Literature Review

Studying connection at life’s end: Dean’s distinguished research fellowship captures social realities of dying individuals Royal Purple - founded 1901, La Crosse, WI; by UW-La Crosse University Marketing & Communications; 10/6/25 ... The project was sparked in late 2024 when [senior Maddi Jo] Baumann approached [faculty menot Angela] Geraci with an idea rooted in personal experience and public health urgency. Inspired in part by the U.S. Surgeon General’s advisory on the loneliness epidemic, Baumann wondered: What happens socially to people who are dying? Key findings: what drives social change at the end of life? The team’s early findings point to several factors that influence social relationships during the dying process:

'I spent 36 years holding dying patients' hands' BBC News, Ireland; by Grace Shaw; 10/5/25 For hospice nurse Trish Carling, holding a dying patient's hand through the dark hours of the night was a privilege to share. The 66-year-old has just retired after 36 years working in palliative care at St Michael's Hospice in Harrogate. Her first shift was in November 1989, and she has worked almost every Christmas Eve and New Year's Eve since. Despite the demands of the job, she originally chose the pathway because it worked around family life when her children were young. "At first I found the night shifts practical - they then became my preferred hours," she said. ... [Continue reading]Editor's Note: In what ways do you honor your longtime employees? How do you tell their stories of passionate compassion? Of loyalty to your core mission through changing times and operational practices? So many of these valued employees began in a pre-digital era. Imagine: before cell phones, the internet, websites, electronic employee files, EMR systems, and so much more. Crucial employee data can get lost especially during organizational name changes, Mergers & Acquistions, or a short-term leave of absence. Let this article be a catalyst for you to research and honor your employees with long tenures. Without their faithful foundations, your work today would not be the same.

Grieving someone who’s still here Psychology Today; by Bob Uslander, MD; 10/2/25 Grief does not always begin after death. For many families facing dementia, terminal illness, or a slow decline, it arrives before the final goodbye—quietly, persistently, and often without recognition. This is known as anticipatory grief: the emotional process of mourning a loved one who is still alive. As a palliative care physician, I see this every day. Spouses tell me they feel like they have already lost their partner. Adult children struggle with the reversal of roles, becoming the caregiver to the parent who once cared for them. Caregivers often oscillate between love, exhaustion, guilt, and detachment. None of this means they are doing it wrong. It means they are grieving.

Ethics of disclosure in pediatric end-of-life care American Nurse; by Adrianna Watson, PhD, RN, CCRN, TCRN, and Rachel Clement, BSN, RN; 9/30/25 An ethical case study analysis Takeaways:

Instilling hope: A comprehensive model of cancer care for younger adults Targeted Oncology; by Andrea Eleazar, MHS and Shane Dormady, MD, PhD; 9/29/25 In the past decade, the incidence of numerous cancer types has increased, particularly among younger adults under age 50. For younger adults, many of whom are primary breadwinners of their households or in the height of their educational or professional careers, a cancer diagnosis at this life stage can be unexpected and jarring. ... In an interview with Targeted Oncology, Shane Dormady, MD, PhD, medical director of El Camino Health Cancer Center, describes the unique needs and challenges of younger adults, outlines El Camino Health’s comprehensive care strategy, and offers insights and considerations for treating and interacting with this patient population.

A decade of interactive educational exchange: Impacting interprofessional palliative care educationJournal of Pain and Symptom Management; by Laura J Morrison, Shirley Otis-Green, Julie Bruno, Pamela N Fordham, Elise C Carey; 9/25The interprofessional clinical practice model is arguably the most impactful and generative aspect of hospice and palliative care (HPC) clinical practice. This article describes the innovative shared interprofessional leadership model, andragogical infrastructure, program development, educational impact, and critical lessons from the Interactive Educational Exchange (IEE). In response to a deficit in interprofessional HPC educational opportunities for rapid scholarship dissemination and mentorship, interprofessional leaders from medicine, social work and nursing proposed and implemented the IEE at the Annual Assembly of Hospice and Palliative Care presented by the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association from 2010-2020. The reported outcome measures for interprofessional scholarship and engagement, session evaluations, and attendance demonstrate why this successful innovation was repeated annually for over a decade pre-COVID. 

