Literature Review
All posts tagged with “Communication | Families.”
When they don't recognize you anymore
04/23/25 at 02:30 AMWhen they don't recognize you anymore The New York Times - The New Old Age; by Paula Span; 4/20/25 People with dementia often forget even close family members as the disease advances. "It can throw people into an existential crisis," one expert said. [Additional access may require subscription.]
Palliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association
04/18/25 at 03:00 AMPalliative care and advanced cardiovascular disease in adults: Not just end-of-life care: A scientific statement from the American Heart Association AHAIASA Journals - American Heart Association; by Lucinda J. Graven, PhD, APRN, FAHA, Lisa Kitko, PhD, RN, FAHA, Martha Abshire Saylor, PhD, MSN, BA, RN, Larry Allen, MD, MHS, FAHA, Angela Durante, PhD, RN, Lorraine S. Evangelista, PhD, RN, CNS, WAN, FAHA, Amy Fiedler, MD, James Kirkpatrick, MD, Lakeisha Mixon, MSW, and Rachel Wells, PhD, MSN, BA on behalf of the American Heart Association Complex Cardiovascular Nursing Care Science Committee of the Council on Cardiovascular and Stroke Nursing; and Council on Cardiovascular Surgery and Anesthesia; 4/17/25 ... This scientific statement (1) discusses the application of effective communication, shared decision-making, age-friendly care, and advance care planning in advanced cardiovascular disease palliative care; (2) provides a summary of recent evidence related to palliative care and symptom management, quality of life, spiritual and psychological support, and bereavement support in individuals with advanced cardiovascular disease and their care partners; (3) discusses issues involving diversity, equity, and inclusion in cardiovascular disease palliative care; (4) highlights the ethical and legal concerns surrounding palliative care and implanted cardiac devices; and (5) provides strategies for palliative care engagement in adults with advanced cardiovascular disease for the care team.
For AYAs with advanced cancer, study finds serious communication gaps about their care
04/16/25 at 03:00 AMFor AYAs with advanced cancer, study finds serious communication gaps about their care National Cancer Institute; by Daryl McGrath; 4/15/25 Many adolescents and young adults (AYAs) with advanced cancer don’t have discussions with their clinicians about how they want to approach palliative care until the final weeks of life, a study of medical records of nearly 2,000 young patients showed. ... Talking about care and treatment near the end of life is one of the most challenging aspects of caring for AYAs with advanced cancer, said Ashley Wilder Smith, Ph.D., M.P.H., of NCI’s Healthcare Delivery Research Program and co-leader of NCI’s Adolescent and Young Adult Oncology Working Group. ... “When a young person is faced with a disease that may lead to an early death, it’s vitally important to give them the opportunity to think about what’s most important to them and what happens to them in terms of care in the time they have left,” she said.
Hospitalists in a bind when cancer prognosis hasn’t sunk in
04/16/25 at 02:00 AMHospitalists in a bind when cancer prognosis hasn’t sunk inMedscape; by Jake Remaly; 4/15/25 When a patient with cancer is admitted to the hospital, the reason might not be related to the malignancy. But the hospitalist in charge sometimes becomes aware of a major disconnect: The patient, who they just met, does not grasp the severity of their cancer prognosis. On the one hand, the hospital medicine team and patient have advance directives and goals of care to consider, which may steer the course of the hospitalization and any use of hospice. The cancer prognosis — the patient might only have months to live, for example — could be a key component of those conversations. On the other hand, explaining the cancer situation should fall to the oncologist, right? ...
The power of film to change medical culture: A Q&A with a physician-filmmaker about her latest documentary
04/16/25 at 02:00 AMThe power of film to change medical culture: A Q&A with a physician-filmmaker about her latest documentary MedPage Today; by Genevieve Friedman; 4/15/25... We spoke with Jessica Zitter, MD, a critical care and palliative care physician in California, about shifting her career beyond clinical medicine and into the world of film-making. Zitter has produced three documentaries that use storytelling to inspire healthcare providers to connect to their work with purpose, community, and compassion, and in 2022, she founded the production company Reel Medicine Media. Her latest documentary, "The Chaplain & The Doctor," explores her relationship with Betty Clark, a chaplain on Zitter's palliative care team, and the value that can grow from an unlikely partnership.
Conversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day
04/10/25 at 02:00 AMConversations today to empower tomorrow: VITAS Healthcare elevates National Healthcare Decisions Day VITAS Healthcare; Press Release; 4/7/25 Only one in three adults in the United States have a written advance directive, a document critical in providing guidance to medical teams regarding one’s end-of-life wishes. As a pioneer and national leader in hospice and palliative care, VITAS Healthcare advocates for National Healthcare Decisions Day (April 16) and advance care planning––regardless of a person’s age or health status.... On April 16, VITAS will host a free webinar, Advance Directives and Advanced Care Planning, exploring the history, application and types of advance directives. VITAS Regional Medical Director Heather Veeder, MD, will provide practical advice to help healthcare professionals engage in difficult but necessary conversations with patients and families/caregivers. [Continue reading ...]
Federal legislation would mandate hospice education upon hospital discharge
04/03/25 at 03:00 AMFederal legislation would mandate hospice education upon hospital discharge McKnights Home Care; by Adam Healy; 4/2/25 A bill under consideration in Congress would require hospitals to educate patients about hospice care options upon discharge. HR 2437, introduced Thursday by Rep. Erin Houchin (R-IN), would amend Medicare policy to mandate that hospitals “provide information on available hospice programs to certain individuals upon discharge,” according to the bill. Although hospitals are not necessarily required to provide patients with information on available hospice programs upon discharge, they are encouraged to do so. [Continue reading ...]
Hospices must ‘evolve’ to better support next generation of caregivers
04/03/25 at 03:00 AMHospices must ‘evolve’ to better support next generation of caregivers Hospice News; by Holly Vossel; 3/31/25 Individuals in the millennial and generation Z (Gen Z) age groups represent a swelling proportion of today’s family caregivers. They face unique challenges when providing support for hospice patients compared to others, recent research has found. ... Understanding the competing, complex priorities of these generations is pivotal for hospices’ ability to deliver quality care, according to Nicole McCann-Davis, senior client advisor and research director at Transcend Strategy Group. [Continue reading ...]
Palliative care in the intensive care unit: An integrative review of intensive care unit health care professionals' views and experiences
04/02/25 at 03:00 AMPalliative care in the intensive care unit: An integrative review of intensive care unit health care professionals' views and experiences Dimensions of Critical Care Nursing (DCCN); by Berit Lindahl and Susan Kirk; May-Jun 2025 ... Our findings suggest there is variation in how palliative care in the ICU is conceptualized and interpreted. Intensive care unit professionals need enhanced competencies and training to develop their confidence in providing palliative care and improve role clarity. Such training should focus on serious illness conversations with patients/families and interdisciplinary teamwork. Integration of palliative consultants into the ICU could be further developed.
Niagara Hospice to offer free community presentation for National Healthcare Decisions Day
04/02/25 at 03:00 AMNiagara Hospice to offer free community presentation for National Healthcare Decisions Day Niagara Frontier Publications; Press Release; 3/28/25 April 16 is National Healthcare Decisions Day, which is a day set aside to educate and empower individuals to discuss and document their end-of-life health care wishes. Niagara Hospice invites the community to attend the free presentation, “Advance Care Planning: Advance Directives for Health Care,” ... Advance care planning includes advance directives like health care proxies, do not resuscitate (DNR) orders, and living wills. Advance directives help to ensure end-of-life care wishes are followed if one is unable to make necessary decisions for themselves. [Continue reading ...]Editor's note: For more information about National Healthcare Decisions Day (NHDD), explor The Conversation Project, at the Institute for Healthcare Improvement.
Stetson University professor joins millions of Americans as she embraces caregiver role for her aging parents
04/02/25 at 02:00 AMStetson University professor joins millions of Americans as she embraces caregiver role for her aging parents Spectrum News 13, Orlando/Deland, FL; by Nicole Griffin and Devin Martin; 3/31/25 According to the U.S. Bureau of Labor Statistics, more than 10 million Americans act as unpaid caregivers for an elderly parent on a regular basis. Millions in that group not only have a full- or part-time job, they are also part of the so-called “sandwich generation” — people who find themselves supporting their children and parents at the same time. ... Stetson University professor Wendy Anderson is part of that group. ... She has moved in with her parents to help care for her elderly father and mother, who is in at-home hospice care. [Continue reading ...]
