Literature Review

All posts tagged with “Research News | Journal Article.”



Distress screening and pediatric palliative care referral: A retrospective case-control study in supportive cancer care delivery

10/24/26 at 03:40 AM

Distress screening and pediatric palliative care referral: A retrospective case-control study in supportive cancer care deliveryJournal of Palliative Medicine; by Jonathan Ebelhar, Katherine Yeager, Jordan Gilleland-Marchak, Dio Kavalieratos, Zhulin He, Rebecca Williamson Lewis, Katharine E Brock; 9/26Pediatric palliative care (PPC) reduces distressing symptoms and improves quality of life for children with cancer and their caregivers. This study assesses whether patient and caregiver distress is associated with PPC referral. Conclusion: Patients reporting high distress had higher odds of PPC referral. Caregiver DT [distress thermometer] scores were not associated with PPC referral. High patient distress scores could serve as a screening criterion for PPC referral.

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Urban and rural hospital closures in Georgia, 2022-2024

10/24/26 at 03:35 AM

Urban and rural hospital closures in Georgia, 2022-2024JAMA Network Open; by Sara D. Turbow, Kajal Patel, Young-Rock Hong, Jennifer Lom, Mohammed K. Ali; 9/26Hospital closures are a growing concern with a marked increase in both urban and rural hospital closures seen in recent years. These closures, often due to financial strain, decline in patient volumes, and inequities in health care funding, can result in loss of access to critical medical services. The purpose of this study was to examine postclosure changes in discharge volume, charges, and length of stay at hospitals near urban vs rural hospital closures in the state of Georgia. Urban hospital closures are an emerging area that will only become more relevant as policy changes are expected to lead to more urban closures in the coming years.

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Academic medical centers implementing new Medical Aid in Dying (MAiD) laws: Challenges and solutions

10/24/26 at 03:30 AM

Academic medical centers implementing new Medical Aid in Dying (MAiD) laws: Challenges and solutionsAcademic Medicine; Robert Klitzman; 9/26Institutions must decide what processes to establish if patients inquire about MAiD, which specific clinicians within an institution should evaluate patients for eligibility and capacity, and prescribe MAiD medications, how to communicate about the new law with patients and local communities, how to educate medical and other students and staff appropriately, and how to make these decisions ...  MAiD ...  use has been increasing and attitudes changing, and the contexts of different states and their relevant laws vary considerably. This paper provides suggestions for how institutions should address these challenges—by establishing as early as possible a multidisciplinary working group, including providers (e.g., from palliative care, psychiatry, nursing and social work), compliance, other administrative, legal, and ethics stakeholders. Institutions should also provide and organize structured “debriefs” after initial cases (to examine what went well or not) and/or periodic case conferences among clinicians performing MAiD, and mentorship in providing and prescribing MAiD, offering support, in part due to moral distress and other concerns that can emerge.

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Current challenges and future innovation in rural heart failure care: A qualitative analysis

10/24/26 at 03:25 AM

Current challenges and future innovation in rural heart failure care: A qualitative analysisJournal of Cardiovascular Nursing; by Alexander A. Walkon, Shoshana H. Bardach, Aricca D. Van Citters, Tamar Mosulishvili, Samuel L. Youkilis, Amanda N. Perry, Megan M. Holthoff, Olawale O. Akinola, Amelia M. Cullinan, Melissa Borrows, Katharine A. Manning; 9/26Individuals living with heart failure experience challenges managing frequent hospital admissions and life-altering symptoms, including dyspnea, fatigue, and depression. These challenges are exacerbated by the unique obstacles associated with receiving healthcare in a rural community. Their care partners often do not receive sufficient support to care for someone with heart failure and experience fatigue, social isolation, and anxiety. Interviewees reported challenges related to symptom and care partner burden, fragmented healthcare communication, limited institutional support, and an unclear role for palliative care. Interviewees suggested that integrating personalized care strategies, improving communication and coordination, and expanding specialized support may help address these challenges.

