Literature Review

Themed digest for palliative care professionals: Spiritual support for children ehospice | PACED; February 2026 Spiritual support remains one of the most complex and, at the same time, most essential elements of palliative care. In the February PACED digest, we present articles exploring the integration of spiritual care into nursing practice, families’ experiences in paediatric palliative care, and the role of professionals in discussing end-of-life issues with children and adolescents. This issue includes materials on professional competencies, system-level recommendations, and parents’ lived experiences. Together, they offer insight into how spiritual and value-based questions shape clinical practice and influence the quality of support provided to families. ...

[United Kingdom] When a children’s hospice closes – national questions and lessons from Richard House by Peter Ellis ehospice; by Peter Ellis; 2/25/26 The closure of Richard House Children’s Hospice in December 2025 represents more than the loss of a single organisation. It signals a moment of reckoning for the children’s hospice movement in the United Kingdom. Richard House served families in East London for 25 years.  East London has a hugely diverse population with some 104 languages and dialects spoken. It has a substantially higher number of children with life limited or threatened lives than any other part of the country. So, Richard House was uniquely placed in the right part of the country. Failing as it has means there are serious questions to be asked.

Medicare, Medicaid, and Children's Health Insurance Programs: Nationwide Temporary Moratoria on enrollment of durable medical equipment, prosthetics, orthotics, and supplies (DMEPOS) supplier medical supply companies Federal Register; by the Centers for Medicare & Medicaid Services; 2/27/26 Summary: This notice announces the imposition of a 6-month nationwide moratorium on the Medicare enrollment of DMEPOS supplier medical supply companies. Background: ... Under the Patient Protection and Affordable Care Act (Pub. L. 111-148), as amended by the Health Care and Education Reconciliation Act of 2010 (Pub. L. 111-152) (collectively known as the Affordable Care Act), Congress provided the Secretary with new tools and resources to combat fraud, waste, and abuse in Medicare, Medicaid, and the Children's Health Insurance Program (CHIP).

C.A.R.S. benefit event raises $713,392 for children and families PR Newswire, Jacksonville, FL; The Foundation of Community Hospice & Palliative Care; 2/18/26 The Foundation of Community Hospice & Palliative Care announced that its annual Children Are Rock Stars (C.A.R.S.) benefit event, presented by Ring Power, raised $713,392 to help provide life-enhancing care and support for children and families through Community PēdsCare® and Every Child Counts (ECC). Held on Saturday, Jan. 31, 2026, at The Brumos Collection in Jacksonville, the event featured dinner and a live auction. It brought together sponsors, supporters, and community partners committed to making a meaningful difference for children facing serious illness and complex needs. 

The global need for paediatric palliative care: the evolution of serious health-related suffering in children aged 0-19 years from 1990 to 2023 The Lancet - Child & Adolescent Health; by Julia Downing, Felicia Marie Knaul, Xiaoxiao Jiang Kwete, Héctor Arreola-Ornelas, Nickhill Bhakta, William E Rosa, Lukas Radbruch, Julia Ambler, Stephen R Connor, Jinfeng Ding, Megan Doherty, Rui Gong, Richard Hain, Rut Kiman, Eric L Krakauer, Michael J McNeil, Oscar Méndez-Carniado, Marina Morais, Mary Ann Muckaden, Tania Pastrana, Marianne Phillips, Hongliang Tao, Michael Touchton, Valentina Vargas Enciso, Paul Vila, Afsan Bhadelia; online ahead of print March 2026 Our findings underscore the crucial need to expand access to high-quality palliative care services for children and adolescents, particularly in low-income and middle-income countries (LMICs). Our results also highlight the shift from decedent to non-decedent care needs associated with the substantial morbidity experienced by those living with their disease. Specific health-system policies to respond to the need for increased and higher-quality paediatric palliative care, especially interventions and medicines essential to address the unique palliative care needs of children, must be adequately funded to effectively reduce the avoidable burden of serious health-related suffering (SHS) among children.

