Literature Review

Terri Schiavo’s legacy: When to ethically stop life support Medscape; by Arthur L. Caplan; 8/30/25 Hi. I’m Art Caplan. I'm at the Division of Medical Ethics at NYU Grossman School of Medicine in New York City. Twenty years ago this month, from the time I'm talking with you, in March 2005, a young woman named Terri Schiavo was allowed to die. It was one of the most controversial, and probably the most important, end-of-life-care cases ever to unfold in the United States. ... Do we have to make a more precise diagnosis of permanent vegetative state before we get into arguments about what to do next? I do believe also that it's important, if you are dealing with someone who's terminally ill or has a serious illness, to get the discussion going early about who's in charge. We still have fights between husbands, families, sisters, and cousins coming in about who has veto power or decision-making power. The earlier we can establish who it is that the patient wants to speak for them if they can't, the better. 

We are what we repeatedly do. Excellence, then, is not an act, but a habit. ~ Aristotle

Telehealth use in palliative care has declined since pandemic, study finds McKnights Home Care; by Adam Healy; 8/5/25 Medicare beneficiaries are generally using less telehealth during palliative care than during the COVID-19 pandemic, but some patient cohorts continue to have high rates of virtual care use, according to a new study published in JAMA Network Open. ... “Since the COVID-19 pandemic, telehealth use for palliative care has declined slightly but continued to play a sizable role in outpatient palliative care, accounting for 18.2% of specialist encounters in 2023,” the researchers said. Telehealth may be best suited for patients with certain conditions, they noted. For instance, the study indicated that patients with poor-prognosis cancers — meaning cancers that commonly cause death, rare cancers with high mortality rates or solid tumors with concurrent nonlymphatic metastasis — may benefit the most from telehealth. Virtual care use was also high among psychiatry patients, the study found.

Closing the gap: Addressing social determinants of health and racial disparities in hospice care Teleios Collaborative Network (TCN); by Alyson Cutshall; 8/4/25... While Americans’ health trajectories are inevitable at the time they become eligible for hospice services, SDOH (Social Determinants of Health) still play a major role for the patients and families our field is privileged to serve. ... [To] fully impact health equity, we must be cognizant of other examples of SDOH, such as racism and implicit bias.  Unfortunately, our collective field has not been as successful in addressing access to hospice care across differing racial and ethnic groups. ... Certainly, there are some pockets of improved access.  One Teleios member organization, Ancora Compassionate Care, recognized the alarming disparities within its community and set about to create change. Ancora leaders recognized that the Black community in their service area typically placed high trust in their religious leaders. To better understand their needs and preferences regarding end-of-life care and services, Ancora embarked on a "listening tour" to gather feedback and insights from these religious leaders. Using the wisdom imparted, Ancora adapted their care delivery to be more inclusive to the Black community.  As such, the organization is making incremental improvements in lessening the racial divide in access to hospice care.

After losing his wife, 92-year-old man turns grief into comfort for other Spectrum News 1 - Greece, NY; by Seth Voorhees; 8/4/25 The loss of a spouse can be devastating. A Rochester area man is turning his personal grief into comfort for others. The gesture has special meaning for families of people in hospice care. Howard Jones has always dabbled in art. At 92, the Kodak retiree has made painting his full-time job. ... [His wife through 68 years,] Estella spent her final weeks at Hildebrandt Hospice Care Center, where staff noticed Howard Jones would pass the time by painting rocks. Someone told him the story of the cardinal, and how some believe their appearance is a sign that a departed loved one is near.  ... [Now, he paints] “every day, eight hours a day,” said Jones. ... “It’s all a matter of getting the bird to look right,” he said. ... “My hope is always that when someone takes one of the stones out of the basket, they can feel the emotion that went into painting it,” said Jones. Since he began keeping track in February, Howard Jones says he’s painted over 500 cardinals. “And that's kept me going,” he said.Editor's Note: This demonstrates beautifully the "instrumental style of grieving" (identified by Ken Doka and Terry Martin in Grieving Beyond Gender) where men (and women) tend to grieve through actively doing something, in contrast to verbal and emotional expression. We described this more in our post, To Be or To Do? Women and Men's different styles of grieving.

Hospice Honors 2025 - 2025 CAHPS Honors and Honors Elite Award winnersMatrixCare by ResMed; retrieved from the internet 7/29/25 214 CAHPS Honors and 53 Elite Award Winners are listed. These national recognitions are presented by HealthCare First, a part of MatrixCare. These awards are based on satisfaction scores from the Hospice Consumer Assessment of Healthcare Providers and Systems (CAHPS) survey. "Honors Elite" status is awarded to those hospices that score above the national performance score on 100%, or all twenty four, of the evaluated questions. Editor's Note: We celebrate these significant achievements and thank you for the quality, expert care you provide each day! 

New job posting this week!

Assisted living fire with multiple fatalities a reminder to have evacuation plan, expert says McKnights Senior Living; by Kimberly Bonvissuto; 7/15/25 A five-alarm fire at a Massachusetts assisted living community in which nine people died and at least 30 were injured is a “realistic reminder” for senior living providers to make sure they have evacuation plans that are practiced and up to date, according to one expert. Stan Szpytek, president of Fire and Life Safety Inc. and a former deputy fire chief and fire marshal, told McKnight’s Senior Living that he was “horrified” to see the death toll, adding that multiple fatalities in buildings equipped with properly working fire suppression systems “has never occurred,” according to statistics from the National Fire Protection Association. ... “Smoke kills more people than fire does everyday in America,” Fall River Fire Chief Jeffrey Bacon said during a press conference.

Hollywood Home Health, Hospice, and Palliative Care to harness Artificial Intelligence to enhance home health delivery HomeHealthProvider.com; 7/15/25Hollywood Home Health, Hospice, and Palliative Care ... announced today its strategic investment in artificial intelligence (AI) to enhance operational efficiency and improve clinical outcomes. ... The AI platform will integrate with existing electronic health records (EHRs), billing systems, and care coordination software, helping nurses and therapists access real-time insights, prioritize urgent needs, and reduce documentation time. In the office, AI will assist with scheduling optimization, patient eligibility verification, and compliance reporting - areas known to slow down response times and overburden staff.

How proposed home health cuts could impact hospices  Hospice News; by Jim Parker; 8/1/25Proposed cuts to home health payments for 2026 could have somewhat of a ripple effect on hospices. The U.S. Centers for Medicare & Medicaid Services has called for a 6.4% aggregate cut to home health payments for 2026 in a proposed rule. The total reductions amount to $1.135 billion. This is the fourth straight year in which CMS has cut or proposed to cut home health payments. Due to this proposed rule, the agency has “failed” providers, according to Dr. Steven Landers, CEO for the National Alliance for Care at Home.

Live today. Not yesterday. Not tomorrow. Just today. Inhabit your moments. Don’t rent them out to tomorrow. ~ Jerry Spinelli

Laying the foundation for health IT innovation: 5 essential cornerstones Becker's Health IT; by Pally Parrent; 8/1/25 ... A recent survey by Modern Healthcare and Nordic reveals both industry progress and opportunity across critical IT foundations like governance, infrastructure, data, and training. Investing in these foundations is important but success also requires five reinforcing cornerstones that support foundational efforts for enterprise-wide impact: strategy, cybersecurity, integration and interoperability, cultural commitment, and change management. ...