Literature Review



[United Kingdom] Parents to open 'virtual hospice' after unit shuts

02/02/26 at 03:00 AM

[United Kingdom] Parents to open 'virtual hospice' after unit shuts BBC News, London, England, UK; by Chris Slegg; 1/31/26 Families of seriously ill children in east London say they are setting up their own hospice service after being left without adequate care following the closure of local hospice, Richard House. The facility in Newham closed on 18 December despite a campaign by parents to keep it open in December. Parents, working with former Richard House chief executive Paul Richards, now plan to open East London Hospice, in order to provide care to families in their homes. 

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The future of palliative care? Community-based models with Alan Chiu, Mindy Stewart-Coffee, and Ben Thompson

02/02/26 at 03:00 AM

The future of palliative care? Community-based models with Alan Chiu, Mindy Stewart-Coffee, and Ben ThompsonGeriPal podcast; by Eric Widera, Alex Smith, Alan Chiu, Mindy Stewart-Coffee, Ben Thompson; 1/22/26In this thought-provoking episode of the GeriPal podcast, we are joined by Alan Chiu (Chief of Palliative Care at Monogram Health), Mindy Stewart-Coffee (National Vice President of Palliative Care at Optum Home and Community), and Ben Thompson (National Medical Director for Hospice and Palliative Care at Gentiva) to discuss this revolution happening in palliative care. The conversation centers around the rapid growth and investment in community-based palliative care, which has emerged as a key area of innovation and opportunity to meet the largely unmet needs of patients living with serious illnesses. With a focus on expanding access, improving outcomes, and addressing workforce shortages, the guests explore how value-based care models are reshaping palliative care delivery.

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Beyond cost-cutting: A new era in healthcare performance improvement

02/02/26 at 03:00 AM

Beyond cost-cutting: A new era in healthcare performance improvement Guidehouse; by Staff; 1/27/26 Healthcare leaders are redesigning operations, rethinking workforce, and embedding technology to weather unprecedented margin pressures. ... 

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Drivers of disease-specific end-of-life disparities

02/02/26 at 03:00 AM

Drivers of disease-specific end-of-life disparities Hospice News; by Holly Vossel; 1/30/26 ... Racial and ethnic disparities persist among underserved patient populations with dementia, who have a stronger likelihood of dying without awareness or access to hospice, recent research has found. Clinicians may play a vital role in moving the needle forward. Nearly 260, 000 Black, Hispanic and white Medicare decedents with dementia-related conditions were recently examined in a new study, which was published in the Journal of the American Medical Association (JAMA) Health Forum.  Editor's Note: We posted this study in our Saturday Research newsletter, 12/27/25, End-of-life care for older adults with dementia by race and ethnicity and physicians’ role. This article gives more practical descriptions and applications for its results.

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AMOREM Nourishes Our Neighbors Canned Food Drive successful

02/02/26 at 03:00 AM

AMOREM Nourishes Our Neighbors Canned Dood Drive successful The Avery Journal-Times, Newland, NC; by Staff report editor; 1/30/26 HIGH COUNTRY In an effort to give back to their community, AMOREM staff joined together for an AMOREM Nourishes Our Neighbors Canned Food Drive in January. The event, coordinated by AMOREM's wellness committee and dietary services, was inspired by the organization's mission, vision and values. Staff were challenged to donate canned foods in a friendly competition between campuses and the collection from each campus was distributed to local food banks. ... A total of 667 items with a total value of $1,024.25 were collected and distributed to Yokefellow in Lenoir, Burke United Christian Ministries in Morganton and Hospitality House of Northwest NC in Boone.