[Global] UCLA report reveals a significant global palliative care gap among children  UCLA Health, Los Angeles, CA; by University of California, Los Angeles (UCLA) - Health Sciences; 2/10/26 Nearly all the world’s 10.6 million children experiencing serious health-related suffering (SHS) live in low- and middle-income countries with little to no access to palliative care specialized care for their illness, according to a comprehensive new report published in The Lancet Child & Adolescent Health. ... The findings reveal a dramatic shift: most children in need of palliative care now live longer with severe, chronic illness, fundamentally changing the type of services needed and extending the duration of these services. ...

Personalized palliative care shows signs of improving quality of life for children with advanced cancer American Association for the Advancement of Science (AAAS), EurekAlert!; by Mass General Brigham; 2/4/26How to reduce suffering in children with advanced cancer remains an ongoing but urgent question. A Mass General Brigham-led study examined whether systematically surveying children with advanced cancer and their parents about their symptoms and quality of life, providing feedback to children, families, and clinicians—and acting on that information by implementing personalized palliative care—could improve patients’ experiences. Their findings, published in the Journal of Clinical Oncology, suggest that integrating feedback along with response by specialized pediatric palliative care (SPPC) has the potential to improve children’s quality of life.

National policy framework for Pediatric Palliative Care Homes National Center for Pediatric Palliative Care Homes; email and webpage; 2/3/26The NCPPCH recently formally released its National Policy Framework for Pediatric Palliative Care Homes, and has begun early engagement with key national partners. This framework is intended to help policymakers at the state and federal level better understand the structural, licensing, and reimbursement pathways needed to support Pediatric Palliative Care Centers nationwide. Review the Policy Framework and Executive Summary here: https://www.ncppch.org/national-policy-framework.

[Netherlands] Pediatric advance care planning: a mixed-methods evaluation of documentation and sharing in current practice BMC Palliative Care; by Sophie Tooten, Rosella P.M.G. Hermens, Manel Verhoeven, Ellen M. Vierhoven, Fatima Boulakhrif, Jana M. Reintjes, Michel A.A.P. Willemsen, Judith L. Aris-Meijer, Jurrianne C. Fahner, Marijanne Engel, Marijke C. Kars, Inge M.L. Ahout & Esther Deuning-Smit; 1/29/26 Pediatric advance care planning (pACP) aims to align future care and treatment of children with life-limiting conditions (LLCs) with children’s and their families’ values, goals and preferences. Documenting and sharing pACP elements with healthcare professionals (HCPs) is essential for goal-concordant care. This study evaluates how pACP elements are documented in electronic health records of children with LLCs and shared with other HCPs.

BAYADA unveils the first Home Intensive Care Unit (HICU®) for infants and children PR Newswire, Philadelphia, PA; by BAYADA Home Health Care; 1/20/26 BAYADA Home Health Care ... is proud to announce its pioneering Home Intensive Care Unit (HICU®) program for infants and children with high-acuity medical needs. Following a successful pilot of this unique care delivery model, BAYADA's HICU® services are now available in three states—Delaware, New York, and Pennsylvania—with growing interests to expand nationwide.

"The lack of preparation compounds provider grief": Results from a needs assessment on grief training delivered to pediatric residentsClinical Pediatrics; by Erin Hickey, Erica L Jamro; 12/25Educational interventions to prepare pediatric residents to care for grieving people are rare.  Pediatric residents completed a survey conducted from March to April 2022 that assessed their experience, attitudes, skills, and knowledge of organizational support related to caring for grieving patients and families.  Despite improvements in competence with delivering difficult news with years in residency ... , only 35.7% felt competent by PGY3/4 [post-graduate year 3]. Only 19.5% of residents overall believe adequate grief support exists within their training program. Opportunities for residents to receive formal grief training are inadequate.

Trends in pediatric palliative care - A newsletter Trends; by the Siden Research Team; 1/20/26 In 2024 TRENDS published it’s 100th issue and enrolled its 1000th newsletter subscriber, the newsletters growth shows no signs of stopping. The Siden Research Team continues to center ways to foster the pediatric palliative care community and ultimately improve care for our patients. ... ith no journal dedicated to pediatric palliative care, finding relevant articles required scouring pediatric journals for palliative literature and palliative journals for paediatric literature – clearly there was a gap in effective dissemination of relevant articles. ... The Siden Research Team took initiative to bridge this gap. In June 2016 the first search and resulting citation list was compiled.