Literature Review
When the nurse becomes the daughter: Lessons from my father's final days
12/28/25 at 03:50 AMWhen the nurse becomes the daughter: Lessons from my father's final daysAmerican Journal of Hospice & Palliative Care; by Keshia R Brown; 11/25Military service demands sacrifice, but no professional challenge prepared me for the deeply personal experience of caring for my father at the end of his life. This experience transformed my understanding of nursing by revealing the profound impact of presence, love, and dignity-centered care. Caring for my father illuminated the intersection of professional skill and personal devotion, demonstrating that the heart of nursing extends beyond clinical interventions. It resides in honoring the whole person and offering unwavering compassion in their most vulnerable moments. This narrative reflects on the emotional, ethical, and spiritual lessons learned as I walked my father through his final chapter-an unexpected gift and the greatest honor of my nursing career.
Interdisciplinary training to enhance home health clinician knowledge of palliative care: Findings from the PIVOT pilot study
12/28/25 at 03:45 AMIs moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life
12/28/25 at 03:40 AMIs moral adequacy possible in the face of structural disadvantage? The experiences of health and social care staff in supporting homeless people using substances at the end of life Palliative Care and Social Practice; by Gary Witham https, Gemma Anne Yarwood, Sarah Galvani, Lucy Webb, and Sam Wright; 11/26/25 Background: Homeless people using substances at the end-of-life face many challenges in accessing and receiving good care. These can relate to poor interdisciplinary working by health and social care practitioners, stigma and structural disadvantage.Results: The data analysis resulted in three key discourse positions relating to how practitioners position themselves in relation to the practice challenges of supporting homeless people using AODs and approaching end of life. These were as follows: (i) what constitutes a good death and where, (ii) the limitations of professional boundaries and (iii) maintaining moral adequacy in the face of traumatic death.
Artificial Intelligence at CMS
12/28/25 at 03:35 AMArtificial Intelligence at CMSCMS webpage; 12/19/25At CMS, Artificial Intelligence (AI) has the power to reshape the way we use data to make decisions. Given CMS' vast data resources, we have an unprecedented opportunity to drive innovation, boost productivity, and enhance service delivery through AI. This website conveys CMS' resolve to strategically leverage AI in alignment with Federal and agency values.
Top healthcare sectors attracting private equity in 2025
12/28/25 at 03:30 AMTop healthcare sectors attracting private equity in 2025 Covenant Health Advisors; 12/18/25 ... If you’ve ever wondered how private equity shapes the healthcare world, stick around. We’ll break it down in simple terms, so it’s easy to follow. ...
Palliative care staff attitudes toward music therapy for hospitalized adult patients
12/28/25 at 03:25 AMPalliative care staff attitudes toward music therapy for hospitalized adult patients American Journal of Hospice and Palliative Medicine (AJHPM); by Katherine A. Carney, APRN, CNP, MS, Rachel M. Wiste, APRN, CNP, MSN, Susanne M. Cutshall, APRN, CNS, DNP, MS, Christina Wood, MA, MT-BC, Rachel C. Gentes, APRN, CNP, MSN, Brianna E. Larsen, MA, MT-BC, Nana A. Tiwaa, MAS, Amelia E. Tetlie, APRN, CNP, DNP, and Regina M. Mackey, MD; 12/18/25 ... Top reasons for music therapy (MT) referral were psychosocial support, pain and symptom management, and coping. The most common symptom-focused indications were anxiety, mood, and existential distress. A variety of factors influenced decisions to refer for MT. Most felt that at least half of their patients could benefit from MT, and nearly all rated MT as “extremely” or “very” effective for improving patients’ quality of life.Editor's Note: Visit stories about music therapy the American Music Therapy Association. For clinical uses of music therapy in hospice and bereavement care, I invite you to explore my book, Music of the Soul - Composing Life Out of Loss, published in Routledge's Series in Death, Dying and Bereavement, 2006.
Executive Personnel Changes - 12/19/25
12/28/25 at 03:20 AMExecutive Personnel Changes - 12/19/25
Hospice News’ 10 most-read stories of 2025
12/28/25 at 03:15 AMHospice News’ 10 most-read stories of 2025 Hospice News; by Jim Parker; 12/19/25 Large acquisitions, regulatory headwinds and the fate of COVID-era telehealth flexibilities were top-of-mind issues for hospice providers in 2025, as evidenced by the 10 most-read Hospice News stories of the year. ... The following are the 10 most-read Hospice News articles of 2025.