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Protecting patients at the end of life why CON still matters - part 2

02/02/26 at 03:00 AM

Protecting patients at the end of life why CON still matters - part 2 Teleios Collaborative Network (TCN); podcast hosted by Chris Comeaux with Paul A. Ledford and Tim Rogers;  1/30/26 In Part Two of Protecting Patients at the End of Life: Why CON Still Matters, host Chris Comeaux continues the conversation with two of the nation’s most respected hospice policy leaders—Paul A. Ledford, President & CEO of the Florida Hospice & Palliative Care Association, and Tim Rogers, President & CEO of the Association for Home & Hospice Care of North Carolina. This episode moves beyond regulatory theory and into the real-world patient and family experience—especially in states without hospice Certificate of Need (CON) laws. Drawing on decades of leadership, personal stories of loved ones in hospice, and data-informed insights, Paul and Tim explore what families actually face when hospice markets are oversaturated, fragmented, or poorly regulated.

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Choice Health at Home expands footprint with acquisition of Cy-Fair Health Care and Alliant

02/02/26 at 03:00 AM

Choice Health at Home expands footprint with acquisition of Cy-Fair Health Care and Alliant EIN Presswire, Tyler, TX; Press Release by Choice Health at Home; 1/30/26 Choice Health at Home, a leading provider of home health, hospice, and personal care services across the Southwest US, is pleased to announce the acquisition of Cy-Fair Health Care in Texas and Alliant Home Health, Palliative, and Hospice Care in Colorado (“Alliant”). These strategic acquisitions further strengthen Choice Health at Home’s presence in key growth markets while expanding access to high-quality, patient-centered care. Cy-Fair Health Care is located in Tomball, Texas, and provides home health services throughout Southeast Texas. 

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Cultivating leaders in medicine: We can do better

02/02/26 at 03:00 AM

Cultivating leaders in medicine: We can do better Medscape; by Aba Black, MD, MHS; 1/29/26 ... there’s no question that medicine as a field has lagged when it comes to propagating tenets of effective leadership. ... [Too] many doctors make it through the endurance run that is medical education without ever being told what makes a good leader. There’s good reason to want more doctors in leadership roles, as healthcare administrators with clinical expertise bring an important skill set to the challenges facing our healthcare system. While hospitals led by economists may fare better financially, physician-led hospitals are associated with lower mortality rates and higher patient satisfaction. 

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Retired VA Nurse shares what she learned from over 10,000 dying veterans

02/02/26 at 03:00 AM

Retired VA Nurse shares what she learned from over 10,000 dying veteransTampa Bay 28-ABC, Tampa Bay, FL; by Wendy Ryan; 1/30/26“Everything I've learned that has really mattered, I learned from the dying. Perspectives shift dramatically as death approaches. The day before you're given a terminal diagnosis, you take your life for granted. The day after, you wake up,” said Deborah Grassman, reading her book ‘Soul Injury.’ For over three decades as a VA hospice nurse practitioner, Deborah Grassman helped over 10,000 veterans take their final breath in peace. In those sacred moments, she began to see something they all carried. She calls it a “Soul Injury”, a wound that quietly haunts you. ... 

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In February, the smallest gestures of kindness can ...

02/02/26 at 03:00 AM

In February, the smallest gestures of kindness can melt the coldest of hearts. ~ Susan Elizabeth Phillips

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The Palliative Aged Care Outcomes Program (PACOP): establishing a national framework to improve palliative care in long-term care facilities for older people

02/02/26 at 03:00 AM

[Australia] The Palliative Aged Care Outcomes Program (PACOP): establishing a national framework to improve palliative care in long-term care facilities for older people BMC Geriatrics; by Johnson, C.E., Dai, Y., Bryce, L. et al; 1/31/26 Background: With an aging population worldwide, many countries face increasing challenges in delivering quality palliative care in long-term care facilities for older people (LTCFs). In Australia, a Royal Commission into Quality and safety of Aged Care in 2021 highlighted significant gaps in this field. In response, the Palliative Aged Care Outcomes Program (PACOP), a person-centred outcomes framework, was developed to address gaps in identification, assessment and management of palliative care needs in LTCFs.Conclusion: PACOP has achieved substantial uptake and early signs of successful implementation in Australian LTCFs. ...