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Biologic personhood in advanced dementia: An integrative review to guide ethical and evidence-based care in long-term care settings

10/24/26 at 03:20 AM

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Surrogate decision-making for older adults with and without dementia

10/24/26 at 03:15 AM

Surrogate decision-making for older adults with and without dementiaJAMA Network Open; by Lauren Hersch Nicholas, Scott D. Halpern, Kenneth M. Langa, Mario Macis; 10/7/26In this survey study of 5965 adults, fewer respondents endorsed life-sustaining treatments (LSTs) when a hypothetical patient had dementia (22% vs 40%). LSTs were more likely to be recommended when the respondent preferred them for their own care, when patient advance directives requested them, and when physicians recommended them. The findings suggest that surrogates’ own values and assumptions about quality of life with dementia, along with documented patient wishes and clinical guidance, may contribute to their recommendations. These findings highlight the importance of preparing patients and surrogates for care decisions through explicit discussions of goals of care and decision-making roles.

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Dementia and end-of-life shared decision-making among older US adults

10/24/26 at 03:10 AM

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Closing the hospice gap: the value of home-based medical care

10/24/26 at 03:05 AM

Closing the hospice gap: the value of home-based medical care Health Affairs Scholar; by Katherine Ornstein, Bruce Leff, Maggie Salinger, Jennifer M Reckrey, Bian Liu, Zainab Toteh Osakwe, Martha Abshire Saylor, Arushi Arora, Melissa Aldridge, Krista Harrison, Abraham A Brody, Christine S Ritchie; 10/26Home-based medical care (HBMC), longitudinal medical care provided in a patient's home led by physicians or advanced practice providers, addresses complex medical and social needs of seriously ill older adults, particularly those with dementia. We examined whether HBMC use is associated with hospice enrollment and length of stay and whether this varies by dementia status... HBMC users had greater odds of hospice use (odds ratio: 1.34; 95% CI: 1.33-1.35) compared with nonusers, regardless of dementia status. For hospice enrollees, HBMC use minimized both ultra-short (180 days) stays, with a stronger reduction in short stays for patients with dementia. As more older adults age in the community and hospice services expand to support patients with complex illnesses such as dementia, HBMC may offer a valuable strategy for effectively navigating prognosis uncertainty and the complexities of hospice eligibility requirements and enrollment.

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[Greece] Early clinical mediation in end-of-life disputes: A procedural justice analysis

10/24/26 at 03:05 AM

[Greece] Early clinical mediation in end-of-life disputes: A procedural justice analysisHealth Care Analysis; by Olympia Lioupi; 9/26Conflicts arise when surrogates request life-sustaining treatments that clinicians consider medically futile. This article proposes that early presumptive medical mediation with opt-out provisions should become the default initial offer for resolving such disputes. Mediation offers four procedural advantages: (a) protected and appropriately inclusive voice, (b) confidential caucus, (c) interest-based framing, and (d) outcome ownership. Embedding an early, structured offer of mediation in end-of-life policy may reduce escalation and strengthen the procedural legitimacy and acceptability of decision-making when voluntariness and appropriate clinical, ethical and legal safeguards are maintained. However, it cannot guarantee agreement, shorter ICU stays, reduced litigation, or substantively correct ethical outcomes.

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Pharmacogenomic-guided opioid prescribing in hospice: Reducing toxicity while maximizing symptom relief

10/24/26 at 03:00 AM

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[Canada] "Nope, I'm outta here!": Understanding how children with life-shortening and life-threatening illnesses experience clinical environments

10/24/26 at 03:00 AM

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Child-specific bioethics: Review of pediatric palliative care ethics guidelines

10/22/26 at 02:00 AM

Child-specific bioethics: Review of pediatric palliative care ethics guidelines Nursing Ethics; by Christina Lamb and Dimitra V. Pouliopoulou; 10/17/26 ... Care for dying children needs to be consistently grounded in child philosophies. Recommendation: Expanding access to pediatric palliative care requires ethics education research toward pediatric-specific pedagogies and bioethics frameworks to support consistent, ethically robust, holistic, and child-centered care to improve access across clinical, international and interdisciplinary settings. This review study provides a comprehensive ethical analysis of ethical frameworks guiding pediatric palliative care with a focus on end-of-life care. We identified a lack of pediatric specific bioethics originating in pediatric theory and research informing and supporting pediatric palliative care delivery.Guest Editor's Note by Judy Zeringue: This international scholarly research article from the Nursing Ethics Journal reveals the need for a pediatric-specific bioethics framework to guide the care of dying children. This framework should be focused specifically on the unique needs of pediatrics, not taken from the same framework applied to adults at the end of life. A focus on pediatric specific ethics education and research is needed to optimize and provide consistent support in pediatric palliative care including care at the end of life. This ethically robust approach must be promoted to help close the gap to guide the care of dying children everywhere.

