Literature Review

Comfort home in Scottsville reopens after four-year hiatus NBC News 10, Rochester, NY; by Eriketa Cost; 9/27/24 A local hospice home in Scottsville re-opened, after four years of rebuilding from the inside out. You may recall how much of an effect COVID-19 had on these services. The home, Patrick Place, was unable to hold fundraisers. Dozens of volunteers stepped down out of fear for the virus, and it took time to bring them back. The emails and phone calls didn’t stop during the downtime, though, said Cissy Leblanc, secretary on the board for Patrick Place. Organizers were eager to open again, but it took hard work. Along the way, the team built a new deck and furnished the basement, adding a conference room and special area for training volunteers. These, are all projects that couldn’t have happened with someone living there, said chairman Patrick Hanley. The home opened in early September with 55 volunteers. The goal is to reach 75. ...

[UK] End-of-life care demand for dementia patients set to surge, study warns Jersey Evening Post, United Kingdom; by UK News; 9/16/24 The number of people living with dementia who require end-of-life care is set to “substantially increase” in the coming years, according to a study. ... Researchers said: “Previous projections of the number of people with dementia who will have palliative care needs in England and Wales were based only on the number of people who died with dementia, and did not take into account people living with dementia. Thus, it is likely that the prevalence of palliative care needs among people with dementia in England and Wales has been considerably underestimated. Our analysis shows that even if dementia incidence declines between 2018 and 2040, the number of people living with dementia in England and Wales who have palliative care needs will increase substantially by 2040, reaching levels far greater than previous estimates based on mortality data.”Editor's note: How do these projection processes in the UK compare or contrast with the USA data you use? For more immediate information about current resources, click here for the Alzheimer's Assocation "Support for People Living With Dementia" and click here for 

The DEI Dilemma: Separate teams or embedded methods? Clinical Leader; by Denise N. Bronner, PhD; 8/28/24 In recent years, diversity, equity, and inclusion (DEI) has become a focal point in many industries, with the pharma sector being no exception. As political forces shift the societal climate to be increasingly DEI-averse, pharma sponsors face critical decisions regarding the implementation of DEI initiatives: Should DEI efforts be managed by a separate, dedicated DEI team or woven into the fabric of existing processes and departments? To answer that question, we must examine the advantages and drawbacks of both strategies, focusing on key factors like resource allocation, implementation efficiency, cultural integration, and the long-term impact on trial inclusivity. ... Integrating DEI into all aspects of a business is a complex task that requires careful planning and coordination. Without a clear strategy, efforts can become fragmented and ineffective.Editor's Note: While this DEI discussion is written to the pharma industry, its DEI structures, strategies and outcomes apply to hospice and palliative care services. 

Improving post-hospital care of older cancer patients Cancer Health; by University of Colorado Cancer Center and Greg Glasgow; 8/26/24 A few years ago, University of Colorado Cancer Center member and hospitalist Sarguni Singh, MD, began to notice a troubling trend: Older adults with cancer who were leaving the hospital for skilled nursing facilities after treatment were being readmitted to the hospital or having worse outcomes while in rehabilitation. ... Singh knew of an intervention called Assessing and Listening to Individual Goals and Needs (ALIGN) — a palliative care social worker-led protocol aimed at improving quality of life, aligning goals of care, and providing support to patients and caregivers — and she began using it for cancer care. ... The results were overwhelmingly positive, and patients and caregivers told us, ‘This was so helpful,’” says Singh, associate professor of hospital medicine in the CU School of Medicine.

