Literature Review

Palliative care may improve quality of life for stroke survivors and their family members American Heart Association - Stroke News & Brain Health; by Newsroom; 12/16/24 Palliative care ... can help improve quality of life for stroke survivors as well as their family members, according to “Palliative and End-of-Life Care in Stroke,” a new scientific statement published today in the Association’s peer-reviewed scientific journal Stroke. ... The new statement complements the Association’s 2014 Scientific Statement on Palliative and End-of-Life Care in Stroke, which covered core palliative care competencies and skills for health care professionals who treat stroke patients. The statement includes strategies to improve communication about prognosis and goals-of-care, address psychosocial needs such as coping with loss, navigate complex health care systems and prepare for death with end-of-life care when necessary. It also highlights the substantial inequities that exist in palliative care after stroke across sociodemographic and regional characteristics and the need to reduce those disparities.

What they love and loathe: Medscape Nurse Career Satisfaction Report 2024 Medscape; by Jon McKenna; 12/13/24 Despite well-publicized issues buffeting their profession, nurses in a Medscape survey overwhelmingly said they are happy with their career choice, and most said they would make it again. They also told us about their most- and least-favored job features, recounted any experiences with abuse at work, revealed possible alternative careers, and reported union membership, among other insights. [Click on the title's link to continue reading.]

'A blessing': Hospital beds find new homes in families who had been praying for them Austin American-Statesman, Austin, TX; by Nicole Villalpando; 12/13/24 Ron McDaniel had been trying to find a place for the hospital bed both his dad, Robert, and brother, Gary, had used in the assisted living facility where they were before they died. His father was a Navy veteran who was burned over 30% of his body during World War II. His brother had severe brain damage from a car accident in 1976 and was a quadriplegic. The electronic hospital bed with the extra comfortable mattress and the trapeze bar needed a new home. Ron McDaniel wanted it to go to a veteran or a veteran's family because it originally came from the Veterans Affairs, but he tried organization after organization with no luck. Meanwhile, Sandra Daniels was in desperate need of a hospital bed for her mother, Bertha Woodward, 87, who has heart failure, problems with her kidneys and limited mobility caused in part by neuropathy in her feet. Daniels could not afford a hospital bed but had been trying organization after organization for a year and came up empty. She had recently called AGE of Central Texas to see if they might have a hospital bed. ...Editor's note: Organizations who helped include 26th Statesman Season for Caring, Austin Palliative Care, ATX Firefighter Moving, AGE of Central Texas.

A centenarian thrives living alone, active and engaged California Healthline - originally published by The Washington Post; by Judith Graham; 12/10/24 “The future is here,” the email announced. Hilda Jaffe, then 88, was letting her children know she planned to sell the family home in Verona, New Jersey. She’d decided to begin life anew — on her own — in a one-bedroom apartment in Hell’s Kitchen in Manhattan. Fourteen years later, Jaffe, now 102, still lives alone — just a few blocks away from the frenetic flashing lights and crowds that course through Times Square. ... She’s an extraordinary example of an older adult living by herself and thriving. ... I’ve spoken with dozens of seniors this past year for a series of columns on older Americans living alone. Many struggle with health issues. Many are isolated and vulnerable. But a noteworthy slice of this growing group of seniors maintain a high degree of well-being. What might account for this, particularly among people in the farthest reaches of old age? [Click on the title's link to continue reading.]

HSPN Staffing Summit: Leveraging technology for person-centered care Hospice News; by Sophie Knoelke; 12/9/24 This article is sponsored by CareXM. This article is based on a virtual discussion with Kathleen Benton, President and CEO of Hospice Savannah. ... Dr. Benton has a master’s degree in medical ethics and a doctorate in public health. She has offered and reviewed many publications relevant to the topics of palliative care, ethics, hospice, and communication. [Dr. Benton:] I was schooled in clinical ethics and really mediating ethical dilemmas in health care. Looking at, is this in the best interest of the patient? Are we truly following the patient’s wishes? Many of the dilemmas, I would say a good 90%, occur at the end of life. ... [At] the root of [really trending] cases was one missing element. That element was the lacking area of communication. What do I mean by that? I believe that health care does the worst job of probably all other areas of communicating with folks. We have really taken what it is to be human out of what it is to treat a patient and a person. [Click on the title's link to continue reading this insightful discussion.]

Hospital-at-home, telehealth, DME reimbursement top year-end home care priorities McKnights Home Care; by Adam Healy; 12/9/24 Home care advocates are advancing numerous home care advocacy priorities in the final days of 2024. They are focusing on telehealth, hospital-at-home and durable medical equipment (DME). Last week, the Long-Term Post-Acute Care Health Information Technology (LTPAC Health IT) Collaborative, which includes LeadingAge as a member, sent a letter to Congress asking for an extension of telehealth flexibilities enacted during the COVID-19 pandemic. These flexibilities, which allow providers to furnish virtual care services over state lines, among other capabilities, will expire Dec. 31 without congressional action.