Dad diary: A smashed snake and our first real talk about death
04/01/25 at 03:00 AMDad diary: A smashed snake and our first real talk about death Indy Parenting; by Tyler Hayden; 3/28/25 The other day, just after the rain, my three-year-old and I were making our regular walk up the street to get the mail when he suddenly stopped and looked at the ground. There on the asphalt was a young gopher snake, crushed and bloody, its insides on the outside. “What’s that?” he asked. Here we go, I thought. Our first real conversation about death. I’d always imagined ― or hoped ― his first encounter with the other side of life would be a belly-up goldfish or a bird lying still in grass. Or even our 16-year-old cat. Something like that. But here it was, in an especially gory and disorienting form, staring us in the face. ... NPR recently interviewed a hospice social worker named Rosemarie Truglio, who specializes in talking with children about the death. She compared the gradual process of helping them understand it to how a kid eats an apple, ... [Continue reading ...]
When medicine meets theater
03/31/25 at 03:00 AMWhen medicine meets theater The Ticker; by Craig Manning; 3/30/25 Munson Healthcare’s newest partner is going to surprise you. Last year, a pair of physicians at Munson set out to help their colleagues improve at one of the most stubbornly difficult parts of the healthcare profession: delivering bad news to patients. That goal led Munson to strike up a partnership with Old Town Playhouse, melding medicine and theater for an innovative course that gives doctors a chance to practice difficult conversations. The doctors play themselves, informing patients about challenging or terminal diagnoses. The Playhouse actors play the patients, reacting differently depending on how their physician approaches the conversation.
Saying goodbye to Dad
03/28/25 at 03:00 AMSaying goodbye to Dad MidlandsLife; by Jeff Becraft; 3/27/25 I know my last article talked about my Dad moving on to Higher Ground, but while it is still fresh on my mind, I’m going to delve into the process of saying goodbye. Perhaps it will resonate with someone who has already been down this path… or maybe someone who will be going down this path. I know that many people have been on a longer road than what I am going to describe. I won’t try to cover everything and there are some very significant things that are left out because of space; I will be simply giving my perspective on the overall experience of the last days. [Continue reading ...]Editor's note: If you have to dive into only one article today, this is the one. If you have experienced the vigil of a loved one's final days, this likely gives voice to your journey: "Each day we thought was going to be Dad’s last. It was certainly a time of changing emotions." If you have not experienced this, read to learn common rhythms and themes, dissonances harmonies, and final release into death. Thank you Jeff Becraft for your meaningful reflection.
Hidden battles: Keeping cancer secret
03/27/25 at 03:00 AMHidden battles: Keeping cancer secret Harvard Health Publishing - Harvard Medical School; by Maureen Salamon; post is dated 4/1/25, retrieved from the internet 3/25/25 Some people choose to conceal their diagnosis and treatment. Here's why — and reasons that approach can sometimes backfire. ... [In addition to privacy motives, Cristina Pozo-Kaderman, a senior psychologist at Harvard-affiliated Dana-Farber Cancer Institute] says cancer patients may also wish to:
Medicare and 24-hour in-home hospice care: Is it covered?
03/27/25 at 02:00 AMMedicare and 24-hour in-home hospice care: Is it covered?Healthline; Medically reviewed by Shilpa Amin, MD, CAQ, FAAFP and written by Mandy French; 3/25/25... Medicare offers hospice coverage for beneficiaries. However, there are certain eligibilities and guidelines that they must meet. ...
