Literature Review

What adult children should know when discussing their parents’ end-of-life care StudyFinds; by StudyFindsStaff, reviewed by Christ Melore; 12/8/24 Talking about death can be difficult for anyone at any time. For adult children who need to know their parents’ final wishes, it can be excruciating. A new survey is revealing the stark disconnect between our beliefs and actions when it comes to end-of-life planning. While an overwhelming 90% of adults recognize the importance of these critical conversations, half have yet to take the first step with their closest loved ones. ... The numbers tell a revealing story. Twenty-six percent of respondents simply keep putting off the conversation, while 23% admit they don’t know how to approach the topic. Sixteen percent are outright scared to broach the subject, creating a wall of silence around a universal human experience. ... When people do open up, the conversations prove surprisingly rich and multifaceted.

‘Reimagining Hope’ podcast shines a light on the conversation of serious illness The Baltimore Times, Pasadena, MD; podcast hosted by Rachel Jordan; 12/6/24 As families and their loved ones struggle with serious progressive illness, finding information, resources and support is more critical than ever before in our history. In response, Hospice of the Chesapeake and Chesapeake Supportive Care are introducing a new, innovative and informative podcast series, “Reimagining Hope.”  Hosted by Rachel Jordan, Director of Advocacy & Legislative Affairs, the series will feature guests who can provide valuable insight and help you reimagine the hope you may be missing. The podcast will provide quick, easy-to-understand information while giving you the critical skills and real-time tools you can use today to navigate advanced illness. 

Michael Dowling: We've revolutionized care for aging adults, but is America's health system ready for the senior population boom? Becker's Hospital Review; by Michael J. Dowling, President and CEO, Northwell Health; 12/2/24 Like many baby boomers and those from earlier generations, I have vivid memories from my younger years of my grandparents and other aging adults struggling with an assortment of ailments that their doctors told them were just an inevitable part of growing old. ... The transformative advancements made over the past half-century in meeting the physical and emotional health needs of the nation's rapidly aging population are remarkable — and that's especially important because more Americans are turning age 65 now than in any other time in our history (4.1 million in 2024, or 11,200 a day). And as we move toward a new year, every healthcare executive must examine whether we are collectively prepared to care for them in the years and decades ahead and take steps to recruit the medical specialists we need to meet burgeoning demand. ... Lastly, all clinicians must embrace palliative care as part of their standard practice in managing the health of aging adults with serious illness. ... 

Homebound seniors living alone often slip through health system’s cracks KFF Health News; by Judith Graham; 12/2/24 Carolyn Dickens, 76, was sitting at her dining room table, struggling to catch her breath as her physician looked on with concern. “What’s going on with your breathing?” asked Peter Gliatto, director of Mount Sinai’s Visiting Doctors Program. “I don’t know,” she answered, so softly it was hard to hear. “Going from here to the bathroom or the door, I get really winded. I don’t know when it’s going to be my last breath.” Dickens, a lung cancer survivor, lives in central Harlem, barely getting by. She has serious lung disease and high blood pressure and suffers regular fainting spells. In the past year, she’s fallen several times and dropped to 85 pounds, a dangerously low weight. And she lives alone, without any help — a highly perilous situation. Across the country, about 2 million adults 65 and older are completely or mostly homebound, while an additional 5.5 million seniors can get out only with significant difficulty or assistance. ... It’s a population whose numbers far exceed those living in nursing homes — about 1.2 million — and yet it receives much less attention from policymakers, legislators, and academics who study aging.

Aged care nursing in the digital future Atlassian Jira, Australia; by Flinders University; 11/27/24 The results call for nurses to be included when digital innovations are in development, so they can actively shape their implementation and ensure high-quality, compassionate care for residents in their final stages of life. "In Australia and around the world, we have seen a significant increase in digital technologies in the health care sector," says study lead author Dr. Priyanka Vandersman, a Senior Research Fellow at Flinders University's Research Center for Palliative Care, Death and Dying (RePaDD).  "In aged care, these digital approaches can include helping with care planning and assisting with managing medication, but we need to ensure that nurses are equipped with the digital skills needed to use these tools effectively, while continuing to provide high quality, person-centered care."

New Health Equity Guide from Center to Advance Palliative Care provides a roadmap to transform care for black patients with serious illness Cision PRWeb; by Center to Advance Palliative Care; 11/13/24 Having medical concerns dismissed, not being believed when reporting pain, and facing multiple barriers to care are just three of the experiences reported to Center to Advance Palliative Care (CAPC) in a focus group of Black patients with serious illness. In fact, when Black people in the United States are living with a serious illness like cancer, heart failure, or dementia, they experience disproportionately high suffering compared to white patients—often due to poor pain management, low-quality communication from their care teams, and high family caregiver burden. To address these inequities, CAPC has released a new, comprehensive guide, Advancing Equity for Black Patients with Serious Illness, to equip palliative care leaders and health equity change agents with practical tools to implement meaningful change. Drawn from research, examples of health equity initiatives from across the country, and the wisdom of health equity leaders, the guide provides a practical roadmap for transforming care for Black patients, and their families and caregivers.

Former employees speak out after 89-year-old woman disappeared from care facility, then died WSB-TV 2 Atlanta, GA; by WSBTV News Staff; 11/12/24 An 89-year-old woman died after she disappeared from the facility that was supposed to keep her safe. ... Lee worked for the Marietta Police Department when he and his team searched for a woman who disappeared from the Greenwood Place Assisted Living and Memory Care facility on Whitlock Avenue. ... Police reports reveal more than a dozen investigations at the facility over the past four years. Of those, two arrests were made for two different alleged crimes which include larceny and assault. “I didn’t think the care was at the level I was told it would be at,” Anthony Argano, who removed his dad from the facility, said. Argano said he pulled his dad out of the facility after staff forgot to turn his dad’s oxygen tank on, which he said resulted in a trip to the hospital and eventually a stay in hospice. ...

