Literature Review

Schoolgirl's response to being told about dad's terminal cancer BBC; by Lauren Hirst; 7/12/26  When Chris Capstick was diagnosed with cancer three years ago, his family made the decision not to use the word c-word in the house. Instead the disease was known as "daddy's little monsters" for the benefit of his two youngest children. ... "It was really, really hard," said the 30-year-old, who works as an arts coordinator for young people but has taken time away to support her husband. ... "Having a six-year-old and a two-year-old, we didn't really know how to navigate it." This is when the idea of writing a rhyming storybook with their eldest daughter Isabella, who is now aged six, was born. "We thought what a great thing to do little cartoon monsters in a way that aren't scary," said Lauren. ... Isabella wanted to write the book from her own perspective with lots of colorful illustrations on each page.   

There are moments that remind you just how powerful music can be. YouTube; by Navacare; 6/27/26There are moments that remind you just how powerful music can be. Recently, I had the privilege of attending a ceremony honoring a veteran for his service to our country. During the ceremony, Grace from AccentCare Hospice sang "I Will Always Love You." It was beautiful. It was moving. And if I'm being honest, it brought a few tears to my eyes. Not only because we were honoring someone who had given so much, but because it was also my dad's favorite song. Music has a remarkable way of connecting us to people, memories, and emotions that words alone often can't reach. For many older adults, especially those living with dementia or memory loss, music can spark recognition, comfort, and moments of connection that feel truly extraordinary. [Watch the video to the end, to hear the dad's response.]

The Healing Page: how Akron Children's combines clinical care with narrative medicine poetry WOSU Public Media | NPR/PBS, Akron, OH ; by Jeff St. Clair; 7/13/26 The written word has healing power. That’s the idea behind narrative medicine, an emerging branch of healthcare that adds creative writing to the clinical toolkit. Akron Children’s Hospital is a leader in narrative medicine, and all this week, Ideastream Public Media is highlighting the program's writers in our series "The Healing Page." Dr. Sarah Friebert is director of Akron Children's palliative care center ... said when sick kids write about what they’re going through, “We tap into an inner spring of wellness and spirituality and wholeness ..." Friebert likened a critical diagnosis to a bomb going off in a family. Her program considers the blast radius of a diagnosis by extending services to impacted family members who are encouraged to write about their experiences and feelings.

Addressing the emotional and psychologic toll of a cancer diagnosis Cancer Therapy Advisor; by Sabrina Martinez, MS and Jason L. Harris; 7/7/26 Patients with cancer experience distress not only from receiving a jarring diagnosis, but also a treatment regimen that can be difficult and debilitating, additional challenges to relationships that might be fraught already, significant financial stress, and the reality of death. Many also experience thoughts of fear of recurrence, stress, depression, anxiety, self-consciousness, and loneliness. The mental and emotional burden of cancer can be as difficult as enduring the disease itself. We spoke with oncologists and experts in psycho-oncology to get their perspectives on delivering “bad” news, working with loved ones and caregivers, resources for those involved in the patient’s cancer journey, and survivorship issues that should be addressed.

Adams County Community Foundation supports Hospice of Hope patient care initiative The Highland County Press, Hillsboro, OH; by John Condon; 6/24/26 The Adams County Community Foundation has awarded a grant to Hospice of Hope to support a special patient-centered initiative designed to provide comfort, dignity and meaningful personal connections for hospice patients and their families. The grant will help fund the creation of personalized “All About Me” boards that will be developed and decorated by Hospice of Hope volunteers for patients receiving hospice care. Each board will highlight important aspects of the patient’s life, including their personal story, favorite things, family memories, and what matters most to them. ... In addition to serving as a communication and memory-sharing tool during hospice care, the boards will remain with families as keepsakes and reminders of their loved one’s life and experiences.

Children supported by hospice remembered in songs Europe Says, Oxford, UK; Press Release; 4/19/26  Ten children who were cared for in a hospice have been honoured with a collection of specially commissioned songs. The bereaved families of the children worked closely with musicians on The Keepsake Circle project at Helen and Douglas House in Oxford. ... The families taking part in The Keepsake Circle project shared stories about their children and what made them unique. The deeply personal songs for the families have been written and produced by singer Kiki Deville and songwriter Angus Powell, with instrumentalist and producer Gregor Gergő Petri also joining the team. 

