Literature Review
[Canada] Rethinking palliative care through three institutional ethnographic stories of people living with homelessness and life-limiting illness
12/13/25 at 03:05 AM[Canada] Rethinking palliative care through three institutional ethnographic stories of people living with homelessness and life-limiting illnessINQUIRY: The Journal of Health Care Organization, Provision, & Financing; by Courtney R. Petruik, Katrina Milaney; 11/25Fifteen to thirty percent of Canadians have access to palliative care, with even fewer access opportunities for people with experiences of homelessness. Part of a larger study, this paper examines how health and social systems shape the need for community-based palliative and end-of-life care, using 3 stories from clients of the Community Allied Mobile Palliative Partnership (CAMPP). Findings reveal systemic demands like renewing insurance for medical equipment, restrictive housing rules, and standardized hospital protocols that overwhelm capacities of many people with experiences of homelessness. Community-based palliative teams like CAMPP fill critical gaps in mainstream services by tailoring care to complex social realities.
Impact of prognostic notifications on inpatient advance care planning: A cluster randomized trial
12/13/25 at 03:00 AMImpact of prognostic notifications on inpatient advance care planning: A cluster randomized trialJournal of Pain and Symptom Management; by Jessica E Ma, Kayla W Kilpatrick, Clemontina A Davenport, Jonathan Walter, Yvonne Acker, Noppon Setji, Maren K Olsen, Mihir Patel, Michael Gao, Matthew Gardner, Jamie Gollon, Mark Sendak, Suresh Balu, David Casarett;12/25A poor prognosis is an important trigger for advance care planning (ACP) conversations, but clinicians often overestimate prognosis... A pragmatic cluster randomized trial... randomized attending physicians on the inpatient medicine team. An email and page notification was sent to physicians randomized to intervention group for admitted patients at high risk of 30-day and 6-month death based on a machine learning model. The notification recommended to have and document an ACP conversation in the electronic health record (EHR)... Patients of physicians randomized to the intervention group were more likely to have a documented ACP conversation by the randomized physician compared to the control group.
Saturday newsletters
12/13/25 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[UK] 'It’s like a weight lifted off your shoulders’: A qualitative study of adult carers taking a break
12/13/25 at 03:00 AM[UK] 'It’s like a weight lifted off your shoulders’: A qualitative study of adult carers taking a breakJournal of Family Issues; by Richard Meade, Debbie Cavers, Neneh Rowa-DewarView; 11/25Unpaid carers play a vital role in supporting individuals with life-limiting conditions, yet without adequate support, they risk poor health and burnout. Ten in-depth interviews were conducted with carers who had used temporary institutional respite services in Scotland. Six key themes emerged: ‘Caring is all-consuming’; ‘Caring changes sense of self’; ‘Relief, recovery, repair’; ‘Breaks give carers their lives back (briefly)’; ‘A break doesn’t solve everything’; and ‘Trust in the respite centre is crucial’. Findings indicate that institutional respite care provides overwhelmingly positive experiences for most carers, offering them essential relief and recovery from the demanding nature of caregiving. However, the benefits were often short-lived, with carers expressing a need for longer and more frequent breaks.
BREAKING NEWS: Illinois is newest state to allow medical assistance in dying after Pritzker signs bill
12/12/25 at 02:00 PMIllinois is newest state to allow medical assistance in dying after Pritzker signs bill CBS News, Chicago; by Sara Tenenbaum and Charlie De Mar; 12/12/25, 11:02 am CST Gov. JB Pritzker signed a new law Friday making Illinois the newest state allowing medically assisted dying in terminally ill residents. Known as "Deb's Lawn," allows eligible terminally ill adults with a prognosis to live six months or less to request a prescription from their doctor that would allow them to die on their own terms. The legislation was narrowly approve by the Illinois Senate in October after the Illinois House passed it in May. People on both sides of the debate over the controversial legislation lobbied the governor up until the last minute. Medical aid in dying, also called assisted suicide or dying with dignity, is already legal in 12 states. Eight more are considering similar legislation. Pritzker's signature makes Illinois the first state in the Midwest to allow medically assisted death.
