Literature Review

All posts tagged with “Research News | Journal Article.”



Sorrow, unpermitted: A narrative review of grief in chronic liver disease

09/05/26 at 03:35 AM

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Health and health care access among Afghan refugee women in the United States

09/05/26 at 03:30 AM

Health and health care access among Afghan refugee women in the United StatesJAMA Network Open; by Nazineen Kandahari, Nilufar N. Kayhani, Fareha Moulana Zada, Zahra Kayhani, Zarin Noor, Nicholas Nelson, Susan L. Ivey; 8/26Afghans are one of the world’s largest refugee populations. Afghan women face compounded health risks due to sociocultural restrictions, low literacy, forced displacement, and limited health care access, yet little is known about their experiences with health care after resettlement in the US. In this qualitative study of 23 Afghan women residing in the US who shared their experiences accessing health care, key barriers included sociocultural constraints on women’s autonomy, inadequate interpretation services, culturally insensitive health care, intergenerational stigma surrounding sexual and reproductive health knowledge and care, and mental health challenges. Structural barriers produced mistrust in and miscommunication with clinicians and led to use of home remedies. These findings suggest a need for health care interventions that are sensitive to sociocultural contexts and immigration histories to address the needs of Afghan refugee women in the US.

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When end-of-life becomes the beginning of new life: Application of the Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU to the setting of donation after circulatory death

09/05/26 at 03:25 AM

When end-of-life becomes the beginning of new life: Application of the Society of Critical Care Medicine Clinical Practice Guidelines on Adult End-of-Life Care in the ICU to the setting of donation after circulatory deathCritical Care Explorations; by Ian M. Oppenheim, Rita N. Bakhru, Carolina B. Maciel, Katharina M. Busl, on behalf of the Donor Care Unit Network for Optimizing Recovery (DONOR) GroupThe recently published Society of Critical Care Medicine Guidelines on Adult End-of-Life Care in the ICU provide a detailed and well-thought-out approach to a vital component of critical care, although they explicitly refrain from discussing how they may apply to organ donation. As representatives of the Donor Care Unit Network for Optimizing Recovery (DONOR), a group of intensivists experienced in managing donation after circulatory death (DCD), we wish to endorse equal delivery of high-quality end-of-life (EOL) care for organ donors. Although some logistical differences must be addressed, the EOL recommendations outlined in the Guidelines are still applicable to patients being evaluated for or undergoing DCD. Recent accounts of unacceptable patient care in the setting of DCD highlight a critical threat to patient welfare and public trust. Our mandate is clear: implement and audit protocols that guarantee dignity and symptom control while demonstrating that DCD remains wholly consistent with a compassionate, honorable, and fulfilling EOL.

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The prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort study

09/05/26 at 03:20 AM

The prevalence of Medical Power of Attorney documentation in a large healthcare system: A retrospective cohort studyJournal of Palliative Care; by Angeli Sirilan, Alexandria Ellershaw, Tony Gaidici, Jacob Lahti, Michael Ruta, Richard Elias, Sandeep Pagali, Kristina Balangue, Sumit Agarwal, Nimit Agarwal; 8/26Designation of a Medical Power of Attorney (MPOA) is a key component of advance care planning (ACP) that ensures patient preferences are honored when decision-making capacity is not present. This study aimed to quantify MPOA documentation rates [in adult hospitalized patients] and identify demographic and clinical factors associated with documentation presence. Male sex, White race, older age (67.0 vs 54.3 years), and unmarried status were associated with a higher MPOA documentation rate ...  Dementia ...  and malignancy ...  were associated with higher odds, while discharge against medical advice was associated with lower odds ...  of MPOA documentation. Conclusions: MPOA documentation rates were low, highlighting missed opportunities to identify alternate decision makers when a patient lacks capacity.

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Using case studies to bridge the undergraduate nursing education gap in palliative and hospice care

09/05/26 at 03:15 AM

Using case studies to bridge the undergraduate nursing education gap in palliative and hospice careJournal of Hospice & Palliative Nursing; by Katherine Adams, Lisa Cross; 8/26Undergraduate nursing students struggle with understanding pharmacological pain management, especially in palliative care. New nurses indicate needing more experience with pain management and ethical dilemmas surrounding pain management. This project aimed to develop real-life case scenarios aligned with palliative competencies for use in undergraduate courses. Traditionally, palliative and hospice content is delivered with community courses, possibly limiting student competency across settings. These case studies present an opportunity for formative student assessment in pharmacological and other palliative management over 4 settings. Facilitation requires reflective techniques, and nurse faculty may need support in guiding discussions.

