Literature Review

Funerals becoming a thing of the past as end-of-life rituals change County Life, by Sharon Harrison; 2/16/24As times are changing, more and more people don’t want a traditional, religious funeral and instead are seeking alternatives to align with present day values. 

Understanding the discordance about prognosis between clinicians and terminally ill patients and their surrogatesThe ASCO Post, by Jo Cavallo; 2/14/24A Conversation with Douglas B. White, MD, MASResearch shows that about half of adults near the end of life in the United States are too ill to participate in decisions about whether to accept life-prolonging treatment, requiring family members and other proxies to serve as surrogate decision-makers for their critically ill loved ones. However, research also shows that surrogates of patients with advanced illness often have optimistic expectations about prognosis, which often lead to the increased use of invasive treatment (including life support) in dying patients and delays in the integration of palliative care.

The Last Portrait: Local photo exhibition captures different takes on dyingUtica Observer Dispatch, by Amy Neff Roth; 2/9/24... The 26 black-and-white photos, taken by local photographer Mark DiOrio, all capture moments in the life of someone who has been diagnosed with a terminal illness.  “I wanted to photograph them because they’ve been given news that nobody wants to hear,” DiOrio explained. “They’ve been given the news that it’s going to be their time soon. And when you’re given that kind of news, you have choices to make on how you handle it. I felt that these people, what they had to say and the emotions that they communicated in that moment were invaluable.”

What is a good death? End-of-life doulas can help the dying have one.Boston Globe, by Sherrie Dulworth; 2/9/24... Home hospice agencies offer vital services for terminally ill people who wish to die at home, assisting with, among other things, pain management and helping the terminally ill avoid needless medical procedures. ... But while it is often thought that home hospice workers are the primary caregivers for the dying, this is not so. Instead, it is loved ones who often do the heavy lifting, both physically and emotionally, that comes with tending to the dying. ... This is where a death doula comes in, and the work they do speaks to the nonmedical, more spiritual side of what it means to have a good death.

NHPCO Publishes Culturally Sensitive Communications to Enhance Care Delivery: A resource guide for healthcare professionalsNHPCO Press Release; 1/30/24The National Hospice and Palliative Care Organization’s (NHPCO) Diversity Advisory Council (DAC) published Culturally Sensitive Communications to Enhance Care Delivery: A Resource Guide for Healthcare Professionals. ... It contains information from a multitude of NHPCO resources, such as the Hospice Through The DEI Lens report, Inclusion and Access Toolkit, Black and African American Outreach Guide, Chinese American Resource Guide, Latino Outreach Guide, and LGBTQ+ Resource Guide, as well as information from additional external research sources.

Palliative care use trends, racial/ethnic disparities, and overall survival differences among patients with metastatic breast cancerJ Palliat Med, by Jincong Q Freeman, Olasubomi J Omoleye, Fangyuan Zhao, Dezheng Huo; 2/1/24Conclusions: Palliative care utilization among MBC [Metastatic Breast Cancer] patients significantly increased but remained suboptimal. Racial/ethnic minority patients were less likely to use palliative care, and Black patients had worse survival, than White patients, suggesting the need for improving palliative care access and ameliorating disparities in MBC patients.

Nurses' encounters with patients having end-of-life dreams and visions in an acute care setting - A cross-sectional survey studyJ Adv Nurse, by Alison Hession, Tim Luckett, David Currow, Michael Barbato; 1/31/24Results: Fifty-seven nurses participated from a workforce of 169 (34% response rate), of whom 35 (61%) reported they had encountered end-of-life dreams and visions. The nature of end-of-life dreams and visions encountered was similar to those reported in previous studies by patients and clinicians. Nurses generally held positive attitudes towards end-of-life dreams and visions but identified an unmet need for education and training on this aspect of end-of-life care.Editor's Note: This research was in Australia, yet has global applications. For U.S. leaders, call on your chaplains, many of whom are trained pastoral counselors to sensitively support and explore patient's "dreams and visions," in non-manipulative ways.

In the hospital? Don't overlook the chaplainNext Avenue, by Alice Tremaine; 1/30/24Chaplains are the hospital's best-kept secret. Best-kept secret from patients, that is. Most of the hospital staff has figured out just how helpful chaplains can be, and will call the chaplain for everything that's difficult, scary or just plain weird: an unruly patient, a patient who received terrible news, a nurse who believes a hospital room is haunted, a mistress who showed up while the patient's wife is in the room.Editor's Note: Click here for "Common Qualifications and Competencies for Professional Chaplains," by the Board of Chaplaincy Certification, Inc.

Soul doctors: How Minnesota chaplains' roles are changingMPR News, by Angela Davis and Maja Beckstrom; 1/24/24Chaplains often show up on the worst days of people’s lives. They arrive in a hospital room after a distressing diagnosis. They accompany police to help inform someone of a loved one’s death. One in four Americans have been visited by a chaplain, usually at a hospital or hospice, ... But the role of spiritual caregiver is evolving as society becomes both less religious and more religiously diverse.Editor's Note: Click here for the Board of Chaplaincy Certification, Inc., Palliative Care & Hospice Certification

The challenges facing male caregiversNext Avenue, by Sophie Okolo; 1/23/24When business owner Mark Horst (not his real name) of Pompton Plains, New Jersey, first found out his wife of 37 years was diagnosed with Alzheimer's, he didn't know what the journey would entail. Of all caregivers in the United States, 16 million, or 40%, are men. Of these men, 63% identified as primary caregivers. 

Talking about death and dyingThe Saturday Evening Post; by N. West Moss; 1/19/24Last summer, my 88-year-old mother was diagnosed with late-stage colon cancer and opted for in-home hospice. She died three months later. Talking about death can be difficult. It can bring up feelings of fear, anxiety, and sorrow. It can also feel awkward as it requires acknowledging one’s own (or a loved one’s) mortality. 

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