Literature Review

All posts tagged with “Research News | Journal Article.”



Implementation of a serious illness conversation program in a health system: A retrospective observational study

07/11/26 at 03:40 AM

Implementation of a serious illness conversation program in a health system: A retrospective observational studyJournal of Palliative Medicine; by Glen Varns, Abbey Sidebottom, Katy Hentges, Sandra Castro-Pearson, Jan Richardson, Emily Downing; 6/26Serious illness conversation (SIC) is a structured conversation framework designed to improve shared decision making and promote goal-concordant care with patients anticipating end-of-life care decisions. Objective: Examine reach, timeliness, and quality of SIC implementation across a health system after implementation of a SIC Program (SICP) [and] examine factors associated with SIC completion for eligible patients. Factors associated with SIC included palliative care visits ... , a primary care provider in the system ... , and an inpatient admission with discharge to home care ... Patients with dementia ... were less likely to have SIC. Conclusion: Systemwide implementation of an SICP engaged [only] half of eligible patients; many of those had multiple documented conversations prior to death.

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The doctor will see you now--or will they? Theorizing AI’s impact on Black patients and providers in health care

07/11/26 at 03:35 AM

The doctor will see you now--or will they? Theorizing AI’s impact on Black patients and providers in health careSocial Currents; by Adia Harvey Wingfield, Tyrell Spencer; 6/26As far as recent innovation practices go, artificial intelligence (AI) represents one of the major disruptions reshaping various aspects of human life. Health care is perhaps one of the industries where AI stands to be most transformative, particularly as it is increasingly used to diagnose illnesses, assist in creating treatment plans, reduce human error, and offer routine patient services. Yet despite its rapid growth, AI technology still reflects human biases and perceptions, allowing it to replicate existing inequalities. These inequalities could take on particular significance given persistent occupational stratification and increasing racial diversity. In this paper, we theorize how the growing reliance on AI in the US health care system will affect Black care providers and patients.

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Impact of specialized pediatric palliative care on bereaved parents' mental and physical health

07/11/26 at 03:30 AM

Impact of specialized pediatric palliative care on bereaved parents' mental and physical healthJournal of Pain & Symptom Management; by Claudia Delgado-Corcoran, Huong D. Meeks, Sarah E. Wawrzynski, Barry P. Markovitz, Brandy Harman, Jasmine R. Masih, Kuan Li, Mark Harousseau, Dominic Moore, Jacob Wilkes, Stefanie G. Ames; 6/26Pediatric death can lead to long-term adverse effects on parents’ health. [In this study] of 776 deceased children linked to 773 mothers and 711 fathers, 36.1% received a SPPC [specialized pediatric palliative care] consultation prior to death. Higher rates of mental and physical health burden were observed in mothers than fathers across all time points. Lack of SPPC was associated with increased risks for new mental and physical health burden for mothers within 12 months after the child’s death ... Conclusions: Bereaved parents, especially mothers, experienced new mental and physical health burden up to 24 months after a child’s death.

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Early palliative care for people with primary malignant brain tumors: A systematic review

07/11/26 at 03:25 AM

Early palliative care for people with primary malignant brain tumors: A systematic reviewJournal of Palliative Medicine; by Jennifer C. Hall, Connor Barrett, Soren Christensen, Juliet Dalton, Samantha Kaplan, Christopher A. Jones, Margaret O. Johnson; 6/26In some populations with advanced cancers, early palliative care (ePC) has been shown to improve quality of life (QoL) and reduce aggressive interventions, but its role and timing in primary malignant brain tumors (PMBT) remains poorly defined. Definitions of ePC varied with “early” defined relative to diagnosis, treatment milestones, or death. Across studies, a minority of patients received PC (15%–40%), with most referrals occurring late in the disease course. Earlier PC was associated with reduced aggressiveness of EoL care, decreased health care utilization, and, in some cases, longer survival. Evidence suggests ePC for PMBT is infrequently implemented yet feasible and may reduce aggressive EoL care and improve outcomes. 

