Literature Review

End-of-life doctors reveal 5 common fears people face in their final moments SavingAdvice.com; by Amanda Blankenship; 5/3/26  Most people avoid thinking about death, but doctors who work in hospice and palliative care say the same fears come up again and again. ... Research shows that death anxiety is common, with many people experiencing fear tied to the process of dying, not just death itself. ... here are five of the most common fears [identified by these doctors] among people facing their final moments.

Hospice nurses are changing how we care for patients at the end-of-life South Florida Hospital News and Healthcare Report; by Karen Peterson; 5/1/26 Hospice nurses are often associated with compassion at the end of life. What is less understood is that they are also among the most clinically skilled nurses in healthcare. During National Nurses Week (May 6-12), it is important to recognize the many ways nurses shape patient care across the continuum. Hospice nursing is not a step away from acute care. It is an extension of it. ... A hospice nurse may be called to a patient’s home late at night for uncontrolled pain or severe shortness of breath .... In that moment, the nurse must assess, intervene and stabilize, while also supporting the family through fear and uncertainty. 

Chapters Health System launches new pediatric program PR Newswire, Temple Terrace, FL; Press Release; 4/23/26 Chapters Health System announced the launch of Chapters Kids, a system‑wide pediatric hospice and palliative care program. Chapters Kids will expand resources for pediatric patients and families throughout the Chapters Health System service area and unite existing pediatric programs from several affiliates. "The launch of Chapters Kids is another critical step forward as we work toward fulfilling our mission of taking care of patients, or taking care of those who do," said Andrew Molosky, President and CEO, Chapters Health System.

Turning wishes into wonder - creating magic at home when dreams take a detour Hometown News, Treasure Coast, FL; by Mary Ann Ketcham; 4/19/26 Thanks to Treasure Coast Hospice, the dream of becoming princesses recently came true for 11-year-old Olivia and her younger sister Valerie. Olivia, a patient being cared for by Treasure Coast Hospice’s Little Treasures program, and her family were scheduled to set sail on a Disney Princess Cruise when unforeseen circumstances arose, resulting in them having to cancel the opportunity. Music Therapist Liz Lung learned of the heartbreaking news and gathered her Treasure Coast Hospice colleagues together to develop a plan to create a Princess Party Experience that would bring smiles and laughter to Olivia and her sister. 

Children supported by hospice remembered in songs Europe Says, Oxford, UK; Press Release; 4/19/26  Ten children who were cared for in a hospice have been honoured with a collection of specially commissioned songs. The bereaved families of the children worked closely with musicians on The Keepsake Circle project at Helen and Douglas House in Oxford. ... The families taking part in The Keepsake Circle project shared stories about their children and what made them unique. The deeply personal songs for the families have been written and produced by singer Kiki Deville and songwriter Angus Powell, with instrumentalist and producer Gregor Gergő Petri also joining the team. 

Sovereign Hospice: addressing late-stage renal condition care gaps in Fort Worth MyCarrollCountyNews.com, Dallas, TX; by Sovereign Hospice; 4/16/26 End-stage kidney disease affects hundreds of thousands of Americans each year. When kidneys can no longer sustain life without dialysis or a transplant, families are left to make decisions that few feel prepared for. Sovereign Hospice ... is drawing attention to a gap many families face: not knowing that hospice care services exist as a legitimate, fully supported option at this stage of illness. ... For patients with end-stage kidney disease, the shift away from aggressive treatment means that symptom management becomes the priority. Common symptoms at this stage include fatigue, pain, restlessness, and fluid retention. The interdisciplinary team is trained to address all of these through individualized care plans.

Owner opened restaurant on day off to fulfill dying man's last wish to feed hospice nurses who cared for him People; by Erin Clack; 4/11/26 "To me, it means the world to see that kindness, that greatness spread," the dying man's brother said of the restaurant owner.  Tommy Milani didn't hesitate to step up and help when he received a request from a grieving family. Before his death, Frank Ozimek — who spent six weeks at Niagara Hospice in Lockport, N.Y., bonding with and being cared for by the dedicated staff there — asked his younger brother, Ken Ozimek, to make sure the nurses were treated to a meal on Easter Sunday, per local outlet WKBW.

The power of showing up: how families can support loved ones who are aging or ill Good Men Project; by Harvey Max Chochinov; 4/14/26 For many families, visiting a loved one who is aging or seriously ill can feel surprisingly hard. ... What if the problem is not that families have too little to offer, but that we misunderstand what truly helps? ... By emphasizing presence over fixing, dignity over distraction, and meaning over outcomes, it helps families:

Expanding access to palliative care for patients with advanced liver diseaseAAAS - EurekAlerts!, Philadelphia, PA; describes JAMA Internal Medicine at doi: 10.1001/jamainternmed.2026.0571; 4/13/26 A new multicenter trial led by Manisha Verma, MD, and Victor Navarro, MD, at Jefferson Einstein Philadelphi Hospital demonstrates a new approach that could potentially transform access to palliative care for patients with ALD and address a major care gap. In the PAL LIVER trial, a large cluster-randomized study conducted across 19 U.S. centers, researchers evaluated whether hepatologists trained in primary palliative care could match the effectiveness of palliative care specialists in delivering quality-of-life benefits to patients with ALD, including those with decompensated cirrhosis and liver cancer. With 935 patients enrolled, this is one of the largest trials to date in liver disease palliative care.

New measure likely to relax antipsychotic prescribing for certain hospice patients McKnights Home Care; by John Roszkowski; 4/8/26 Appropriate prescribing of antipsychotic medications to hospice patients no longer will negatively affect skilled nursing facilities’ quality ratings under a new federal rule change, potentially opening the door for SNFs to accept more hospice patients. The Centers for Medicare and Medicaid Services recently revised its Long-Stay Antipsychotic Quality measure to exclude residents receiving hospice services from the measure denominator for quality reporting. As a result, antipsychotic use for hospice residents will not influence a SNF’s Five-Star Quality Measure score.

Families face identity theft following a death Hospice News; by Jim Parker; 4/8/26 When a loved one dies, the specter of identity theft can loom large, particularly through unclosed digital accounts that family members may not be aware of. Approximately 2.5 million deceased Americans have their identities stolen annually, with roughly 800,000 of these cases specifically targeted because they have died, according to the State of California Department of Justice. Managing and closing digital accounts can help mitigate the risk of identity theft, according to Donnell Beverly, Jr., CEO of Eazewell.

Challenges in the end-of-Life care for patients with severe persistent mental illness: a case series Psychogeriatrics; by Kaushadh Jayakody, Isha Bajaj, Doug Blomeley; 4/7/26 Conclusions: ... This study emphasises the importance of improved clinician training, clearer referral pathways and integrated care models in addressing this disparity. Implementing these measures will aid in addressing longstanding inequalities and ensure individuals with SPMI receive appropriate and timely palliative and EOL care.

TNMHPO Announcing Veteran Initiative Partnership (VIP)Texas ~ New Mexico Hospice & Palliative Care Organization; email; 4/1/26 If your organization supports veterans in hospice or palliative care, we’d love to invite you to be part of something meaningful. Introducing the Veterans Initiative Partnership (VIP) — a new, no-cost program designed to bring together providers, partners, and professionals committed to improving care for veterans. ...