Literature Review
All posts tagged with “Clinical News | Pediatric News.”
Japan pushes to expand children’s hospices through new consultation service
07/16/26 at 03:00 AMJapan pushes to expand children’s hospices through new consultation service Europe Says, Osaka, Japan; Press Release; 7/15/26 For children with life-limiting illnesses or severe disabilities, even simple experiences such as playing freely or having friends stay overnight can be difficult. Children’s hospices aim to make such experiences possible while also providing support for their families, and efforts are underway to expand the number of these facilities in Japan. Tsurumi Children’s Hospice in Osaka, which opened in 2016, launched a consultation service in April to help people establish similar facilities across the country.
The Healing Page: how Akron Children's combines clinical care with narrative medicine poetry
07/14/26 at 03:00 AMThe Healing Page: how Akron Children's combines clinical care with narrative medicine poetry WOSU Public Media | NPR/PBS, Akron, OH ; by Jeff St. Clair; 7/13/26 The written word has healing power. That’s the idea behind narrative medicine, an emerging branch of healthcare that adds creative writing to the clinical toolkit. Akron Children’s Hospital is a leader in narrative medicine, and all this week, Ideastream Public Media is highlighting the program's writers in our series "The Healing Page." Dr. Sarah Friebert is director of Akron Children's palliative care center ... said when sick kids write about what they’re going through, “We tap into an inner spring of wellness and spirituality and wholeness ..." Friebert likened a critical diagnosis to a bomb going off in a family. Her program considers the blast radius of a diagnosis by extending services to impacted family members who are encouraged to write about their experiences and feelings.
HMN 2026: How Kids should be involved in their health care. Here’s how to make that happen
07/13/26 at 03:00 AMHMN 2026: How Kids should be involved in their health care. Here’s how to make that happen Health Medicine Network; by HealthMedicinet; 7/9/26 Children have a right to learn, play and grow. To help children thrive, parents and health care professionals must ensure they get the medical support they need. However, existing evidence shows we could involve children more in their health care appointments. Research suggests children who actively participate in their own treatment recover faster from surgery, have less anxiety and feel more valued. Our new study examines what practices may help children be involved in health care appointments. So what are they? And how can we implement them?
2025 Pediatric Facts and Figures Report now available
07/09/26 at 02:00 AM2025 Pediatric Facts and Figures Report now available National Alliance for Care at Home, Alexandria, VA; Press Release; 7/8/26 The National Alliance for Care at Home (the Alliance) published the 2025 Pediatric Facts and Figures, a report that provides an overview of pediatric palliative care and hospice in the United States and presents the results of a national survey of providers. The survey that informed the report had a response rate of 56% and yielded 295 entries representing distinct pediatric programs. Responses represent all 50 states and Washington, DC, and the survey was active from May through August of 2024. The report takes a close look at topics like pediatric patient characteristics, location and access to care, reimbursement for care, provider characteristics, barriers and facilitators to care, and concurrent care. [Download]
Palliative care involvement for pediatric hematopoietic cell transplant patients can enhance comfort-focused care at end of life without shortening survival duration
06/27/26 at 03:25 AMPediatric home-based hospice and palliative care: A scoping review
06/27/26 at 03:20 AMPediatric home-based hospice and palliative care: A scoping reviewBMC Palliative Care; by Ellen Davis, Daniel H Grossoehme, Toluwalase Ajayi, Justin N Baker, Pamela S Hinds, Lisa Humphrey, Jill Ann Jarrell, Rachel Thienprayoon, Sarah Friebert; 5/26Pediatric palliative and/or hospice care is provided across a broad spectrum of settings, ranging from inpatient to outpatient to a child's home. Pediatric home-based hospice and/or palliative care teams offer a specialized, interdisciplinary approach to care, allowing children to stay in the home while offering comprehensive support. Common themes emerged [in this review] including studies analyzing models of care, characterizing the population, end-of-life decision making, clinical outcomes of home-based hospice and/or palliative care, costs and economic impact, family experiences, quality domains, specific treatment modalities, and the use of telehealth. Overall, the available literature supported home-based hospice and/or palliative care as an effective model of care, reducing the burden on families, improving quality of life, and allowing families to stay in their preferred setting for care without sacrificing clinical outcomes.
