Literature Review

Local boy becomes honorary doctor with Hospice Family Care teamFox 54, Huntsville, AL; by Caleb Aguayo; 4/24/26 A young boy battling what his caretakers call a "likely incurable disease" got to live out a dream Friday when his hospice care team made him an honorary doctor for the day, complete with scrubs, a white coat bearing his name, a name tag and his very own stethoscope. Abobakr Almageleh, who has spent years surrounded by medical equipment, has long shown a fascination with the tools and routines of the health care professionals caring for him, from listening to his own heartbeat to tracking the rhythm of monitors nearby. His caregivers at Hospice Family Care took notice.

Chapters Health System launches new pediatric program PR Newswire, Temple Terrace, FL; Press Release; 4/23/26 Chapters Health System announced the launch of Chapters Kids, a system‑wide pediatric hospice and palliative care program. Chapters Kids will expand resources for pediatric patients and families throughout the Chapters Health System service area and unite existing pediatric programs from several affiliates. "The launch of Chapters Kids is another critical step forward as we work toward fulfilling our mission of taking care of patients, or taking care of those who do," said Andrew Molosky, President and CEO, Chapters Health System.

Children supported by hospice remembered in songs Europe Says, Oxford, UK; Press Release; 4/19/26  Ten children who were cared for in a hospice have been honoured with a collection of specially commissioned songs. The bereaved families of the children worked closely with musicians on The Keepsake Circle project at Helen and Douglas House in Oxford. ... The families taking part in The Keepsake Circle project shared stories about their children and what made them unique. The deeply personal songs for the families have been written and produced by singer Kiki Deville and songwriter Angus Powell, with instrumentalist and producer Gregor Gergő Petri also joining the team. 

Ending Do Not Resuscitate requirements in pediatric home hospiceAmerican Academy of Pediatrics - Pediatrics Perspectives; by Meaghann S. Weaver, MD, PhD, MPH, HEC-C, FAAP and Sara Taub, MD, MBE, FAAP; Lisa C. Lindley, PhD, RN, FPCN, FAAN; 4/16/26 Hospice care is designed to provide holistic support for children with serious illness while honoring family values and preferences. We recently encountered challenges in enrolling children from 3 of the 4 US census regions (the Midwest, West, and South) into home hospices. The hospice agencies maintained an internal policy requiring “Do Not Resuscitate” (DNR) orders as an enrollment requirement. We hold clinical and ethical concerns about pediatric hospice care being contingent on DNR orders.

Increasing access to pediatric palliative care in a large hospital system: Trials and triumphs from an APRN initiativeJournal of Hospice & Palliative Nursing; by Faith Kinnear; 4/26 According to the Pediatric Palliative Care Task Force formed in 2020 and hosted by the National Coalition for Hospice and Palliative Care, children with serious illness should have access to palliative care that meets the population’s unique needs. Taking care to assess needs, communicate with leadership teams, develop rapport with key stakeholders, and utilize the support staff already in place allowed for successful implementation of pediatric palliative care services at 2 satellite campuses over a 5-year span. Services included inpatient and outpatient patient care; ongoing family bereavement support; compiling staff resources and providing ongoing staff training in primary pediatric palliative care skills. Each satellite campus now has dedicated pediatric palliative care providers. This article outlines how the satellite palliative care programs were developed, the challenges and successes in the process, and the role of the APRN in program development.

Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of Life Pediatric Critical Care Medicine; by Sabrina Derrington, Elizabeth G Broden Arciprete, Matthew C Lin, Simon J W Oczkowski, Amanda Alladin, Uchenna E Anani, Amanda K Borchik, Cassandra A Collins, Claudia Delgado-Corcoran, Mindy J Dickerman, Christopher G Harrod, Natalia Henner, Alexander A Kon, Mithya Lewis-Newby, Blyth T Lord, Ashley-Anne Masters, Sarah McCarthy, Katie M Moynihan, Sara M Munoz-Blanco, Lauren Rissman, Kathryn E Roberts, Amy B Schlegel, Ashleigh Schopen, Linda B Siegel, Harriett Swasey, Sarah E Wawrzynski, David J Zorko, Danielle D DeCourcey; 3/20/26 online ahead of print Objectives: To develop and provide evidence-based recommendations for EOL care and management of critically ill neonatal and pediatric patients and their families. Results: The [21-member multidisciplinary panel of experts] generated five conditional recommendations and one good practice statement, focused on advance care planning, pediatric palliative care consultation and education, systematic symptom management, bereavement support, and health equity in EOL care.

