Literature Review

Social workers’ role in improving hospice live discharge processes Hospice News; by Holly Vossel; 8/26/25 A lack of standardized care coordination is challenging the ability for patients and families to receive support following a live discharge from hospice. Deeper integration of social work services may help address the issue. This is according to findings from a recent study published in the Journal of Gerontological Social Work, which examined different methodologies for preparing patients, family caregivers and providers for hospice-initiated live discharges from social worker perspectives. 

Letter to the Editor: Hospice needs the state’s support Mid Hudson News, Hudson Valley / Catskill Region, NY; by Mid-Hudson News Staff; 8/19/25 Dear Editor: Hospice care can greatly enhance life for patients and families during an incredibly difficult time, but it is, unfortunately, underfunded and underutilized in New York State. As the leader of a hospice program serving Rockland and Orange Counties for 38 years, I have seen firsthand the undeniable, positive impact hospice can have.  ... Understandably, New Yorkers struggle to understand the benefits of hospice because hospice providers themselves have faced decades of underfunding and limited government support. ... The consequences of this cannot be understated. ... Cara Pace, Chief Executive Officer of United Hospice

Chicago woman wounded in mass shooting at her 25th birthday party is going to hospice care CBS News; by Sara Machi; 8/17/25 After being critically wounded in a mass shooting in Chicago's Portage Park neighborhood that killed her father and two others, Mariah Vera's body has held on for two and a half years. But her family says that time is running out, and they need help from the public. Vera's family is preparing to move her to hospice care at Advocate Illinois Masonic Medical Center ... Family members said Vera was shot while trying to protect her father after an uninvited partygoer caused trouble at her 25th birthday party.

Black and white older adults’ end-of-life experiences: Does hospice use mitigate racial disparities? The Journals of Gerontology; by Clifford Ross, Brina Ratangee, Emily Schuler, Zheng Lian, Benmun Damul, Deborah Carr, Lucie Kalousová; 7/25Racial disparities in end-of-life care are well documented, but less is known about how these inequalities shape assessments of death quality. Proxies for Black decedents reported higher perceived death quality than those for White decedents, despite evidence of greater structural disadvantage. However, perceived care concordance was significantly lower among Black decedents. Hospice care was associated with improved perceived death quality for Black decedents but not for Whites. When accounting for socioeconomic and death experience controls, hospice care did not moderate perceived care concordance.

[United Kingdom] Rethinking palliative care for people affected by homelessness Nursing in Practice; by Karita Razzell; 8/5/25 Well-timed palliative intervention can be a game-changer for people affected by homelessness facing advanced ill health, says Karita Razzell, palliative care manager at the charity St Mungo’s. ... There are various reasons behind the stark health disparities faced by people experiencing homelessness. ... Many individuals are living with serious mental health conditions, substance use issues, undiagnosed neurodiversity, and chronic physical illnesses – all of which can make clinical environments like hospitals particularly challenging for them. ... There are also digital hurdles: appointment systems and prescription services are increasingly online, yet many people without stable housing lack access to mobile phones or the internet. ... As a result, treatable conditions in people affected by homelessness often go undiagnosed until they reach an advanced stage.Editor's Note: People experiencing homelessness in the U.S. face similar challenges. Organizations such as The Hildegard House in Louisville, KY, and others in the national Omega Home Network of “comfort care homes” quietly provide palliative and hospice care for them. Click here to see a national map of these homes.

2 factors fueling disparities in home-based deaths Hospice News; by Holly Vossel; 8/11/25 Having a limited understanding about end-of-life care options can hinder patients’ ability to die in the home, recent research has found. This trend is fueling disparities in home-based hospice care. Access to respite care more than doubles the odds of patients having a home death, a recent study found, which was published in the BMC Palliative Care journal. ... Additional significant factors included timely access to community-based nursing services, home health and hospice, as well as the integration of a palliative care approach, the study found.