Cincinnati Children's opened 6 locations in 2025. Here's why
06/23/26 at 03:00 AMCincinnati Children's opened 6 locations in 2025. Here's why Cincinnati Enquirer, Cincinnati, OH; by Carly Gist; 6/12/2026 Cincinnati Children's is expanding its access to care across the region, including in Northern Kentucky. The health system reported in its latest Community Impact Report, released to the public June 9, that six new locations opened in 2025, including facilities in previously underserved communities such as Clermont and Clinton counties. Rural areas often have limited access to specialized and emergency care, placing residents at a higher risk of health challenges and death, according to the Centers for Disease Control and Prevention.
[United Kingdom] One in five children’s hospices cutting staff or services amid funding pressures, study finds
06/18/26 at 03:00 AM[United Kingdom] One in five children’s hospices cutting staff or services amid funding pressures, study finds CivilSociety; By eyewave; 6/16/26 Almost a fifth of UK children’s hospice charities are cutting services or employing fewer staff as a result of financial pressures, according to research published today. The research, commissioned by national charity Together for Short Lives, found that while most hospices had managed to maintain service levels over the past year, nearly half had used reserves to do so. A third had reduced short breaks or respite care, while a smaller proportion had cut hospice-at-home services and end-of-life care. The findings came against the backdrop of an 18% sector-wide rise in charitable expenditure year on year, and a 21% increase in overall expenditure.
Kids should be involved in their health care. Here's how to make that happen
06/15/26 at 03:00 AMKids should be involved in their health care. Here's how to make that happen Medical Express; by Stuart Ekberg, Anthony Herbert, Katie Ekberg, The Conversation; 6/12/26 Research suggests children who actively participate in their own treatment recover faster from surgery, have less anxiety and feel more valued. ... Our new research suggests this may be because we focus too much on what children say, while ignoring the many other ways children communicate. Our study focused on pediatric palliative care services. ... This can include severe cerebral palsy, genetic syndromes such as Trisomy 18, neurological and metabolic conditions such as childhood dementia, and advanced cancers such as leukemia and brain tumors. ... We focused on pediatric palliative care services because they support children of all ages, from infants to young adults. And they support children who can speak and also children who do not speak.
The Foundation of Community Hospice & Palliative Care celebrates grand Opening of the Dorion Family Pediatric Center
06/15/26 at 03:00 AMThe Foundation of Community Hospice & Palliative Care celebrates grand Opening of the Dorion Family Pediatric Center PR Newswire, Jacksonville, FL; by The Foundation of Community Hospice & Palliative Care; 6/12/26The Foundation of Community Hospice & Palliative Care celebrated the grand opening and ribbon cutting of the Dorion Family Pediatric Center on Thursday, June 11, marking a significant milestone in expanding care for children with serious and complex illnesses in Northeast Florida. More than 300 community leaders, donors, families, and supporters gathered at the Earl B. Hadlow Campus to commemorate the opening of the new center, which is the first-of-its-kind pediatric hospice and palliative care center in Florida and one of only a few in the United States.
Chapters Health System awarded $150,000 grant from the Golisano Foundation to expand inclusive pediatric hospice care in Southwest Florida
06/12/26 at 03:00 AMChapters Health System awarded $150,000 grant from the Golisano Foundation to expand inclusive pediatric hospice care in Southwest Florida PR Newswire, Temple Terrace, FL; by Chapters Health System; 6/9/26 Chapters Health System, the nation's leading chronic illness innovator and largest nonprofit hospice provider, has received a $150,000 grant from the B. Thomas Golisano Foundation through the Chapters Health Foundation ... The grant will support the launch of "Advancing Inclusive Pediatric Hospice Care," an initiative designed to expand access to developmentally appropriate, family-centered end-of-life care, particularly for children with intellectual and developmental disabilities through the integration of a Certified Child Life Specialist and Hospital-Hospice Liaison at Hope Healthcare, a Chapters Health affiliate in Fort Myers.
