Literature Review



Impact of prognostic notifications on inpatient advance care planning: A cluster randomized trial

12/21/25 at 03:55 AM

Impact of prognostic notifications on inpatient advance care planning: A cluster randomized trialJournal of Pain and Symptom Management; by Jessica E Ma, Kayla W Kilpatrick, Clemontina A Davenport, Jonathan Walter, Yvonne Acker, Noppon Setji, Maren K Olsen, Mihir Patel, Michael Gao, Matthew Gardner, Jamie Gollon, Mark Sendak, Suresh Balu, David Casarett;12/25A poor prognosis is an important trigger for advance care planning (ACP) conversations, but clinicians often overestimate prognosis... A pragmatic cluster randomized trial... randomized attending physicians on the inpatient medicine team. An email and page notification was sent to physicians randomized to intervention group for admitted patients at high risk of 30-day and 6-month death based on a machine learning model. The notification recommended to have and document an ACP conversation in the electronic health record (EHR)... Patients of physicians randomized to the intervention group were more likely to have a documented ACP conversation by the randomized physician compared to the control group.

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[Canada] Rethinking palliative care through three institutional ethnographic stories of people living with homelessness and life-limiting illness

12/21/25 at 03:50 AM

[Canada] Rethinking palliative care through three institutional ethnographic stories of people living with homelessness and life-limiting illnessINQUIRY: The Journal of Health Care Organization, Provision, & Financing; by Courtney R. Petruik, Katrina Milaney; 11/25Fifteen to thirty percent of Canadians have access to palliative care, with even fewer access opportunities for people with experiences of homelessness. Part of a larger study, this paper examines how health and social systems shape the need for community-based palliative and end-of-life care, using 3 stories from clients of the Community Allied Mobile Palliative Partnership (CAMPP). Findings reveal systemic demands like renewing insurance for medical equipment, restrictive housing rules, and standardized hospital protocols that overwhelm capacities of many people with experiences of homelessness. Community-based palliative teams like CAMPP fill critical gaps in mainstream services by tailoring care to complex social realities.

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[UK] 'It’s like a weight lifted off your shoulders’: A qualitative study of adult carers taking a break

12/21/25 at 03:45 AM

[UK] 'It’s like a weight lifted off your shoulders’: A qualitative study of adult carers taking a breakJournal of Family Issues; by Richard Meade, Debbie Cavers, Neneh Rowa-DewarView; 11/25Unpaid carers play a vital role in supporting individuals with life-limiting conditions, yet without adequate support, they risk poor health and burnout. Ten in-depth interviews were conducted with carers who had used temporary institutional respite services in Scotland. Six key themes emerged: ‘Caring is all-consuming’; ‘Caring changes sense of self’; ‘Relief, recovery, repair’; ‘Breaks give carers their lives back (briefly)’; ‘A break doesn’t solve everything’; and ‘Trust in the respite centre is crucial’. Findings indicate that institutional respite care provides overwhelmingly positive experiences for most carers, offering them essential relief and recovery from the demanding nature of caregiving. However, the benefits were often short-lived, with carers expressing a need for longer and more frequent breaks.

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Enhancing palliative care communication in trauma and surgical ICU settings: A systematic review

12/21/25 at 03:40 AM

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Bereavement service deserts: A 2024 statewide assessment of bereavement services

12/21/25 at 03:35 AM

Bereavement service deserts: A 2024 statewide assessment of  bereavement services Death Studies, open access; by Christopher W. Giang, Luisa Kcomt, Joshua Truchan, Kara Dickinson, Rebecca J. Evans-Polce & Sean Esteban McCabe; 12/5/25... This paper introduces the term “bereavement service desert” to describe geographic areas with high mortality and little to no access to bereavement services. Bereavement services deserts are especially concerning where elevated death rates are met with an absence of formal grief supports, trained providers, or community-based resources. As these trends in death have continued to rise over the last decade, the social and economic costs of unresolved grief are becoming more apparent in families, schools, com munities, workplaces, and healthcare systems. ...Editor's Note: Though this research focuses on bereavement agencies across Michigan's 83 counties, its methodologies and outcomes provide data, references, and insights relevant to examining bereavement care in all U.S. states. What are the "bereavement service deserts" in the your state(s)? In the areas you serve?

