Literature Review



The persons behind our patients - Individualized assessment tools for personalized care

06/04/25 at 03:00 AM

The persons behind our patients - Individualized assessment tools for personalized careJAMA Internal Medicine; by Ruchi Bhatia; 6/2/25In clinical medicine, we rely heavily on bulleted templates to conduct and document care. These templates help capture the complexity of the medical problems we treat... However, the checklists we use often fail to provide a holistic narrative of the patient’s story... Reviewing the details of these checklists during the visit may aid decision-making but limits face-to-face interactions and can distract from understanding the unique person in the patient... Relying exclusively on checklists can unintentionally prevent patients from sharing their personhood and will not elicit complex concerns, such as fears of getting older, dying, or being written off.Publisher's note: Several recent stories we've covered extol the benefits of AI in healthcare; this story articulates some of the risks.

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Death behind bars: Prisons routinely ignore guidelines on dying inmates’ end-of-life choices

06/04/25 at 03:00 AM

Death behind bars: Prisons routinely ignore guidelines on dying inmates’ end-of-life choicesKFF Health News / Times Daily; by Renuka Rayasam; 5/31/25Brian Rigsby was lying with his right wrist shackled to a hospital bed in Montgomery, Alabama, when he learned he didn’t have long to live. It was September 2023, and Rigsby, 46, had been brought to Jackson Hospital from an Alabama state prison 10 days earlier after complaining of pain and swelling in his abdomen. Doctors found that untreated hepatitis C had caused irreversible damage to Rigsby’s liver, according to his medical records. Rigsby decided to stop efforts to treat his illness and to decline lifesaving care, a decision he made with his parents. And Rigsby’s mother, Pamela Moser, tried to get her son released to hospice care through Alabama’s medical furlough policy, so that their family could manage his end-of-life care as they saw fit. But there wasn’t enough time for the furlough request to be considered...

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Hospices facing a US caregiving ‘crisis’

06/04/25 at 03:00 AM

Hospices facing a US caregiving ‘crisis’ Hospice News; by Holly Vossel; 6/2/25 Family caregivers in the United States are being challenged by a swelling aging population inneed of greater support and stronger policy infrastructures. Much room for improvement exists at both state and federal levels when it comes to recognizing the important roles that family caregivers play, according to Steven Lee, co-founder and CEO of ianacare, a Boston-based patient and caregiver resource company. More innovative care models and disease-specific reimbursement options have widened pathways for hospice providers to improve family caregiver support, Lee said in a recent Hospice News Elevate podcast. But these fall short of addressing the diverse scope of practical, emotional and financial needs, he stated. Editor's note: This article has an excellent map of US states with caregiver categories for "Well-Supported," "Safe for Now," "High Risk," and "Critical" (courtesy of Otsuka America Pharmaceutical). Additionally, our sponsor Hospice Analytics provides the National Hospice Locator, for caregivers/families to find hospices that serve in each US county, and sorted by their quality scores. And, our sponsor Composing Life equips hospice organizations with caregiver/family video libraries that span the continuum of serious illness, hospice, and grief care. 

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Confronting global inequities in palliative care

06/04/25 at 03:00 AM

Confronting global inequities in palliative care BMJ Global Health; by Anna Peeler, Oladayo Ayobami Afolabi, Katherine E Sleeman, Maha El Akoum, Nahla Gafer, Asmus Hammerich, Richard Harding; 5/15/25

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How do you comfort a dying parent?

06/04/25 at 02:00 AM

How do you comfort a dying parent? U.S. News & World Report - WTOP News; 6/1/25 Caring for a parent who is dying can be emotionally taxing. ... Here are ten tips for how to conduct a caring conversation with someone who is dying — and how to know when to sit in silence too.

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Groundbreaking ceremony for new hospice house in Derby

06/03/25 at 03:30 AM

Groundbreaking ceremony for new hospice house in Derby CBS WCAX-3, Burlington/Derby, VT; by Hailey Morgan; 5/31/25 ... Marion Dehnke lost her husband Clint Stevens to cancer back in 2013. She says during that time, she was his caregiver, and he had to stay in a nursing home in a tiny room, with one other person. She said it made things very disruptive, and she didn’t get to spend the time she wanted with him, and she doesn’t want that for someone else. ... Community leaders, and members with the Newport Church of God invested in a solution called the Living Waters Hospice House. It is a two bedroom home dedicated to those in need in their final days. The project is worth a million dollars, and is funded entirely by donations. ... Construction for the home, started this past week, the groundbreaking ceremony was held on the church lawn Saturday.