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Clinical and treatment factors associated with lymphopenia after palliative radiation therapy in cancer patients

10/17/26 at 03:30 AM

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Traumatic bereavement among incarcerated women: Understanding and responding to complex grief after the death of a child

10/17/26 at 03:25 AM

Traumatic bereavement among incarcerated women: Understanding and responding to complex grief after the death of a childMDPI; by Catherine Gallagher, Nena P. Messina; 9/26 Incarcerated women face elevated suicide risk at the intersection of chronic loss, cumulative trauma, and constrained environments. In prison, the death of a child constitutes a profound and overlooked traumatic bereavement. This conceptual manuscript examines how carceral environments restrict privacy, autonomy, family contact, mourning rituals, and social and clinical support, thereby adversely reshaping grief. Restricted information, exclusion from rituals and relational validation, and punishment for grief-related behavior may obstruct narrative reconstruction, continuing bonds, and maternal identity reorganization. The model further considers how acute grief interacts with chronic stress, sustained threat responsivity, sleep disruption, and cumulative allostatic burden to intensify psychological and somatic distress without assuming a uniform neurobiological pathway.

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Post-diagnosis cannabis use and its association with health status and quality of life in cancer survivors

10/17/26 at 03:20 AM

Post-diagnosis cannabis use and its association with health status and quality of life in cancer survivorsSupportive Care in Cancer; by Nasim Kasiri, Corinne McDaniels-Davidson, Neal Doran, Sandip P. Patel, David R. Strong, Humberto Parada Jr; 9/26We included 652 respondents in this study, which were weighted to represent the cancer center patient population [58.6% non-Hispanic White; 58.5% female; 51.8% ≥ 65 years]. Most reported above average status for mental health (67.2%) and QoL [quality of life] (64.2%), and almost half (47.1%) reported above average physical health. Odds of post-diagnosis cannabis use were significantly higher among survivors with average or below average mental health ...  Conclusion: Cancer survivors reporting average or below average health status or QoL had higher odds of cannabis use. 

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Best case/worst case: A multisite randomized trial of scenario planning for patients with late-stage kidney disease

10/17/26 at 03:15 AM

Best case/worst case: A multisite randomized trial of scenario planning for patients with late-stage kidney diseaseJournal of American Geriatrics Society; by Lily N. Stalter, Bret M. Hanlon, Kyle J. Bushaw, Jenna Nitkowski, Anne Buffington, Katharine L. Cheung, Amy B. Zelenski, Kristine Kwekkeboom, Amar D. Bansal, Deidra Candice Crews, Holly M. Koncicki, Daniel Lam, Alvin H. Moss, Maya K. Rao, Dawn Felicity Wolfgram, Jeniann Yi, Carrie Brill, Tamara Isakova, Margaret L. Schwarze; 9/26Best Case/Worst Case (BC/WC) is a communication tool to support nephrologists and older adults with advanced chronic kidney disease with decisions about dialysis. We compared the effectiveness of training nephrologists to use BC/WC versus usual care on receipt of palliative care, quality of life (QOL), quality of communication, dialysis initiation, and death. While we hypothesized that improving prognostic awareness and communication would increase palliative care utilization, the challenges of connecting patients with life-limiting kidney disease to palliative care are multifaceted, well documented, and likely not surmountable with a communication intervention alone. Conclusion: Training nephrologists to use the BC/WC communication tool does not significantly affect receipt of palliative care or other measurable clinical outcomes.

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Palliative social workers' contributions to cultivating prognostic awareness: A qualitative study using the Prognostic Awareness Impact Scale framework

10/17/26 at 03:10 AM

Palliative social workers' contributions to cultivating prognostic awareness: A qualitative study using the Prognostic Awareness Impact Scale frameworkJournal of Palliative Medicine; Arden E O'Donnell, Juliet Jacobsen, Rennie Bimman, Sarah Stone, Taylor B Wensley, Judith G Gonyea; 9/26Prognostic awareness is central to informed, value-concordant care for patients with serious illness. Although often conceptualized as cognitive understanding of a time-based prognosis, emerging research highlights prognostic awareness as a multidimensional process involving cognitive understanding, emotional coping, and adaptive response. Objective: To describe the strategies hospital-based specialty-level palliative social workers use to cultivate prognostic awareness, using the Prognostic Awareness Impact Scale (PAIS) framework of cognitive understanding, emotional coping, and adaptive response. Conclusions: APHSW-C SWs play an important role in supporting patients' and families' understanding of the likely disease trajectory and prognosis, viewing their work as an ongoing, relational, and emotionally mediated process. Findings suggest that the PAIS may offer a useful framework for identifying profession-specific contributions to this process.