The state of pediatric concurrent hospice care in the United States American Academy of Pediatrics; by Meaghann S. Weaver, MD, PhD, MPH, HEC-CCorresponding Author; Steven M. Smith, MD; Christy Torkildson, PhD, RN, PHN; Deborah Fisher, PhD, RN, PPCNP; Betsy Hawley, MA; Alix Ware, JD, MPH; Holly Davis, MS, APRN; Conrad S. P. Williams, MD; Lisa C. Lindley, PhD, RN, FPCN, FAAN; 8/1/25 The Patient Protection and Affordable Care Act (ACA) required all state Medicaid programs to pay for both curative and hospice services for children and adolescents. The purpose of this Special Article report is to quantify and describe the use of concurrent care for children, including a depiction of the barriers and benefits according to community-based hospice organizations in the United States. A total of 295 hospice organizations from 50 states and Washington, DC responded to the National Alliance for Care at Home call for engagement.

Sex and racial/ethnic differences in end-of-life care in decedents with lung cancer in TexasJournal of Palliative Medicine; by Myrna Katalina Serna, Efstathia Polychronopoulou, Aimee Rodriguez, Anjali Ramachandran, Margaret Goodrich, Sean O'Mahoney, Mukaila Raji, Yong-Fang Kuo; 7/25The lung cancer five-year survival rate is lower for Texans compared with the national average. We assessed sex and racial/ethnic differences in end-of-life care among decedents with lung cancer in Texas [and found that] ... males had more health care utilization and less hospice enrollment. Non-Hispanic Blacks and Hispanics had more health care utilization and less hospice enrollment ... Billed ACP [advance care planning] was low across all groups.

Closing the gap: Addressing social determinants of health and racial disparities in hospice care Teleios Collaborative Network (TCN); by Alyson Cutshall; 8/4/25... While Americans’ health trajectories are inevitable at the time they become eligible for hospice services, SDOH (Social Determinants of Health) still play a major role for the patients and families our field is privileged to serve. ... [To] fully impact health equity, we must be cognizant of other examples of SDOH, such as racism and implicit bias.  Unfortunately, our collective field has not been as successful in addressing access to hospice care across differing racial and ethnic groups. ... Certainly, there are some pockets of improved access.  One Teleios member organization, Ancora Compassionate Care, recognized the alarming disparities within its community and set about to create change. Ancora leaders recognized that the Black community in their service area typically placed high trust in their religious leaders. To better understand their needs and preferences regarding end-of-life care and services, Ancora embarked on a "listening tour" to gather feedback and insights from these religious leaders. Using the wisdom imparted, Ancora adapted their care delivery to be more inclusive to the Black community.  As such, the organization is making incremental improvements in lessening the racial divide in access to hospice care.

Chapters Health System expands care in Richmond, VA and surrounding counties PR Newswire; by Chapters Health System; 7/31/25 Chapters Health System, the nation's leading chronic illness innovator and largest nonprofit hospice provider, announces the opening of its newest program offering comprehensive hospice services and grief support to Richmond, VA – and the surrounding counties of Chesterfield, Goochland, Hanover, Henrico and Powhatan. Operating under Chapters Health Hospice, this new program will leverage the resources, infrastructure, and best practices of the nation's largest nonprofit network, while remaining grounded in the leadership of a team that is deeply rooted in the Richmond community. ... The opening of Chapters Health Hospice in Richmond, VA expands the Chapters Health System presence in the state following the 2023 affiliation of Capital Caring Health, which serves the Northern Virginia Region.

St. Croix Hospice to acquire Mayo Clinic Health System hospice operations in Northwest and Southwest WisconsinWVNews West Virginia's News; Press Release by St. Croix Hospice; 8/1/25 St. Croix Hospice and Mayo Clinic Health System (MCHS) have entered into a definitive agreement for St. Croix Hospice to acquire MCHS's hospice operations in Northwest and Southwest Wisconsin. The agreement is subject to regulatory approval and is expected to close later this quarter. The organizations have been longstanding partners in Midwest care, with St. Croix Hospice serving as a leading agency for hospice patients referred outside MCHS.

Medicare and Medicaid: 60 years of health care reform Medicare Rights Center; by Jisoo Choi; 7/30/25 On this day 60 years ago, Medicare and Medicaid were signed into law, creating a national health insurance program for older adults, people with disabilities, and people with limited incomes. In the first three years, Medicare and Medicaid enrolled nearly 20 million beneficiaries; today, Medicare has an enrollment of over 68 million and Medicaid, over 71 million. The programs, established amidst sustained public pressure and organizing by labor unions and older adults, have been and remain very popular: recent polling shows 82% of American adults hold a generally favorable view of Medicare, and 97% consider Medicaid to be important to people in their local communities.