Literature Review

Racial/ethnic differences in care intensity at the end of life for patients with lung cancer The ASCO Post, by Matthew Stenger; 3/21/24 The study used data from the California Cancer Registry linked to patient discharge data abstracts. The primary outcome measure was intensity of care in the last 14 days before death, with greater intensity defined as any hospital admission or emergency department visit, intensive care unit (ICU) admission, intubation, cardiopulmonary resuscitation (CPR), hemodialysis, and death in an acute care setting. ... The authors concluded: “Compared with [non-Hispanic White] patients, [Asian/Pacific Islander], Black, and Hispanic patients who died with lung cancer experienced higher intensity of [end-of-life] care. Future studies should develop approaches to eliminate such racial and ethnic disparities in care delivery at the [end of life].”

Massachusetts makes paid family leave more accessible, offering services in Spanish, Portuguese New England Public Media, by Elizabeth Roman; 3/22/24... The state passed a law in 2018 which provides paid family and medical leave (PFML) for serious injury or illness whether personal or a family member, as well as time for parental leave, but found that people whose primary language is not English were unaware of, or hesitant, to apply for the services. ... While the state portal for applying for PFML services now has options in various languages, some people are still overwhelmed by filling paperwork out online. ... There are representatives who speak Spanish and Portuguese and the state also works with an interpretation service for many other languages.

Palliative Care Movement achieves significant progress in California California Health Care Foundation, by Claudia Boyd-Barrett; 3/19/24 ... Palliative care has taken root in California over the past 15 years, driven by hundreds of leaders within health plans, hospitals, clinics, home care agencies, advocacy and education organizations, and state government. ... Some of California’s greatest palliative care progress has been accomplished in programs serving people at the lowest income levels through the state’s Medi-Cal program and through public health care systems.

'It's been really inspiring': Grace House continues end-of-life care despite challenges Akron Beacon Journal, by Kelsie Horner; 3/13/24Through a flood and financial challenges, an Akron nonprofit has continued to provide end-of-life care and companionship for people who might otherwise die alone. Since opening its doors 1½ years ago, Grace House has cared for 66 residents during their final days. ... Grace House is one of only three organizations in the nation to provide free, “non-barrier” end-of-life care for people who are unhoused or alone.

Healthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patients Cancer Research Communications; by Shama Karanth, Oyomoare L. Osazuwa-Peters; Lauren E. Wilson, Rebecca A. Previs, Fariha Rahman, Bin Huang, Maria Pisu, Margaret Liang, Kevin C. Ward, Maria J. Schymura, Andrew Berchuck, and Tomi F. Akinyemiju; 3/5/24 This study investigated the association between healthcare access (HCA) dimensions and racial disparities in end-of-life (EOL) care quality among Non-Hispanic Black (NHB), Non-Hispanic White (NHW), and Hispanic patients with ovarian cancer (OC).

Bilingual patient navigation can improve palliative care outcomes for Hispanic patients Hospice News, by Holly Vossel; 2/28/24Bicultural and bilingual palliative patient navigator interventions may be a key to improving access to goal concordant care among Hispanic populations with serious illness, according to recent research. Researchers in a recent clinical trial sought to address whether integration of bilingual patient navigation interventions could improve palliative care outcomes in Hispanic patients with serious, noncancer illnesses.

Racial differences in shared decision-making about critical illnessJAMA Intern Med, by Deepshikha C. Ashana, MD, MBA, MS; Whitney Welsh, PhD; Doreet Preiss, PhD; et al; published online 2/26/24Question: How do critical care clinicians approach shared decision-making with Black compared with White caregivers of critically ill patients?Findings: In a thematic analysis of 39 audio-recorded clinician-caregiver meetings, racial differences were most evident in the following clinician behaviors: providing emotional support to caregivers, acknowledging trust and gratitude expressed by caregivers, disclosing medical information, and validating caregivers' treatment preferences.

Urgent need to address health equity at intersection of American Heart Month and Black History Month 2024

Racial and ethnic differences in hospice use among Medicaid-only and dual-eligible decedentsJAMA Health Forum, by Julie Robison, Noreen Shugrue, Ellis Dillon, Deborah Migneault, Doreek Charles, Dorothy Wakefield, Bradley Richards; 12/23Hospice care enhances quality of life for people with terminal illness and is most beneficial with longer length of stay (LOS). Most hospice research focuses on the Medicare-insured population. Little is known about hospice use for the racially and ethnically diverse, low-income Medicaid population.

Corporations award $20K in grants to make hospice care accessible in Texarkana areaTexarkana Gazette; 1/1/24A local nonprofit has received $20,000 in grants to make end-of-life care accessible. Tyson Foods, Weyerhaeuser and Union Pacific recently awarded the funding to Hospice of Texarkana's Diversity & Inclusive Care Project. The project is a comprehensive educational and awareness program to address demographic disparities in hospice and palliative care in Northeast Texas and Southwest Arkansas. It includes staffing, training, and community outreach.

"I don't think there will ever be a time when the principles of Kwanzaa will not be important or timely. It's a great time for reflection and now more than ever our country needs to be reminded of unity." Kellie Carter JacksonHonoring Kwanzaa Celebrations: December 26, 2023 through January 1, 2024

Study uncovers racial, geographic disparities in LTSS accessMcKnight’s Home Care DailyDecember 19, 2023Disparities in access to long-term services and supports (LTSS) create greater financial and health-related challenges for people of color, according to new research by healthcare research firm ATI Advisory. Using data from a University of Michigan Health and Retirement Study, the ATI study sampled 6,232 people aged 55 years old and living in home- or community-based settings. 

Washington, D.C., Needs to Address Hospice Care Utilization DisparitiesBy Donna Gayles and Audrey EasawWashington (DC) InformerDecember 13, 2023Our nation’s capital ranks high in many things, from access to outdoor activities and number of museums to its ethnic and cultural diversity and vibrant LGBTQ+ population. But the city lags far behind in one key area: hospice care utilization. While on average, just under half of Medicare decedents are in hospice care at their time of death, in the District of Columbia, only 25% are—ranking lower than 49 of the 50 states. This is especially meaningful when considering how medical mistrust plays into this underutilization among the city’s extremely diverse population.