Literature Review



[Canada] What about the family? A content analysis of international legislative frameworks and guidelines on assisted dying

03/07/26 at 03:00 AM

[Canada] What about the family? A content analysis of international legislative frameworks and guidelines on assisted dyingPolicy, Politics & Nursing Practice; by Charlotte Boven, Gilla K Shapiro, Liesbeth Van Humbeeck, Let Dillen, Nele Van Den Noortgate, Gary Rodin; 2/26When a person chooses assisted dying, the impact on their family can be profound. Legislation and professional guidelines not only regulate and standardize practice, but also support the delivery of high-quality care. Within this framework, bereavement care plays a vital role by helping families prepare for the death and potentially reducing the risk of prolonged grief. To improve quality care, there is a clear need to better integrate family support into assisted dying guidelines by establishing best practices for bereavement care. Future research should focus on family members' perspectives and needs.

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You're only given a little spark of madness...

03/07/26 at 03:00 AM

You're only given a little spark of madness. You mustn't lose it. ~Robin Williams

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Saturday newsletters

03/07/26 at 03:00 AM

Saturday newsletters focus on headlines and research - enjoy!

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Love hurts: Leadership, quality, and the future of hospice & palliative care | part one

03/06/26 at 03:00 AM

Love hurts: Leadership, quality, and the future of hospice & palliative care | part one Teleios Collaborative Network (TCN Talks); podcast by Chris Comeaux with Dr. Alex Smith and Dr. Eric Widera; 3/4/26 TCNtalks / Anatomy of Leadership host Chris Comeaux and co-host Cordt Kassner join forces with Dr. Eric Widera and Dr. Alex Smith of the GeriPal Podcast, leaders in Palliative Care and Hospice innovation discuss emerging quality measures, data-driven hospice analytics, research challenges, and the leadership needed to guide healthcare organizations through change. For professionals working in healthcare leadership and serious illness care, the conversation offers valuable insight into the policies, research, and innovations shaping the future of Hospice and Palliative Medicine.

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The people who are crazy enough to think they can change the world are ...

03/06/26 at 03:00 AM

The people who are crazy enough to think they can change the world are the ones who do! ~ Steve Jobs

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Clinicians outline strategies to improve cancer care in U.S. prisons

03/06/26 at 03:00 AM

Clinicians outline strategies to improve cancer care in U.S. prisons Oncology Times; by Kumar Das, Dibash PhD; March 2026 Cancer is now the leading cause of death in U.S. prisons, and outcomes for incarcerated patients are markedly worse than for those in the general population. A 2022 study of Connecticut's prison system found that people diagnosed with cancer while incarcerated had 92% higher mortality compared with 16% higher mortality observed in England and Wales. The difference, researchers said, underscores the role of healthcare access and correctional policy in shaping cancer survival.

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Investigating the role of occupational therapy in palliative care a literature review

03/06/26 at 03:00 AM

Investigating the role of occupational therapy in palliative care a literature review Home Healthcare Now; by Carlie Liseo, OTD, OTR/L and Daniel Martin, D.Sc., MS, OTR/L; March/April 2026 ... Three themes regarding the provision of occupational therapy (OT) services to palliative care (PC) patients were identified: engaging in meaningful activities to increase quality of life (QOL), symptom management and comfort, and supporting caregivers and client environments. OT can play a pivotal role in catering to PC clients’ needs by promoting occupational engagement, alleviating symptoms, and modifying environments. This review offers recommendations for OT service provision in palliative care, clarifying the profession’s role within multidisciplinary home healthcare teams.

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Demystifying the end: Hospice care impact on the Black community

03/06/26 at 03:00 AM

Demystifying the end: Hospice care impact on the Black community Word In Black | Houston Defender; by Laura Onyeneho; 3/2/26 ... For African American, Afro-Caribbean and African immigrant families, generational trauma and a lack of trust in the healthcare system often lead to delayed decisions about hospice care. “There’s been a historical gap in access and trust,” said [Monica James, Community Engagement Coordinator for Houston Hospice]. “Our goal is to show up consistently, to listen and to let these communities know they have options and that they’re not alone.” ... “For communities of color, we have to meet people where they are. That means understanding family dynamics, faith and what dignity means to different people,” she said. 

