Beyond the diagnosis: A deep dive into the end stage liver disease experience from the patient perspective

Beyond the diagnosis: A deep dive into the end stage liver disease experience from the patient perspective
American Journal of Hospice and Palliative Medicine; Sheza Malik, MD, Venkat Arutla, MD, Tariq Alamin, MD, Fatima Warraich, MD, Tausif A. Syed, MD, Mahesh Nepal, MD, Muhammad Farhan Ashraf, MD, and Karin J. Dunnigan, MD; 5/24
The study identified six primary themes: the significance of communication style in diagnosis delivery, the crucial role of family and social support, varied understanding and preferences for palliative care, diverse attitudes towards advanced care planning, preferences for coordinated healthcare experiences, and the emotional and psychological impact of ESLD. ... Our study underscores the complexity of ESLD patient care beyond medical treatment, highlighting the importance of clear communication, empathetic care, and the integration of family and palliative care services.