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[United Kingdom] Winner's £25k hospice donation matched by lottery

02/01/26 at 03:55 AM

[United Kingdom] Winner's £25k hospice donation matched by lottery BBC News; by Rebecca Kenyon; 1/27/26 A lottery winner who donated £25,000 of her prize to a Kent hospice which cared for her late husband says she is "thrilled" her donation has been matched by the company which ran the draw. Linda Styles donated the money to the Heart of Kent Hospice in Aylesford in August after winning £250,000 in the People's Postcode Lottery. ... It costs £7.6m a year to provide services at the hospice but only 20% of that funding comes from the government. The hospices says this means it relies on voluntary donations for the other 80%.

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Husband with Parkinson's was admitted into at-home hospice program and has dramatically improved. Have others experienced this?

02/01/26 at 03:50 AM

Husband with Parkinson's was admitted into at-home hospice program and has dramatically improved. Have others experienced this? Aging Care; by Klwolf; 1/21/26 My DH has Parkinson’s that has been getting progressively worse for months. In early December we had him assessed for hospice and he was admitted. Since then, he’s improved dramatically. Has anyone else experienced dramatic improvement AFTER hospice enrollment? The hospice staff simply shrugs and says this sometimes happens and that we need to be prepared for him to revert back to his previous state. Editor's Note: Many clinicians have seen individuals improve after hospice enrollment, often due to better symptom control, reduced stress, or consistent interdisciplinary care. The concern here is not the improvement itself, but the hospice team’s reported response. A shrug can feel dismissive to families already living with uncertainty. How do we teach teams to communicate about improvement—honoring hope while preparing families with clarity, compassion, and trust?

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Many in Pacific Northwest delay end-of-life paperwork, expert says

02/01/26 at 03:45 AM

Many in Pacific Northwest delay end-of-life paperwork, expert says NonStop Local Tri-Cities/Yakima, WA; by NonStop Local; 1/21/26 Experts are saying the beginning of the year is a great time to break the silence around one of life's most important, yet most avoided conversations: our wishes for the end of life. Research reveals that only one in three people have completed necessary paperwork like advanced directives, according to Meagan Williams of Compassion and Choices. This national nonprofit focuses on end-of-life healthcare planning and options. 

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Defining palliative care quality in a tight reimbursement environment

02/01/26 at 03:40 AM

Defining palliative care quality in a tight reimbursement environment Hospice News; by Holly Vossel; 1/27/26 Palliative care delivery is undergoing an evolutionary period of change. These services are offered in several different ways across the country, which brings both benefits and challenges when it comes to defining quality in the space. Today’s palliative care providers are shaping the outlook of the field, but through diversified approaches, according to Brynn Bowman, CEO of Center to Advance Palliative Care (CAPC). The field is reaching a pivotal stage when it comes to supply and demand or resources, an issue that greater standardization could help to address, she indicated. 

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Sanofi Collective - Foundation S stands behind transformative children's palliative care project in Kenya

02/01/26 at 03:35 AM

Sanofi Collective - Foundation S stands behind transformative children's palliative care project in Kenya Global Treehouse Foundation; Press Release; 1/27/26 A significant grant from the Foundation S - the Sanofi Collective will enable a transformative three-year project delivering comprehensive grief and bereavement care to families affected by childhood cancer in Kenya. This is about more than funding: it’s about ensuring families are seen, supported and not left to navigate their most challenging moments alone. Foundation S’s investment is a significant milestone in integrating grief and social-emotional support into healthcare systems - an area too often overlooked, yet essential to the dignity and well-being of children and those who love them.

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Winter weekend storms: Off the grid United States power outage tracker

02/01/26 at 03:30 AM

Winter weekend storms: Off the grid United States power outage tracker USAToday.com; real-time data map; updated every 15 minutes  USA Today provides a real-time U.S. Power Outage Tracker that aggregates data from more than 1,000 utility companies nationwide. This interactive map updates automatically every 15 minutes, offering near–real-time visibility into outages as severe weather and blizzard conditions unfold. Editor's Note: Share, save, and bookmark this resource. Use it to stay ahead of power disruptions in your service areas. For leaders in affected or high-risk regions, final preparations today can reduce harm this weekend. Assess and review with your leaders and teams (especially newer employees): 

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Fighting hospice fraud an OIG priority

02/01/26 at 03:25 AM

Fighting hospice fraud an OIG priority Hospice News; by Jim Parker; 1/26/26 The U.S. Department of Health & Human Services (HHS) Office of the Inspector General (OIG) has identified hospice fraud among top management and performance challenges. This is according to an annual document that OIG prepares, a statutory requirement that is designed to help HHS improve the effectiveness and efficiency of its operations. A major challenge for HHS is the “sizable” reduction in workforce and a slew of program changes instituted by the Trump Administration, the report indicated. “Effectively managing a changing organizational and workforce environment is itself a significant management challenge,” OIG said in the report. 

