Literature Review

Capitalizing palliative care startups Hospice News; by Jesse Floyd; 8/14/24 As a sector, most standalone palliative care providers are still maturing from startups into long-term, sustainable businesses. ... This means gathering the necessary startup capital to take a new palliative care provider from idea to execution is often the first tangible goal for hopeful entrants into the space. When Jonathan Fluhart and Tiffany Hughes set about getting PalliCare, their Texarkana, Texas-based palliative care provider from theory to reality, they ran headlong into this obstacle. ... “Initially, what we thought we would do is build a palliative program that would nest between the home health and hospice,” Fluhart said. “We started to go into the community to talk with facilities and places that we felt would benefit from our services. Once they learned that we were tied to a home health provider, especially a hospice, it turned them off.” They decided the answer was two-fold: Sever ties with the hospice care provider they worked for; then start casting about for investors. ... 

Health group expands to Presque Isle The County, Presque Isle, ME; 8/14/24 Andwell Health Partners (formerly Androscoggin Home Healthcare + Hospice) has expanded its hospice services to Aroostook County. “As Maine’s largest non-profit home and community-based healthcare and care management organization, we are driven to meet the growing and evolving needs of individuals and families,” said Ken Albert, president and CEO, Andwell Health Partners, who has deep family roots in Aroostook County. ... Serving all ages of hospice patients, from infancy to those who have lived full lives, Andwell’s hospice services are available to individuals regardless of ability to pay.

‘The Last Ecstatic Days’ one day screening strives to teach the world how to die without fear Bangor Daily News, Bangor, ME; by BDN Community; 8/13/24 Hospice Volunteers of Waldo County invites Greater Waldo County to a single night screening on Tuesday, Aug. 20 at 7 p.m. Post-screening, there will be a Community Conversation with Hospice and Palliative Care Physician Aditi Sethi, MD and Director of the Center for Conscious Living & Dying/Hospice Volunteers of Waldo County’s Flic Shooter. Sethi, MD’s end-of-life palliative work is featured in the film. “The Last Ecstatic Days” focuses on a young man with terminal brain cancer (Ethan Sisser) as he sits alone in his hospital room. When Sisser starts live-streaming his death journey on social media, thousands of people around the world join to celebrate his courage. Still, he envisions more–to teach the world how to die without fear. To do that, Sisser needs to film his actual death. What unfolds next is a rarely-glimpsed perspective of how a community of strangers helps a young man die with grace.Editor's Note:  This movie has been featured on PBS. The Boston Globe describes, "... courageous end-of-life chronicle, which overflows with compassion." The Louisiana Mississippi Hospice & Palliative Care Organization shared this as a viewing and discussion at their July 2024 conference. For the trailor and more information, click here. 

Perfecting healthcare’s 360° consumer-centric strategy Guidehouse; 8/13/24 To ably compete in today’s healthcare environment while meeting their mission of quality patient care, health systems must make patient access and the consumer experience a core value across their entire organization. That means placing a relentless focus on reducing friction to meet customer expectations and aligning people and tech resources with standardization and scale. ... 

Letter: Closing Cottage of the Meadow [Hospice House] is a loss for allYakima Herald-Republic, Yakima, WA; by Lee Murdock; 8/13/24, with news post from 8/5/24 [Letter] To the editor — I was devastated to learn that Cottage in the Meadow, our local hospice facility, is ending hospice care. Both of my parents were fortunate enough to spend their final days in this serene and caring environment. The difference between the overrun hospital setting with its short staffing and the compassionate, individualized care at Cottage in the Meadow was stark. This facility provided invaluable support not only to those at the end of life but also to their families. As our population ages, the need for such services will only increase. Studies have shown that hospice care can reduce healthcare costs by up to 30% compared to traditional hospital care (Journal of Palliative Medicine). Additionally, hospice care significantly reduces hospital readmissions and emergency room visits, further reducing healthcare costs (JAMA). In a healthcare system with ample profit margins, ensuring access to hospice care is the least we can do. ...Editor's Note: This letter to the editor was in response to Yakima Herald-Republic's 8/5/24 article, "Yakima's Cottage in the Meadow will close its hospice house. It will reopen as a skilled nursing facility."

Heart disease, cancer remain leading causes of death in US Becker's Hospital Review; by Elizabeth Gregerson; 8/9/24 Heart disease and cancer remained the leading causes of death in 2023, according to provisional data released Aug. 8 by the CDC. Mortality data is collected by the National Center for Health Statistics National Vital Statistics System from U.S. death certificates, according to an analysis published Aug. 8 in JAMA. After a sharp increase in the rate of deaths from heart disease during the pandemic, the 2023 rate (162.1) reportedly was closer to pre-pandemic levels (161.5). The rate of deaths from cancer decreased from 146.2 in 2019 to 141.8 in 2023. Cause of death data is based on the underlying cause of events leading to death. Death rate is recorded as the age adjusted death rate per 100,000 deaths, authors of the JAMA analysis said.