Validation of a claims-based algorithm for specialist palliative care delivery in metastatic cancer
12/28/25 at 03:10 AMValidation of a claims-based algorithm for specialist palliative care delivery in metastatic cancerJournal of Pain and Symptom Management; by May Hua, Zhixin Yang, Ling Guo, J Brian Cassel, R Sean Morrison, Guohua Li; 11/25The lack of valid methods to identify specialist palliative care (PC) delivery in population-level data impedes comprehensive understanding of its use... We developed a claims-based algorithm to identify specialist PC, using a physician billing claim from a known PC clinician as the gold standard, retaining candidate variables with a positive predictive value (PPV) >60%... A simple algorithm can identify receipt of specialist PC care in Medicare claims for patients with metastatic cancer with reasonable accuracy.Publisher's Note: While this is a statistically sophisticated article, findings support use of the palliative care provider specialty code (Provider Specialty Code 17) and encounter for palliative care code (ICD-10 Z51.5) to identify specialist palliative care delivery in a specific population (Medicare beneficiaries with metastatic cancer claims).
IAHPC photo contest: We have our winners!
12/28/25 at 03:05 AMIAHPC photo contest: We have our winners! International Association for Hospice & Palliative Care (IAHPC); 12/18/25 Our members submitted an incredible array of images that expressed moving moments, illustrated challenges, and showed the beauty of palliative care in their daily work. It required four rounds of judging by our five-member panel, plus a Zoom meeting at the end, to narrow the selection of 186 photos sent in and settle on the winners. [View]
Clarification
12/28/25 at 03:00 AMClarification: Dr. Byock reached out to clarify that the fee-for-service performance margins he cited (Hospice, heal thyself) are from 2020. He regrets not making that clear in the paper. He’s been made aware of recently updated figures from 2023 that reflect significantly diminished margins of 13.7% for for-profits and -1.3% for non-profits (MedPAC 12/5/25). This reflects a serious downward trend that obviously threatens non-profits hospice providers. This dangerous trend highlights the need for strenuous efforts to shift to quality-based competition, making success in the marketplace dependent on demonstrated quality of care and outcomes, particularly patient-family experience.
Sunday newsletters
12/28/25 at 03:00 AMSunday newsletters focus on headlines and top read stories of the last week (in order) - enjoy!
Service is joy...
12/28/25 at 03:00 AMI slept and I dreamed that life is all joy. I woke and I saw that life is all service. I serviced and I saw that service is joy. ~Kahlil Gibran, Pearls of Rumi
Today's Encouragement
12/27/25 at 03:55 AMCheers to a new year and another chance for us to get it right. ~Oprah Winfrey
End-of-life care for older adults with dementia by race and ethnicity and physicians’ role
12/27/25 at 03:45 AMHospice enrollment in young adult LGBTQ + decedents with cancer: A multi-site single healthcare system study
12/27/25 at 03:30 AMHospice enrollment in young adult LGBTQ + decedents with cancer: A multi-site single healthcare system studyBMC Palliative Care; by Sanjna Rajput, Riham Suleiman, Brittany Kimball, Aminah Jatoi, Elizabeth Cathcart-Rake; 11/25Methods [of the study]: A single healthcare system, 4000 + self-reported LGBTQ + database of patients with cancer identified young adult decedents (18-39 years old at death) to report the percentage who died with hospice, the conversations that preceded hospice enrollment, time-on-hospice, and circumstances that surrounded the deaths of those not enrolled. From the database, ... 67% ... were enrolled in hospice ... Conversations that preceded enrollment discussed (1) limited cancer therapeutic options with worsening end-of-life symptoms and how hospice could help ("discussed… decline and how patient would not want to die hooked up to machines"); (2) medical staff's acknowledgement of same sex spouse/life partners ("[She] is here with her wife"); (3) the inclusion of the birth family in end-of-life discussions, especially if the decedent had been single ("Her father met us… this was difficult news for him to hear."). Conclusions: Most young adult LGBTQ + decedents with cancer receive hospice services with thoughtful and inclusive conversations that precede enrollment.