Long-term care market to grow by USD 394.8 billion from 2024-2028, as aging population drives demand with AI impact on market trends - Technavio Cision; by PR Newswire; 11/8/24 Report on how AI is redefining market landscape - The global long-term care (LTC) market size is estimated to grow by USD 394.8 billion from 2024-2028, according to Technavio. The market is estimated to grow at a CAGR of over 3.21% during the forecast period. Growing demand for long-term care from aging population is driving market growth, with a trend towards expansion and growth of several healthcare domain. However, lack of skilled nursing staff for long-term care  poses a challenge.Key market players include Abri Health Care Services LLC, Amedisys Inc., Brookdale Senior Living Inc., CareOne Management LLC, Diversicare Healthcare Services Inc., Extendicare Canada Inc, FCP Live In, Genesis Healthcare Inc., Honor Technology Inc., Illumifin Corp., Kindred Health Holdings LLC, Life Care Centers of America Inc., Revera Inc., SeniorLiving.org, Sonida Senior Living Inc., Sunrise Senior Living LLC, and Wickshire Senior Living.

Most heart failure patients miss out on guideline-recommended palliative care Cardiovascular Business; by Dave Fornell; 11/6/24 Over the past decade, the American Heart Association (AHA) and European Society of Cardiology have recommended integrating palliative care into heart failure management. Despite these recommendations, the use of palliative care for heart failure remains low in the United States. Racial and geographic variations in access and use of palliative care are also pronounced, highlighting health disparities. These were the findings of a recent study in the Journal of the American Heart Association. Researchers at Saint Louis University led the study and said only one in eight patients with heart failure in the United States receive palliative care consultations within five years of diagnosis. Their study highlights the alarmingly low uptake of palliative care among adults with heart failure in the U.S., especially compared to patients with cancers that have the same mortality rates. The study also pointed out significant racial and geographic disparities. Black patients were 15% less likely to receive palliative care compared to their white counterparts. They said this disparity is particularly concerning given the higher cardiovascular risk and mortality rates in the Black population.

More Minnesotans face ‘pharmacy deserts’ with chain drugstore closures The Minnesota Star Tribune; by Dee DePass; 11/2/24 KB Brown’s phone hasn’t stopped ringing since Walgreens shut its W. Broadway store last year, leaving one pharmacy to serve 67,000 residents in the north Minneapolis area where he lives and runs his graphics design business. With Walgreens gone — and CVS shutting four other area stores — Brown, at least three times a week, transports employees, relatives and older neighbors to pharmacies in Robbinsdale or other suburbs so they can get their medications. ... North Minneapolis joins a growing number of “pharmacy deserts” rapidly dotting the state and nation as small and large pharmacies close up shop, leaving people with few options to quickly access prescription medicines. ... CVS, which closed 600 U.S. stores between 2021 and 2023, said it would close 300 more this year as leases end. On Oct. 15, Walgreens announced a plan to close 1,200 unprofitable stores, starting with 500 in 2025.

Hands On Medicine says goodbye as independent clinics struggle to break even The Lund Report; by Jake Thomas; 10/29/24  After 18 years of operating her northeast Portland primary care clinic, Shelda Holmes decided it would be better to close Hands on Medicine than prop up what she calls the “medical industrial health complex.” Her story shows the predicament faced by independent primary care clinics, and sheds light on why so many are shutting down or selling out to hospital systems or private equity owned chains — even passionate, devoted providers like Holmes. “You hear the anthem: ‘We need more primary care providers,’” Holmes, a nurse practitioner, told The Lund Report. “You feel it in your heart. But the obstacles are nearly unsurmountable. We can’t answer the call.” Research shows that robust primary care can reduce health care spending by treating patients' medical problems before they become more expensive. Holmes’ story spotlights what critics say are worrying trends that are eroding providers’ independence and clinical decision-making while increasingly putting primary care —a service that policymakers want more of — out of reach. 

Bill introduced to increase access to advanced wheelchairs HomeCare, Nashville, TN; 10/24/24 U.S. Senators Marsha Blackburn (R-Tenn) and Tammy Duckworth (D-Ill.) introduced the Choices for Increased Mobility Act (S 5154) to increase access to wheelchairs made with advanced materials by allowing Medicare beneficiaries to upgrade to lighter, more functional wheelchairs without bearing the entire upfront cost. These manual wheelchairs help prevent shoulder injuries, enhance maneuverability and reduce overall pain and fatigue for users. ... When the Medicare billing code for ultra-lightweight manual wheelchairs was established in 1993, materials like titanium and carbon fiber were not considered, as they were not yet in use for wheelchairs. As a result, ... providers have struggled to supply wheelchairs with these advanced materials at the fee schedule amounts set by Medicare.

Saint Francis Hospital’s Healthy Village creates national social-services healthcare model DelawareLive, Wilmington, DE; by Jarek Rutz; 10/23/24 Saint Francis Hospital hopes a new, unique initiative will be a national model for healthcare. As it celebrates 100 years of service, the hospital is expanding its community outreach to the Wilmington community by launching the Healthy Village at Saint Francis Hospital, which aims to deliver essential social services to those in need. Located in economically challenged neighborhoods, Healthy Villages are designed to enhance the traditional safety net hospital model. “The goal is to create the ultimate one-stop care setting that promotes synergy, diversity, and equity,” said Lillian Schonewolf, executive director of the Healthy Village at Saint Francis, in a YouTube video. Editor's note: See the article we posted yesterday about the importance of community, "Who gets access to a good death?"