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Today's Encouragement: Is the life I'm living ...

06/03/25 at 03:00 AM

Is the life I’m living the life that wants to live in me? ~ Parker J. Palmer

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Nonprofit participates in ALS Ice Bucket Challenge

06/03/25 at 03:00 AM

Nonprofit participates in ALS Ice Bucket Challenge Coeur d'Alene / Post Falls Press, Coeur d'Alene, ID; 5/31/25 Hospice of North Idaho took the plunge this week after being nominated by Kootenai Health to participate in the ALS Ice Bucket Challenge, a viral campaign aimed at raising awareness and funds to fight amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease. In a video on social media, Hospice of North Idaho’s Leadership Team and staff sat front and center Wednesday as team members gathered, cheered and doused them with buckets of ice-cold water all in the name of a great cause, Hospice of North Idaho shared in a Friday news release. ... “Hospice of North Idaho is proud to take part in this movement and show our support for those affected by ALS,” Megan Ryan, communications specialist at Hospice of North Idaho.

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Ethics talk: Are private equity investments really different from other ownership structures in health care?

06/03/25 at 03:00 AM

Ethics talk: Are private equity investments really different from other ownership structures in health care?AMA Journal of Ethics, Podcast May 2025; by Robert I. Field, PhD, JD, MPH; 5/30/25Dr. Robert I. Field joins Ethics Talk to discuss whether and to what extent private equity firms’ increasing presence in health care deserves our scrutiny and what policy makers, clinicians, and patients should know about responding to private equity ownership stakes in the organizations where they work and where they go for health services. 

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17 "Spooky" things that happened right before terminally-ill patients passed away, according to nurses who saw it first-hand

06/03/25 at 03:00 AM

17 "Spooky" things that happened right before terminally-ill patients passed away, according to nurses who saw it first-hand BuzzFeed Staff; by Raven Ishak; 5/31/25 "At the beginning of my shift, my patient kept pointing to a corner of the room and said to me, 'Do you see them?" ... When medical professionals work closely with patients who may pass soon, a lot of "supernatural" things may occur. So we thought to ask the BuzzFeed Community, "Nurses with dying patients, share with us the most unexplainable things you've ever witnessed." Here's what they said below: ...

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Empathetic AI policy example: A framework for the human impact on AI

06/03/25 at 03:00 AM

Empathetic AI policy example: A framework for the human impact on AI Solutions Review; by Tim King; 5/30/25 ... Empathetic AI is our organizational pledge to place people at the center of our AI strategy. It means prioritizing the dignity of work, the stability of our workforce, and the fair treatment of all individuals impacted by automated systems. It means actively supporting those whose roles may be transformed or displaced and investing in their future through retraining, redeployment, and transparent communication. Our core principles are as follows:

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Sioux Falls VA Healthcare System opens hospice cottage

06/03/25 at 03:00 AM

Sioux Falls VA Healthcare System opens hospice cottage Dakota News Now, Sioux Falls, SD; by Dakota News Now staff; 5/30/25 The Sioux Falls VA Healthcare System has cut the ribbon and opened the newest facility on its campus, a hospice cottage. The 10,000-foot facility with 10 beds is meant to give veterans and their families a high level of care and a peaceful environment that allows them to spend time together. The VA says the cottage is the perfect setting for end-of-life care for veterans, treating them with dignity. ... "We are here for the veterans, and we complete that circle. The time they gave, and now we’re giving back to them at the end of their life,” said Sioux Falls VA Hospice Nurse Manager Cami VanWyhe.

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The importance of humanity in internal medicine

06/03/25 at 03:00 AM

The importance of humanity in internal medicine I.M. Matters from the American College of Physicians; President's Message by Jason M. Goldman, MD, MACP; June 2025I recently attended the funeral of one of my long-time patients, who had required hospice care after a long battle with heart disease. Many of us have had the experience of telling a patient and their family that their disease has progressed and we have reached the limits of medical science. In training, we are taught to be compassionate but professional, maintaining a certain level of emotional detachment ... As internal medicine specialists, we have the awesome responsibility and privilege to be the doctor for our patients through decades of their life experiences and to offer them not just medical science, but also humanity and comfort. ... One of the greatest acts of charity a person can perform is to attend someone's funeral, as it is the only act of kindness that cannot be reciprocated. This patient had been in my practice for almost two decades, and I had the privilege of taking care of both her and her husband.Editor's note: Re-read this powerful statement, "One of the greatest acts of charity a person can perform is to attend someone's funeral, as it is the only act of kindness that cannot be reciprocated." 