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Social work roles and ethics in U.S. medical aid in dying

10/17/26 at 03:05 AM

Social work roles and ethics in U.S. medical aid in dying Health & Social Work; Cynthia Helen Nover; 9/26This article fills a gap in the literature by discussing U.S. social work roles and MAiD [medical aid in dying] through an ethical decision-making framework and suggests social work roles, ethics, and risks of MAiD. Mandatory reporting expectations for U.S. social workers may cause confusion with MAiD, so it is important to distinguish between harm to self and MAiD (which is legal in 12 states and the District of Columbia) for hastening death. Relevant ethical expectations include self-determination, social justice, dignity and worth of a person, informed consent, and competence. Terms related to MAiD, including voluntary stopping of eating and drinking, and the current U.S. legal context for social work practice in this area are also described herein.

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[Italy] Staff confidence and barriers to complex clinical communication in nursing homes: A convergent mixed-methods study

10/17/26 at 03:05 AM

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[Turkey] “Life still has meaning for me!” Exploring sources of meaningful life among palliative care patients: A qualitative study

10/17/26 at 03:00 AM

[Turkey] “Life still has meaning for me!” Exploring sources of meaningful life among palliative care patients: A qualitative studySupportive Care in Cancer; by Hazal Sonbahar Ulu, Güleser Güney Yılmaz, Ayşenur Baysal Yiğit, Elif Merve Cesur, Şeyma Sarışen, Rıfat Bozkuş, Sedef Şahin; 9/26 Palliative care has increasingly shifted from a biomedical model toward holistic approaches that address physical, psychological, social, and spiritual needs. Meaning in life is a key determinant of quality of life in advanced illness, yet patient perspectives on how meaning is constructed within inpatient settings remain underexplored. This study aimed to explore how individuals receiving inpatient palliative care at a tertiary hospital in Turkey construct and sustain meaning in their daily lives. Meaning in palliative care appears to be sustained through social connectedness, spirituality, hope, participation in meaningful occupations, supportive environments, and continuity of identity. Integrating occupation-focused interventions, spiritual care, and environmental modifications within palliative care services may help preserve continuity, dignity, and emotional well-being.

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National trends in types of hospice disenrollment among older adults with dementia, 2012-2019

10/17/26 at 03:00 AM

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Changes in US life expectancy From 2019 to 2024

10/14/26 at 03:00 AM

Changes in US life expectancy From 2019 to 2024JAMA Internal Medicine; by Deborah Dowell, Fang Xu, Xinyi Jiang, Gery Guy, Nisha Nataraj, Jean Ko, Grant Baldwin; 10/12/26From 2019 to 2024, there was no overall increasing or decreasing trend in rates for total deaths, poisoning deaths, or leading causes of death, with the exceptions of chronic lower respiratory disease and cancer and COVID-19. Overall life expectancy at birth increased by 0.123 year from 2019 to 2024.

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Assumptions and principles for responsible AI development and use in grief and bereavement care

10/10/26 at 03:40 AM

Assumptions and principles for responsible AI development and use in grief and bereavement careDeath Studies; by Melissa Lunardini, Chris Hall, Larissa Hjorth, Phyllis Kosminsky, Val Massdorp, Andy Hau Yan Ho, International Work Group on Death, Dying and Bereavement (IWG); 9/26The rapid integration of artificial intelligence (AI) into grief and bereavement care represents a significant technological shift with therapeutic potential and ethical complexity. This paper establishes evidence-informed assumptions and principles to guide the responsible development and use of AI technologies in grief support, addressing the needs of bereaved individuals, families, communities, professionals, technology developers, and policymakers. We conclude that AI technologies can complement human-centered grief support through responsible development characterized by interdisciplinary collaboration, transparency, cultural sensitivity, and an unwavering commitment to human dignity and welfare over commercial interests.

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Barriers and facilitators to innovation: A qualitative study in a non-profit health care system

10/10/26 at 03:35 AM

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Sustained effects of auricular point acupressure on chemotherapy-induced neuropathy: A randomized controlled trial follow-up study

10/10/26 at 03:30 AM

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