, share how their personal experiences with hospice care shaped their desire to give back.

Stay ahead of Medicare fraudsters ... Watch out for Medicare fraudsters The Times of Noblesville, Indiana; Information provided by the U.S. Department of HEalth & Human Services 8/16/24 (Family Features) ... Watch Out for Medicare Hospice Fraud: Beware of scammers offering older Americans in-home perks, like free cooking, cleaning and home health services, while they are unknowingly being signed up for hospice services. The scammers then unlawfully bill Medicare for these services in your name. Remember this advice to avoid hospice scams: [practical tips for the public] ... Report Medicare Fraud ...Editor's Note: This information for the public--provided by the U.S. Department of Health & Human Services--provides an important resource for your community outreach, marketing, and admissions employees.