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Irish man completes 30,000km charity cycle to Australia

03/06/26 at 03:00 AM

Irish man completes 30,000km charity cycle to Australia RTE | 100; by Cara McHugh and Sinéad Hussey; 2/7/26 A Roscommon man has finished a cycling challenge which began almost two years ago and saw him travel over 30,000km across three continents to Australia. Fergal Guihen, from Arigna, arrived in Sydney earlier today marking the completion of a mammoth challenge of endurance which began in March 2024. The 27-year-old set out on the arduous 'Rossie to Aussie' challenge with the goal of raising awareness and funds for both the Mayo Roscommon Hospice Foundation and NorthWest STOP suicide prevention services. He has raised almost €170,000 to date. 

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Deprescribing at the End of Life: Jennifer Tjia, Jon Furuno, Simon Mooijaart

03/06/26 at 03:00 AM

Deprescribing at the End of Life: Jennifer Tjia, Jon Furuno, Simon MooijaartGeriPal podcast; by Eric Widera, Alex Smith, Jennifer Tjia, Jon Furuno, Simon Mooijaart; 2/26/26In this episode of the GeriPal Podcast, we tackle the pressing topic of deprescribing at the end of life with expert guests Jennifer Tjia, Jon Furuno, and Simon Mooijaart. The conversation focuses on identifying medications that should almost always be discontinued—such as statins, osteoporosis meds, finasteride, and vitamins, which offer minimal benefit for patients with limited life expectancy. We also delve into more nuanced cases, such as antithrombotics, which present complex decisions that challenge clinicians, particularly when prognosis spans the many weeks to months range. Finally, we explore practical strategies for engaging patients and families in deprescribing conversations.

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Why Baylor Scott & White opted for an access redesign

03/06/26 at 03:00 AM

Why Baylor Scott & White opted for an access redesign Becker's Hospital Review; by Kelly Gooch; 3/2/26 Dallas-based Baylor Scott & White Health, the largest nonprofit health system in Texas, has been undergoing a consumer-focused transformation aimed at expanding access. ... “One thing we heard consistently through all of that is just a need for more access,” Rob Watson, MD, chief clinical operations officer, told Becker’s. “Not just traditional access through what we would consider our large hospitals and clinics, but expanded options like digital and virtual as well as when they had an urgent need or an emergent need, more physical locations as well.”

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A nurse-led violence prevention program that cut incidents to zero

03/06/26 at 03:00 AM

A nurse-led violence prevention program that cut incidents to zero Becker's Clinical Leadership; by Mariah Taylor; 3/2/26 WakeMed Raleigh (N.C.) has gone 20 consecutive months — and counting — without a single workplace violence incident on its medical-surgical unit. It is all thanks to a program created by three nurse leaders. The program started with a partnership between med-surg and psychiatric nurses. ...

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Cambia Health Foundation releases comprehensive evaluation of Sojourns Scholar Leadership Program

03/06/26 at 03:00 AM

Cambia Health Foundation releases comprehensive evaluation of Sojourns Scholar Leadership Program Business Wire, Portland, OR; Press Release; 3/3/26 Cambia Health Foundation today released the results of a comprehensive evaluation of its Sojourns Scholar Leadership Program, demonstrating the significant impact of a 10-year, $25 million investment in developing the next generation of palliative care leaders.  ... The program’s goals were measured against more than 175 sources, as well as 18 individual interviews, 5 focus groups and a comprehensive written survey completed by 117 individuals, including program participants and industry experts. Notable findings include:

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The hard truth about leadership: It’s about what you’re willing to give up

03/06/26 at 03:00 AM

The hard truth about leadership: It’s about what you’re willing to give up Forbes; by Mark Nevins; 2/27/26 The leadership behaviors that feel hardest in the moment are often the ones that create the most durable trust and performance. Leadership is often described in terms of vision, strategy, and decisiveness, but in some ways, these are the easy parts. Anyone who has led people through uncertainty knows that the job is defined by heart and guts just as much as head, and leading through difficult situations often comes down to what leaders are willing to give up. At its core, leadership is a series of sacrifices: of ego, of speed, of personal preference, and often even of comfort. 