[Canada] Cultural safety in practice: Providing quality health care for First Nations, Inuit, and Métis children and youth FreePaediatrics & Child Health; by Emilie Beaulieu, Sara Citron, Ryan Giroux, Cheyenne Laforme, Amber Miners, Brett Schrewe, Elizabeth Sellers; 2/26In Canada, cultural safety in health care has emerged in response to the racism and systemic discrimination that Indigenous peoples often face when accessing care. Grounded in cultural humility, antiracism, and trauma-informed care, cultural safety aims to ensure that Indigenous children and youth receive equitable, quality care. Paediatric health care providers can pursue building a culturally safe practice by applying the ‘learn, self-reflect, and act’ framework. They should also consider the home environment, language, and cultural heritage of each child, youth, and family seen in practice, alongside the barriers to and facilitators of healthy living that Indigenous children and youth experience in Canada. Being mindful of health care system policies and practices—and how they affect patient care both locally and historically—is an important step toward offering culturally safe care in any practice setting.

Akron-area teen remembered for facing cancer with grace, laughter Akron Beacon Journal, Akron, OH; by Ralph N. Paulk and Marilyn Miller Paulk; 3/18/26 Darren Hampton smiled and laughed almost incessantly. ... His family reminisced how he fought an agonizing battle with grace and a seemingly habitual smile long after he was diagnosed with cancer in 2016 at age 7. ... Darren wasn’t afraid to die,” Hampton said. “He understood what was going on.” ... Then, shortly after arriving at the hospice center, he asked Abood, “Are you telling me I don’t have to go to school?” Yet, he expressed a willingness to take his state tests. “He was always concerned about his schoolwork,” ... "(Darren) was full of energy and always positive. He wanted to step in and change the world. He talked about recycling in rivers and lakes.” ... On the day he died, Darren summoned his family.  ... 

Pediatric Resource GuideThe HAP Foundation press release; 3/16/26Our team with the Lynda P. Bollman’s Pediatric Program collected as many resources as we could find to assist patients, families, and practitioners. Our goal is for this Resource Guide to be an efficient and effective tool to aid in caring for children with a serious illness and their families navigating their journey... The Pediatric Resource Guide is divided into several categories (i.e., financial support, transportation support, emotional wellness support, etc.) to ease navigation. You will also be able to break some sections into subcategories (i.e., Midwest, East, West, etc.)...

Hospice patient who held toy drive for community has died:  Celebrating the life of 7-year-old Kenia Medina ABC KVIA-7, El Paso, TX; by Armando Ramirez; 3/3/26 Kenia Marisol Huerta Medina, the 7-year-old hospice patient who held a toy drive for the other children during the holidays, has died according to the Hospice of El Paso. The Hospice of El Paso has released an update on the family of Kenia's behalf providing an update of her passing. ... Robert Enriquez, Interim CEO of Hospice El Paso, said "Kenia’s heart was a reflection of the very best of El Paso. Through our Butterfly Program, we aim to bring peace and joy to our youngest patients, but Kenia reversed that gift and gave it back to our entire community. Her decision to use her final wish to bring smiles to other children is something we will never forget."

Themed digest for palliative care professionals: Spiritual support for children ehospice | PACED; February 2026 Spiritual support remains one of the most complex and, at the same time, most essential elements of palliative care. In the February PACED digest, we present articles exploring the integration of spiritual care into nursing practice, families’ experiences in paediatric palliative care, and the role of professionals in discussing end-of-life issues with children and adolescents. This issue includes materials on professional competencies, system-level recommendations, and parents’ lived experiences. Together, they offer insight into how spiritual and value-based questions shape clinical practice and influence the quality of support provided to families. ...

Forbes: 2026 America's best large employers and America's best midsize employers Forbes; by Rachel Rabkin Peachman; 2/10/26 ... The annual rankings were based primarily on survey responses from more than 217,000 employees working at companies within the U.S. that employ more than 1,000 people. ... As with all Forbes lists, companies pay no fee to participate or be selected. ... [Healthcare organizations listed in the top 50 organizations include the following, with rankings among all industries: ...]