Literature Review

What is a good death? End-of-life doulas can help the dying have one.Boston Globe, by Sherrie Dulworth; 2/9/24... Home hospice agencies offer vital services for terminally ill people who wish to die at home, assisting with, among other things, pain management and helping the terminally ill avoid needless medical procedures. ... But while it is often thought that home hospice workers are the primary caregivers for the dying, this is not so. Instead, it is loved ones who often do the heavy lifting, both physically and emotionally, that comes with tending to the dying. ... This is where a death doula comes in, and the work they do speaks to the nonmedical, more spiritual side of what it means to have a good death.

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.

Nurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey studyJ Adv Nurse, by Alison Hession, Tim Luckett, David Currow, Michael Barbato; 1/31/24Results: Fifty-seven nurses participated from a workforce of 169 (34% response rate), of whom 35 (61%) reported they had encountered end-of-life dreams and visions. The nature of end-of-life dreams and visions encountered was similar to those reported in previous studies by patients and clinicians. Nurses generally held positive attitudes towards end-of-life dreams and visions but identified an unmet need for education and training on this aspect of end-of-life care.Editor's Note: This research was in Australia, yet has global applications. For U.S. leaders, call on your chaplains, many of whom are trained pastoral counselors to sensitively support and explore patient's "dreams and visions," in non-manipulative ways.

Anorexia Nervosa: Evaluating disparities in places of death in the United States over 22 years using the CDC WONDER databaseCureus / NCBI, by Nirmal Patel, Rahul Tyagi, Deepanwita Biswas, Ayesha Birjees, Chetana Rajesh 6, Sadia Khan; posted via NCBI 1/30/24Conclusions:[This] study found that death in home and hospice was more common than in medical or hospital nursing facilities in all four analyzed groups. These findings highlight the critical need for significant advancements in end-of-life care, particularly in home and hospice settings.

Palliative telecare team aids QOL, health status for chronic conditionsHealthDay News, by Lori Solomon; 1/23/24Use of a nurse and social worker palliative telecare team is associated with clinically meaningful improvements in quality of life at six months for adults with chronic obstructive pulmonary disease (COPD), heart failure, or interstitial lung disease (ILD) versus usual care, according to a study published in the Jan. 16 issue of the Journal of the American Medical Association.

Hospice of the Valley launches living will campaignAhwatukee Foothills News, by Lin Sue Flood; 1/23/24National research shows that only about a third of Americans have created a living will or advance healthcare directive. ... Three nonprofit organizations — Mercy Care, Hospice of the Valley and Contexture — are launching a community education campaign to ensure that Arizonans’ wishes are honored. ... Choose Your Person is an awareness campaign urging all adults to choose someone to be their healthcare power of attorney. 

Hospital death less likely, hospice more likely for white women with ovarian cancerHealio, by Erin T. Welsh; 1/19/24Women with ovarian cancer from underrepresented groups have a higher likelihood of in-hospital mortality vs. hospice mortality compared with their white counterparts. ... Key takeaways:

Top ten tips palliative care clinicians should know about providing care for people with disabilitiesJ Palliat Med, by Dorothy W Tolchin, Claire Rushin, Ben Tolchin, Chloe Slocum, Jordana L Meyerson, Susan M Havercamp, Tamra Keeney, Andrea W Schwartz, Kristen Schaefer, Melissa Ross, Michael A Stein, Christopher A Jones, William E Rosa, Forrest A Brooks/ 1/17/24Palliative care (PC) clinicians are well poised to help people with disabilities (PWD) live well in the context of serious illness. PC prioritizes person-centered care with a focus on function, autonomy, and quality of life. This approach aligns with principles of high-quality care for PWD.Requires subscription Editor's Note: See 

Social determinants of health play 'an important role' in end-of-life pain strategiesHealio, by Jennifer Byrne and Timothy M. Pawlik; 1/16/24Patients with gastrointestinal cancers face ongoing racial/ethnicity-based disparities in end-of-life pain management, specifically in terms of access to and utilization of opioids, study results showed.

Coming to terms: Female veterans' experience of serious illnessJournal of Hospice and Palliative Nursing, by Brandon M. Varilek and Mary J. Isaacson; 1/16/24Female veteran populations are growing internationally and are more likely than men to develop certain serious illnesses, including some cancers. ... This study reports the qualitative findings from a multimethod study using qualitative inquiry to explore female veterans' experiences of living with a serious illness. 

Black caregivers' symptom management, cultural, and religious experiences with home hospice careJournal of Pain and Symptom Management, by Taeyoung Park, Danetta H Sloan, Dulce M Cruz-Oliver, Manney Cary Reid, Sara Czaja, Ronald D Adelman, Ritchell Dignam, Veerawat Phongtankuel; 8/23 Objectives: This study seeks to address this knowledge gap by applying qualitative methods to understand Black/African American caregivers' experiences around symptom management, cultural, and religious challenges during home hospice care.

The importance of emotional support services in mental healthYonkers Times, 1/8/24... ROLE IN HOSPCE CARE: In hospice settings, emotional support is crucial for helping both patients and their families manage the complex emotions associated with terminal illness. This support includes providing a safe space for expressing feelings like fear, grief, and anxiety and offering coping strategies. It aims to ease the emotional burden and improve the quality of life ..., recognizing the profound impact that a terminal diagnosis can have on both patients and their loved ones.