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Q&A with Jim Obergefell on the future of Supreme Court's gay marriage ruling, LGBTQ rights

06/03/25 at 03:00 AM

Q&A with Jim Obergefell on the future of Supreme Court's gay marriage ruling, LGBTQ rights Fremont News Messenger; by Laura A. Bischoff; 6/1/25 In 2013, Ohioans Jim Obergefell and John Arthur flew on a medical jet to exchange vows in Maryland where same-sex marriage was legal at the time. With Arthur in hospice care for amyotrophic lateral sclerosis, time was slipping away for the Cincinnati couple and their home state of Ohio prohibited same-sex marriage. Days after their tarmac wedding, civil rights attorney Al Gerhardstein showed them a blank Ohio death certificate. "Do you guys understand that when John dies, his last record as a person will be wrong here, where it says marital status at the time of death?" Gerhardstein told them. "Ohio will say John was unmarried. And Jim, your name will not be here, where it says surviving spouse name." Brokenhearted and angry at the idea of not being recognized by Ohio, Arthur and Obergefell told Gerhardstein, yes, they wanted to do something about it. Arthur didn't live to see the fruits of that decision: On June 26, 2015, in a 5-4 decision in Obergefell v. Hodges, the U.S. Supreme Court decided states must allow for same-sex marriages and must recognize those solemnized in other states. Arthur died in October 2013 at the age of 48.

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[United Kingdom] Hospice cuts 19 jobs to save £1.7m amid ‘worst financial crisis’ in its history

06/03/25 at 03:00 AM

[United Kingdom] Hospice cuts 19 jobs to save £1.7m amid ‘worst financial crisis’ in its history LSE - The London School of Economics and Political Science; by Emily Moss; 5/29/25 A Yorkshire-based hospice charity has cut 19 jobs in the hope of reducing its annual costs by £1.7m as it faces what it has previously described as “the worst financial crisis” in its almost 40-year history. The Kirkwood, which provides palliative and end-of-life care for people living in and around Kirklees, West Yorkshire, said that an additional nine employees had agreed to reduce their hours or adjust their roles to enable the hospice to save money. The hospice opened its redundancy consultation in February. The initial plans placed 33 roles at risk of redundancy. At the time, the Kirkwood said it was facing the “worst financial crisis” in its history, citing a “perfect storm” of an increasing demand for hospice services versus rises in the prices of essential equipment, energy and food.Editor's note: This represents just one of many ongoing reports of financial crises, extreme fund-raising, closures and staff layoffs throughout the UK's hospices. Themes and patterns pair with trends we're seeing throughout the US.

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Saugus nurse arrested in FBI raid for alleged part in $2.5 million Medicare [hospice] fraud

06/03/25 at 02:15 AM

Saugus nurse arrested in FBI raid for alleged part in $2.5 million Medicare [hospice] fraud KHTS - Santa Clarita News, Santa Clarita, CA; by Jade Aubuchon; 5/30/25 Jessa Zayas, aka Jessa Contreras, a vocational nurse, is believed to have committed medicare fraud through two different hospice providers, submitting more than $2,500,000 in fraudulent claims to Medicare. Zayas is the Chief Executive Officer of two hospice providers, Healing Hands Hospice Inc. and Humane Love Hospice. From June 2023 through February 2025, she caused Healing Hands and Humane Love to bill Medicare for millions of dollars’ worth of hospice services that were not medically necessary, not authorized by a physician, and were not actually provided to the patients. ...

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HOPE Tool Anxiety: What are we forgetting in the rush to prepare?

06/03/25 at 02:00 AM

HOPE Tool Anxiety: What are we forgetting in the rush to prepare?Teleios Collaborative Network (TCN); by Melissa Calkins and Ashley Espy; 5/30/25 Panic is in the air.  With the HOPE assessment tool set to replace HIS, hospice teams are racing to prepare—scrubbing workflows, updating systems, and trying to wrap their heads around new clinical documentation demands.  But amid the rush, it's easy to overlook critical gaps: non-clinical staff being left out of planning, unclear timelines, poor communication, or the complete absence of a project lead.  HOPE isn't just about compliance—it's about execution. If we don't step back and ask what's missing, we risk rolling out a system that nobody is truly ready for.Steps to Operationalize the HOPE Tool:

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Jewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’

