Literature Review

“I just feel alone and by myself”: how adolescents experience loneliness when their parent has cancer BMC Public Health; by Lydia Mckeown, Martin Dempster, Jenny Groarke & Lisa Graham-Wisener; 3/31/26... Adolescents experiencing parental cancer report intrapersonal loneliness and interpersonal loneliness across their peer group and family life. Healthcare professionals should identify if patients have young dependent children early on so they can support parents to provide age-appropriate information about cancer to their young people and signpost parents to relevant support for their children. Editor's Note: This need becomes even more urgent when a parent is dying. The Centers for Medicare & Medicaid Services Hospice Conditions of Participation reference “family” 423 times—an intentional reminder that hospcie care extends beyond the patient. Supporting parents as they support their children is both essential and expected.

Top ten tips palliative care clinicians should know about wound care Journal of Palliative Medicine; by Nicole Dussault, Jared Morphew, Veronica Nwagwu, Brittany Gatta, Angela Richardson, Nancy Payne, E Foy White-Chu, Lidiette Wilson, Heather Dalton, Christopher E Winstead-Derlega, Katherine Ramos, Christopher A Jones; 3/30/26 ... In this article, we outline key tips for assessing and managing wounds, including understanding prognosis and goals of care, evaluating care settings, tailoring management to the underlying disease process, and addressing symptoms such as pain, odor, and psychosocial distress. A thoughtful, interdisciplinary approach is essential to reduce the physical and emotional burden wounds place on patients and caregivers.Editor's Note: As CMS implements the HOPE (Hospice Outcomes & Patient Evaluation) Tool as of October 1, 2025, skin and wound assessment becomes a visible quality marker in hospice—requiring structured documentation, ongoing reassessment, and clear alignment with patient goals. 

Mercer professors awarded grant to explore how to better support dying patients The Den; by Katerine Lybarger; 3/26/26 Mercer University professors Caroline Anglim, Ph.D., and Paul Lewis, Ph.D., M.Div., have received a $60,000 Faith and Health Campus Grant from Interfaith America to expand both academic and public understanding of how faith, spirituality and health intersect. The initiative will aim to advance the concept of religion as a social determinant of dying well in the American health care system and include several components including curricular development, community partnerships and research.

New program and book examine best practices around end-of-life care for people living with Alzheimer’s Disease and related dementias (ADRD) Hospice Foundation of America, Washington, DC; by Lisa Veglahn;3/25/26 Hospice Foundation of America (HFA) will present its 33rd annual Living with Grief® educational program, Best Practices in Hospice Care for Advanced Dementia, addressing optimal care for the fastest growing segment of the hospice population. The program will be held live via Zoom on April 14, 2026, from noon—2 pm ET. According to the National Institutes of Health, researchers estimate that 42% of Americans over the age of 55 will at some point develop a form of dementia, all of which are terminal illnesses. ... In addition to the upcoming program, HFA has published a new volume of scholarly and personal work, Alzheimer’s Disease and Dementia: A Guide for Hospice Clinicians, edited by Kenneth J. Doka and Amy S. Tucci. The book offers valuable insights and practical approaches to delivering compassionate, person-centered end-of-life care to individuals with dementia and their loved ones. Editor's Note: Hospice Foundation of America has long defined standards for hospice education, and once again leads at a pivotal moment as dementia impacts Baby Boomers' end-of-life care. From their early satellite broadcasts that convened clinicians nationwide to today’s expansive reach, HFA has consistently translated complexity into practical, practice-changing insight. This work challenges us not only to learn, but to lead—bringing greater clarity, skill, and compassion to those living with dementia and those who walk beside them.

Palliative care should be integrated into cardiology therapy earlier, says study Medical Xpress; by Inka Väth; 3/25/26 An international group of authors has called for a shift in cardiovascular care. ... For clinical practice, the group of authors therefore recommends a stronger structural integration of palliative care content into cardiology. This includes interdisciplinary care teams, shared treatment models, and more intensive training in internal communication and symptom management. Palliative care should also be given greater consideration in medical education. ... Palliative care should be the standard in cardiology, not the exception. After all, the success of sustainable cardiology will not be measured solely by how long people live, but by how well they can live.