Rediscovering joy: Why creativity matters in grief support Hospice of the Chesapeake, Pasadena, MD; by Elyzabeth Marcussen; 4/1/26 Imagine meeting up with like-minded people for an afternoon of mocktails, cocktails and snacks. That would be considered a happy hour, right? Then imagine that the common thread for this group is that they are all people who are grieving the loss of a loved one. Would you still call that a happy hour? Chesapeake Life Center Manager Alena Dailey said yes. Well, sort of. “We’re calling it ‘Hope After Hours.’” A large part of healing after loss is learning how to fit into your community again. You’re not the same person you were when your loved one was in your life. Sometimes, people feel guilty about having fun again or unsure how to reconnect. At Chesapeake Life Center, that understanding is shaping creative grief support programs designed to give people a judgment-free space to let loose and have fun. The hope is that they can begin to rediscover joy and carry it into everyday life.

Cancer support camps and the measurement of quality of life among children of parents with cancerSupportive Care in Cancer; by Mia K. Price, Marcelo M. Sleiman Jr., Muriel R. Statman, Duye Liu, Rachel Adams, Matthew G. Biel, Alexandra L. Baldwin, Joseph M. Stilwell, Kenneth P. Tercyak; 1/26Children of parents with cancer face elevated risks of anxiety, depression, and impaired social-emotional functioning. This study aimed to develop and evaluate the Kids’ Experience of Summer Enrichment Measure (KESEM), a parent-report tool assessing psychosocial well-being among children attending a cancer support camp due to a parent’s cancer [and] ... the majority of parents (78%) strongly agreed that camp was favorably impactful and would recommend it to others.

Valentine’s week at Connecticut Hospice The Connecticut Hospice; email and webpage; 2/18/26 Valentine’s Week at Connecticut Hospice was filled with meaningful moments and gentle reflections of the love that surrounds our patients and families every day. We began the week with a touching donation of hand-painted rocks from our dedicated volunteer, Maureen. ...The week of Valentine’s Day holds special meaning for her, as it marks the anniversary of her father’s passing. These small but powerful tokens were placed at our front desk for visitors to choose from before or after spending time with their loved ones. [Continue reading and see photos of  more meaningful gifts through the week.]

A scoping review on aphasia and technology: Exploring mechanisms enhancing quality of lifeQuality of Life Research; by Grace E. Terry, Cassondra Wilson, Gillian Anderson, Stacy M. Harnish; 1/26 People with aphasia are at an increased risk for reduced quality of life (QoL) because of their change in communication abilities. The present study aims to review the current evidence supporting assistive technology as a tool to improve QoL for people with aphasia, while investigating the various mechanisms technology may impact that lead to increased QoL for people with aphasia. This review emphasizes the role mechanisms such as self-management, social interaction, and virtual communication play in improving QoL for people with aphasia, while emphasizing the role technology plays in impacting the function of these mechanisms.  However, for this assistive technology to be impactful, it must be person centered and thoroughly trained based on the current body of evidence.

Reconnecting at the end: The healing power of nature in hospice and palliative care ehospice; by Dr. Owen Wiseman; 1/5/26 ... Humans are wired to feel better in nature. We feel calmer when we see the colour green or hear water flowing from a stream nearby. ... Evidence shows that simply viewing nature can reduce pain, anxiety, and stress. In one of the most-cited studies, patients recovering from surgery who had window views of nature used 21% fewer pain medications and shortened hospital stays. ... I’ve had a front-row seat to the power of nature in palliative care, both professionally and personally. ...Small Ways to Bring Nature In - Not every hospice or palliative care space has access to large gardens or forests. That said, nature can still find a way in:

Palliative care staff attitudes toward music therapy for hospitalized adult patients American Journal of Hospice and Palliative Medicine (AJHPM); by Katherine A. Carney, APRN, CNP, MS, Rachel M. Wiste, APRN, CNP, MSN, Susanne M. Cutshall, APRN, CNS, DNP, MS, Christina Wood, MA, MT-BC, Rachel C. Gentes, APRN, CNP, MSN, Brianna E. Larsen, MA, MT-BC, Nana A. Tiwaa, MAS, Amelia E. Tetlie, APRN, CNP, DNP, and Regina M. Mackey, MD; 12/18/25 ... Top reasons for music therapy (MT) referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. A variety of factors influenced decisions to refer for MT. Most felt that at least half of their patients could benefit from MT, and nearly all rated MT as “extremely” or “very” effective for improving patients’ quality of life.Editor's Note: Visit stories about music therapy the American Music Therapy Association. For extensive uses of music therapy in hospice and bereavement care, I invite you to explore my book, Music of the Soul - Composing Life Out of Loss, published in Routledge's Series in Death, Dying and Bereavement, 2006.