Literature Review

Drivers of disease-specific end-of-life disparities Hospice News; by Holly Vossel; 1/30/26 ... Racial and ethnic disparities persist among underserved patient populations with dementia, who have a stronger likelihood of dying without awareness or access to hospice, recent research has found. Clinicians may play a vital role in moving the needle forward. Nearly 260, 000 Black, Hispanic and white Medicare decedents with dementia-related conditions were recently examined in a new study, which was published in the Journal of the American Medical Association (JAMA) Health Forum.  Editor's Note: We posted this study in our Saturday Research newsletter, 12/27/25, End-of-life care for older adults with dementia by race and ethnicity and physicians’ role. This article gives more practical descriptions and applications for its results.

Fly fishing support group provides new angle on grief processing: The grieving can find peace in the rhythm of fishingTimes Courier, Ellijay, GA; by Jackson Elliott; 1/28/26 Few people understand grief like a hospice chaplain. “I’ve experienced about 5,000 deaths,” former hospice chaplain Rick Gillert said. “And I’ve helped those families and patients through the grieving process." “‘I had this idea in the back of my head of combining professional grief care with fly fishing,” he said. During his time as a hospice chaplain, he would often seek peace from the difficulty of the work by going fishing the next day. “I can almost imagine my anxieties, my worries as leaves falling on the water and washing away,” Gillert said. In his program, clients join a group and go through a 10-week course on fly fishing, processing grief and coping skills.

Patients with terminal blood cancer stress need for transfusion access in hospice care, survey findsHematology Advisor; by Joantahn Goodman, MPhil; 1/28/26  Patients with blood cancer eligible for hospice care emphasize the importance of access to transfusion over other services, according to research published in JAMA Network Open. The survey-based study confirms that, among patients with an estimated life expectancy of 6 months or less, routine hospice services are perceived of less value than transfusion access — suggesting that palliative transfusion availability should be incorporated into hospice care universally, the authors noted in their report.

Meant to Be: Denise's journey into hospice nursing The McKenzie, Tennessee Banner; 1/27/26 When Denise lost her husband, Tony, to leukemia at only 39, her world shifted forever. She was 29. ... In her thirties, ... she enrolled in nursing school, determined to rebuild her own story, one chapter at a time. ...Then came a nursing hospice opportunity. ... For Denise, hospice nursing isn't about endings; it's about helping families find peace, honesty, dignity, and hope in the final chapter. She carries the responsibility with deep reverence. "We're the last chapter," she says softly. "And if that chapter ends poorly, a lot of it is on us." ... Denise's journey reminds us that sometimes the hardest heartbreaks lead us to the most meaningful callings. Editor's Note: [Full access to this may require a subscription.] What personal life experiences brought many of your clinicians to end-of-life care? You may be surpised how little you know about them; what brings meaning and purpose for them; how seeing their journeys inspires you in your leadership role.

Urns over caskets: Cremations now way more popular than burials Axios; by Carly Mallenbaum; 1/25/26 Cremations are now twice as common as burials in the U.S., reversing a norm from two decades ago, according to the National Funeral Directors Association. Why it matters: Shifting attitudes around religion, cost and the environment are reshaping how Americans handle death. By the numbers: Cremation surpassed burial nationwide in 2015 — and the gap has only widened since, with the NFDA projecting cremation will continue gaining share. ... Instead of opting for a traditional burial — which requires more land use, upkeep, embalming processes and items like caskets — people are going greener. 

The most important thing you need to know about end of life planning Forbes; by Peter Ubel; 1/22/26 ... Many experts say I should document my preferences clearly and unambiguously in my medical records so that, in the case of mental incapacity, my doctors can look at what I say and honor those preferences. According to the AARP, leaving ahead detailed instructions about your end-of-life preferences means “that you remain the captain of your own ship.” ... I respect these experts. And I do not begrudge anyone who has filled out such a document. But I worry that this approach won’t work and could even backfire. That is why I prefer a different approach, which I will describe shortly. But first, I need to explain why these kind of detailed advanced directives could backfire. ...