Trinity Health’s COO on getting a PACE program up and running
12/12/25 at 03:00 AMTrinity Health’s COO on getting a PACE program up and running Modern Healthcare; by Diane Eastabrook; 12/11/25 Anne Lewis calls Programs of All-Inclusive Care for the Elderly one of the “best-kept secrets” to containing rising costs for health systems. As chief operating officer of Trinity Health PACE, Lewis is helping the nonprofit Catholic health system expand the federal-state program that is expensive to launch and can take a few years to turn a profit. The program provides home care, prescriptions, meals and transportation for mostly Medicare-Medicaid dual-eligible older adults who can receive nursing home-level care in their homes.
The ethical challenge of negative compassion: How excessive empathy in end-of-life care affects decision-making and patient autonomy
12/12/25 at 03:00 AMThe ethical challenge of negative compassion: How excessive empathy in end-of-life care affects decision-making and patient autonomy Journal of Hospice and Palliative Nursing; by Victoria Pérez-Rugosa, Gina Lladó-Jordan, Pablo de Lorena-Quintal, Esther Domínguez-Valdés, Antonia Rodríguez-Rodríguez, Carmen Sarabia-Cobo; 12/11/25 Online ahead of print ... 3 key themes emerged: decision paralysis and emotional overload, conflicts between personal beliefs and professional responsibilities, and institutional barriers to ethical practice. Findings reveal that excessive emotional involvement can hinder the implementation of patients' documented wishes, potentially compromising patient autonomy and increasing caregiver distress. The study highlights the need for institutional policies that support emotional resilience, structured debriefing, and ethics training. ... These insights are highly relevant for palliative nursing practice, offering guidance for supporting staff and upholding patient-centered care in end-of-life settings.
December: The month where you can say, ...
12/12/25 at 03:00 AMDecember: The month where you can say, ‘I’ll do it next year’ and actually mean it!
I asked 6 executives which books have shaped their leadership
12/12/25 at 03:00 AMI asked 6 executives which books have shaped their leadership Business Insider; by Ana Altchek; 12/3/25 Last month, I asked six executives from Big Tech companies like AWS, to financial firms like Mastercard, and style brands like Revlon and Mejuri, about the books that have influenced their leadership style. Their responses included management staples, like "Extreme Ownership: How US Navy Seals Lead," and books focused on soft skills, such as "Emotional Intelligence" or "Quiet."
Volunteers woven into the fabric of Horizon Hospice and Palliative Care
12/12/25 at 03:00 AMVolunteers woven into the fabric of Horizon Hospice and Palliative Care The Spokesman-Review, Spokane, WA; by Cindy Hval; 12/11/25 Ruth Wagley believes home is a profound place. The volunteer coordinator for Horizon Hospice and Palliative Care said her life experience has come full circle. “I had home births. I home-schooled my kids. Now, I work in a place where we value home death,” she said. “The heart of hospice is that no one dies alone, or in pain, and everyone can die at home.” Although she had managed volunteers throughout her career, she had never worked for a company where that type of service was essential to the funding and operation of the business. Medicare/Medicaid mandates that hospices provide at least 5% of patient care hours through volunteers. “Volunteers are woven into the fabric of Horizon Hospice,” she said.Editor's Note: Do you think of your hospice volunteers as being "woven into the fabric" of the services you provide, or as an add-on, an afterthought, just another regulatory requirement? Especially at the holidays, be sure to thank your volunteers in ways that are meaningful to them.
[United Kingdom] Oakhaven Hospice's Santa Dash raises more than £30,000
12/12/25 at 03:00 AM[United Kingdom] Oakhaven Hospice's Santa Dash raises more than £30,000Daily Echo, United Kingdom; by Deb Gayen; 2/9/25 More than 1,160 Santas braved the rain for this year's Oakhaven Santa Dash. The festive 3km fun run through Lymington's streets took place on Sunday, December 7. Oakhaven Hospice's fundraiser has already brought in more than £30,000, with more sponsorships still being added.
Solvay gets nearly 45K from Super One’s register round-up
12/12/25 at 03:00 AMSolvay gets nearly 45K from Super One’s register round-up Fox 21 Local News, Duluth, MN; by Jadie Jones; 12/10/25 Super One raised nearly 45 thousand dollars for Solvay Hospice House. These funds were raised during their recent register round up campaign where customers could choose to round up their change or donate more when checking out. This campaign was at 19 regional stores. Solvay has been a register roundup participant for 18 years now, raising more than 373 thousand in total.