06/03/25 at 02:00 AM

Jewish hospice volunteer goes beyond ‘Shabbat blessings’ with ‘Froth and Bubble’ Jewish News; by Shannon Levitt; 5/20/25 Jeff Lewis, 71, had about 100 boxes of books with him when he moved to the Valley from California more than a decade ago. Surprisingly, those books became his first link to Hospice of the Valley (HOV), an organization that would become very important to him through the years. ... Thus, when he decided to retire from his photography business but wanted to stay busy, his friend again nudged him toward HOV and its Shabbat Blessings volunteer program. ... As a Shabbat Blessings volunteer, Lewis, a member of Temple Solel in Paradise Valley, offers hospice patients a small Shabbat service, including lighting Shabbat candles, saying the Hamotzi and Kiddush blessings and offering small prayers. [Story of patient financially choosing between medicine and food.]  ... [Lewis} started buying $75 grocery gift cards to give away. [This developed into] The Froth and Bubble Foundation for Food Assistance. Editor's note: This inspirational Shabbat blessings story tells the rich background behind our 3rd top-read story from last week, Hospice volunteer donates 10,000 gift cards to cancer patients. Scroll to the end of this story for the meaning behind the name "Froth and Bubble." 

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US trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke

06/03/25 at 02:00 AM

US trends from 1999 to 2020: Mortality and location of deaths in ischemic stroke Neurology Advisor; by Meghna Rao; 6/2/25 Patterns of ischemic stroke mortality have varied over the last 2 decades in the United States, according to study findings published in PLOS One. Stroke is one of the leading causes of mortality in the US. Researchers studied the trends in location of ischemic stroke deaths to improve end-of-life care and address health care inequities.The Centers for Disease Control and Prevention’s Wide-Ranging Online Data for Epidemiologic Research (CDC WONDER) database was used to examine trends in ischemic stroke mortality between 1999 and 2020. 

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A glossary of Medicare terms

06/03/25 at 02:00 AM

A glossary of Medicare termsMedicalNewsToday; by Mandy French, medically reviewed by Oluwatoyin Kuloyo, Pharm.D., BCPS; 6/2/25 When a person first signs up for Medicare, they may come across many terms and abbreviations. Learning the definitions of these terms can help make it easier to understand and navigate Medicare. Medicare information can be confusing. This A to Z glossary can help individuals understand some common terms, acronyms, and abbreviations. ... Editor's note: A must-have resource to use and distribute, with multiple links to more depth information at Medicare.gov and MedicalNewsToday.

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OP-ED: How hospice care falls short for people living with dementia

06/02/25 at 03:15 AM

OP-ED: How hospice care falls short for people living with dementia Being Patient - Alzheimer's News, Advice, Stories & Support; by Maria J. Silveira; 5/30/25Only 12 percent of Americans with dementia ever enroll in hospice. This may be due to how hospice is structured and paid for in the U.S., explains University of Michigan associate professor of internal medicine Maria J Silveira. ... In contrast to the former president [Jimmy Carter's extended hospice care], his wife, who had dementia, lived only nine days under hospice care. Palliative care physicians like myself who treat both conditions are not surprised at all by this disparity. ... Strikingly, only 12 percent of Americans with dementia ever enroll in hospice. Among those who do, one-third are near death. This is in stark contrast to the cancer population: Patients over 60 with cancer enroll in hospice 70 percent of the time.

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Telehealth use by home health agencies before, during, and after COVID-19

06/02/25 at 03:00 AM

Telehealth use by home health agencies before, during, and after COVID-19 National Institutes of Health, published by Wiley Online Library; by Dana B. Mukamel, Debra Saliba, Heather Ladd, Melissa A. Clark, Michelle L. Rogers, Cheryl Meyer Nelson, Marisa L. Roczen, Dara H. Sorkin, Jacqueline S. Zinn, Peter Huckfeldt; 5/22/25

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French lawmakers approve assisted dying bill

06/02/25 at 03:00 AM

French lawmakers approve assisted dying bill Le Monde with AP and AFP; 5/27/25France's Assemblée Nationale adopted a bill on Tuesday, May 27, to allow adults with incurable illnesses to take lethal medication, the initial step in a lengthy process that could grant patients medical assistance to end their lives in clearly defined circumstances. The bill received 305 votes in favor and 199 against, after all parties in parliament allowed their lawmakers a free vote on the issue. It will now be sent to the Sénat for further debate. A definitive vote on the bill could take months to be scheduled. In parallel, another bill on palliative care, meant to reinforce measures to relieve pain and preserve patients' dignity, was also adopted on Tuesday, unanimously. 

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Awards and Recognitions: May 2025

06/02/25 at 03:00 AM

Awards and Recognitions: May 2025

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Today's Encouragement: June is the time for ...

06/02/25 at 03:00 AM

June is the time for being in the world in new ways, for throwing off the cold and dark spots of life. ~ Joan D. Chittister

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