10 things I learned after 10 years with ovarian cancer Cure; by Kelly Irvin; 1/22/26 My birthday was January 20. ...  I received my stage 4 ovarian cancer diagnosis on Jan. 16, 2016. ... So here I am still alive ten years later on my 68th birthday. ... I feel I’m allowed to share what I wish my younger self had known when I received my diagnosis. Counting down to number one, here are my lessons learned:

Patients' perceptions of autonomy in palliative care: Two patient interview exemplars Palliative Care and Social Practice; by Kristen Tulloch, Julia Acordi Steffen, John P Rosenberg; 1/19/26 Results: Four themes were identified: (a) my involvement in healthcare decisions, (b) change to my autonomy during illness progression, (c) self-assessing my abilities to exercise autonomy and (d) my coping mechanisms for loss of autonomy. Palliative care patients perceived and managed their autonomy amidst their illnesses, revealing a sense of loss of autonomy extending beyond healthcare into many daily activities. Participants wished to exercise autonomy in nuanced ways, varying in intensity across many aspects of their lives, underscoring the importance of recognising and respecting individuals' wishes for autonomy.Editor's Note: The authors’ focus on coping with loss of autonomy is essential. As illness progresses, autonomy can erode not only in medical decisions but across daily life, identity, and meaning—losses that are too often overlooked in clinical care. The frequently misapplied “Five Stages of Grief” can further blur this reality, reducing complex, personal experiences to linear expectations not supported by contemporary grief research. Understanding how patients adapt to loss of autonomy is foundational to truly person-centered palliative care.

Trends in pediatric palliative care - A newsletter Trends; by the Siden Research Team; 1/20/26 In 2024 TRENDS published it’s 100th issue and enrolled its 1000th newsletter subscriber, the newsletters growth shows no signs of stopping. The Siden Research Team continues to center ways to foster the pediatric palliative care community and ultimately improve care for our patients. ... ith no journal dedicated to pediatric palliative care, finding relevant articles required scouring pediatric journals for palliative literature and palliative journals for paediatric literature – clearly there was a gap in effective dissemination of relevant articles. ... The Siden Research Team took initiative to bridge this gap. In June 2016 the first search and resulting citation list was compiled.

A different kind of care: The compelling case for palliative care in advanced kidney disease docwirenews; by Keightley Amen; 1/20/26 Advanced kidney disease requires some of the most complex care in medicine due to medical management, comorbid conditions, symptom burden, patient and family psychosocial needs, difficult conversations, and advance care planning. Despite the significant coordination needed, care for this patient population is often more fragmented, with less access to supportive services, than for people with other chronic, life-limiting illnesses.

Racial and ethnic differences in early DNAR orders after in-hospital cardiac arrest Physician's Weekly; by Shanel Diviney-Brown; 1/16/26 In a comprehensive national cohort study published in JAMA Network Open, researchers examined how race and ethnicity relate to the timing of Do Not Attempt Resuscitation (DNAR) orders among adults experiencing in-hospital cardiac arrest. The findings highlight emerging inequities in end-of-life decision patterns that may inform clinical practice and shared decision-making in critical care settings.

Nurse Honor Guard provides final salute to health care heroes Valley News Live; by Meredith Anderson; 1/16/26 Honor guard ceremonies, which are traditionally reserved for funerals held for military veterans, police officers and firefighters, are becoming more common for another group of frontline workers: nurses. The Georgia Nurse Honor Guard provides tributes to nurses who have died or are in hospice care, offering families a formal recognition of their loved one’s service to the community.

The long quiet of Karen Andrews 15 - Utah's Art Magazine, by Shawn Rossiter; 1/14/25 When Alli Harbertson first walked into the Andrews home, it was the paintings that stopped her. “They’re everywhere,” Harbertson recalls. The living room—where Karen Andrews’ hospital bed had been placed—was filled with artwork, paintings covering the walls and leaning against furniture while ceramics, blankets and small sculptures covered coffee tables, bureaus and dressers. ... [After Karen's death,] Ron Andrews did not know what to do with the more than 130 painting, but he knew what his wife had asked of him. “She was so clear,” Harbertson says. “She said, ‘I made my mark. This is the mark I made—my paintings. Don’t let them go to the DI.’” ...