Literature Review

New Federal Health IT Strategy sets sights on a heathier, more innovative, and more equitable health care experienceU.S. Department of Health and Human Services; 3/28/24The U.S. Department of Health and Human Services (HHS) through the Office of the National Coordinator for Health Information Technology (ONC), today released the draft 2024–2030 Federal Health IT Strategic Plan (the draft Plan) for public comment. The draft Plan: 

Community convening aims to guide solutions to inequities in caregiving UMass Chan Medical School, by Susan E.W. Spencer; 3/26/24Jennifer Tjia, MD, MSCE, knows from her experience as a researcher and geriatrician how demanding the role of caregiver can be and how structural barriers impact patient outcomes. She wants to see research that drives solutions to health inequities. The second community convening of the Equity in Caregiving Project, a $3.8 million, five-year grant from the National Institutes of Health, which Dr. Tjia, professor of population & quantitative health sciences, co-leads, aims to advance the conversation about what challenges family and clinical caregivers of people with serious illness are experiencing.

Why California doesn't know how many people are dying while homelessKQED, by Vanessa Rancano; 3/25/24 The grants manager and his team at Alameda County Health Care for the Homeless knew people were dying on the streets, but they wanted more than anecdotal evidence; they wanted data that could show them the big picture and help them hone their strategies. ... Alameda County’s latest homeless mortality report is now prompting the team to focus on how to extend palliative care services to unhoused people with terminal illnesses. Garlin estimates almost one-fifth of those who died in 2022 would likely have been eligible for hospice care.

Massachusetts makes paid family leave more accessible, offering services in Spanish, Portuguese New England Public Media, by Elizabeth Roman; 3/22/24... The state passed a law in 2018 which provides paid family and medical leave (PFML) for serious injury or illness whether personal or a family member, as well as time for parental leave, but found that people whose primary language is not English were unaware of, or hesitant, to apply for the services. ... While the state portal for applying for PFML services now has options in various languages, some people are still overwhelmed by filling paperwork out online. ... There are representatives who speak Spanish and Portuguese and the state also works with an interpretation service for many other languages.

Racial/ethnic differences in care intensity at the end of life for patients with lung cancer The ASCO Post, by Matthew Stenger; 3/21/24 The study used data from the California Cancer Registry linked to patient discharge data abstracts. The primary outcome measure was intensity of care in the last 14 days before death, with greater intensity defined as any hospital admission or emergency department visit, intensive care unit (ICU) admission, intubation, cardiopulmonary resuscitation (CPR), hemodialysis, and death in an acute care setting. ... The authors concluded: “Compared with [non-Hispanic White] patients, [Asian/Pacific Islander], Black, and Hispanic patients who died with lung cancer experienced higher intensity of [end-of-life] care. Future studies should develop approaches to eliminate such racial and ethnic disparities in care delivery at the [end of life].”

Palliative Care Movement achieves significant progress in California California Health Care Foundation, by Claudia Boyd-Barrett; 3/19/24 ... Palliative care has taken root in California over the past 15 years, driven by hundreds of leaders within health plans, hospitals, clinics, home care agencies, advocacy and education organizations, and state government. ... Some of California’s greatest palliative care progress has been accomplished in programs serving people at the lowest income levels through the state’s Medi-Cal program and through public health care systems.

'It's been really inspiring': Grace House continues end-of-life care despite challenges Akron Beacon Journal, by Kelsie Horner; 3/13/24Through a flood and financial challenges, an Akron nonprofit has continued to provide end-of-life care and companionship for people who might otherwise die alone. Since opening its doors 1½ years ago, Grace House has cared for 66 residents during their final days. ... Grace House is one of only three organizations in the nation to provide free, “non-barrier” end-of-life care for people who are unhoused or alone.

Healthcare access dimensions and racial disparities in end-of-life care quality among ovarian cancer patients Cancer Research Communications; by Shama Karanth, Oyomoare L. Osazuwa-Peters; Lauren E. Wilson, Rebecca A. Previs, Fariha Rahman, Bin Huang, Maria Pisu, Margaret Liang, Kevin C. Ward, Maria J. Schymura, Andrew Berchuck, and Tomi F. Akinyemiju; 3/5/24 This study investigated the association between healthcare access (HCA) dimensions and racial disparities in end-of-life (EOL) care quality among Non-Hispanic Black (NHB), Non-Hispanic White (NHW), and Hispanic patients with ovarian cancer (OC).

Bilingual patient navigation can improve palliative care outcomes for Hispanic patients Hospice News, by Holly Vossel; 2/28/24Bicultural and bilingual palliative patient navigator interventions may be a key to improving access to goal concordant care among Hispanic populations with serious illness, according to recent research. Researchers in a recent clinical trial sought to address whether integration of bilingual patient navigation interventions could improve palliative care outcomes in Hispanic patients with serious, noncancer illnesses.

Racial differences in shared decision-making about critical illnessJAMA Intern Med, by Deepshikha C. Ashana, MD, MBA, MS; Whitney Welsh, PhD; Doreet Preiss, PhD; et al; published online 2/26/24Question: How do critical care clinicians approach shared decision-making with Black compared with White caregivers of critically ill patients?Findings: In a thematic analysis of 39 audio-recorded clinician-caregiver meetings, racial differences were most evident in the following clinician behaviors: providing emotional support to caregivers, acknowledging trust and gratitude expressed by caregivers, disclosing medical information, and validating caregivers' treatment preferences.

Urgent need to address health equity at intersection of American Heart Month and Black History Month 2024

Racial and ethnic differences in hospice use among Medicaid-only and dual-eligible decedentsJAMA Health Forum, by Julie Robison, Noreen Shugrue, Ellis Dillon, Deborah Migneault, Doreek Charles, Dorothy Wakefield, Bradley Richards; 12/23Hospice care enhances quality of life for people with terminal illness and is most beneficial with longer length of stay (LOS). Most hospice research focuses on the Medicare-insured population. Little is known about hospice use for the racially and ethnically diverse, low-income Medicaid population.

Corporations award $20K in grants to make hospice care accessible in Texarkana areaTexarkana Gazette; 1/1/24A local nonprofit has received $20,000 in grants to make end-of-life care accessible. Tyson Foods, Weyerhaeuser and Union Pacific recently awarded the funding to Hospice of Texarkana's Diversity & Inclusive Care Project. The project is a comprehensive educational and awareness program to address demographic disparities in hospice and palliative care in Northeast Texas and Southwest Arkansas. It includes staffing, training, and community outreach.