Literature Review
Psychological health in Palliative Care: Thematic analysis of a psychiatrist's and an art therapist's clinical reflexive journals
06/22/24 at 03:50 AMPsychological health in Palliative Care: Thematic analysis of a psychiatrist's and an art therapist's clinical reflexive journals Palliative Medicine; by Wen Phei Lim, Roxanne Jia Yu Chew, Clare O'Callaghan; 6/19/24 online ahead of print Aim: This study aims to describe how patients receiving palliative care experience psychological health, explore the meaning of a palliative care clinician's work and contribute to the understanding of psychological health in palliative care through the reflexive and visual journals of clinicians.
Hospital nurse staffing variation and Covid-19 deaths: A cross-sectional study
06/22/24 at 03:45 AMHospital nurse staffing variation and Covid-19 deaths: A cross-sectional studyInternational Journal of Nursing Studies; by Karen B. Lasater, Matthew D. McHugh, Linda H. Aiken; 6/24During the Covid-19 pandemic, Covid-19 mortality varied depending on the hospital where patients were admitted, but it is unknown what aspects of hospitals were important for mitigating preventable deaths. Patients with Covid-19 admitted to hospitals with adequate numbers of RNs caring for patients, a workforce rich in BSN-qualified RNs, and high-quality nurse work environments (both prior to and during the Covid-19 pandemic) were more likely to survive the hospitalization. Bolstering these hospital nursing resources during ordinary times is necessary to ensure better patient outcomes and emergency-preparedness of hospitals for future public health emergencies.Publisher's Note: Also see related KFF Health News article Chronically Understaffed US Hospitals Saw More Covid Deaths, Data Indicate.
Exploring Experiences of Pain Management Among Family Caregivers of Community-Dwelling Older Adults With Dementia
06/22/24 at 03:40 AMExploring Experiences of Pain Management Among Family Caregivers of Community-Dwelling Older Adults With DementiaAmerican Journal of Hospice and Palliative Care; by Hui Zhao, Pamela A Kulbok, Ishan C Williams, Carol Manning, Jeongok G Logan, Rafael D Romo; 8/24Pain is often underreported and under-treated in older adults with dementia. The role of family caregivers (FCGs) in managing pain for their loved ones with dementia living in community has been significantly burdensome. ... Family caregivers follow their values to make decisions in pain management. Barriers existed for effective pain management. Adaptation and support from professional or formal caregivers greatly improved FCGs' perception of their competence in pain management. The finding underscores the need for further research and the development of interventions aimed at enhancing FCGs' perception of self-efficacy in this crucial aspect of caregiving.
Adapting the Serious Illness Conversation Guide for dementia care
06/22/24 at 03:35 AMAdapting the Serious Illness Conversation Guide for dementia careAmerican Journal of Hospice and Palliative Care; by Charlotte E Berry, Sophie H Montgomery, Robert Santulli, Amelia Cullinan; 8/24Advance care planning (ACP), a critical component of quality dementia care, is underutilized due to lack of clinician comfort and the challenging nature of ACP in this context. The Serious Illness Conversation Guide (SICG) is a well-validated clinician-facing tool, developed with patient and clinician input, to facilitate ACP. The aim of this project was to adapt the SICG for dementia for the first time to promote high-quality ACP.
Psychosocial distress among spouses of persons with dementia before and after their partner's death
06/22/24 at 03:30 AMPsychosocial distress among spouses of persons with dementia before and after their partner's deathJournal of the American Geriatrics Society; by Ashwin A Kotwal, Irena Cenzer, Lauren J Hunt, Claire Ankuda, Jacqueline M Torres, Alexander K Smith, Melissa Aldridge, Krista L Harrison; 6/24Results emphasize a need for clinical and policy approaches to expand support for the psychosocial needs of spouses of partners with dementia in the years before their partner's death rather than only bereavement.Publisher's Note: Also see McKnight's Long-Term Care News story Spousal caregivers need emotional support before losses, not just after, study finds.
Parental history of memory impairment and β-amyloid in cognitively unimpaired older adults
06/22/24 at 03:25 AMParental history of memory impairment and β-amyloid in cognitively unimpaired older adults JAMA Neurology; by Mabel Seto, PhD; Timothy J. Hohman, PhD; Elizabeth C. Mormino, PhD; Kathryn V. Papp, PhD; Rebecca E. Amariglio, PhD; Dorene M. Rentz, PsyD; Keith A. Johnson, MD; Aaron P. Schultz, PhD; Reisa A. Sperling, MD; Rachel F. Buckley, PhD; Hyun-Sik Yang, MD; 6/17/24 Objective: To characterize maternal vs paternal history of memory impairment in terms of brain Aβ-positron emission tomography (Aβ-PET) and baseline cognition among a large sample of cognitively unimpaired older adults. Conclusions and Relevance In this study, maternal history (at any age) and paternal history of early-onset memory impairment were associated with Aβ burden among asymptomatic older individuals. Sex-specific parental history may help inform clinicians on likelihood of Aβ burden in offspring and help identify high-risk individuals at the earliest stages of disease for prevention.Editor's Note: We posted a descriptive, less data-oriented article that was about this research on 6/21/24, "Alzheimer’s history on maternal side linked to higher disease risk, study finds"
The efficacy of Hospice-In-Place Care versus Traditional Inpatient Care
06/22/24 at 03:20 AMThe efficacy of Hospice-In-Place Care versus Traditional Inpatient CareAmerican Journal of Hospice and Palliative Care; by Emily Butler, Claire Hanson, Taaseen Khan, Tuzo Mwarumba, Derek Daniels, Maxim Turchan, Kemberlee Bonnet, David Schlundt, Kelly Harper, Marc Bennett, David Charles; 8/24The hospice-in-place program at Vanderbilt University Medical Center (VUMC) is available to patients and families who elect for hospice benefits and are too unstable to be transported for hospice care. The goal of this study was to assess the satisfaction of family members of patients who died while hospitalized at VUMC and received hospice-in-place compared to the families of patients who did not receive hospice care. ... Quantitative findings of this study showed improved satisfaction but were unable to show a significant difference in satisfaction with hospice-in-place compared to traditional care. Questionnaire results suggest that both types of care yield high satisfaction scores and are successfully supporting patients and families. The conceptual framework also adds to the understanding of end-of-life experiences at VUMC.
Understanding adult hospices caring for children in California, 2018-2021
06/22/24 at 03:15 AMUnderstanding adult hospices caring for children in California, 2018-2021Heather A. Davis, PhD1, Meaghann S. Weaver, PhD, MD, MPH2,3,Christy Torkildson, PhD, RN, PHN, FPCN, HEC-C4,5, andLisa C. Lindley, PhD, RN, FPCN, FAAN6AbstractIn areas where there are absences of pediatric hospice care, adult hospices are often asked to provide hospice care for children.Little is known about these adult hospices. The purpose of our study was to describe the characteristics of adult hospices inCalifornia that provided care to children from 2018 to 2021. Using public data from the California Home Health Agencies andHospice Annual Utilization Report, we conducted a longitudinal, retrospective descriptive study to examine the effects ofhospice characteristics on adult hospices which provide care to children. Market, mission, operational, and financial characteristicswere measured via the California utilization data using descriptive statistics. Service area was measured via latitudeand longitude public data. Hospice location maps were generated for year 2018 and year 2021. The 148 hospices in the studyhad distinct organizational profiles, mainly small, with broad service coverage areas, in rural and urban communities withpredominantly nurses visiting children. There was a significant decline (32%) in availability of adult hospices caring for childrenbetween 2018 and 2021, particularly in northern California. Hospice economics, lack of familiarity with Medicaid, and staffcomfortability with caring for children in hospice, were not driving this decline. Our study provides critical insight into thecharacteristics of adult hospices in California providing care for children and has important policy implications.
Interdisciplinary Pain Board for managing patients with palliative care needs and substance use disorder: A pilot study
06/22/24 at 03:10 AMInterdisciplinary Pain Board for managing patients with palliative care needs and substance use disorder: A pilot study Journal of Palliative Medicine; Sarah Hauke Given, Patricia Reid Ponte, Kate Lally, Isaac S Chua; 6/20/24 online ahead of print Context: Patients with cancer-related pain and concurrent substance use disorder (SUD) present a unique set of challenges for palliative care clinicians. A structured forum for interdisciplinary collaboration is needed to effectively manage this complex population. Objectives: Describe the feasibility and acceptability of a palliative care Complex Pain Board (CPB), an interdisciplinary team meeting to provide concrete care recommendations for patients with cancer-related pain and concurrent SUD and/or psychosocial complexity.
Bidirectional associations of depressive symptoms and cognitive function over time
06/22/24 at 03:05 AMBidirectional associations of depressive symptoms and cognitive function over timeJAMA Network Open; by Jiamin Yin, Amber John, Dorina CadarIn this longitudinal analysis of 8268 eligible participants, greater levels of depressive symptoms at study baseline and an accelerated change in depressive symptoms over time were associated with faster memory decline. In reverse, a steeper change in memory was also reciprocally associated with a more rapid change in depressive symptoms over time.Publisher's Note: Also see McKnight's Long-Term Care News story Depression, memory decline trigger each other in older adults, study finds.
Narrating final memories from spousal loss: The role of place and quality of death
06/22/24 at 03:05 AMNarrating final memories from spousal loss: The role of place and quality of deathAmerican Journal of Hospice and Palliative Medicine; by Emily L Mroz, Susan Bluck; 8/24Personal memories of the death of a spouse can guide bereavement adjustment. Place of death and quality of death are end-of-life factors that are likely to influence death experiences and formation of subsequent personal memories. The current study employs narrative content-analysis to examine how place and quality of death relate to affective sequences present in older adults' final memories from the death of their spouse. ... Final memories are carried with the bereaved long after their loss. Positive final memories appear to stem from witnessing a comfortable, medically appropriate death outside of a hospital setting. End-of-life 'that is' between care and aligned with patients' values for place and treatment may be critical for spouses' formation of constructive final memories and bereavement adjustment.Editor's Note: Per Yale press release: Emily Mroz, PhD, postdoctoral fellow in the Yale Department of Internal Medicine’s Section of Geriatrics, recently received the Association for Death Education and Counseling (ADEC) Edie Stark-Shirley Scott Early Achievement Award. The honor is presented annually to a woman in the initial years of a career in thanatology—the study of death, dying, and bereavement—who has distinguished herself through activity in scholarship, service, research, clinical practice, or social action.
Saturday newsletters
06/22/24 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
Today's Encouragement
06/22/24 at 03:00 AMIf not us, who? If not now, when? ~John F. Kennedy
US Medicare hospice and palliative medicine physician workforce and service delivery in 2008-2020
06/22/24 at 03:00 AMUS Medicare Hospice and Palliative Medicine Physician Workforce and Service Delivery in 2008-2020Journal of Pain and Symptom Management; by Xin Hu, Changchuan Jiang, Qinjin Fan, Kewei Sylvia Shi, Ravi B Parikh, Arif H Kamal, Roger T Anderson, K Robin Yabroff, Xuesong Han; 6/24Despite growth in Medicare HPM physician workforce, access is disproportionately concentrated in metropolitan and inpatient settings. This may limit receipt of early outpatient specialized palliative care, especially in nonmetropolitan areas.