Free CHAP Webinar: CMS Posts Final Hospice Rule - Quality changes and regulatory requirement Community Health Accreditation Partner (CHAP); taught by Dr. Jennifer Kennedy; posted 8/13/24, webinar will be 8/21/24, 1:00-2:00 pm EDTCMS posted the final rule for hospice providers which drives big changes into motion for 2025.  [Click here for the] Final FY 2025 Hospice Wage Index and Payment Rate Update/Quality Reporting Rule  (CMS-1810-F), posted on the Federal Register on August 7, 2024. This free webinar will be taught by Jennifer Kennedy, Vice President, Quality, Compliance and Standards, CHAP. She spent many years as a leader and nurse in diverse healthcare settings with the past 25 years in hospice and palliative care. Dr. Kennedy came to CHAP in 2021 with a vision of moving the organization’s quality forward as “the” accreditation partner of choice for the majority of community-based providers. She believes no matter what type of care a patient receives or how many times they receive care, every experience should be of the highest quality. Webinar Objectives:

Dr. El-Jawahri on the impact of palliative care on end-of-life care for AML and MDS OncLive; by Areej R. El-Jawahri, MD; 8/12/24 Areej El-Jawahri, MD, associate director, Cancer Outcomes Research and Education Program, director, Bone Marrow Transplant Survivorship Program, associate professor, medicine, Massachusetts General Hospital, discusses findings from a multi-site, randomized trial (NCT03310918) investigating a collaborative palliative oncology care model for patients with acute myeloid leukemia (AML) and myelodysplastic syndrome (MDS) receiving nonintensive therapy at 2 tertiary care academic hospitals. Patients in the study who received the palliative care interventions had a median of 41 days from end-of-life care discussions to death, compared with 1.5 days in the standard care group (P < .001). Additionally, patients who received the palliative care interventions were more likely to articulate their end-of-life care preferences and have these preferences documented in electronic health records, El-Jawahri begins. This documentation correlated with fewer hospitalizations in the final 30 days of life, she notes. Furthermore, palliative care recipients experienced QOL improvements and a trend toward reduced anxiety symptoms vs the patients who received usual care, El-Jawahri says. These findings underscore the necessity of integrating palliative care as a standard of care for patients with AML and high-risk MDS, El-Jawahri emphasizes.

Alzheimer’s prognosis models should expand data sources McKnights Senior Living; by Kristen Fischer; 8/12/24 Integrating data from nursing home electronic health records and claims in addition to the minimum data set — data required for nursing home residents — could be better than just relying on the MDS sources to produce an accurate prognosis for nursing home residents with Alzheimer’s disease and related dementias, according to a report published Thursday in the Journal of the American Geriatrics Society. ... The authors of the report noted that a recent review of prognostic models for late-stage ADRD found that assessments commonly used to evaluate prognosis-based eligibility for hospice weren’t reliable. ... Only 15% of people enrolled in hospice have a primary diagnosis of ADRD. That’s because it’s challenging to estimate the six-month prognosis required to be eligible for hospice, and dementias have a prognosis of 12 to 18 months when they are in the late stage, the authors pointed out.

New play focuses on Advance Care Planning for LGBTQ+ families and caregivers Hospice Foundation of America; by Lisa Veglahn; 7/29/24 Hospice Foundation of America (HFA) has added a new version of the short play “Lily” by award-winning playwright Bryan Harnetiaux to its AD (Advance Directives) Project, a collection of plays that dramatize the importance of advance directives. In the play, Jo visits her ex-wife, Lily, who is seriously ill. Jo is surprised that after years apart, Lily has asked to see her. She is even more surprised by Lily’s request that Jo serve as her surrogate decision maker when or if she cannot make healthcare decisions for herself. Hospice Foundation of America’s AD Project uses two-character, 10-minute plays featuring different relationships and settings. The plays are easy to produce and are intended for use by hospices, hospitals, and other community-based organizations wanting to engage audiences in discussions about advance care planning.The world premiere of the newest version of “Lily” was produced by Accord Hospice & Palliative Care in Sedona, AZ, in partnership with PFLAG Sedona, Unify Sedona, and the Sedona International Film Festival.Editor's Note: Click here for licensing information, to use this play in your community.  

Hospice market surge: Expected to hit $182.1 billion by 2033 Market.us Media; by Trishita Deb; 7/29/24 The global hospice market is projected to grow significantly from USD 72.8 billion in 2023 to around USD 182.1 billion by 2033, achieving a CAGR of 9.6%. This expansion is primarily driven by an aging population requiring increased palliative and end-of-life care. The demographic shift necessitates services that address chronic illnesses and provide compassionate care, predominantly offered by hospices. Additionally, technological advancements, particularly in telemedicine, facilitate broader access to comprehensive care, especially in remote areas. Interdisciplinary approaches in palliative care are also pivotal, involving collaborative efforts from doctors, nurses, social workers, and chaplains. This holistic method not only enhances the quality of care but also boosts patient and family satisfaction, key metrics in healthcare evaluations. 

Death can be a gentler exit for those enrolled in hospice care The Blade; by Kimberly Wynn; 7/28/24 A baby coming into the world needs a lot of care, and families prepare for that wailing, cooing bundle of life with cribs, and changing tables and advice from mothers-in-law. When baby formula was in short supply, family members branched out to scour retail shelves for the necessities. For those leaving this world, care is also needed, according to Victoria Palenske, branch director for Elara Caring, which offers home health and hospice services in the Toledo area. Such souls may need oxygen, pain medications, and spiritual counseling, as well as a hand to hold. “People deserve a lot of care at the beginning of life, but they also deserve care at the end of their life,” said Ms. Palenske, who began her career as a registered nurse whose focus turned to hospice services. “It is a calling.”Editor's Note: Thank you Elara Caring for this mission-oriented description of hospice care that gently addresses "dying," in contrast to some hospice materials that deny or completely divert purposes related to terminal illness, dying, death, or bereavement.