5 leadership trends that could shape 2026
12/12/25 at 03:00 AM5 leadership trends that could shape 2026 Forbes; by Sally Percy; 12/8/25 ... [Given] the rapid pace of change, how should leaders prepare for the year ahead? Here are five key trends they should be aware of – leadership trends that could shape 2026:
Executive Personnel Changes - 12/12/25
12/12/25 at 03:00 AMExecutive Personnel Changes - 12/5/25
Award-winning documentary chronicles hospice nurse’s final 39 days
12/12/25 at 03:00 AMAward-winning documentary chronicles hospice nurse’s final 39 days Hospice Foundation of America (HFA) and TGBeyond, Washington, DC; Press Release; 12/1/25Hospice Foundation of America (HFA) and TGBeyond today announced the release of A Butterfly Has Been Released, an award-winning short documentary, alongside a new professional continuing education program, From Caregiver to Patient: Hospice Nurse Allyson’s Final 39 Days. Pre-purchase is available now, with formal release in January 2026. The 36-minute film follows Allyson, a hospice nurse with more than 20 years of experience guiding patients and families through death and grief, as she navigates her own final 39 days after a life-limiting diagnosis. Through candid kitchen-table conversations, a 150-person living funeral, and a natural green burial, Allyson demonstrates what she spent decades teaching others: live with purpose, presence, and connection until the very last day.Editor's Note: Is the concept of a "living funeral" new to you? I've seen this moving film several times, with a group discussion among healthcare professionals led by its producers Jason Zamer and Barry Koch. Click here for its 2-minute trailer.
Enhabit's strategic positioning and 2026 pricing outlook: Navigating regulatory headwinds with valuation resilience
12/12/25 at 02:00 AMEnhabit's strategic positioning and 2026 pricing outlook: Navigating regulatory headwinds with valuation resilienceAInvest; by Charles Hayes; 12/10/25 ... Conclusion: Enhabit's strategic initiatives-rooted in efficiency, innovation, and diversification-demonstrate a proactive approach to mitigating 2026's regulatory challenges. By reducing visit intensity, renegotiating payer contracts, and expanding hospice services, the company is positioning itself to maintain profitability even under a 6.4% Medicare cut. Its strong balance sheet and disciplined cost structure further reinforce valuation resilience.Editor's Note: Am I reading this correctly? Leading interventions are "reducing visit intensity" paired with "expanding hospice services"? I understand the importance of maintaining profitabilty. However, what is the core purpose? Examining Enhabit Hospice quality scores on the National Hospice Locator (data from CMS), the first 5 Enhabit hospices that populated had quality scores of 68/100, 60/100, 60/100, 58/100, and 41/100. The national average is 67/100. What kind of care would you want for your family member? For yourself?
Court approves Justice Department’s settlement in UnitedHealth Group and Amedisys merger
12/12/25 at 02:00 AMCourt approves Justice Department’s settlement in UnitedHealth Group and Amedisys merger Office of Public Affairs, U.S. Department of Justice; Press Release; 12/10/25 The settlement requires the largest divestiture of outpatient healthcare services to resolve a merger challenge (by number of facilities) and imposes a $1.1M civil penalty for false certification. The United States District Court for the District of Maryland today [12/10/25] entered the Final Judgment proposed by the Justice Department’s Antitrust Division, together with its state co-Plaintiffs, requiring broad divestitures to resolve Plaintiffs’ challenge to UnitedHealth Group Incorporated’s (UnitedHealth) $3.3 billion acquisition of Amedisys Inc. In addition, Amedisys must pay a $1.1 million civil penalty to the United States for falsely certifying that it had provided “true, correct, and complete” responses under the Hart-Scott-Rodino (HSR) Antitrust Improvements Act of 1976. ... The settlement requires UnitedHealth and Amedisys to divest at least 164 home health and hospice locations (including one affiliated palliative care facility) across 19 states, accounting for approximately $528 million in annual revenue.
Connecting communities across the globe: Atlas protocol
12/11/25 at 03:00 AMConnecting communities across the globe: Atlas protocol Palliative Care and Social Practice; by Rebecca Newell, Juan Esteban Correa-Morales, Vilma A Tripodoro, Steven Vanderstichelen, Ghauri Aggarwal, Samar Aoun, Erin Das, Farah Demachkieh, James Downar, Silvia Librada, Julieanne Hilbers, Julie Lapenskie, Emmanuel Luyirika, Saif Mohammed, Masanori Mori, Ekkapop Sittiwantana, Libby Sallnow; 12/4/25 ... Eighteen global experts contributed to developing and validating the survey, with 14 of 15 items meeting the Content Validity Index threshold. ... This protocol addresses a critical gap in Public Health Palliative Care literature by providing an inclusive and participatory method to map the compassionate community's landscape. The resulting data will promote visibility, partnerships and future research, supporting greater recognition of global compassionate communities and their contributions to primary palliative care.