From sleeping in cars to having an apartment: Season for Caring helps once-homeless families Austin American-Statesman; Austin, TX; by Nicole Villalpando; 12/8/24 When Thamairis Canales Yanez learned this year that she had been selected for the Austin-American Statesman's Season for Caring program, "what I did was thank God," she said. ... The 45-year-old and her 14-year-old daughter, Ivanna, came to the U.S. from Venezuela after Yanez's dental business was taken away by the government, and she feared for her daughter's life. She is trying to rebuild her life in America, but it has been difficult. At one point, she and Ivanna were living in her car. She has breast cancer that has spread to her brain. She is unable to work. Often when Season for Caring comes into the lives of the featured families, it is during one of their darkest times.  ...  "I have seen the impact on families," said Robin Clemons, chief development officer at Hospice Austin. "Imagine facing the end of life, and they can't pay their rent. (With Season for Caring funds) they don't have to worry about those types of needs. The stress for the caregiver, it relieves that burden."

‘Reimagining Hope’ podcast shines a light on the conversation of serious illness The Baltimore Times, Pasadena, MD; podcast hosted by Rachel Jordan; 12/6/24 As families and their loved ones struggle with serious progressive illness, finding information, resources and support is more critical than ever before in our history. In response, Hospice of the Chesapeake and Chesapeake Supportive Care are introducing a new, innovative and informative podcast series, “Reimagining Hope.”  Hosted by Rachel Jordan, Director of Advocacy & Legislative Affairs, the series will feature guests who can provide valuable insight and help you reimagine the hope you may be missing. The podcast will provide quick, easy-to-understand information while giving you the critical skills and real-time tools you can use today to navigate advanced illness. 

Nursing homes must break cycle of patient rehospitalization Special to the USA TODAY Network, republished by The Record, Bergen County; by Mary Holden Jones; 11/28/24 One of the most severe issues facing long-term care patients is rehospitalization. Over 20% of nursing home residents are readmitted to the hospital within 30 days of discharge, a cycle that often worsens health outcomes and creates significant emotional, financial and logistical burdens for families, caregivers and the health care system. ... While hospital stays are sometimes necessary, they create added risks of infections and the constant back and forth can add to confusion and cognitive decline — both of which further reduce quality of life and prolong recovery times. ... The emotional toll on families is equally significant. ... Fortunately, many rehospitalizations are preventable with more proactive, coordinated care. Technology-driven health care solutions offer a promising way to monitor patients’ health in real time, alerting caregivers and health care providers to early signs of trouble before a minor issue becomes a major problem.

Michael Dowling: We've revolutionized care for aging adults, but is America's health system ready for the senior population boom? Becker's Hospital Review; by Michael J. Dowling, President and CEO, Northwell Health; 12/2/24 Like many baby boomers and those from earlier generations, I have vivid memories from my younger years of my grandparents and other aging adults struggling with an assortment of ailments that their doctors told them were just an inevitable part of growing old. ... The transformative advancements made over the past half-century in meeting the physical and emotional health needs of the nation's rapidly aging population are remarkable — and that's especially important because more Americans are turning age 65 now than in any other time in our history (4.1 million in 2024, or 11,200 a day). And as we move toward a new year, every healthcare executive must examine whether we are collectively prepared to care for them in the years and decades ahead and take steps to recruit the medical specialists we need to meet burgeoning demand. ... Lastly, all clinicians must embrace palliative care as part of their standard practice in managing the health of aging adults with serious illness. ... 

Aged care nursing in the digital future Atlassian Jira, Australia; by Flinders University; 11/27/24 The results call for nurses to be included when digital innovations are in development, so they can actively shape their implementation and ensure high-quality, compassionate care for residents in their final stages of life. "In Australia and around the world, we have seen a significant increase in digital technologies in the health care sector," says study lead author Dr. Priyanka Vandersman, a Senior Research Fellow at Flinders University's Research Center for Palliative Care, Death and Dying (RePaDD).  "In aged care, these digital approaches can include helping with care planning and assisting with managing medication, but we need to ensure that nurses are equipped with the digital skills needed to use these tools effectively, while continuing to provide high quality, person-centered care."

New Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness Cision PRWeb; by Center to Advance Palliative Care; 11/13/24 Having medical concerns dismissed, not being believed when reporting pain, and facing multiple barriers to care are just three of the experiences reported to Center to Advance Palliative Care (CAPC) in a focus group of Black patients with serious illness. In fact, when Black people in the United States are living with a serious illness like cancer, heart failure, or dementia, they experience disproportionately high suffering compared to white patients—often due to poor pain management, low-quality communication from their care teams, and high family caregiver burden. To address these inequities, CAPC has released a new, comprehensive guide, Advancing Equity for Black Patients with Serious Illness, to equip palliative care leaders and health equity change agents with practical tools to implement meaningful change. Drawn from research, examples of health equity initiatives from across the country, and the wisdom of health equity leaders, the guide provides a practical roadmap for transforming care for Black patients, and their families and caregivers.

Former employees speak out after 89-year-old woman disappeared from care facility, then died WSB-TV 2 Atlanta, GA; by WSBTV News Staff; 11/12/24 An 89-year-old woman died after she disappeared from the facility that was supposed to keep her safe. ... Lee worked for the Marietta Police Department when he and his team searched for a woman who disappeared from the Greenwood Place Assisted Living and Memory Care facility on Whitlock Avenue. ... Police reports reveal more than a dozen investigations at the facility over the past four years. Of those, two arrests were made for two different alleged crimes which include larceny and assault. “I didn’t think the care was at the level I was told it would be at,” Anthony Argano, who removed his dad from the facility, said. Argano said he pulled his dad out of the facility after staff forgot to turn his dad’s oxygen tank on, which he said resulted in a trip to the hospital and eventually a stay in hospice. ...