Literature Review
Today's Encouragement
03/21/26 at 03:00 AMI'm not afraid of death; I just don't want to be there when it happens. ~Woody Allen
The ASCENT Consortium: A new resource to support palliative care science across the lifespan
03/21/26 at 03:00 AMThe ASCENT Consortium: A new resource to support palliative care science across the lifespanJournal of Pain and Symptom Management; by Jean S Kutner, Melissa D Aldridge, Abraham A Brody, Chris Feudtner, Kimberly Johnson, Stacy M Fischer, Susan Lysaght Hurley, Alexis Bakos, Elena M Fazio, Karen A Kehl, Sandra A Mitchell, Elizabeth A Necka, Brennan Parmelee Streck, Chandra Keller; 2/26The ASCENT Consortium was funded by the National Institutes of Health (NIH) in August 2025 with the goal of advancing palliative care (PC) research, evidence, implementation and practice to improve care of persons with serious illness and those who care for them across the lifespan. ASCENT aims to: (1) Develop and coordinate the national scientific infrastructure and community needed to advance PC research... (2) Generate new PC research knowledge and methodologies... (3) Foster career development and impact of the PC scientist workforce by funding career development and pilot and exploratory awards... (4) Disseminate PC research findings and facilitate subsequent implementation via a multi-pronged approach...
Saturday newsletters
03/21/26 at 03:00 AMSaturday newsletters focus on headlines and research - enjoy!
[Canada] Cultural safety in practice: Providing quality health care for First Nations, Inuit, and Métis children and youth Free
03/21/26 at 03:00 AM[Canada] Cultural safety in practice: Providing quality health care for First Nations, Inuit, and Métis children and youth FreePaediatrics & Child Health; by Emilie Beaulieu, Sara Citron, Ryan Giroux, Cheyenne Laforme, Amber Miners, Brett Schrewe, Elizabeth Sellers; 2/26In Canada, cultural safety in health care has emerged in response to the racism and systemic discrimination that Indigenous peoples often face when accessing care. Grounded in cultural humility, antiracism, and trauma-informed care, cultural safety aims to ensure that Indigenous children and youth receive equitable, quality care. Paediatric health care providers can pursue building a culturally safe practice by applying the ‘learn, self-reflect, and act’ framework. They should also consider the home environment, language, and cultural heritage of each child, youth, and family seen in practice, alongside the barriers to and facilitators of healthy living that Indigenous children and youth experience in Canada. Being mindful of health care system policies and practices—and how they affect patient care both locally and historically—is an important step toward offering culturally safe care in any practice setting.
Centering end-of-life care around what matters most: Goal-of-care discussions drive earlier hospice access
03/20/26 at 03:00 AMCentering end-of-life care around what matters most: Goal-of-care discussions drive earlier hospice access Cleveland Clinic; features Laura Hoeksema, MD, MPH, FAAHPM; 3/10/26 Hospice experts help those with incurable disease maintain autonomy, reduce trauma and gain symptom relief. Yet studies show that the median length of stay in hospice before death is roughly 19 days. What can care teams do to ensure that patients and their families have access to this appropriate end-of-life care? As the Medical Director of Cleveland Clinic Hospice, Laura Hoeksema, MD, MPH, FAAHPM, and her team support physicians and patients in navigating this journey. ...
Palliative care in rural, remote, and northern communities: a scoping review
03/20/26 at 03:00 AMPalliative care in rural, remote, and northern communities: a scoping review BMC Palliative Care | Springer Nature; by Natasha Magyar, Katherine Kortes-Miller & Lynn Martin; 3/19/26 ... This scoping review provides an analysis of the current literature addressing palliative care in rural, remote and Northern regions globally and identifies themes in existing literature to determine areas of need for future research. ... Identified barriers include travel and cost of accessing care, policy issues, lack of communication, lack of knowledge/education. On the other hand, the identified facilitators include collaboration, advanced care planning, specialized education and training of care partners, utilization of telemedicine, and the use of volunteers.
Lanterns shine light on spiritual, financial help Fort Worth nonprofit gives to terminally ill
03/20/26 at 03:00 AMLanterns shine light on spiritual, financial help Fort Worth nonprofit gives to terminally ill FWR - Fort Worth Report, Fort Worth, TX; by Marissa Greene; 2/16/26 Nestled within a grove of trees, more than 300 lanterns twinkled around the perimeter of the Keith House on a recent evening in the Clearfork neighborhood. The pulsing glow of the tealight candle inside each white paper bag illuminated a first name and last initial inscribed into the front of the lantern. Each name represented a patient served by Project 4031, a faith-based nonprofit aiming to provide peace and comfort to terminally ill children, adults and families facing end-of-life challenges by easing financial burdens and fulfilling last wishes.