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Palliative care for older adults with hip fracture: An explanatory sequential mixed-methods study

07/11/26 at 03:20 AM

Palliative care for older adults with hip fracture: An explanatory sequential mixed-methods studyJournal of Pain & Symptom Management; by Daniel I Hoffman, Sydney Moore, Amanda J Reich, Christina Sheu, Mengyuan Ruan, Masami Tabata-Kelly, Kate Sciacca, Tamryn F Gray, Daniel Dohan, Charlotta Lindvall, Zara Cooper; 6/26After hip fracture, older adults experience burdensome treatments and high mortality; they may therefore benefit from palliative care (PC). Among 1,433 hip fracture admissions, GOCC [goals of care conversations], hospice discussions, and specialty PC were documented in view on their role in GOCC. Conclusion: Limited standardization, role uncertainty, and cultural factors limited PC documentation and delivery, highlighting opportunities to strengthen PC integration in surgical care.

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Experiences of end-of-life care among incarcerated individuals: A qualitative interpretative meta-analysis

07/11/26 at 03:15 AM

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Outcomes for hospitalized patients with comfort measures only orders

07/11/26 at 03:10 AM

Outcomes for hospitalized patients with comfort measures only ordersJournal of Palliative Medicine; by Gina Piscitello, Donna Durant, Tami Minnier, Marika Haranis, Robert M Arnold, Jane Schell; 6/26Clinicians place comfort measures only (CMO) orders for hospitalized patients at the end-of-life when a decision has been made to focus on patient comfort and allow the natural dying process to occur. Our primary aim was to assess the associations of specialty palliative consults (SPC) or documented goals of care conversations (GOCC) with in-hospital mortality among patients with CMO orders. Of 6,789 hospitalized patients with CMO orders ... seventy-three percent died in-hospital, and 22% were discharged with hospice. SPC placed anytime during hospital admission were associated with lower in-hospital mortality ... and higher discharge with hospice ... In contrast, documented GOCC anytime during admission were associated with higher in-hospital mortality ...  and lower discharge with hospice ...

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Survival variation and predictors of length of stay in US hospice patients

07/11/26 at 03:05 AM

Survival variation and predictors of length of stay in US hospice patientsInternational Perspectives and Future Directions for Practice, Research, and Policy; by Ian Duncan, Xiyue Liao, Terri Maxwell; 6/26End-of-life (EOL) patients in the US Medicare program represent a large and growing population, as well as a disproportionate share of Medicare’s costs. Survival of patients in hospice is, however, highly variable, implying an opportunity for improved management by enhancing the prediction of survival. Actuaries, health economists, policy analysts, and health services researchers have studied expenditures at the EOL for Medicare decedents for many years, finding that survival at EOL is highly variable. We discuss the utilization of hospice benefits for patients at the EOL in the United States.

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[Hong Kong SAR] Digital self-management of symptoms and quality of life for patients with advanced cancer-A randomized clinical trial

07/11/26 at 03:05 AM

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[Italy] The Integrated Palliative Outcome Scale (IPOS): A tool for assessing needs and shaping individualized care plans in hospice settings

07/11/26 at 03:00 AM

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An end-of-life care approach defining a new standard of care

07/11/26 at 03:00 AM

An end-of-life care approach defining a new standard of careJAMDA; by David N. Hoffman; 6/26The Institute for Healthcare Improvement (IHI) Leadership Alliance established an End-of-Life Care/Ending-Life Care Accelerator to define a continuum of care for patients as they progress from curative care, to palliative care, to hospice care, to final care planning, including ending life care interventions such as Medical Aid in Dying (MAiD), Voluntarily stopping eating and drinking (VSED), and palliative sedation. This accelerator defined as its goal the task of breaking down barriers between care providers which has been illuminated by research recently conducted by the Completed Life Initiative (CLI). CLI’s research efforts in this area started with an ongoing examination of nationwide hospice organization policies to provide referral for active intervention at the end of life. That effort was refocused on the widespread noncompliance of California and Washington state hospice organizations with a state law requirement to post on the organizations website a list of interventions made available by the hospice organization.