The COVID mistake no one talks enough about
03/26/25 at 03:00 AMThe COVID mistake no one talks enough about The Atlantic; by Sunita Puri; 3/25/25 Deaths in isolation have been treated as a painful memory, not as a problem that hospitals need to address. He was one of the few ICU patients whose face I saw in early 2021, when COVID raged through Los Angeles. As a palliative-care physician, my job was to meet, over Zoom, with the families of intubated patients to ensure that they had complete medical updates and to help them make difficult medical decisions on behalf of their loved one, particularly when that person faced death. But in a surreal departure from my usual practice, I’d never once seen these patients myself: At the time, to minimize exposure to COVID, the only people permitted to enter the ICU regularly were members of the ICU team. ... His wife told me that during his many previous illnesses, she had slept every night in his hospital room, making sure he asked for pain medications and watching movies with him to pass the time. “He fought harder to live when I was there,” she told me. [Continue reading ... full access may require a free trial or subscription]
Mt. Hood Hospice to present third Grief Made Visible art exhibit in April
03/25/25 at 02:15 AMMt. Hood Hospice to present third Grief Made Visible art exhibit in April Sandy Post, West Linn, OR; by Brit Allen; 3/23/25 Aside from in-home hospice services, Mt. Hood Hospice offers numerous other resources to the community, regardless of income or if they have any other ties to the organization. Among them are grief support groups that utilize art as a tool of healing. As a result of these groups, 16 artists will have the art that they created in these groups on display at AntFarm Café & Bakery, 39140 Proctor Blvd., throughout the month of April, from April 3-30, while the cafe is open. ... “This art show creates a space that normalizes talking about mental health and grief,” said Mt. Hood Hospice Bereavement Services Director Laura Lirette. “In a culture where grief is often experienced alone and behind closed doors, our hope is that this exhibit will invite conversations about grief and supporting grievers.”
10 things hospice doesn’t tell you, shared by a Cleveland Clinic doctor
03/21/25 at 03:00 AM10 things hospice doesn’t tell you, shared by a Cleveland Clinic doctor The Healthy; by Patricia Varacallo, DO (author) with Laura Hoeksema, MD, MPH, FAAHPM (medical director for Cleveland Clinic Hospice); 3/19/25 ... Dr. Hoeksema shares key insights about hospice care and reminds patients and families that the hospice team is always available to answer questions and provide support when things feel uncertain.What hospice does not tell you, but you should know:
Hosparus Health hosts senior resource fair for community
03/21/25 at 03:00 AMHosparus Health hosts senior resource fair for community NBC WNKY News 40, Bowling Green, KY; by Noah Faerber; 3/18/25 Hosparus Health invited partners from the community to WKU’s Medical Science Complex for a senior resource summit. It offered seniors a chance to speak with different organizations that can help them prepare for their future. From Bowling Green Parks & Rec’s fitness department to different healthcare groups, staff were excited to have so many groups out to help look toward what’s next.
‘Early discussions on what to expect can lessen the strain’
03/21/25 at 03:00 AM‘Early discussions on what to expect can lessen the strain’ Nursing Times; by Kylie Chaffin; 3/19/25 The article explains the pros and cons of nutrition and hydration at end of life and the several types of artificial nutrition and hydration that can be used, written in a way patients and families can understand. Resources and educational articles, like this one, can also be a great way to introduce new or even more effective ways nurses and care team members can support patients and families when pursuing a palliative approach to their health and wellbeing. My question for readers is, “Should the conversation of end-of-life, hospice and palliative care, and nutritional changes, be initiated sooner rather than later in patients with a terminal diagnosis?”
The Stanford Letter Project helps you discuss your end-of-life wishes
03/20/25 at 03:00 AMThe Stanford Letter Project helps you discuss your end-of-life wishesKALW 91.7 FM - Your Call, Bay Area, CA; by Rose Aguilar and Nina Kissinger; 3/18/25 On this edition of Your Call, we discuss the importance of conversations, letters, and advance directives in communicating your end-of-life care wishes to loved ones and doctors. Although 92 percent of US adults say it's important to discuss their end-of-life care wishes, only 32 percent have had this conversation, and less than one-third have advanced-care directives in place. ... The Stanford Letter Project was designed to give you the tools you need to start the process. Dr. VJ Periyakoil, the founder and director of the project, shares her insights into making end-of-life care plans and resources to help guide you through the process. ... Resources [with links to the content]: