Literature Review

C-TAC report: From metrics to momentum - accelerating the spread of community-based palliative care The John A. Hartford Foundation, Washginton, DC; 3/4/26 The Coalition to Transform Advanced Care (C-TAC) and and The John A. Hartford Foundation (JAHF) have released a report, "From Metrics to Momentum: Accelerating the Spread of Community-Based Palliative Care." The report summarizes discussion from a September 2025 C-TAC national convening of clinical, policy, payer, and delivery system leaders that was focused on accelerating the spread of community-based palliative care and identifying meaningful approaches to measuring access. 

How wonderful it is that nobody need wait a single moment before starting to improve the world. ~Anne Frank

Religion and spirituality in pediatric end-of-life: A systematic reviewJournal of Pediatric Psychology; by Kara Jackson, Alyssa Marchetta, Barry Nierenberg, Jessica M Valenzuela; 2/26Spirituality is a recognized element of palliative care, with documented benefits for adult patients. However, limited research exists on how religion and spirituality affect children at end-of-life (EOL) and their parents. Findings revealed diverse religious and spiritual practices among families, including faith stability, spiritual care use, and prayer. Key outcomes associated with spirituality included enhanced coping, acceptance, meaning-making, hope, caregiver spiritual well-being, decision-making, and improved parent-child communication. Across studies, spiritual support emerged as a vital component of the pediatric EOL experience.

Burden and well-being among dementia caregivers in Puerto Rico: The role of behavioral and psychological symptoms of dementiaThe Journals of Gerontology; by Junyub Lim, Ross Andel, Frank Puga, María P Aranda, Maricruz Rivera-Hernandez, Ana Luisa Dávila-Roman, Michael Crowe; 2/26Dementia is more prevalent in Puerto Rico than in the U.S. mainland, increasing demands for caregiving. We examined caregiver burden and depressive symptoms among Puerto Rican dementia caregivers while also considering behavioral and psychological symptoms of dementia (BPSD). Caregivers were 63 ± 10 years of age on average, and 77% were women. In this Puerto Rico-based sample, perceptual disturbances/apathy, and appetite/eating symptoms specifically, were most likely to magnify the caregiver burden-depressive symptoms link.

Physicians are not providers: The ethical significance of names in health care: A policy paper from the American College of PhysiciansAnnals of Internal Medicine; by Lois Snyder Sulmasy, Jan K. Carney, for the ACP Ethics, Professionalism and Human Rights CommitteeMore than 25 years ago, Pellegrino and Relman noted the increasing commercialization of the learned professions, anticipating what many physicians are increasingly experiencing today: an impairment of their ability to practice in accordance with standards of medical ethics and professionalism. These hurdles to the physician’s ability to do right by the patient contribute to what leaders in medicine and the American College of Physicians have called deprofessionalization. An example is the use of the term provider to describe physicians and other health professionals. The use of this terminology has been reviewed in medical journal articles but has not been adequately explored as a matter of ethics and professionalism. Through that lens, this paper examines the trends, significance, and implications for patients, physicians, and health care of the use of the term provider.

MedPAC: March 2026 Report to CongressMedPAC Reports; 3/12/26Medicare Benefit: National health care spending grew rapidly in 2023 and 2024, by 7 percent in each of these years. By 2024, national health care spending totaled $5.3 trillion. Health care spending has made up an increasing share of the country’s gross domestic product (GDP) over time, rising from about 13 percent of GDP in 2000 to 18 percent in 2024. Medicare spending grew more rapidly than national health care spending in 2023 and 2024 (by 9 percent and 8 percent, respectively), in part due to changes in Part D financing that shifted more of the cost of prescription drug coverage from beneficiaries to the federal government. By 2024, Medicare spending totaled $1.1 trillion—equivalent to 21 percent of national health care spending and 3.8 percent of GDP. (Please see the full report here for additional detail.)Hospice Chapter:

Call for applications: Investigator in Residence ProgramASCENT press release; 3/2/26The Advancing the Science of Palliative Care Research Across the Lifespan (ASCENT) Consortium invites applications for its 2026 Investigator in Residence Program. The goal of this program is to increase the number of palliative care investigators, expand the range of institutions where palliative care research is performed, and develop scientific and leadership capabilities leading to future successful grant proposals, both through ASCENT and extramurally. Applications due Thursday, March 26 at 5:00 pm PT.

MedPAC: March 2026 Report to CongressMedPAC Reports; 3/12/26Medicare Benefit: National health care spending grew rapidly in 2023 and 2024, by 7 percent in each of these years. By 2024, national health care spending totaled $5.3 trillion. Health care spending has made up an increasing share of the country’s gross domestic product (GDP) over time, rising from about 13 percent of GDP in 2000 to 18 percent in 2024. Medicare spending grew more rapidly than national health care spending in 2023 and 2024 (by 9 percent and 8 percent, respectively), in part due to changes in Part D financing that shifted more of the cost of prescription drug coverage from beneficiaries to the federal government. By 2024, Medicare spending totaled $1.1 trillion—equivalent to 21 percent of national health care spending and 3.8 percent of GDP. (Please see the full report here for additional detail.)

New partnership could create largest nonprofit hospice provider in North Texas, expand servicesKERA News; by Abigail Ruhman; 3/11/26A new partnership between two nonprofit providers could expand hospice care services in North Texas as the state’s population of older adults continues to grow. Forefront Living, a nonprofit senior living facility with more than 100 patients, will wind down its hospice care as the Visiting Nurse Association of Texas, or VNA, becomes its preferred partner for the service. VNA will also take over management of Dallas’ first independent, residential hospice care center.

Nursing's moral agency cannot be outsourced to AI, study warns Medical Xpress; by University of Pennsylvania School of Nursing; 3/10/26 As artificial intelligence (AI) rapidly integrates into clinical settings—from predicting patient outcomes to deploying humanoid "robotic nurses"—an article published in the Hastings Center Report warns that the core of nursing, its moral agency, must remain a human-driven responsibility. The article, What Does Moral Agency Mean for Nurses in the Era of Artificial Intelligence?, explores the growing tension between advanced algorithmic capabilities and the ethical obligations of the world's most trusted profession. While AI systems can now simulate empathy and generate context-aware responses, Penn Nursing's Connie M. Ulrich, Ph.D., RN, FAAN, the Lillian S. Brunner Chair in Medical and Surgical Nursing, Professor of Nursing, and Professor of Medical Ethics and Health Policy, and her co-authors argue that AI lacks sentience, intentionality, and accountability. The authors define a moral agent as a person capable of discerning right from wrong and being held accountable for their actions.