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Advance Care Planning documentation completeness and end-of-life care: trends and associations using HRS 2010-2022 data

07/02/26 at 03:00 AM

Advance Care Planning documentation completeness and end-of-life care: trends and associations using HRS 2010-2022 data American Journal of Hospice and Palliative Medicine; by Zhigang Xie, PhD, MPA, Jiaming Liang, PhD, and Molly Jacobs, PhD, MS; 6/16/26 Objectives: This study examined additive associations between comprehensive advance care planning (ACP) documentation and end-of-life care (EOL) outcomes among older adults in the United States. ...Results: About 42.7% decedents had two documents and 28.9% had none, documentation increased substantially around 2014. ... Associations were stronger among decedents with expected death and attenuated among those with unexpected death.

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What do UK hospice websites communicate about the meaning of palliative care?

07/01/26 at 03:00 AM

What do UK hospice websites communicate about the meaning of palliative care? BMJ Supportive & Palliative Care; by Lucy Williams, Charlotte Browne, Paul Perkins, and Vanessa Taylor; 6/30/26Objectives: Hospice websites are an important source of information for the public. This study examined whether information communicated about palliative care aligned with WHO and the International Association for Hospice and Palliative Care (IAHPC) definitions of palliative care. ... Conclusions: Key information was often missing, and opportunities to educate the public and address misconceptions are being lost. Hospice websites need reviewing and content updating to help improve public understanding of palliative care. Editor's Note: What does your website communicate? What information does it omit, and why? In a time of heightened scrutiny and rampant fraud, examine your website for strengths, gaps, and opportunities to educate and support the public with integrity, authenticity, and empowered choice.

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HMN 2026: How AI in nursing raises questions about safety, ethics, and human care

06/30/26 at 03:00 AM

HMN 2026: How AI in nursing raises questions about safety, ethics, and human care Health Medicine Network; by University of Pennsylvania, George Demiris et al; 6/26/26 As artificial intelligence systems spread through hospitals and clinics, a growing debate is emerging over whether the technology will ultimately strengthen nursing care—or gradually replace parts of it. That tension is at the center of a new University of Pennsylvania School of Nursing report, “Artificial Intelligence and Nursing Science: Opportunities, Challenges, Implications, and Guidelines,” published in Nursing Outlook. The paper warns that while AI could reduce paperwork and improve patient monitoring, it also raises concerns about bias, accountability, patient privacy and whether hospitals may view some nursing functions as replaceable.

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Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementation

06/27/26 at 03:40 AM

Clinical Artificial Intelligence as a novice nurse: Leadership responsibilities for safe implementationNurse Leader; by Asiah Ruffin; 5/26Clinical artificial intelligence (AI) technologies are increasingly integrated into health care environments, influencing clinical workflows, documentation, decision-making, and patient communication. While AI is often introduced as a technical innovation, its implementation presents significant leadership responsibilities related to safety, workforce readiness, and organizational oversight. This commentary proposes an analogy that conceptualizes clinical AI systems as novice nurses—entities that require structured orientation, supervision, feedback, and ongoing development rather than autonomous trust. Using this analogy, the article examines risks associated with premature reliance on AI, including workflow disruption, performance variability over time, and limited user understanding of system capabilities and limitations. The commentary also outlines practical leadership considerations, including investing in workforce education, collaborating with human factors experts, establishing governance processes, and engaging in policy advocacy.

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Epidural and intrathecal catheter use at the end of life for cancer pain

06/27/26 at 03:35 AM

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Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online content

06/27/26 at 03:30 AM

Palliative care or hospice? Flipping the classroom for 1st year pre-clinical medical students with interactive online contentAmerican Journal of Hospice & Palliative Care; by Maxwell Vergo, Charles Wang, Lawrence Myers; 5/26Although palliative care competencies appear on USMLE [United States Medical Licensing Examination] examinations, pre-clinical curricula devote minimal time to end-of-life education. We created a 30-minute interactive online module in Articulate 360™ for first year students covering palliative care definitions, eligibility criteria, and care settings. In-class time was restructured to small group case discussions distinguishing primary palliative care, specialty palliative care, and hospice. Correct responses on a palliative care examination question improved from 57% (2020-2021, virtual lecture) to 66%, 67%, and 80% in subsequent years with the flipped intervention. The pre-work engaged students in learning (79-89% agreement), enabled focus on advanced topics during class (73-77% agreement), and was described as interactive and helpful in teacher evaluations.