NAHC, NHPCO ink deal completing affiliation
06/21/24 at 03:00 AMNAHC, NHPCO ink deal completing affiliation Hospice News; by Holly Vossel; 6/18/24 The National Hospice and Palliative Care Organization (NHPCO) and the National Association for Home Care & Hospice (NAHC) have announced the completion of their affiliation agreement. The affiliation joins two of the largest organizations representing, educating and advocating for home health and hospice providers that serve millions of disabled, elderly and dying Americans across the country. Board chairs and c-suite executives at NAHC and NHPCO recently met in Washington D.C. to ink the deal. The affiliation is rooted in a shared belief that unification will benefit their respective members and ultimately the patients and families they serve, according to NAHC President and CEO William Dombi.
Boy, 7, takes on 145-mile challenge for hospice
06/21/24 at 03:00 AMBoy, 7, takes on 145-mile challenge for hospice BBC News, Peterborough, United Kingdom; by Shariqua Ahmed; 6/15/24 A seven-year-old boy has taken on a mythical-themed challenge to raise funds for a hospice. Isaac Yates from King's Cliffe in Northamptonshire is scooting, walking and cycling 145 miles (233km) through a Lord of the Rings Virtual Conqueror Challenge for Sue Ryder Thorpe Hall Hospice in Peterborough [United Kingdom]. His mum, Zoë Hopkinson, works as a physiotherapist at the hospice which inspired Isaac's mission as he wants to “help people who are suffering and dying.”
University Hospitals to cut more than 300 positions
06/21/24 at 03:00 AMUniversity Hospitals to cut more than 300 positions Modern Healthcare; by Paige Bennett; 6/19/24 University Hospitals is eliminating more than 300 positions amid challenges in the healthcare industry. The health system announced Wednesday, June 19, that it was reducing its leadership structure by more than 10% as part of an organizational reset. The move comes at a time when healthcare systems across the U.S. are grappling with rising costs and labor shortages. UH Chief Operating Officer Dr. Paul Hinchey said in a phone interview with Crain’s that the cuts focused on leadership and support services, not frontline workers. Affected employees began being notified by the health system on Monday, he said. The health system said the vast majority of the cuts were non-clinical and will not impact patient care. The move “complements a plan over the past three years to increase efficiency, consolidate service lines and close hospitals in Bedford and Richmond Heights,” according to UH.
Alzheimer’s history on maternal side linked to higher disease risk, study finds
06/21/24 at 03:00 AMAlzheimer’s history on maternal side linked to higher disease risk, study finds McKnights Long-Term Care News; by Kristen Fischer; 6/17/24 People with a history of Alzheimer’s disease on their mother’s side or both parents’ sides of the family had higher levels of amyloid plaques in their brains compared to those with fathers who had the disease, according to a study published Monday in JAMA Neurology. Increased amyloid, a biomarker for Alzheimer’s disease, was also found in those whose fathers had early onset of symptoms. But it wasn’t as high as in people who had higher amyloid on their mothers’ side of the family, the data showed. Mass General Brigham researchers used amyloid imaging on 4,413 cognitively unimpaired adults who were between 65 and 85.
Other Business Headlines of Interest, updated 6/20/24 per nasdaq.com
06/21/24 at 03:00 AMOther Business Headlines of Interest, updated 6/20/24 per nasdaq.com
Today's Encouragement: Ah, summer ...