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The hard questions behind medically assisted suicide

12/21/25 at 03:30 AM

The hard questions behind medically assisted suicide PJ Media; by David Manney; 12/13/25 Before we start, I need you to know that I'm not advocating for medically assisted suicide (MAS). I do believe that I grasp why some people, in rare and specific circumstances, view it as a deeply personal choice. That belief comes not from emotion, but from watching the hardest years of suffering and listening to families stare at a future without mercy. As more states pass laws, including Illinois, which recently became the twelfth state to legalize medical aid in dying for terminally ill patients with strict criteria, the debate has grown far beyond politics, and into the core of how we treat the most vulnerable among us. ...Editor's Note: Terminology can itself signal polarized positions. In the enacted Illinois statute known as “Deb’s Law,” the formal statutory term is neither “medical aid in dying” nor “medically assisted suicide,” but “aid in dying medication” under the End of Life Options for Terminally Ill Patients Act.

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A legacy of care: How Good Shepherd has served Newton for nearly 50 years

12/21/25 at 03:25 AM

A legacy of care: How Good Shepherd has served Newton for nearly 50 yearsFig City News, Newton, MA; by Parker Maslowski; 12/15/25 … The story of Good Shepherd began, fittingly, with an act of compassion that crossed an ocean. In the late 1970s, members of the Parish of the Good Shepherd learned about the revolutionary hospice movement emerging in England. … A group of parishioners believed Newton needed something similar. … Newton-Wellesley Hospital donated office space in the Ellison Building. The small program assembled a core team of nurses, a physician, social workers, and volunteers who provided direct patient support, administrative help, and fundraising. And the Hospice of the Good Shepherd opened its doors in the fall of 1979 – the first hospice in Massachusetts. 

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[Asia] Bridging paediatric palliative care across Asia

12/21/25 at 03:20 AM

[Asia] Bridging paediatric palliative care across Asia ehospice; 12/16/25 Global Treehouse and Asia Pacific Hospice Palliative Care Network (APHN) partnered together for dramatic expansion of the Magnify Tool to make impacts for children’s palliative care providers during 2025. We culminated our work together at the International Children’s Palliative Care Network (ICPCN) conference in Manila, Philippines. Co-hosted by our organisations, we presented about the power of using the Magnify Tool, a resource designed for and by providers to use their own data to improve the quality of care they offer to children and families with palliative care needs. 

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The future of the hospice physician: HOPE, staffing & technology

12/21/25 at 03:15 AM

The future of the hospice physician: HOPE, staffing & technology Maxwell TEC; podcast by Tom Maxwell with Dr. Andrew Mayo and Dr. Tiffany Richter; 12/15/25... In this episode, Tom sits down with two of the most respected clinical leaders in the country: Dr. Andrew Mayo (Chief Medical Officer, St. Croix Hospice) and Dr. Tiffany Richter (Chief Medical Officer, Agape Care Group). They break down the debate between full-time vs. contracted physicians, the "hybrid" model that is winning, and the heartbreaking regulatory gaps preventing dialysis patients from accessing hospice care. Plus, they share deeply personal stories that remind us why we do this work. 

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Executive Personnel Changes - 12/5/25

12/21/25 at 03:10 AM

Executive Personnel Changes - 12/5/25

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Illinois is newest state to allow medical assistance in dying after Pritzker signs bill

12/21/25 at 03:05 AM

Illinois is newest state to allow medical assistance in dying after Pritzker signs billCBS News, Chicago; by Sara Tenenbaum and Charlie De Mar; 12/12/25, 11:02 am CST Gov. JB Pritzker signed a new law Friday making Illinois the newest state allowing medically assisted dying in terminally ill residents. Known as "Deb's Lawn," allows eligible terminally ill adults with a prognosis to live six months or less to request a prescription from their doctor that would allow them to die on their own terms. The legislation was narrowly approve by the Illinois Senate in October after the Illinois House passed it in May. People on both sides of the debate over the controversial legislation lobbied the governor up until the last minute. Medical aid in dying, also called assisted suicide or dying with dignity, is already legal in 12 states. Eight more are considering similar legislation. Pritzker's signature makes Illinois the first state in the Midwest to allow medically assisted death.Click here for Governor Pritzker's press release; click here for the text of SB1950.

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Blessed is the season...

12/21/25 at 03:00 AM

Blessed is the season which engages the whole world in a conspiracy of love. ~Hamilton Wright Mabie

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Sunday newsletters

12/21/25 at 03:00 AM

Sunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!   Also, remember our Job Board to find staff for the new year!