Every bead tells a story: Carolina Caring Foundation invests $5,000 in Beads of Courage® program for children facing serious illness
06/09/26 at 03:00 AMEvery bead tells a story: Carolina Caring Foundation invests $5,000 in Beads of Courage® program for children facing serious illness Carolina Caring; Press Release; 6/8/26 For children living with serious illness, every milestone matters. These moments of achievement can include completing a medical treatment, overcoming a hospital stay, celebrating a birthday, or reaching a personal goal for the first time. To help create more of these meaningful moments, the Carolina Caring Foundation has awarded a $5,000 Gift Back Grant to the Cardinal Kids Beads of Courage® program. This grant supports one of the many life enrichment experiences offered to pediatric patients and families served by Carolina Caring. Beads of Courage® is a nationally recognized program that honors the journeys of children facing complex medical conditions.
Challenging case: Navigating end-of-life in neuro-inclusive cancer care
06/06/26 at 03:35 AM‘Life-changing’: Florida’s first pediatric hospice and palliative care center to open in Jacksonville
06/04/26 at 03:00 AM‘Life-changing’: Florida’s first pediatric hospice and palliative care center to open in Jacksonville News4JAX, Jacksonville, FL; by Tiffany Salameh; 6/2/26 A new center opening in Jacksonville aims to provide children with serious illnesses and their families something many say is hard to find: a place designed specifically for them. The Dorion Family Pediatric Center, set to officially open June 11 inside the Earl B. Hadlow Center for Caring on Sunbeam Road, is being described as Florida’s first dedicated pediatric hospice and palliative care center and one of only a few such facilities in the nation. The center will become the new home of Community PēdsCare, a program that currently serves more than 300 children across Northeast Florida living with serious and complex medical conditions.
Geographic distance between perinatal and pediatric palliative care services and implications for practice standards
05/28/26 at 03:00 AMGeographic distance between perinatal and pediatric palliative care services and implications for practice standards American Journal of Hospice and Palliative Medicine; by Radion Svynarenko, PhD, Meaghann S. Weaver, MD, PhD, MPH, HEC-C, Ambria Williams, BA,Ashley Kiefer Autrey, MD, DonnaMaria E. Cortezzo, MD, Abigail B. Wilpers, PhD, Abagail D. Cohen, MA, HEC-C, Lisa C. Lindley, PhD, RN, FPCN, FAAN; 5/14/26 Background: Practice standards recommend early integration of perinatal and pediatric palliative care (PC) with seamless transitions across settings. Little is known about the proximity between these services nationally. Results: 418 pediatric PC physicians and 296 perinatal PC programs were included. Five states (CA, TX, NY, FL, OH) had the highest concentrations of pediatric PC physicians. ... Median drive times to the nearest pediatric PC physician for programs lacking on-site expertise reached approximately 5 hours in NM and SD; 3 hours in ND and MT; and 2 hours in AL, CO, WV, and TN.
New! Pediatric e-Journal Issue #83
05/28/26 at 03:00 AMNew! Pediatric e-Journal Issue #83National Alliance for Care at Home press release; 5/20/26The focus of the 83rd issue and the one that immediately preceded it is on topics that relate to trauma and trauma-informed care. This issue specifically addresses trauma and trauma-informed care as they involve providers and care teams.
Pediatric neuropalliative medicine clinic: Five‐year data characterizing a novel model of outpatient care
05/23/26 at 03:35 AMFrom lacking to linking: A call for inclusion of pediatric palliative care in national cancer data ecosystems
05/16/26 at 03:40 AMMy daughter died when she was 2 1/2. I was stunned by how the medical system handled my grief.