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Perspectives on palliative care among patients with pancreatic cancer: A pilot study

09/05/26 at 03:10 AM

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Professional value of the advanced palliative and hospice social work certification: Findings from a national survey of palliative social workers

09/05/26 at 03:05 AM

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[Portugal] International differences in the technical qualities of place of death classifications and data: A survey of researchers' perspectives

09/05/26 at 03:05 AM

[Portugal] International differences in the technical qualities of place of death classifications and data: A survey of researchers' perspectivesPalliative Medicine; by Mayra Delalibera, Sílvia Lopes, Inês Dias da Silva, Barbara Gomes; 9/26Place of death is a key population-level indicator for palliative care and health services planning. However, substantial international variation in how it is recorded limits cross-country comparisons and health system evaluations. This is the first study to assess place of death classifications and data from researchers' perspectives. Findings highlight critical limitations in current classification systems and provide guidance for developing an international classification aligned with UN and WHO recommendations. This will enable more meaningful cross-country comparisons and strengthen evidence to inform palliative care and health services planning worldwide.

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[UK] “Wonderful, wonderful”: Functions of praise towards people living with dementia in the acute hospital environment

09/05/26 at 03:00 AM

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The Medicare Hospice Benefit's origins: Lessons on end-of-life caregiving

09/05/26 at 03:00 AM

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Nearly half of veterans with stage IV cancer die without hospice: a national VHA analysis of 45,397 decedents

09/04/26 at 03:00 AM

Nearly half of veterans with stage IV cancer die without hospice: a national VHA analysis of 45,397 decedents Medscape; by Sasmith Menakuru, MD; Alexander Quattlebaum, MD; Chance Bloomer, MD; Lara Khoury, MD; Abdulsabur Sanni, MD; Michael Goodman, MD; 9/3/26  Results: Of 45,937 veterans, 20,338 ... had no hospice admission or consultation.  ... Conclusions: Hospice access for veterans with Stage IV cancer deteriorated during COVID-19 and shows no meaningful recovery; ... These findings identify Stage IV hospice access as an underrecognized national VHA quality priority warranting Stage IV—triggered automated palliative care consultation, embedded outpatient palliative care in oncology clinics, standardized referral protocols at documented progression, and veteran/family-facing hospice education. This analysis establishes a statistically rigorous national baseline for benchmarking interventions–and a call to action for the VHA oncology community to restore hospice as a core element of veteran-centered end-of-life care.

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Evasiveness in everyday hospital palliative care practice: a focused ethnography

09/04/26 at 03:00 AM

Evasiveness in everyday hospital palliative care practice: a focused ethnography Journal of Clinical Nursing; by Carolien van Leussen, Evelien Kuip, Renske Kruizinga, Els van Wijngaarden; 9/2/26 Conclusion: This study shows how evasiveness in hospital-based palliative care is produced and sustained through biomedical routines, organizational pressures and professional and personal orientations. These factors make it difficult to realize the holistic ideals of palliative care in everyday practice. As a result, patients' fears, uncertainties and end-of-life wishes often remain insufficiently explored, whereas organizational routines shape what is considered appropriate and possible in clinical interactions.

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Patient and caregiver perspectives on communication quality in tele-palliative care

09/02/26 at 03:00 AM

Patient and caregiver perspectives on communication quality in tele-palliative care Journal of Palliative Medicine; by Julia I. Bandini, PhD, Elaine Li, BA, Dio Kavalieratos, PhD, FAAHPM, Natalie C. Ernecoff, PhD, Kimberly Curseen, MD, and Jordan Harrison, PhD; 8/27/26 Objective: To qualitatively explore patient and family caregiver experiences with telehealth and in-person visits for outpatient palliative care, including preferences related to mode of care and any perceived differences in communication quality by mode in a post-pandemic context. Results: Three themes emerged: (1) participants weighed convenience, symptom burden, and visit reason in choosing mode of care; (2) opinions differed on the authenticity of communication via telehealth; and (3) comfort and privacy shaped communication quality. Some patients and family caregivers perceived communication via telehealth as comparable to in-person care, while others felt in-person visits allowed for more authentic interactions. Many found that the convenience of telehealth outweighed any perceived differences in communication quality. In addition, some patients noted that without the option for telehealth, the benefits of an in-person palliative care visit may not have outweighed the travel burden.

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Concurrent palliative care and systemic treatment among young adults with advanced cancer

08/29/26 at 03:40 AM

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When less is more: Palliative decision-making in a bedbound patient with advanced illness and bilateral pleural effusions

08/29/26 at 03:35 AM

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Acupuncture vs massage for insomnia and pain in advanced cancer: Exploratory RCT

08/29/26 at 03:30 AM

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Insurance type and quality of end-of-life care in adults < 65 years with hematologic malignancies

08/29/26 at 03:25 AM

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Medicaid expansion and mortality among formerly incarcerated individuals

08/29/26 at 03:20 AM

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Advanced care planning/Five wishes education through the lens of Caring Science

08/29/26 at 03:15 AM

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Can I get a witness? The ethical dimensions of family presence in patient suffering