It’s time to let stereotypes about older adults die McKnights Home Care; by Liza Berger; 3/6/26 They say there is strength in numbers. If that is true, the nation’s roughly 67 million baby boomers should not be afraid to speak up about how to talk to and refer to older adults. It’s time they did.  I was reminded of this after reading a smart post by Anthony Cirillo, a caregiving expert. In the post, he talked about how people (younger ones primarily) casually make ageist comments without realizing the harm they cause. Cirillo gives the examples of a young adult referring to him as “Pops” and another asking him if he knows how to use an iPhone.Editor's Note: One of the worst memories for me about my dad's last week of life was the way a physical therapist spoke to my dad--our gentle, gentle-man-ly giant of a man in both character and stature. Fortunately, I was a strong advocate and asked him (in her presence), "Dad, am I saying it right?" Even in his vulnerable state, he voiced, "Yes. ... Yes." There was no apology. No follow-up. Years later, I invite you to pair these descriptions with our 2025 post, "Honey, Sweetie, Dearie: The perils of elderspeak." 

VA Pittsburgh chaplains: Providing hope, healing and spiritual support for Veterans U.S. Department of Veterans Affairs; by Jordan Harris; 3/9/26 From suicide prevention to end-of-life care, VA Pittsburgh Healthcare System (VAPHS) chaplains deliver compassionate, holistic support that strengthens the well-being of Veterans and staff. Chaplains provide more than spiritual guidance -- they offer hope, comfort and connection when Veterans need it most. Whether it’s supporting someone through a mental health crisis, walking alongside families during end-of-life care, or simply listening in moments of uncertainty, chaplains are a steady presence. Their work helps Veterans find meaning, resilience and peace as part of their healing journey.

Alliance submits comment letter on the Department of Education’s notice of proposed rulemaking, ‘Reimagining and Improving Student Education’ (RISE) National Alliance for Care at Home, Alexandria, VA and Washington, DC; Press Release; 3/3/26 The National Alliance for Care at Home (the Alliance) has submitted a response to The Department of Education’s proposed rule, titled Reimagining and Improving Student Education (RISE).  While the Alliance appreciates the Department’s aim of promoting fiscally responsible spending, the comment letter expresses concern that the proposed rule’s narrow definition of professional degree, and the resulting exclusion of nursing, physical therapy, physician assistant, occupational therapy, and social work advanced degree programs, would have a unintended consequence for the healthcare workforce and the millions of Americans who depend on care delivered in the home.

Penn Medicine Collaborative providing holistic care to cancer patients healthleaders; by Christopher Cheney; 3/10/26 Key Takeaways:

Chronic pain and unrecognized grief: epistemic barriers to personal and social recognition Medicine, Health Care and Philosophy; by Christopher Jude McCarroll, Ying-Tung Lin, Dominik Koesling, and Claudia Bozzaro; 3/29/26 What is it to grieve? What is the nature of grief? ... Importantly, a close examination of the phenomenology of chronic pain helps illuminate the ways in which it also involves the kind of losses that we can grieve over. The losses involved in experiences of chronic pain impact one’s practical identity in ways that can lead to grief. This chronic pain grief remains largely unrecognized, however. We outline four epistemic barriers to recognizing the grief involved in experiences of chronic pain. ...

Hyperactive Delirium during hospice patients’ last week of life in a home care setting 

Themed digest for palliative care professionals: Spiritual support for children ehospice | PACED; February 2026 Spiritual support remains one of the most complex and, at the same time, most essential elements of palliative care. In the February PACED digest, we present articles exploring the integration of spiritual care into nursing practice, families’ experiences in paediatric palliative care, and the role of professionals in discussing end-of-life issues with children and adolescents. This issue includes materials on professional competencies, system-level recommendations, and parents’ lived experiences. Together, they offer insight into how spiritual and value-based questions shape clinical practice and influence the quality of support provided to families. ...

Palliative care physician explains living and dying with ALS Forbes; by Adaira Landry, MD, MEd; 2/26/26 Actor Eric Dane’s recent death from amyotrophic lateral sclerosis (ALS) has drawn national attention. ... Beyond the headlines lies a deeper and more urgent discussion: what life—and death—look like for patients living with ALS. To better understand both the clinical and scientific landscape, I spoke with Dr. Maria “Marissa” Mapa, an internal medicine and palliative care physician who treats patients with ALS, and Dr. Melanie Leitner, chief scientific officer of the ALS Investment Fund, about current and future research directions.