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David J. Jones appointed CEO of Sacred Heart, parent of Faith and Freudenthal Home Health & Hospice

12/21/25 at 03:00 AM

David J. Jones appointed CEO of Sacred Heart, parent of Faith and Freudenthal Home Health & Hospice EIN Presswire; by Creach Family Holdings; 12/16/25 Sacred Heart, the parent organization of Faith Home Health & Hospice and Freudenthal Home Health & Hospice, is proud to announce the appointment of David J. Jones as its new Chief Executive Officer. David brings more than 22 years of experience in home health, hospice, and therapy services to the role.

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Today's Encouragement

12/20/25 at 03:55 AM

A holiday gives one a chance to look backward and forward, to reset oneself by an inner compass.  ~May Sarton

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When the nurse becomes the daughter: Lessons from my father's final days

12/20/25 at 03:45 AM

When the nurse becomes the daughter: Lessons from my father's final daysAmerican Journal of Hospice & Palliative Care; by Keshia R Brown; 11/25Military service demands sacrifice, but no professional challenge prepared me for the deeply personal experience of caring for my father at the end of his life. This experience transformed my understanding of nursing by revealing the profound impact of presence, love, and dignity-centered care. Caring for my father illuminated the intersection of professional skill and personal devotion, demonstrating that the heart of nursing extends beyond clinical interventions. It resides in honoring the whole person and offering unwavering compassion in their most vulnerable moments. This narrative reflects on the emotional, ethical, and spiritual lessons learned as I walked my father through his final chapter-an unexpected gift and the greatest honor of my nursing career.

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Software as a medical practitioner—Is it time to license artificial intelligence?

12/20/25 at 03:40 AM

Software as a medical practitioner—Is it time to license artificial intelligence?JAMA Internal Medicine; by Eric Bressman, Carmel Shachar, Ariel D. Stern, Ateev Mehrotra; 11/25The Healthy Technology Act of 2025, a bill being considered by Congress, would permit artificial intelligence (AI) systems to prescribe medications without human sign-off. While allowing AI to practice independently may still be a stretch, large language models are already being used to support diagnosis and treatment. These applications challenge the current regulatory framework for clinical AI, which has focused on software as a medical device (SaMD). The US Food and Drug Administration (FDA) has cleared more than 1000 AI tools using this framework, mostly for narrow, well-defined tasks. However, generative models can be applied across domains, straining the SaMD framework. In this Viewpoint, we explore the application of a licensure paradigm to clinical AI systems, arguing that this offers a more reliable regulatory framework.

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How could legal standards promote equitable access to EHRs?

12/20/25 at 03:35 AM

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Navigating loss: An in-depth exploration of grief and spiritual resilience in Hispanic and Latino cultures

12/20/25 at 03:30 AM

Navigating loss: An in-depth exploration of grief and spiritual resilience in Hispanic and Latino culturesUrban Social Work; by Angelica Olivo; 11/25This was a phenomenological study that highlighted how culture, spirituality, and coping mechanisms influenced Hispanic and Latino community grief.  ... [The study] identified themes on death beliefs, traditional grieving practices, cultural taboos, family roles, and religious faith, providing rich data on cultural and spiritual factors in grief. The themes that emerged from the analysis were related to death beliefs, traditional grieving practices, cultural taboos, family roles, and religious faith. Findings supported a second line of evidence that diverse subgroups and the longitudinal grief experience may better inform understandings of, and improve cultural competency in, bereavement support.

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Staying connected: A longitudinal, multisite, interprofessional rural fellowship collaboration

12/20/25 at 03:25 AM

Staying connected: A longitudinal, multisite, interprofessional rural fellowship collaborationJournal of Pain & Symptom Management; by Rhianon R. Liu, Rebecca N. Hutchinson, Stephen H. Berns, Nastasha Stitham, Jackie Fournier, John W. Wax MD , Lisa A. Stephens, Jonathan S. Jolin, Maxwell T. Vergo; 11/25Four interprofessional Hospice and Palliative Medicine (HPM) fellowship programs in rural northern New England states created an in-person educational retreat series. The goal of the series was to maximize shared educational resources and foster community amongst faculty and fellows, in an upstream attempt to improve recruitment/retention of clinicians in three rural states with inadequate access to specialty palliative care. At least 88% of fellows rated the retreats effective in strengthening their clinical, communication, teamwork, and leadership skills. Over four-fifths of faculty and fellows felt the retreats increased their sense of belonging and decreased professional isolation. The retreats were a top factor influencing fellowship choice for 29% of fellows, as well as a major incentive to remain practicing in the region for 32% of faculty.