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[Canada] New report released advancing equity in palliative and end-of-life care

03/06/26 at 02:00 AM

[Canada] New report released advancing equity in palliative and end-of-life care ehospice | BC Centre for Palliative Care, British Columbia; by the BCCPC Project Team: Rachel Carter, Eman Hassan, Simon Anderson, Grace Hu; 2/22/26 We’re pleased to share a new publication from the BC Centre for Palliative Care. This report distills key insights from a three-part Knowledge Exchange Series held in Spring 2025 that brought together people with lived experience, community organizations, clinicians, researchers, and system leaders across British Columbia. This Knowledge Exchange Series explored how health system services and community supports can work together to better meet the needs of underserved populations—highlighting both persistent gaps and promising paths forward. The report is supplemented with 12 population-specific chapters. [Read the full report]

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Alliance 2025 Facts and Figures Report now available

03/05/26 at 03:00 AM

2025 Facts and Figures Report now available to Alliance members The National Alliance for Care at Home; Alexandria, VA and Washington, DC; Press Release; 3/3/26 The National Alliance for Care at Home (the Alliance) published the 2025 edition of Facts and Figures, an annual report on key data points related to the delivery of hospice care, including information on patient characteristics, location and level of care, Medicare hospice spending, hospice provider characteristics, and quality of care. Facts and Figures – the leading resource for hospice providers and others interested in understanding the work of the community – has been published annually for over two decades. The findings in this report reflect patients who received care in 2024, provided by hospices certified by the Centers for Medicare & Medicaid Services (CMS) and reimbursed under the Medicare Hospice Benefit. ... The full 2025 Facts and Figures report is available for Alliance members online. The Executive Summary is available to the public.  Editor's Note: Pair this national data with the The Alliance and the Research Institute for Home Care release 2025 Hospice Chartbook that we posted on 2/20/26. The RIHC Hospice Chartbook mainly provides state views with some national treands, whereas this Facts and Figures report is mainly a national view with time trends.

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Why time becomes ever more precious towards the end of our days

03/05/26 at 03:00 AM

Why time becomes ever more precious towards the end of our days ehospice; by Brian Dolan, OBE; 3/2/26 In health care, conversations about finance, workforce, and facilities often dominate the agenda. Yet, the most valuable and universal currency within our health systems is something less tangible but far more immediate: time. ... Time is the thread that connects patients and staff, shaping experiences, outcomes, and well-being. For patients, time is deeply personal. It is the time that comes dripping slow as hours are spent waiting in emergency departments, days of confinement to a hospital bed, and, ultimately, the quality of the life they return to when they are finally discharged. For staff, time determines how effectively they can deliver care, make decisions, and balance the demands of an increasingly pressured system. 

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How compliance technology can improve day-to-day operations

03/05/26 at 03:00 AM

How compliance technology can improve day-to-day operations BusinessABC; by Peyman Khosravani; 2/25/26 ... Compliance technology, compliance software, or regtech, is the use of software and technology to help companies adhere to regulatory, legal, and internal requirements, and the automation of monitoring, reporting, and auditing of compliance. ...

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Outpatient curricular content for hospice and palliative medicine trainees: A national survey

03/05/26 at 03:00 AM

Outpatient curricular content for hospice and palliative medicine trainees: A national survey Journal of Pain and Symptom Management; by Harry J Han, Angelika Golebiowska, Emily N Hansen, Michelle Park, Victoria I Sweetnam, Christian T Sinclair, Jonathan C Yeh, Mary K Buss; 3/2/26, online ahead of print Context: More health systems are establishing outpatient palliative care (PC) programs, increasing demand for ambulatory PC clinicians. ... Little is known about the outpatient-specific knowledge and skills PC trainees should acquire for competent outpatient practice. Conclusion: This national survey identified foundational outpatient-focused educational topics for hospice and pallitive medical (HPM) learners and suggests that outpatient curricula prioritize deliberate education on the unique application of core PC skills in outpatient settings. This prioritized list provides education leaders a roadmap to enhance existing curricula and informs the development of outpatient educational resources that can be shared across institutions.

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How wonderful it is that nobody need wait a single moment to ...

03/05/26 at 03:00 AM

How wonderful it is that nobody need wait a single moment to improve the world. ~ Anne Frank

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Duxbury, Norwell groups have rebranded. Why the name changes?