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Palliative care involvement for pediatric hematopoietic cell transplant patients can enhance comfort-focused care at end of life without shortening survival duration

06/27/26 at 03:25 AM

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Pediatric home-based hospice and palliative care: A scoping review

06/27/26 at 03:20 AM

Pediatric home-based hospice and palliative care: A scoping reviewBMC Palliative Care; by Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert; 5/26Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. Common themes emerged [in this review] including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes.

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Difficulties in honoring patient requests for hospice when relying on surrogate decision-makers: A case study

06/27/26 at 03:15 AM

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Comparison of end-of-life care utilization among patients with and without documented goals of care

06/27/26 at 03:10 AM

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“Nobody told us”: Inequities in end-of-life dementia care

06/27/26 at 03:05 AM

“Nobody told us”: Inequities in end-of-life dementia careJournal of Pain & Symptom Management; by Krista L. Harrison, Lingsheng Li, Jasmine Santoyo-Olsson, Niousha Moini, Lauren J. Hunt, Rebecca L. Sudore, Alex Smith; 6/26In the United States, one in three older adults dies with or from dementia. Despite increasing hospice enrollment, minoritized racial, ethnic, and LGBTQ communities face persistent inequities in access to timely, high-quality end-of-life care. We recruited bereaved caregivers of decedents with dementia from communities that experience health disparities. Just over half of the participants rated end-of-life care middling-to-bad. Reasons cited for receiving poorer care than others were age (40%), race, ethnicity, or nationality (36%), disability (20%), and weight (8%). End-of-life communication challenges reported by participants were often based in systemic racism and structural oppression, including: problems accessing language-concordant education and clinicians, missed opportunities for anticipatory guidance due to cultural biases or lack of access to healthcare, difficulty finding clinicians skilled in sensitive and tailored communication, inconsistent hospice admission criteria, and understaffed hospices.

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[Singapore] “Triggering the palliative intent”?: A qualitative implementation evaluation of a prognostication model for advanced dementia (PRO-MADE) in a geriatric tertiary care setting for the integration of early palliative care

06/27/26 at 03:00 AM

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Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive study

06/27/26 at 03:00 AM

Nurse perceptions of end-of-life care quality across long-term care, home, and social model hospice home settings: A qualitative descriptive studyAmerican Journal of Hospice & Palliative Care; by Helen Mavis Farrar, Kelley Easterling Scott; 5/26This qualitative descriptive study explored nursing perspectives on end-of-life care quality across 3 distinct community settings: long-term care facilities, patients' homes, and social model hospice homes. Nurses provide most of the direct end-of-life care in these settings, yet their perspectives remain understudied. Semi-structured interviews were conducted with 11 licensed nurses who had provided end-of-life care across all 3 settings. Analysis revealed 4 major themes: (1) setting-based care disparities, (2) nurses as educators and translators, (3) mediation of caregiver burden across settings, and (4) relationship-based care as foundational for peaceful deaths. Care setting profoundly influenced these nurses' ability to deliver quality end-of-life care. 

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Referral and utilization patterns for home-based palliative care services among older adults

06/26/26 at 03:00 AM

Referral and utilization patterns for home-based palliative care services among older adults BMC Palliative Care; by Joohyun Chung, Aaron Langlois, TylaAnn Burger, David L Chin; 6/11/26 Background: Home-based palliative care (HPC) improves quality of life for individuals with serious illness but remains underutilized in the United States, with persistent disparities in access. HPC is also frequently misconceived as appropriate only at the end of life. ... Results: ... Patients who received HPC were more likely to be older, female, insured through Medicare Part B, and referred from larger hospitals. Conclusion: These findings underscore ongoing structural disparities in access to home-based palliative care and highlight the need for targeted strategies to improve equitable access to HPC services.

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