Carolina Caring Foundation helps hospice patient fulfill dream at North Carolina Zoo Carolina Caring, Newton, NC; Press Release; 9/23/25 A hospice patient fulfilled her lifelong dream of meeting and feeding a giraffe thanks to the Life Enrichment Fund through the Carolina Caring Foundation. Deborah, a patient at Carolina Caring, has always been fascinated by the wildlife of Africa, the work of Jane Goodall, and the unique beauty of giraffes. ... Deborah has always had an adventurous spirit. In the past, she tried many new experiences—including a fun helicopter ride with her family during a beach trip—but one thing she always yearned to do was meet a giraffe. Her Carolina Caring social worker, Carley, recognized this dream and soon created a pathway for this wish to come true. . ... Carolina Caring gave this family more than just a trip to the zoo. They provided a celebration and memory-making that the family will now forever carry in their hearts and minds.

How a novel coaching intervention is building resilience and hope in adolescents and young adults with advanced cancer: A conversation with Abby R. Rosenberg, MD, MS, MA The ASCO Post; by Jo Cavaloo; 9/15/25 Each year, nearly 90,000 adolescents and young adults (AYAs; aged 15–39) are diagnosed with cancer, and approximately 9,300 die of the disease. ... AYAs are at increased risk for developing adverse long-term side effects from cancer and/or its treatment, including chronic conditions, secondary cancers, infertility, poor psychosocial health, and financial toxicity. ... The findings from a recent randomized phase III clinical trial investigating a novel resilience coaching intervention for AYA patients with advanced cancer are showing promising results in improving feelings of resilience and hope, as well as longer-term improvement in quality of life for these patients. ... In a wide-ranging interview with The ASCO Post, Dr. Rosenberg discussed the psychosocial impact of cancer on AYA cancer survivors, the results of the PRISM-AC study, and how AYA survivors are able to cope with having a terminal prognosis.

Family says bear attack victim to be transferred to hospice care KNWA/KFTA FOX-24, Little Rock, AR; by Justin Trobaugh; 9/9/25 The family of a Franklin County man says Sept. 8 that his condition has worsened and that he has been moved to hospice care. Vernon Patton, 72, is being held at the University of Arkansas for Medical Sciences after being attacked by a bear in the Mulberry Mountain area of Franklin County on Sept. 3. Patton was working on a gravel road with his tractor near Mulberry Mountain Lodge Park when the black bear attacked, according to Keith Stephens with the Arkansas Game and Fish Commission (AGFC). His son arrived to check on him and saw the bear actively attacking. Editor's Note: Executive leaders, traumatic events like this that lead to a hospice admission call for extra support for your clinical, direct care professionals and volunteers. They can experience secondary trauma as they tend horrific wounds, both physical (for the patient) and emotional (for family and friends). Also, what policies do you have in place to balance important community news and family privacy (e.g. staff or volunteers posting anything on social media).

When I go, I'm going green KFF Health News; by Paula Span; 9/8/25 More Americans are choosing burials in which everything is biodegradable. ... “Do you see a lot of interest in green burials?” I asked the friendly town cemetery commissioner who was showing me around. “I don’t think we’ve had a traditional burial in two years,” he said. “It’s all green.”

Why palliative care is more than just end-of-life support MedPageToday's KevinMD.com; by Dr. Vishal Parackal; 9/1/25 ... Palliative care as a system requires strong interpersonal and cross-specialty communication for smooth functioning, as patients may require expert opinions from different fields to optimize their treatment plan. Patient education for systemic follow-ups and establishing a baseline of knowledge regarding their diagnosis and potential danger signs helps create a better environment for holistic care. While we focus on the physical aspects of care and diagnosis, we often fail to realize the psychological and mental impact that such conditions can have on the patient and their family. ... The opportunity to make a meaningful difference in patients’ lives by easing their suffering and enhancing their quality of life is profoundly fulfilling. ... Editor's Note: Excellent descriptions of palliative care.

Social workers’ role in improving hospice live discharge processes Hospice News; by Holly Vossel; 8/26/25 A lack of standardized care coordination is challenging the ability for patients and families to receive support following a live discharge from hospice. Deeper integration of social work services may help address the issue. This is according to findings from a recent study published in the Journal of Gerontological Social Work, which examined different methodologies for preparing patients, family caregivers and providers for hospice-initiated live discharges from social worker perspectives. 

Musical organization brings comfort to hospice patients CBS 19 News, Charlottesville, VA by Jadyn Howard; 8/14/25 The Front Porch, a nonprofit music organization, partners with Hospice of the Piedmont to give musical performances to patients in their final months. "Mom doesn’t know her grandchildren or great-grandchildren, but Clara sings the song and words come out it’s beautiful so something about the brain remembers music," said Beth Johnson, daughter of a patient at Linden House for Assisted Living.  Clara George is a Front Porch musician who performs for Johnson's mother every Thursday. "People who have dementia a lot of times they can felt isolated or lonely or agitated and when I start playing with them I see their hands start to clap and sing along," said George.