Bayada offers scholarship program to address nursing shortage
03/20/26 at 03:00 AMBayada offers scholarship program to address nursing shortage Williamsport Sun-Gazette; by Matthew Corter; 3/17/26 In the wake of the COVID-19 pandemic, many industries experienced a shrinking workforce, and one of those hardest hit by the trend was the healthcare field. ... One of the biggest gaps currently is in home health aides. ... To face the shortage head on, Bayada has recently increased investment in its workforce and career development, including a scholarship program called Advance Through Nursing, which helps home health aides overcome financial and educational barriers on their path to becoming licensed practical nurses (LPNs) and registered nurses (RNs).
Scotland rejects assisted dying at final stage: MSPs cite coercion fears and palliative care gaps in decision
03/20/26 at 03:00 AMScotland rejects assisted dying at final stage: MSPs cite coercion fears and palliative care gaps in decision Newser; by Arden Dier; 3/18/26 Scotland has just turned down a chance to become the first part of the UK to allow assisted dying despite widespread support among the public. After five debate sessions and a rare Friday sitting, members of the Scottish Parliament rejected the Assisted Dying for Terminally Ill Adults (Scotland) Bill late Tuesday by 69 votes to 57, ... The free vote cut across party lines, ... Opponents repeatedly warned of coercion ... and arguing efforts should instead focus on better end-of-life care. Supporters ... shared personal stories of family members' suffering, insisted robust protections—including doctor checks to determine whether a person was being coerced—were built in.Editor's Note: Scotland's debate resonates with those throughout the U.S. and other countries. I invite you to revisit a "most read" article from our newsletters, "PositivelyJAX Award: The purple bench of Compassionate St. Augustine." Pair these with Daniel Goleman's "cognitive empathy," for which you might not agree--or feel it the same as another--but you do seek to learn and understand the other person's perspective.
A greener afterlife: Local cemetery champions natural burial
03/20/26 at 03:00 AMA greener afterlife: Local cemetery champions natural burial PBS - WUFT, Gainesville, FL; by Alexis Vivanco; 3/17/26 A wicker-woven casket emerged from a funeral hearse earlier this month at the Prairie Creek Conservation Cemetery for what would be the final resting place of Barbara Finley James. The coffin, modest and held together by various plant materials, was placed on a wooden cart. ... Members of several generations of the James family approached the casket, and placed hands on the various handles attached throughout. With a silent signal, the family began the march through the inclining dirt path to their loved one’s burial site. ... Natural burials, also known as green burials, are an alternate form of end-of-life care that champion cleaner funeral practices. The three characteristics that distinguish a natural burial are no embalming, no vaults, and all burial containers used must be biodegradable.
The deep roots never doubt ...
03/20/26 at 03:00 AMThe deep roots never doubt Spring will come. ~ Marty RubinGoodbye, Winter. Welcome, Spring!
What is the quality of care at the end of life? Qualitative findings from a nationally-representative post-bereavement survey across England and Wales
03/20/26 at 03:00 AMWhat is the quality of care at the end of life? Qualitative findings from a nationally-representative post-bereavement survey across England and Wales Journal of Health Services Research & Policy | University of Cambridge; by Joanna Goodrich Sophie Pask, Chukwuebuka Okwuosa, Therese Johansson, Lynn Laidlaw, Cara Ghiglieri, Rachel Chambers, Anna E. Bone, Stephen Barclay, Fliss E. M. Murtagh, Katherine E. Sleeman; 3/13/26 ... Our aim in this study was to explore the quality of end-of-life care in England and Wales using the experiences of bereaved family carers, and to develop person-centred quality of care domains for end-of-life care. ... Six themes were identified in relation to the quality of care for those with advanced illness and their family carers.
“We make our own families”: Do child-free people die alone? Hospice worker shares her experience
03/20/26 at 03:00 AM“We make our own families”: Do child-free people die alone? Hospice worker shares her experience Daily Dot; by Rebecca Leib; 3/18/26 According to a longtime hospice worker, being child-free doesn't affect end-of-life care, but having strong community ties does. The decision to have children is a deeply personal one, fraught with societal pressures and fears. One common fear is that a childless person might die alone. Recently, however, child-free advocate @wearechildfree shared a video dispelling that fear. Whether someone has kids or doesn't, she says, meaningful end-of-life care is not about children specifically, but the result of cultivating a close and loving community.
Executive Personnel Changes - 3/20/26
03/20/26 at 03:00 AMExecutive Personnel Changes - 3/20/26
Ahead of National Volunteer Month, NPHI calls on Americans to become hospice volunteers and strengthen human connection
03/20/26 at 02:00 AMAhead of National Volunteer Month, NPHI calls on Americans to become hospice volunteers and strengthen human connection National Partnership for Healthcare and Hospice Innovation (NPHI), Washington, DC; Press Release; 3/19/26 As more Americans look for ways to build connection and find purpose in their communities, the National Partnership for Healthcare and Hospice Innovation is encouraging individuals to consider volunteering with their local hospice during National Volunteer Month this April. Across the country, nearly 30,000 volunteers already serve alongside professional care teams within NPHI's network of more than 125 nonprofit providers, bringing comfort, presence, and human connection to patients and families facing serious illness while also experiencing the personal benefits of giving back.
