Literature Review

Alzheimer dementia among individuals with down syndromeJAMA Network Open; Eric Rubenstein, PhD; Salina Tewolde, ScM; Amy Michals, MPH; Jennifer Weuve, ScD; Juan Fortea, MD; Matthew P. Fox, ScD; Marcia Pescador Jimenez, PhD; Ashley Scott, MPH; Yorghos Tripodis, PhD; Brian G. Skotko, MD; 9/24In this cohort study of  ... adults with Down syndrome enrolled in Medicaid or Medicare between 2011 to 2019, 23.3% of adults had Alzheimer dementia diagnoses, and the mean age of death was 59.2 years. These findings suggest that Alzheimer dementia is almost universal among people with Down syndrome, and administrative claims data may offer valuable insights into improving care for this diverse population.

Well-being outcomes of health care workers after a 5-hour continuing education intervention-The WELL-B randomized clinical trialJAMA Network Open; J. Bryan Sexton, PhD; Kathryn C. Adair, PhD; 9/24To test the effectiveness of Well-Being Essentials for Learning Life-Balance (WELL-B), a web-based continuing education program [was developed] to deliver ... interventions to improve 4 dimensions of HCW [health care workers] well-being (ie, emotional exhaustion, emotional thriving, emotional recovery, and work-life integration). [The] ... sessions improved short-term HCW emotional exhaustion, emotional thriving, emotional recovery, and work-life integration. Health care worker impressions of WELL-B were positive. These findings suggest that WELL-B is a beneficial intervention. 

Role of hospital connectedness in brain metastasis outcomesJAMA Network Open; by Lilin Tong, Ruchit V Patel, Ayal A Aizer, Amar Dhand, Wenya Linda Bi; 9/23/24Is hospital connectedness associated with clinical outcomes of patients with brain metastases? In this cohort study of 4679 patients with brain metastases in Massachusetts, increased connectedness of a hospital, defined as the weighted sum of ties to other care facilities, was associated with improved inpatient mortality. Hospital connectedness operated independently from hospital volume in its association with inpatient mortality and length of stay. These findings suggest that relationships between hospitals are associated with changes in patient outcomes in the interdisciplinary care of patients with brain metastases, likely owing to specialized and interdisciplinary care required in the disease management.

Blumenauer proposes overhaul to Hospice Benefit: If enacted, the legislation would be the single most significant update to the hospice benefit and payment structure since its inception in 1982.U.S. Congressman Earl Blumenauer, Washington, DC; Press Release; 9/26/24Today, Congressman Earl Blumenauer (D-OR), a senior member of the Ways and Means Committee, introduced the Hospice Care Accountability, Reform and Enforcement Act (Hospice CARE Act) to modernize Medicare’s hospice benefit, which has remained largely unchanged since its inception in 1982. The proposal comes as egregious reportsof fraud and abuse within the benefit persist, despite action from Centers for Medicare & Medicaid Services (CMS). The legislation is the product of years of collaboration between stakeholders, lawmakers, and industry leaders. It builds on Blumenauer’s decades-long commitment to ensure the federal government supports families at a time of great stress and vulnerability: the end of life. 

End-of-life emergency department use and healthcare expenditures among older adults: A nationally representative studyJournal of the American Geriatrics Society; by Cameron J Gettel, Courtney Kitchen, Craig Rothenberg, Yuxiao Song, Susan N Hastings, Maura Kennedy, Kei Ouchi, Adrian D Haimovich, Ula Hwang, Arjun K Venkatesh; 9/24Emergency department (ED) visits at end-of-life may cause financial strain and serve as a marker of inadequate access to community services and health care. We sought to examine end-of-life ED use, total healthcare spending, and out-of-pocket spending in a nationally representative sample. One in three older adults visit the ED in the last month of life, and approximately one in two utilize ED services in the last half-year of life, with evidence of associated considerable total and out-of-pocket spending.