06/21/24 at 03:00 AMAt the Summer Solstice, all is green and growing, potential coming into being, the miracle of manifestation painted large on the canvas of awareness. At the Winter Solstice, the wind is cold, trees are bare and all lies in stillness beneath blankets of snow. – Gary Zukav
Pennant and Hartford HealthCare partner to transform home care services
06/21/24 at 03:00 AMPennant and Hartford HealthCare partner to transform home care services CBS News 13, Eagle, Idaho; by Pennant Group, Inc.; 6/18/24 The Pennant Group, Inc., the parent company of the Pennant group of affiliated home health, hospice and senior living companies, announced today that it has entered into a management and consulting services agreement to provide operational support to Hartford HealthCare at Home (HHCAH), the home health and hospice business of Hartford HealthCare. Hartford HealthCare is the highest ranking in quality, comprehensive non-profit integrated health system in Connecticut, and HHCAH’s home-based care spans the state, with eight locations, more than 1,000 employees, and more than 33,000 home health admissions and approximately 4,000 hospice admissions over the trailing 12 months. Hartford HealthCare has provided home-based care for over a century, and this engagement of Pennant reflects its continued commitment to home-based care as an essential and growing part of the care continuum and a central component of Hartford HealthCare’s future. Hartford HealthCare at Home remains owned by Hartford HealthCare and is a critical part of Hartford HealthCare’s ecosystem of care.
AFT launches new union physicians’ organizing effort: Doctors across the country are joining together for rights and respect
06/21/24 at 03:00 AMAFT launches new union physicians’ organizing effort: Doctors across the country are joining together for rights and respect American Federation of Teachers; by Alexis Lopez; 6/18/24 AFT President Randi Weingarten announced the launch of a brand-new doctors’ organizing initiative and division: Union Physicians of AFT. Doctors across the country are faced with crippling burnout from administrative overload, frustration over financial barriers affecting their patients’ capacity to pay, and lack of respect from corporate owners who put profits over patients—and now they’re organizing with the AFT to fight back. ... These challenges are apparent across the healthcare sector, but less than 10 percent of all U.S. doctors have formed unions. The tide is rapidly turning. ... The ranks of AFT’s physicians have already grown at an unprecedented rate—with over 3,200 new members, from New York to Oregon, joining the union over the last year. The AFT is the fastest growing healthcare union and the second-largest nurses union in the U.S.
Children’s hospices risk being ‘hugely reduced’ due to funding and cost issues
06/21/24 at 03:00 AMChildren’s hospices risk being ‘hugely reduced’ due to funding and cost issues Jersey Evening Post - UK News; by UK News; 6/19/24 Children’s hospice services are at risk of being “hugely reduced” amid a lack of long-term sustainable funding and rising costs, a charity has warned. ... Some 66.7% of children’s hospices said this was due to a hike in energy bills, while 86.1% said it was due to higher costs associated with recruiting and retaining staff. According to the report, some 54% of children’s hospices in the UK ended the 2023/24 financial year in a net deficit. Together for Short Lives extrapolated the figure across all 39 hospice organisations to estimate a total shortfall of £8.5 million.
Circle of Life Hospice opens guest house
06/21/24 at 03:00 AMCircle of Life Hospice opens guest house ABC KOLO 8 NewsNow, Reno, Nevada; by Emily Benito; 6/19/24The Circle of Life Hospice Foundation has just opened their first hospice care guest house for those that cannot afford room or board or end of life care. President of The Circle of Life Hospice Foundation Michelle Cagle says that if they had 10 to 15 beds in the house, they could help around 271 patients a year. The guest house currently has three beds for patients but with more land to build on, there are plans to build a second guest house on the property. “Whether they are homeless or just elderly or their wife can’t take care of them or they’re just not able to afford it or they don’t have any family or children, that’s what we do and opened this house to care for those people.”
Mercy Medical Center unveils Andy Yee Memorial Palliative Care Unit
06/21/24 at 03:00 AMMercy Medical Center unveils Andy Yee Memorial Palliative Care Unit WWLP 22 News, Springfield, MA; 6/18/24 Springfield city officials joined Mercy Medical Center for a tour of the upcoming Andy Yee Memorial Palliative Care Unit. Patients who are severely sick or coming to their last days will now have another space to get the care that they need. The work for the Andy Yee Memorial Palliative Care Unit is underway at Mercy Medical Center. This new space on the 5th floor of the facility will help to enhance patient care. ... In the next phase comes the renovation and remodeling of eight patient rooms. This new unit will help Mercy Medical providers care for about 300 patients a year.