05/14/26 at 03:00 AMMy daughter died when she was 2 1/2. I was stunned by how the medical system handled my grief. The Boston Globe Opinion; by Kristen Dillon; 5/11/26 ... My daughter had died only days before and the doctor wanted to find a way to improve my mood. To me, it sent the message that my grief and sadness were pathological, and when the antidepressant kicked in, I would feel better. Drawing from my clinical background, I knew my sadness and despair were not symptoms of a major depressive episode but rather a normal grief experience. ... Ultimately, the providers who I found most successful at grief-informed care have been the ones who ... make room for my grief. They say the thing I most want to hear. Her name.
Children’s Minnesota establishes first endowed chair for pain, palliative care and integrative medicine program
05/13/26 at 03:00 AMChildren’s Minnesota establishes first endowed chair for pain, palliative care and integrative medicine program BusinessWire, Minneapolis and St. Paul, MN; Press Release; 5/7/26 Children’s Minnesota is pleased to announce a new investment in easing pain and improving comfort for children facing serious illness. Thanks to a generous $2 million gift from the Hanson family, the health system has established its first endowed chair dedicated to pediatric pain, palliative care and integrative medicine. Kris Catrine, MD, medical director of Children’s Minnesota’s pain, palliative care and integrative medicine (PPCIM) program, has been named the inaugural holder of the Hanson Family Endowed Chair in Pain, Palliative Care and Integrative Medicine.
Enhancing psychosocial care at end of life: A novel simulation training program
05/09/26 at 03:35 AMEnhancing psychosocial care at end of life: A novel simulation training programPalliative & Supportive Care; by Emilia Crnjak, Michelle Kerns, Mariah Stevens, Brianna O'Connell, Lauren Mednick; 4/26Providing psychosocial support to pediatric patients and their families at the end of life represents one of the most challenging yet vital aspects of healthcare practice. This study explored the use of simulation-based training to enhance the self-reported knowledge, skills, and comfort levels of child life specialists in providing psychosocial care during end-of-life situations. Forty-three child life specialists participated in the simulation-based training, which was combined with traditional didactic instruction, and the associated research study. Pre- and post-training surveys were used to assess impact of the training on child life specialists' self-reported knowledge of end-of-life care and comfort in providing this care. A statistically significant increase was seen in all measured aspects of self-reported knowledge and comfort in providing end-of-life care following the training.
[UK] Measuring health-related quality of life in infants and toddlers: Conceptual challenges and proposed recommendations
05/02/26 at 03:10 AMThe importance of communication in pediatric and perinatal palliative care
05/01/26 at 03:00 AMThe importance of communication in pediatric and perinatal palliative care Catholic Exchange; by serenella Verduchi; 4/20/26 The word “communicate” comes from the Latin communicare, which means “to share,” “to make known,” or “to bring together.” ... The etymology of this word prompts us to reflect on how communication is more than just a space for interaction or a duty; it is a gift. Just as we strive to pay attention to the details when offering a gift, so too must we show care for others when choosing our words, because the power of words is great—they can give hope and transform a person’s life for the better, or they can linger and affect the person for the worse.
Local boy becomes honorary doctor with hospice family care team
04/28/26 at 03:00 AMLocal boy becomes honorary doctor with Hospice Family Care teamFox 54, Huntsville, AL; by Caleb Aguayo; 4/24/26 A young boy battling what his caretakers call a "likely incurable disease" got to live out a dream Friday when his hospice care team made him an honorary doctor for the day, complete with scrubs, a white coat bearing his name, a name tag and his very own stethoscope. Abobakr Almageleh, who has spent years surrounded by medical equipment, has long shown a fascination with the tools and routines of the health care professionals caring for him, from listening to his own heartbeat to tracking the rhythm of monitors nearby. His caregivers at Hospice Family Care took notice.