Screening familial risk for hereditary breast and ovarian cancerJAMA Network; by Daniel Kiser, Gai Elhanan, Alexandre Bolze, Iva Neveux, Karen A Schlauch, William J Metcalf, Elizabeth T Cirulli, Catherine McCarthy, Leslie A Greenberg, Savanna Grime, Jamie M Schnell Blitstein, William Plauth, Joseph J Grzymski; 9/25/24In a large health system, how many ungenotyped patients meet family history genetic testing criteria for hereditary breast and ovarian cancer? In this cross-sectional analysis, 2.9% of patients had no evidence of prior genetic testing but had electronic health records indicating they met family history criteria. These criteria were associated with significantly increased prevalence of genetic risk variants among 38 003 genotyped patients. These findings suggest that substantial gaps exist in identifying and testing patients meeting family history criteria for hereditary breast and ovarian cancer, and other methods may be needed to close these gaps.

The crisp air of September is a reminder to embrace change like the trees embrace new colors. 

Grief memoir: Diapers and hospice We Are The Mighty; by Jessica Hall; 9/25/24 This is Chapter 8 in [Jessica Hall's] Grief Memoir. ... Following our trip to Disneyland, I was in the homestretch for my pregnancy. I was worried about what would happen when Dad went into the hospital again. What if it happened when I was in active labor? What if I was in a sleep-deprived haze with a newborn? How do I care for Dad when I’m far away and can’t travel? ... In the days before my planned induction, Dad was taken off intubation and was doing well enough. ... [Later in the story ...] I had given birth just two weeks before but I started to move quickly to go home. I started doing laundry so the baby and I could fly home to say goodbye to Dad. ...

VFW Post 4019 donates $10K to Hospice [of the Panhandle] The Morgan Messenger, Berkeley Springs, WV; by Kate Shunney, editor; 9/24/24 The Risinger-Stotler VFW Post 4019 in Berkeley Springs presented a $10,000 check to Hospice of the Panhandle recently – proceeds from a fundraiser the post held to benefit Hospice patients and families. Donors and supporters at the VFW have donated close to $55,000 to Hospice over several years of fundraisers. “We are overwhelmed by their generosity – and they are so grateful for the care that we offer veterans,” said Maria Lorensen, Development Director for Hospice of the Panhandle.

BREAKING NEWS: 9/27/2024 11:45 am - Blumenauer proposes overhaul to Hospice Benefit: If enacted, the legislation would be the single most significant update to the hospice benefit and payment structure since its inception in 1982.

Hospices delve into PACE, dementia care amid calls for change Hospice News; by Holly Vossel; 9/25/24 ... Some hospices have dug deeper into the PACE program landscape as an avenue to reach patients further upstream and improve utilization and access. These programs can help hospices provide better coordinated care and help patients and their families navigate a fragmented health care system and complex web of community resources, according to Liz Fowler, president and CEO of Bluegrass Care Navigators. The Lexington, Kentucky-based hospice provider launched a PACE program in 2022. These programs are an opportunity for hospices to evolve end-of-life care models that better address social determinants of health, particularly among some of the most underserved patient populations within their service regions, Fowler stated. “PACE programs are more upstream and will hopefully allow us to care for more individuals earlier on and make connections with more diverse communities earlier as well when they see us as a trusted health care provider,” Fowler said. “The big thing with PACE programs is that they are for individuals with very high needs of complex care, and we readily address all their health care needs but also things like food, isolation and loneliness. ...”

The competitive physician recruitment market: 5 trends Becker's Hospital Review; by Mariah Taylor; 9/24/24 Both physician recruiting and compensation have become more competitive as market disruptors have entered the field, according to AMN Healthcare's "Review of Physician and Advanced Practitioner Recruiting Incentives," published Aug. 5 The report is based on a representative sample of 2,138 search engagements AMN Healthcare conducted from April 1, 2023, to March 31, 2024. The data includes starting salary and other incentives offered to physicians and advanced practice professionals nationwide. ... Here are five trends in physician recruitment:

Hispanic Americans and Alzheimer'sAlzheimer's Association; Resources; ongoing webpage, retrieved from the internet 9/25/24 Approximately 13% of Hispanics who are 65 or older have Alzheimer's or another dementia. Learn what the Alzheimer's Association is doing to address health disparities and provide support for Hispanic community members living with Alzheimer's or another dementia. Quick Facts: ...