08/29/26 at 03:05 AM

Can I get a witness? The ethical dimensions of family presence in patient sufferingThe Hastings Center Report: by Jennifer Blumenthal-Barby, Trevor M Bibler, Holland Kaplan, Adam Omelianchuk, Joanna Smolenski; July-August 2026For patients who are suffering, the bedside presence of a family member can provide comfort, and many people hold that there is moral value in being present with a conscious, suffering patient. Yet what is the moral significance of the absence of family members when a patient is minimally conscious or unconscious and not aware of their absence? Clinicians are often troubled when family members and surrogate decision-makers who are able to spend a significant amount of time at an unconscious, seriously ill patient's bedside do not do so. Clinicians feel frustrated that they must bear the burden of witnessing the patient's actual or perceived suffering while the family escapes this burden and therefore appears to fail to uphold a duty to the patient. Is it morally defensible to request or require family members to be present with an unresponsive patient to bear witness to their actual or perceived suffering?

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[Indonesia] Mindfulness-based spiritual interventions for patients with advanced cancer receiving palliative care: A systematic review of randomized controlled trials

08/29/26 at 03:05 AM

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[UK] Clinical effectiveness of internet-delivered self-help Aacceptance and Commitment Therapy for family carers of people with dementia (iACT4CARERS): A multicentre, parallel, randomised controlled trial

08/29/26 at 03:00 AM

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An exploration of gratitude on well-being in hospice and palliative care familial caregivers

08/29/26 at 03:00 AM

An exploration of gratitude on well-being in hospice and palliative care familial caregiversJournal of Palliative Medicine; by Kathryn Levy, Pei C Grant, Hannah Rachiele, Gina Schuster, Jonathan L Rossi, Sheila Conboy, Andrew Gasper, Christopher W Kerr; 7/26Familial caregivers (FCGs) play a critical role in health care by providing unpaid care to loved ones with serious illness. Although caregiving is often associated with emotional and physical burden, increasing attention has been directed toward potential sources of meaning and psychological growth, including gratitude. Higher levels of gratitude were associated with greater flourishing and recognition of positive caregiving experiences and were inversely associated with caregiver strain among FCGs of hospice and palliative care patients. Future longitudinal and intervention-based research is needed to determine whether gratitude-focused approaches can improve resilience, psychological well-being, and relational connection in end-of-life caregiving.

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Nonreporting of race and ethnicity in medical research harms us all

08/27/26 at 03:00 AM

Nonreporting of race and ethnicity in medical research harms us all JAMA Internal Medicine | Editorial | Health Equity; by Sharon K. Inouye, MD, MPH, Jerard Kneifati-Hayek, MD, MS, Annette Flanagin, RN, MA, Kirsten Bibbins-Domingo, PhD, MD, MAS; Raegan W. Durant, MD, MPH; 8/24/26 At JAMA Internal Medicine, we have become increasingly aware that some US researchers are unable to report on race or ethnicity as demographic variables to describe their sample or to conduct stratified analyses by these variables. In some cases, we have been informed that based on 3 recent US federal executive orders, the stewards of federal databases, such as those responsible for distributing data from the Centers for Medicaid and Medicare Services (CMS), are unable to release any race or ethnicity data for research purposes. The restrictions may be particularly prohibitive when study investigators are US federal employees. We have been informed of similar concerns occurring at other biomedical journals. Editor's Note: This theme recurs throughout our American history. Stark examples repeatedly emerged when I was researching and writing my recent e-book: A History of Care: 250 Years of Need, Service and Hope.

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Spirituality and religiosity in end-of-life decision-making in intensive care units: a systematic review of preferences, ethical framing, and meaning-making

08/27/26 at 03:00 AM

Spirituality and religiosity in end-of-life decision-making in intensive care units: a systematic review of preferences, ethical framing, and meaning-making Cureus; by Dimitrios G. Apostolakis, Nikiforos V. Angelopoulos, Spiros Georgakis, Fotios Tatsis, Foteini Veroniki, Konstantinos Stamatis, Georgios Papathanakos, Mary Gouva, Vasilios Koulouras; 8/25/26 End-of-life decision-making in intensive care units (ICUs) is a complex and ethically challenging process shaped not only by clinical factors but also by patients' values, cultural contexts, and spiritual or religious beliefs. ...  [Spirituality] demonstrated a multidimensional role, facilitating acceptance of death, promoting support for palliative care in some contexts, and contributing to meaning-making during the end-of-life process. Cultural and contextual factors moderated these relationships, and the provision of spiritual care by healthcare professionals was associated with less aggressive end-of-life care. ... Integrating spiritual assessment and culturally sensitive spiritual care into routine clinical practice may enhance shared decision-making and improve alignment between treatment decisions and patients' values, preferences, and goals of care.

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