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WHO statement on notification of withdrawal of the United States

02/01/26 at 03:20 AM

WHO statement on notification of withdrawal of the United States World Health Organization; 1/24/26 As a founding member of the World Health Organization (WHO), the United States of America has contributed significantly to many of WHO’s greatest achievements, including the eradication of smallpox, and progress against many other public health threats including polio, HIV, Ebola, influenza, tuberculosis, malaria, neglected tropical diseases, antimicrobial resistance, food safety and more.WHO therefore regrets the United States’ notification of withdrawal from WHO – a decision that makes both the United States and the world less safe. The notification of withdrawal raises issues that will be considered by the WHO Executive Board at its regular meeting starting on 2 February and by the World Health Assembly at its annual meeting in May 2026.

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Nonprofit donates $100,000 to UVA Health to establish endowment for pediatric palliative care

02/01/26 at 03:15 AM

Nonprofit donates $100,000 to UVA Health to establish endowment for pediatric palliative care WVIR 29 News, Charlottesville, VA; by Kate Neuchterlein; 1/23/26 The University of Virginia’s Children’s Hospital has received a $100,000 donation from Olivia’s Light, a nonprofit that supports children living with rare diseases and their families. Co-founders Jenna and Ben King named the nonprofit after their daughter, Olivia, who was hospitalized at UVA soon after her birth and diagnosed with a rare and fatal neurodevelopmental disorder. Olivia was sent home at two-and-a-half months old, where she passed away just seven weeks later. 

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‘Death Cafe’ will explore end-of-life issues, over refreshments

02/01/26 at 03:10 AM

‘Death Cafe’ will explore end-of-life issues, over refreshments OC Register, Orange County, CA; by Teri Sforza; 1/21/26 The Orange County Deathworkers Alliance wants to chat about your inevitable demise. Yes, members say, they’re a blast at parties! The Alliance is not a grief support group exactly, but a collection of caregivers, doulas, doctors, organizers and the like who help folks get a grip on the details attendant to their own mortality, and/or the mortality of loved ones. ... Death Cafés are a global movement, allowing people to discuss the oft-taboo thoughts and questions they have about the end of life. Organizers say the format encourages folks to share personal stories, explore their feelings and/or simply listen to other perspectives in a supportive atmosphere.

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Stroke survivors in DFW find new hope with Sovereign Hospice Home Care

02/01/26 at 03:05 AM

Stroke survivors in DFW find new hope with Sovereign Hospice Home Care Holliston Town News, Aubrey, TX; by Sovereign Hospice; 1/26/26 Stroke survivors and their families often encounter unexpected challenges ... Sovereign Hospice in Aubrey, Texas, addresses these complex needs through targeted palliative care programs designed specifically for post-stroke complications. ... Post-stroke pain affects approximately 30% of survivors, manifesting as headaches, muscle spasticity, or neuropathic sensations. Fatigue represents another common issue, with many patients reporting exhaustion after minimal activity. Depression occurs in roughly one-third of stroke survivors, creating additional barriers to recovery. 

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Sunday newsletters

02/01/26 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!

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Hard truth

02/01/26 at 03:00 AM

If you wait until you feel better to start living, you might be waiting forever. Go live your life. Do it sad. Do it anxious. Do it uncertain. Because healing doesn't always come before the experience. Sometimes, the experience is what heals you.

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Winter Storm: U.S. Power Outage Map & News Stories from You

02/01/26 at 03:00 AM

Dear Colleagues,

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