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Home Health Aides caring for adults with heart failure-A pilot randomized clinical trial

12/20/25 at 03:20 AM

Home Health Aides caring for adults with heart failure-A pilot randomized clinical trialJAMA Network Open; by Madeline R. Sterling, Cisco G. Espinosa, Sasha Vergez, Margaret V. McDonald, Joanna Ringel, Jonathan N. Tobin, Samprit Banerjee, Nicola Dell, Lisa M. Kern, Monika M. Safford; 11/25Objective: To examine the effectiveness of an education- and communication-based intervention among HHAs caring for patients with HF.  In this pilot randomized clinical trial including 102 agency-employed HHAs randomized to training alone or in addition to an application that allowed HHAs to exchange text messages with nurse supervisors, training improved HHAs’ HF knowledge and HF caregiving self-efficacy. The addition of the application did not improve these primary outcomes, but it significantly reduced HHAs’ self-reported preventable 911 calls, a secondary outcome.

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Self-efficacy change among diverse family caregivers in dementia care

12/20/25 at 03:15 AM

Self-efficacy change among diverse family caregivers in dementia care The Journals of Gerontology Series B; by Deborah M Oyeyemi, Erich J Greene, Yunshan Xu, David R Lee, Rafael Samper-Ternent, Maya L Lichtenstein, Alan Stevens, Jeff D Williamson, Arun S Karlamangla, Debra Saliba, David B Reuben; 11/25Objectives: to determine whether changes in caregiver self-efficacy (beliefs about one’s ability to manage dementia-related problems and access help) differed by caregiver race and ethnicity across all participants enrolled in a large pragmatic trial of comprehensive dementia care. Black, Latino, and White dementia caregivers reported similar improvements in caregiver self-efficacy after participating in a comprehensive dementia care trial. Caregiver self-efficacy change did not differ significantly by caregiver race and ethnicity. Personalized aspects of comprehensive dementia care appear to address the needs of diverse caregiver populations.

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Interdisciplinary training to enhance home health clinician knowledge of palliative care: Findings from the PIVOT pilot study

12/20/25 at 03:10 AM

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Palliative care specialist use among Medicare decedents who had poor-prognosis cancers

12/20/25 at 03:05 AM

Palliative care specialist use among Medicare decedents who had poor-prognosis cancersJAMA Network; by Isaac S. Chua, Haiden A. Huskamp, Ateev Mehrotra, Andrew D. Wilcock; 7/25Has specialty palliative care (PC) use among Medicare decedents who had cancers with poor prognoses changed in the context of greater telehealth use and more advanced practice clinicians in the field? In this cohort study..., the proportion with specialty PC use increased 24% from 2018 to 2023 [from 30% to 37%], largely driven by outpatient encounters and care by advanced practice clinicians. Decedents who were older, had lower incomes, and were living in nonmetropolitan areas remained less likely to receive any PC... These findings suggest that different strategies are needed to increase PC use among some disadvantaged subpopulations.Publisher's Note: Similar to Hua's article (Validation of a claims-based algorithm for specialist palliative care delivery in metastatic cancer), palliative care specialists were defined as those with NPI provider specialty code 17 or those who  included an ICD-10 Z51.5 code on at least 80% of their evaluation and management encounters.

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[South Korea] Factors influencing burnout among hospice and palliative care ward nurses

12/20/25 at 03:05 AM

[South Korea] Factors influencing burnout among hospice and palliative care ward nursesJournal of Hospice & Palliative Nursing; by Young-Mi Kim, Chieun Song, Jeoungmin Park; 11/25This study aimed to identify the factors influencing burnout among nurses in hospice and palliative care units. This descriptive correlational study investigated the effects of nursing practice environment, resilience, and nurses' character on burnout among hospice and palliative care ward nurses. The participants were 217 nurses working in hospice wards of 20 institutions selected from the 88 inpatient hospice and palliative care institutions designated by the Ministry of Health and Welfare in South Korea, as of 2021. The results showed that a better nursing practice environment and higher resilience were positively associated with lower burnout. Among hospice and palliative care nurses, being in their 30s and having fewer than 5 years of total clinical experience were associated with higher burnout.

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