MedPAC debates hospice payment updates via outlier, add-on payments
03/19/26 at 03:00 AMMedPAC debates hospice payment updates via outlier, add-on payments Inside Health Policy; by Sigi Ris; 3/17/26 When it comes to addressing hospice provider’s high-cost treatments for patients with end-stage renal disease or cancer, Congress’ Medicare advisors seemed to support updating the hospice payment system with outlier payments rather than an add-on payment and commissioners debated the merits of creating a transitional care model for those patients that would reduce barriers to these support services. [Full access requires subscription, with option for 30 days free access.]
[Spain] Queen Letizia supports universal access to palliative care
03/19/26 at 03:00 AM[Spain] Queen Letizia supports universal access to palliative care Aragon Health Research Institute | Biomedical Research Center; Press Release; 3/16/26 Her Majesty Queen Letizia received a delegation from the Spanish Society of Palliative Care (SECPAL) with representatives from all essential professional profiles in palliative care. During the meeting, they conveyed to Queen Letizia the current situation of palliative care in Spain as well as the important challenges that persist ... Queen Letizia showed her sensitivity and commitment towards ... those facing advanced illnesses or who are at the end of their lives, and conveyed to SECPAL her support for initiatives aimed at strengthening the development of palliative care in Spain. ... Faced with this reality, SECPAL handed the queen over a decalogue [ten-point plan] which outlines the priorities for the development of palliative care in our country, such as ensuring that there are sufficient resources and appropriately trained teams at all levels of care.
Diagnosed with pancreatic cancer: Now what?
03/19/26 at 03:00 AMDiagnosed with pancreatic cancer: Now what? University of Michigan Health | Michigan Medicine; by Nicole Fawcett; 3/17/26 Pancreatic cancer remains one of the deadliest of the major cancers, with a five-year survival rate of only 13%. It's a complex and stealthy disease that is often difficult to treat and can be scary for patients and their family. ... “As research advances our understanding of pancreatic cancer, we’re doing better at taking care of patients. ...” said Evan Glazer, M.D., Ph.D., Clinical Director of the Pancreatic Cancer Program at University of Michigan Health and Associate Director of Clinical Research in the Rogel and Blondy Center for Pancreatic Cancer. ...
What the BrightSpring-Sevita deal means for large health care transactions
03/19/26 at 03:00 AMWhat the BrightSpring-Sevita deal means for large health care transactions Hospice News; by Jim Parker; 3/13/26 Though not a hospice transaction, the trajectory of BrightSpring Health Services’ (Nasdaq: BTSG) divestiture of its ResCare community living business could signal changes in the way the federal government approaches large health care deals. BrightSpring in January 2025 entered into a definitive agreement to sell ResCare Community Living to Sevita, a provider of home and community-based specialty health care, for $835 million in cash consideration. Closure of the transaction was delayed by a Federal Trade Commission (FTC) anti-trust complaint. The FTC later cleared the deal after reaching an agreement with Sevita, which required the company to sell 126 intermediate care facilities to reduce any anti-competitive impact of the acquisition. ...
Hospice CARE Act reintroduced
03/19/26 at 03:00 AMHospice CARE Act reintroduced Hospice News; Jim Parker; 3/18/26 Rep. Linda T. Sánchez (D-Calif.) and Sen. Mark Warner (D-Va.) have re-introduced the Hospice Care Accountability, Reform, and Enforcement (Hospice CARE) Act, designed to modernize the Medicare Hospice Benefit, fight fraud and expand access to care. The bill contains a blend of program integrity provisions and payment reforms intended to “strengthen” the benefit, according to the lawmakers. The bill would establish new safeguards to prevent fraudulent providers from enrolling in Medicare and bolster federal oversight of hospices. It would also change payment structures to incentivize high-quality care.
May the best, most random "I don't watch basketball much" ...
03/19/26 at 03:00 AMMay the best, most random "I don't watch basketball much" bracket win your office pool.
Addus HomeCare details 2026 priorities as Medicaid redeterminations ease at KeyBanc Forum
03/19/26 at 03:00 AMAddus HomeCare details 2026 priorities as Medicaid redeterminations ease at KeyBanc Forum Transcript Daily; by Lauren Steadman; 3/17/26 ... 2025 focus areas: hospice improvements and personal care growth mix CEO Dirk Allison said a major internal focus early in 2025 was rebuilding performance in the company’s hospice segment. He said Addus made investments beginning in October of the prior year, including leadership changes as well as sales and marketing training, with the goal of returning the hospice business to pre-pandemic performance. Allison said the company saw “really good progress” during 2025 and is encouraged heading into 2026.