Local business’ Round-up Drive raises $10,000 for Hospice of Santa Barbara
12/11/25 at 03:00 AMLocal business’ Round-up Drive raises $10,000 for Hospice of Santa Barbara Noozhawk; by Wavecomm for Hospice of Santa Barbara; 12/9/25 Hospice of Santa Barbara (HSB) has completed the October Round-Up Campaign, hosted by the Santa Barbara Home Improvement Center, raising $10,000 for HSB. Over the course of the 33-day campaign, customers were invited to round up their purchases at checkout or make an additional donation, directly benefiting Hospice of Santa Barbara’s services.
AARP: 55 percent of family caregivers use tech to coordinate care
12/11/25 at 03:00 AMAARP: 55 percent of family caregivers use tech to coordinate care McKnights Home Care; by Donna Shryer; 12/9/25 Technology adoption is surging on both sides of the caregiving equation. AARP estimates there are about 63 million unpaid caregivers nationwide, and among those caregivers age 50 and older, 55% now use one or more digital tools to manage routines, coordinate care or track health. Among all adults age 50+ (unpaid caregivers and care recipients), 78% say they rely on technology to stay connected with friends and family, according to AARP’s newly released 2026 Tech Trends and Adults 50-Plus report.
The goal for most people should not be to feel better, but ...
12/11/25 at 03:00 AMThe goal for most people should not be to feel better, but to get better at feeling. ~ Shannon L. Alder
Prison hospice: From the inmate hospice volunteers’ perspective – a “snapshot” by Barry R. Ashpole
12/11/25 at 03:00 AMPrison hospice: From the inmate hospice volunteers’ perspective – a “snapshot” by Barry R. Ashpole ehospice; by Barry R. Ashpole; 12/6/25 ... [In the words of a prison inmate]: "... When they brought in a hospice, it gave us an avenue to take care of each other. In order to get in here, they’re pretty sick. They’re dyin’. ... All you’re doin’ is makin’ their passing easier. We hold their hands. We pray. And we bathe ‘em. We feed ‘em, ... We take care of all the things that they need. And when that patient has a family, his family is allowed to come back in here to the hospice. When I started hospice, I thought it would be about what I can give to the patient, what I could do for that patient to make ‘em feel better. But when you do what you do, the feeling that you get back from them, you can’t even describe it."
Cadre Hospice welcomes Inspire Hospice & Palliative Care, advancing the vision for world-class end-of-life care
12/11/25 at 03:00 AMCadre Hospice welcomes Inspire Hospice & Palliative Care, advancing the vision for world-class end-of-life care PR.com, Nashville, TN; by Cadre Hospice; 12/9/25 Cadre Hospice announced today that Inspire Hospice & Palliative Care, a highly respected hospice provider serving Metro Atlanta and North Georgia, is joining the Cadre family. This alignment brings together two mission-driven organizations focused on world-class end-of-life care, trusted clinical leadership, and the belief that extraordinary care begins with extraordinary teams.
VITAS Hospice Services faces serious data breach investigation
12/11/25 at 03:00 AMVITAS Hospice Services faces serious data breach investigation Investors Hangout; by Evelyn Baker; 12/9/25 ... In a significant turn of events, VITAS Hospice Services, LLC, the largest for-profit hospice chain in the United States, is facing scrutiny due to a massive data breach. Recent investigations revealed that sensitive information of 319,177 patients was compromised, raising concerns over data security and patient privacy. As investigations continue, more details about the breach are emerging, prompting calls for accountability from the company.
Volunteer vocalist has provided solace to hospice patients for 23 years
12/11/25 at 03:00 AMVolunteer vocalist has provided solace to hospice patients for 23 years The Atlanta Journal-Constitution; by Danielle Charbonneau; Kevin Dunn has been a volunteer vocalist at Wellstar West Georgia Hospice in LaGrange for 23 years, providing solace to hospice patients and their families through his music. ... Dunn's voice has been a source of comfort for many, including Kitty Matthews Crawford, who experienced a moment of peace when her grandfather's face softened after hearing his voice. Dunn has sung at roughly 250 funerals and has never charged a fee for his services. His dedication to music and hospice care has made a significant impact on the lives of those he serves. [Access may be limited by paywall]
