Literature Review

Readers share stories of their loved ones’ deathbed visions DNYUZ; 4/10/24 When I started reporting “What Deathbed Visions Teach Us About Living,” about the visions, often of loved ones, that some people have in the final stretches of their lives, I had no idea just how universal the experience was. But within minutes of the story’s publication, readers took to the comments section to post their own memories of having witnessed the phenomenon. The stories were rich, deeply personal, and seemed to confirm something that the researcher featured in my story, Dr. Chris Kerr, knew in his years of studying such visions: they bring peace to the dying and solace to the living. Family members wrote in with stories of watching loved ones have visions, as did health care workers, who had years of experience witnessing them. [Click on the article's title to read more stories.]

A wish to remember: Penn Medicine program fulfills patients’ last requests Penn Medicine News, by Meredith Mann; 4/9/24 The patient was dying of cancer. All options for saving or prolonging their life had been exhausted. Now, the patient most wanted to spend one more carefree, joyous day with their grandchild. ... This is just one example of the last requests granted through Princeton Health’s Three Wishes Project. On paper, it’s about performing small gestures that bring comfort and meaning to patients at the end of their lives. In practice, it’s about so much more—providing a sense of hope and closure, not only to these patients and their families, but also to staff.

Lost for words? Research shows art therapy brings benefits for mental health The Conversation; 4/8/24 Creating art for healing purposes dates back tens of thousands of years, to the practices of First Nations people around the world. ... When people face significant physical or mental ill-health, it can be challenging to put their experiences into words. Art therapists support people to explore and process overwhelming thoughts, feelings and experiences through a reflective art-making process. This is distinct from art classes, which often focus on technical aspects of the artwork, or the aesthetics of the final product.

Care partners have an increased loneliness risk HCP Live, by Chelsie Derman; 4/8/24 The study highlights how the experience of loneliness for care partners of people with dementia changes relationship roles throughout the dementia trajectory. A new study sought to widen the knowledge gap on why people with dementia and their care partners have an increased loneliness risk and identified primary themes: losing external social networks, losses with the dyadic relationship, and the burden of a care partner supporting their loved ones.Editor's Note:

The HAP Foundation, CLHPN partner to address unmet pediatric hospice needs Hospice News, by Holly Vossel; 4/5/24The HAP Foundation is partnering with the Child Life Hospice and Palliative Network (CLHPN) to improve awareness of and access to child life services among seriously ill youths and their families. The HAP Foundation helps support research and education in hospice and palliative care. Through the partnership, the organization will help fuel CLHPN’s efforts to expand understanding and utilization of child life specialist services and their benefits for families facing terminal and chronic illness. Child life specialists can help address a range of unmet psychosocial, emotional and spiritual family needs, according to Alyssa Friedberg, CLHPN co-founder.

Medicine—Both a Science (Care) and an Art (CARE) JAMA Network - Viewpoint; by Theodore J. Strange, MD and Mario R. Castellanos, MD; 4/3/24In the current era, health care is increasingly characterized by the integration of big data, predictive analytics, medical devices, and artificial intelligence. These technological advancements have undoubtedly transformed the landscape of medical care, offering unprecedented precision and efficiency in diagnosis and treatment. Yet, amidst this surge of scientific innovation, the timeless art of medicine (compassion and caring) remains a foundational aspect of patient-centered health care ... The acronym CARE (compassion, assistance, respect, and empathy) encapsulates these enduring values. ... In a world increasingly driven by data and algorithms, these qualities foster a trusting and supportive relationship between health care professionals and patients, thereby enhancing the healing process and enriching the overall health care experience.

Incorporating bereavement into the continuum of careMedpage Today, by Charles Bankhead; 4/4/24... Despite being integral to high-quality, family-centered healthcare, bereavement support often is poorly resourced, even described as the "poor cousin of palliative care." ... To develop a framework for compassionate communities requires shifting bereavement care from "an afterthought to a public health priority," wrote Wendy G. Lichtenthal, PhD, of the University of Miami Sylvester Comprehensive Cancer Center, and co-authors in Lancet Public Health. ... In an ideal setting, bereavement care begins with pre-death grief education, continues through the dying process and end of life, and transitions into community-based support and psychosocial services, as needed. .. The [continuum of care] model comprises five essential "pillars":

Malnutrition, thyroid cancer result in high rates of death among home care, hospice patients, studies finds McKnights Home Care, by Adam Healy; 4/5/24 Two separate studies analyzing disparities in patients’ place of death revealed high death rates related to malnutrition and thyroid cancer among patients receiving care at home and in hospice. The first study, “Disparities in Place of Death Among Malnourished Individuals in the United States,” found that more than 31,000 malnutrition-related deaths occurred among home care and hospice patients between 1999 and 2020. ... Another study, “Disparities in the Place of Death for Patients With Malignant Neoplasms of the Thyroid Gland,” discovered that roughly half of all patients who died of thyroid cancer between 1999 and 2020 did so in home care or hospice.

Integration of palliative care across the spectrum of heart failure care and therapies: considerations, contemporary data, and challengesCurrent Opinion in Cardiology, by Sarah Chuzi and Katharine Manning; online ahead of May 1, 2024 printRecent findings: Patients with chronic heart failure [HF], as well as those who are being evaluated for or who have undergone advanced HF surgical therapies such as left ventricular assist device or heart transplantation, have a number of palliative care [PC] needs, including decision-making, symptoms and quality of life, caregiver support, and end-of-life care. ... PC skills and teams may also help address preparedness planning, adverse events, and psychosocial barriers in patients who have had HF surgeries, but more data are needed to determine association with outcomes.

Tool simplifies requests for palliative care consultsAmerican Association of Critical-Care Nurses; 4/2/24A simple screening tool integrated into the admissions process for critically ill patients can streamline requests for palliative care consultations, according to a study published in Critical Care Nurse (CCN). ... An initiative in the mixed surgical and medical ICU at Bon Secours Mercy Health Anderson, a 230-bed, community hospital in Cincinnati, sought to improve the process of requesting palliative care consultations. “ Integrating Palliative Care Screening in the Intensive Care Unit: A Quality Improvement Project” demonstrates the potential impact of adding a simple screening tool at the point of admission to initiate automatic referrals for palliative care consultations.

How to look after your mental health while packing up Mum or Dad’s home The Conversation, 3/31/24 So Mum or Dad has died, or moved to aged care, and now you’ve got to pack up their house. It’s a huge job and you’re dreading it. It’s normal to feel grief, loss, guilt, exhaustion or even resentment at being left with this job. So how can you look after your mental health while tackling the task? 

People in this state Googled ‘medical marijuana’ the most, study shows Forbes, by Benjamin Adams; 3/29/24 How inquisitive are people in your state about medical cannabis? A recent analysis aims to find out—ranking states according to the number of Google searches for “medical marijuana” and other related keywords. ... The original study, “Which States Are The Most Obsessed With Medical Marijuana In 2024?” illustrates the levels of curiosity in each state, and some of the findings are unexpected.