The hidden influence of social narratives on end-of-life decisions
12/27/25 at 03:25 AMThe hidden influence of social narratives on end-of-life decisionsJournal of Applied Social Science; by Stephanie Smith; 11/25Widespread exposure to idealized and distorted portrayals of death across news media, entertainment, and advertising has reshaped societal understandings of mortality. Often depicted as rare, swift, conquerable, or emotionally distant, death is stripped of realistic representation, obscuring the complexities of the dying process. Drawing on social cognitive theory, this interdisciplinary conceptual analysis examines how such portrayals function as behavioral models—shaping individual attitudes toward mortality, influencing end-of-life care decisions, and informing public health policy and resource allocation. Addressing these distortions requires a cross‑disciplinary shift in cultural attitudes, bringing together storytellers, clinicians, educators, and policymakers to integrate authentic portrayals of dying into public discourse, reframe aging as a valued stage of life, and expand access to death education. Such efforts can dismantle harmful myths, support informed decision-making, and guide healthcare systems toward practices that balance medical possibility with human dignity. In doing so, society may cultivate a more honest, empathetic, and developmentally appropriate relationship with mortality.
Assessing the impact of focused end-of-life training on resident physicians' comfort with care for the dying patient
12/27/25 at 03:20 AMBringing death into the conversation: Communication strategies for discussing assisted dying in palliative care
12/27/25 at 03:15 AMHospice and palliative medicine fellows' perspectives on physician-assisted dying education: Hospice and palliative medicine fellows' perspectives on physician-assisted dying
12/27/25 at 03:10 AMHospice and palliative medicine fellows' perspectives on physician-assisted dying education: Hospice and palliative medicine fellows' perspectives on physician-assisted dyingJournal of Pain and Symptom Management; by James Cescon, Antoinette Esce, Melanie Koren, Edith Meyerson, Mollie A Biewald, Robert M Arnold, Anup Bharani, Laura Belland; 11/25Physician-Assisted Dying (PAD) is legal in a growing number of U.S. states, with access expanding nationally due to recent legislative changes. An anonymous nine-item survey was sent to all HPM fellows (N=21) at the Icahn School of Medicine at Mount Sinai. All respondents agreed that learning about PAD in fellowship is important. Topics of interest included ethical considerations (95%), legal criteria (86%), responding to requests in serious illness conversations (86%), navigating requests (76%), and pharmacology/modes of ingestion (71%). While only 10% intended to provide PAD in future practice, 57% were unsure or had not thought about it, and 33% were not considering it. These findings underscore a clear educational need and may guide curriculum development.
Statewide and regional variation in hospice and palliative care protocols in emergency medical services in the United States
12/27/25 at 03:05 AM[Saudi Arabia] Comparison of end-of-life care between patients with hematological malignancies versus solid tumors: A retrospective analysis
12/27/25 at 03:05 AM[Saudi Arabia] Comparison of end-of-life care between patients with hematological malignancies versus solid tumors: A retrospective analysisJournal of Palliative Care; by Salma Almusaed, Kim Sadler, Walaa Abdulmutaali, Gassan Abudari, Steven Callaghan, Mahmoud Sroor, Muneerah Almutairi, Mohammed AlGhamdi, Muruf Zaid Alshalwah, Sameer Desai, Nessreen Abu Alsalhm, Khloud Alzain; 11/25While specialized palliative care (PC) is well-established for managing STs [solid tumors], its integration into HMs’ [hematological malignancies] care remains less common despite evidence of its benefits. The cohort consisted of 350 adult patients, of whom 86 (24.6%) had HMs and 264 (75.4%) had STs. Overall, HMs patients received more aggressive end-of-life care, including higher rates of Intensive Care Unit (ICU) admissions (81.4% vs 17.8%), intubation (36% vs 8.3%), disease-modifying treatments (23% vs 3.8%), as well as more enteral feeding, dialysis, blood transfusions, and antimicrobial use. Their resuscitation discussions occurred closer to death (3 vs 16 days ... ). Additionally, HMs patients had fewer referrals to PC services (43% vs 79.2% ... ), and most of them died in the ICU (59.3% vs 18.2% ... ).