A protocol for the inclusion of minoritized persons in Alzheimer Disease research from the ADNI3 Diversity Taskforce

A protocol for the inclusion of minoritized persons in Alzheimer Disease research from the ADNI3 Diversity Taskforce
JAMA Open Network; by Ozioma C Okonkwo, Monica Rivera Mindt, Miriam T Ashford, Catherine Conti, Joe Strong, Rema Raman, Michael C Donohue, Rachel L Nosheny, Derek Flenniken, Melanie J Miller, Adam Diaz, Annabelle M Soto, Beau M Ances, Maryam R Beigi, P Murali Doraiswamy, Ranjan Duara, Martin R Farlow, Hillel T Grossman, Jacobo E Mintzer, Christopher Reist, Emily J Rogalski, Marwan N Sabbagh, Stephen Salloway, Lon S Schneider, Raj C Shah, Ronald C Petersen, Paul S Aisen, Michael W Weiner, Alzheimer’s Disease Neuroimaging Initiative; 8/24
Black or African American (hereinafter, Black) and Hispanic or Latino/a/x (hereinafter, Latinx) adults are disproportionally affected by Alzheimer disease, but most research studies do not enroll adequate numbers of both of these populations. The Alzheimer's Disease Neuroimaging Initiative-3 (ADNI3) launched a diversity taskforce to pilot a multipronged effort to increase the study inclusion of Black and Latinx older adults. In this cross-sectional study of pilot inclusion efforts, a culturally informed, community-engaged approach increased the inclusion of Black and Latinx participants in an Alzheimer disease cohort study.