Literature Review

FTC makes changes to healthcare breach reporting Becker's Health IT; by Naomi Diza; 4/26/24... The changes clarify the rule's scope regarding health apps and similar technologies while expanding the information covered entities must provide to consumers in the event of a breach of their health data, according to an April 26 FTC news release. Under the new rule, vendors of personal health records and related entities not governed by HIPAA are mandated to notify individuals, the FTC and, when applicable, the media, in case of a breach of unsecured personally identifiable health data. [Click on the title's link for more revisions to the rule.]

More legislation in Illinois deals with ending a person’s life The Center Square - Illinois; by Kevin Bessler; 5/1/24 Another bill has been introduced in Springfield dealing with end of life options for the terminally ill. Illinois state Sen. Julie Morrison’s Senate Bill 2644 would establish a statewide electronic registry that would contain Physician Orders for Life Sustaining Treatment (POLST) forms, which detail what type of medical treatment a critically ill patient does and does not want. “How much or how little treatment a person receives at the end of their life should be up to each individual instead of the one-size-fits-all approach,” said Morrison, D-Lake Forest, during a news conference Wednesday. “This measure will enable physicians to access forms detailing patients wishes in a single, accessible location.” 

Other Business Headlines of Interest, updated 5/2/24 per nasdaq.com

Evolving medical licensing laws could affect hospice workforce, diversity challenges Hospice News; by Holly Vossel; 5/1/24 A rash of states are restructuring their medical licensing requirements to allow more trained clinicians from other countries to find employment in the United States. The trend is an aim to address prolific workforce shortages, including in hospice, but could also have impacts on improving diversity, equity and inclusion. Some states have restructured medical licensing requirements for certain international medical graduates (IMGs) to allow more clinical professionals to work in the United States.

New federal rule meant to strengthen nondiscrimination protections, advance civil rights in healthcare McKnights Senior Living; by Kathleen Steele Gaivin; 4/30/24 The Department of Health and Human Services on Friday released a final rule aiming to protect individuals from discrimination in healthcare, including members of the LBGTQ+ community. ... The rule “reverses a Trump-era regulation and restores gender identity and sexual orientation discrimination protections under Section 1557 of the Affordable Care Act,” Bloomberg Law reported. Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age or disability by entities that primarily provide healthcare and receive federal funding. It is enforced by the HHS Office for Civil Rights.

NHPCO's 2024 Pediatric Palliative and Hospice Care Needs Assessment NHPCO; via email; 5/1/24 The 2024 Pediatric Palliative and Hospice Care Needs Assessment is a product of the National Hospice and Palliative Care Organization’s (NHPCO) Pediatric Advisory Council. The goal of the needs assessment is to gain a better understanding of the organizations and providers caring for pediatric patients with serious illnesses throughout the United States. The needs assessment helps create resources and support advocacy. The survey should only be completed once by each organization so please coordinate with your team to complete the survey. For help gathering information, we have created a PDF version of the survey but you will need to input the information into this survey for the information to be used.

Hospice care scam has FBI issuing warning after 'huge increase in complaints'ABC TV 13, Houston, TX; by Samica Knight; 4/29/24The Federal Bureau of Investigations is warning about a scam in which crooks sign people up for hospice care without their knowledge. The FBI has received numerous reports from victims in the Houston area about this costly scam. "It's a little bit more egregious and distasteful than some of the other Medicare frauds we typically deal with," FBI Supervisory Special Agent Shannon Brady said. "We've had a huge increase in complaints." Fraudsters are actually signing mostly elderly victims up for end-of-life hospice care when they don't need it and without the victim even knowing about it.

20 states with most rural hospital closures Hospital CFO Report; by Molly Gamble; 4/29/24 Since 2005, 192 hospitals in rural America have shut down, and the COVID-19 pandemic only accelerated rural hospitals' risk of closure. Eight rural hospitals closed in 2023, as many as in 2022 and 2021 combined, according to the report. This followed a landmark 18 rural hospital closures in 2020, more than any year in the previous decade. [Click on the title's link for] 

DEA tells court that Right to Try law doesn’t supersede CSA in psilocybin case PsychedelicNewsWire; 4/30/24The U.S. Drug Enforcement Administration (DEA) is claiming that a federal law that affords severely ill individuals the right to try investigational medications doesn’t apply to drugs classified under the Controlled Substances Act. This is in response to a lawsuit filed by a doctor in Washington state who sought permission to legally administer psilocybin as treatment for patients in end-of-life care with cancer. The agency argues that because drugs classified under Schedule I are said to have no accepted medical use, the law prevents them from being dispensed, even by professionals. 

Medical marijuana may be sold in pharmacies, but it is not a medicine Psychiatric Times; by Yi-Lang Tang, MD, PhD and Elizabeth McCord, MD; 4/29/24Commentary: Georgia will soon be the first state in the nation to allow independent pharmacies to sell medical marijuana products, with more than 100 pharmacies already applying to participate. This raises serious health concerns. The public should be aware that medical marijuana is not a medicine and that it differs from US Food and Drug Administration (FDA)-approved medications in several key ways. ... Editor's Note: This article contains a list of what is approved (or not) in each state (with Washington D.C. and Puerto Rico); a brief history of medical marijuana; and differences between medical marijuana and FDA-approved medications.

UK survey finds 65% of adults are worried about access to palliative care Medical Xpress; by King's College London; 4/30/24 A survey commissioned by King's College London, and carried out by YouGov, has found that 65% of people across the U.K. are worried about access to palliative and end of life care, and 41% think there is too little NHS resource allocated to palliative care. The survey of 2,164 adults across the U.K. was commissioned by the Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care at King's to explore people's knowledge and experiences of palliative and end of life care. ... Findings from the survey conducted in January 2024 show that nearly a quarter of people (24%) across the U.K. say they don't know much about or have not heard of palliative care, with disparities in knowledge between white and ethnic minority groups.

TRU Community Care and St. Paul’s Senior Services explore strategic partnership to transform senior care landscape My Prime Time News, Lafayette, CO; 4/29/24TRU Community Care and St. Paul’s Senior Services are exploring affiliation as two well-established nonprofit healthcare providers in Colorado and California, respectively. Under the leadership of Scott Gresser, President and CEO of TRU Community Care and Michael McHale, President and CEO of St. Paul’s Senior Services, organizational integration would allow TRU and St. Paul’s to expand the serious illness continuum of care that each currently provides, including senior services from independent living to memory care, PACE (Program of All-Inclusive Care for the Elderly), palliative and hospice care, and community support programs such as bereavement services. 

You never know when something you do or somebody you talk to changes the course of your life. - Judi Lund PersonEditor's Note: This quote is from today's post, "Judi Lund Person: Unleashed," from a pivotal, spontaneous life moment that called her to a brand new movement called "hospice."