Literature Review

Black ownership provides a different perspective on hospice careMichigan Chronicle, by Ebony JJ Curry; 10/10/23... In essence, Black-owned hospices stand as beacons of trust, understanding, and respect within the African-American community. They have the power to transform end-of-life care for African Americans, ensuring it is a time of peace, dignity, and compassion, surrounded by providers who understand and honor their cultural context, values, and wishes.

Finding a voice for the terminally illHealth Affairs, by Richey Piiparinen, 1/9/24A patient with terminal illness reflects on the reluctance in health care to discuss death. Access to the full-text article requires either an online subscription or purchase of 24-hour access to this article.

Local experts say number of people using hospices has decreased despite benefits Virginia News, by Emaryi Williams; 1/8/24According to a recent report by American Health Rankings, Virginia placed 30th nationally in deceased medicare patients who used hospice care, even though it was 17th nationally for senior health care. Local experts say they are seeing fewer opting for hospice care and are concerned about what it means for members of our community and their families who may need it.

Racial and ethnic differences in hospice use among Medicaid-only and dual-eligible decedentsJAMA Health Forum, by Julie Robison, Noreen Shugrue, Ellis Dillon, Deborah Migneault, Doreek Charles, Dorothy Wakefield, Bradley Richards; 12/23Hospice care enhances quality of life for people with terminal illness and is most beneficial with longer length of stay (LOS). Most hospice research focuses on the Medicare-insured population. Little is known about hospice use for the racially and ethnically diverse, low-income Medicaid population.

Gentle endings: Lessons learned in a hospice for those without a homeDeseretNews, by Eliza Anderson; 1/3/24 Jillian Olmsted was intrigued by a news story in 2015 about attempts to open a small residential hospice for the homeless in Salt Lake City, where she lives. The INN Between would offer a home for people who were unsheltered and dying so they could be fed and cared for, in beds and out of the cold. But she was also floored by the hue and cry of neighbors who didn’t want them around — even though they were terribly medically frail. Her dad was fighting cancer, and she had just helped care for her mom and stepfather, who died a month apart. Both “had insurance and a nice home and family to take care of them.” Why begrudge someone shelter, care and comfort in such dire circumstances? 

Corporations award $20K in grants to make hospice care accessible in Texarkana areaTexarkana Gazette; 1/1/24A local nonprofit has received $20,000 in grants to make end-of-life care accessible. Tyson Foods, Weyerhaeuser and Union Pacific recently awarded the funding to Hospice of Texarkana's Diversity & Inclusive Care Project. The project is a comprehensive educational and awareness program to address demographic disparities in hospice and palliative care in Northeast Texas and Southwest Arkansas. It includes staffing, training, and community outreach.

What is hospice care? 6 myths about this end-of-life optionNPRDecember 28, 2023... Former President Jimmy Carter, the longest-living former president in American history at age 99, joined those numbers in February when his family announced he was entering hospice. ... Many assumed the decision meant that Carter wouldn’t be alive for much longer. But contrary to popular belief, hospice care isn’t necessarily only for people who have just a few days to live, nor does it mean giving up care entirely. ... Here’s the truth about some of the myths about hospice care and how it works.

Helios Care Partners with Bassett Healthcare to Expand Hospice, Palliative ServicesHospice NewsDecember 21, 2023The hospice and senior care provider Helios Care is partnering with the integrated health system Bassett Healthcare Network to bring more extensive access to hospice and palliative care to patients in central New York. ... As a result of the partnership, the New York State Department of Health issued certificates of need allowing Helios to expand into additional counties. 

Racial and Ethnic Disparities Seen in Use of HospiceHealthDayDecember 18, 2023Racial and ethnic disparities are seen in use of hospice among Medicaid recipients, according to a study published online Dec. 8 in JAMA Health Forum. Julie Robison, Ph.D., from the UConn Health Center on Aging in Farmington, and colleagues compared hospice use and hospice length of stay (LOS) by race and ethnicity among Medicaid-only individuals and those with dual eligibility for Medicare and Medicaid (duals). 

Hospices’ Unanswered Questions—Filling the Research GapsHospice NewsDecember 14, 2023Research around hospice care has come a long way. But data gaps exist when it comes to expanding understanding of some aspects of end-of-life care delivery. A range of researchers has amassed a growing base of data on hospice, with some common themes tied to quality outcomes, costs, length of stay and general inpatient care. ... Having more information around successful care delivery models and training processes could impact the ability for hospices to foster growth and improve sustainable clinical capacity. 

Washington, D.C., Needs to Address Hospice Care Utilization DisparitiesBy Donna Gayles and Audrey EasawWashington (DC) InformerDecember 13, 2023Our nation’s capital ranks high in many things, from access to outdoor activities and number of museums to its ethnic and cultural diversity and vibrant LGBTQ+ population. But the city lags far behind in one key area: hospice care utilization. While on average, just under half of Medicare decedents are in hospice care at their time of death, in the District of Columbia, only 25% are—ranking lower than 49 of the 50 states. This is especially meaningful when considering how medical mistrust plays into this underutilization among the city’s extremely diverse population. 

‘Hospice is more about living better’ transitional care director says of misunderstood programTribune-Review (Pittsburgh, PA)December 11, 2023... There is an assumption a patient entering hospice care is not expected to live beyond six months, a guideline that is tied to Medicare coverage. But the experience of individual patients can vary widely, as evidenced by [senior living residents] the Pattersons [Robert, 97, and Joyce, 90,] and by former president Jimmy Carter and his late wife, Rosalynn. Like many who elect to receive hospice care, Rosalynn Carter entered the program toward the very end of her life—just days before her death Nov. 19, at 96. But it’s also possible for patients to beat the odds and have hospice care extended. Jimmy Carter was 98 when he entered hospice in February and continues to endure. 

UnitedHealth hit with Medicare Advantage marketing complaintModern HealthcareDecember 7, 2023Advocates for people with disabilities are calling on regulators [to] halt what they describe as misleading Medicare Advantage marketing by UnitedHealth Group. The Center for Medicare Advocacy, National Health Law Program, Disability Rights Connecticut and National Disability Rights Network wrote the Centers for Medicare and Medicaid Services, the Federal Trade Commission and other state and federal officials Thursday to protest UnitedHealthcare advertisements for Dual Eligible Special Needs Plans appearing in Connecticut. The ads target people with both Medicare and Medicaid and spotlight extra benefits from Medicare Advantage plans that state and federal laws already require, the groups wrote. “Unquestionably, this misleading advertising is intended to induce, and has induced, thousands if not tens of thousands of older adults and disabled low-income individuals we are charged with representing to sign up for UnitedHealthcare’s plan, having been led to believe this means they can get extra benefits,” the letter says. UnitedHealth Group did not immediately respond to an interview request.