03/05/26 at 03:00 AM

Duxbury, Norwell groups have rebranded. Why the name changes? The Patriot Ledger, Su Cheible; 3/3/26 I recently learned that the former Norwell Visiting Nurse Association (NVNA) and Hospice had in December taken a new name, Croí Health. Croí is an Irish word for heart, chosen to reflect the agency's patient-centered mission. I also noticed that the Duxbury Senior Center is now called The Center, has a tag line: "Live Well. Age Strong." It also notes that it is "still powered by the Duxbury Council on Aging." Its newsletter has a stylish new design and name, The Current, replacing the former name Duxbury Doings. ... Why senior centers are changing their names: In their names and their branding, the centers are switching to what they see as more active, more inclusive and more modern ideas. It is described as part of being age friendly, attracting younger seniors and moving away from negative associations and stigma still attached to growing older.

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Themed digest for palliative care professionals: Spiritual support for children

03/05/26 at 03:00 AM

Themed digest for palliative care professionals: Spiritual support for children ehospice | PACED; February 2026 Spiritual support remains one of the most complex and, at the same time, most essential elements of palliative care. In the February PACED digest, we present articles exploring the integration of spiritual care into nursing practice, families’ experiences in paediatric palliative care, and the role of professionals in discussing end-of-life issues with children and adolescents. This issue includes materials on professional competencies, system-level recommendations, and parents’ lived experiences. Together, they offer insight into how spiritual and value-based questions shape clinical practice and influence the quality of support provided to families. ...

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Staying in Grand: Experts highlight unique challenges facing older adults in mountain towns

03/05/26 at 03:00 AM

Staying in Grand: Experts highlight unique challenges facing older adults in mountain towns Sky-Hi News; by Kyle McCabe and Izzy Wagner; 2/27/26 ... As people age in rural resort communities like those in Grand and Summit counties, they often face situations that require them to leave for short or extended periods of time —  sometimes even permanently. A lack of comprehensive medical services, high costs of living, the effects of high altitude on the body, the inherent risks of an active mountain lifestyle and more add complications for people hoping to age in place in mountain towns. However, individuals determined to remain in their communities have figured out ways to overcome those challenges by learning about, preparing for and engaging with the topic of aging. ... Smiley [person interviewed] pointed to hospice and palliative care, or care for people living with serious illnesses, as gaps in service in the area. “It is not an uncommon gap in a small community or in a mountain community,” Smiley said, “but having hospice and palliative care would really allow people to have, kind of, a higher quality of life during those last, final years.”

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UVM Home Health & Hospice volunteers among the longest serving in the nation

03/05/26 at 02:00 AM

UVM Home Health & Hospice volunteers among the longest serving in the nation Vermont Business Magazine | The University of Vermont Health Network - Home Health & Hospice; by Tim; 3/3/26 Among the longest‑serving hospice volunteers in the nation, Charlotte Kenney, Jan Watt and Lil Venner have each devoted more than 45 years to UVM Health – Home Health & Hospice because, they say, helping patients and their families make the most of the time they have left of this earth is a privilege, rooted in grace and connection. The notion that hospice work is defined by sorrow, is rejected by all three dedicated volunteers. "What I'm doing is enabling this person to live fully until the very last second," says Kenney. ... Venner adds, "You see the world differently when you're looking through the eyes of somebody who may be seeing this particular thing for the last time." Editor's Note: We celebrate these devoted hospice volunteers at UVM Health Network – Home Health & Hospice. Together, Charlotte Kenney, Jan Watt, and Lil Venner have given more than 185 years of service—an extraordinary testament to presence, compassion, and steadfast commitment. Who among your volunteers carries a stories of faithful service? What collective years of care live within your own program? Consider gathering and sharing that data—not simply as numbers, but as narratives of impact and catalysts for thanks.

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Responsive emergency assessment and community team: an acute palliative medicine virtual ward with emergency department in-reach

03/05/26 at 02:00 AM

Responsive emergency assessment and community team: an acute palliative medicine virtual ward with emergency department in-reach BMJ Supportive & Palliative Care; by Emily Holdsworth and Clare Rayment; 3/2/26 Objectives: More than 50% of people who die in England and Wales use an ambulance at least once in their last 3 months of life, and around 50% attend the emergency department (ED). In Bradford, an estimated 1000 patients a year are not recognised as being within the last year of life and do not access palliative care services. ... Methods: We created the Responsive Emergency Assessment and Community Team (REACT), comprised of both ED palliative medicine in-reach and a community virtual ward. The virtual ward accepts patients as ‘step-down’ from the hospital and ‘step-up’ from primary care to avoid hospital admissions through intensive holistic support.

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