Capitol Notebook: New study spotlights Iowa health care landscape TheGazette; by The Gazette-Lee Des Moines Bureau; 8/22/24 More Iowa health care facilities have closed than opened since 2008, and more Iowa hospitals are operating at a loss as workforce shortages and costs rise. ... Key findings of the report include: 

Future trends in aged care careers Intelligent Living; by Jennifer Barns; 8/21/24Medical advances have increased the average life expectancy. By 2050, older people—or those above 60 years—are expected to comprise 22% of the global population, almost twice compared to 2015, according to the World Health Organization. As the population ages, the demand for skilled professionals in the aged care sector is also going through the roof. ... Editor's Note: This article provides statistics and user-friendly language that might be helpful for your employee recruitment strategies.

Commentary: Prognostication in Alzheimer's disease and related dementias Journal of the American Geriatrics Society / Early View; by Natalie C. Ernecoff PhD, MPH, Kathryn L. Wessell MPH, Laura C. Hanson MD, MPH; 8/8/24  ... Hospice provides comfort-oriented care, emphasizing patient-tailored elements of quality of life, including time with family, access to nature, and music. In late-stage ADRD, studies show that a majority of families prioritize comfort-oriented treatment, and understanding prognosis may help them align treatments accordingly. Yet, only 15% of people enrolled in hospice with a primary diagnosis of ADRD. This is due to difficulty estimating 6-month prognosis required for hospice eligibility—ADRD carries a prognosis of 12–18 months in the latest stage. While low rates of live discharges from hospice are a regulatory requirement for hospices, people who are increasingly experiencing ADRD progression lose access to those beneficial hospice services. ...

‘Good’ death different for everyone Altoona Mirror, Altoona, PA; 7/26/24 The social and economic inequities patients suffer in life often shapes their death” was a key point of a July 13-14 article in the Review section of the Wall Street Journal. ... In the article, which was written by Dr. Sunita Puri, a palliative care physician and the author of “That Good Night: Life and Medicine in the Eleventh Hour,” Puri focuses on the conundrum many families face when dealing with the question of where to spend the final days of life. ... “New research classifies the rise in home deaths as progress,” the message immediately under the article’s headline begins, “but we need to look more closely at what these deaths look like.” ... Puri, now 10 years into her physician career, says it is now clear to her that there is much more to a “good” death than where it occurs. “Presuming a home death is a success obscures important questions about the process,” she wrote. “Did this person die comfortably? Did their caregivers have the resources and guidance they needed? Was dying at home a choice or simply the only option?” 

Empath Health, Trustbridge leaders are setting home health sights high after integration Home Health Care News; by Joyce Famakinwa; 7/26/24 Empath Health is a company in transition. In the spring, it completed an affiliation process with Trustbridge, which formed the largest nonprofit post-acute provider organization in the state of Florida. ... Since completion of the affiliation process, the company has focused on integration, synergistic opportunities and determining how best to deliver care to the communities it serves. One of the people at the helm of this transition is Tarrah Lowry, Empath Health’s chief operating officer and Trustbridge’s interim president. [Click on the title's link to read the recent interview by Home Health Care News' with Tarrah Lowry.]

Advance care questions to ask your loved one Parkview Health; 7/27/24 ... To ease into a conversation about decisions and scenarios, we can start with questions that are easier to answer, like: What does a good day look like? If you got to spend the day with your favorite people doing your favorite things, what would you be doing? With whom? ... From there, we can talk about more specifics related to healthcare decisions, such as: If your heart and breathing stop suddenly, would you want to have CPR (cardiopulmonary resuscitation), which can include pushing on your chest, breathing support, medications, and electrical shocks? ... If you knew that death was likely to happen in a brief period of time, would you want to be in the hospital, in a nursing care facility or at home? ... Editor's Note: The wording, sequencing, and open-ended format of these questions gently open the door for the person to reflect on and describe one's wishes, in contrast to some advance care planning questions that focus on filling out a form. Yes, Advance Directives forms are crucial. However, the forms are a tool for now and for needs ahead. The focus is the person, while building a context of relationship and trust.

5 evolving trends on end-of-life matters The Leavenworth Echo, Wenatchee, WA; 7/21/24 One of the most difficult conversations many people have in their lives involves the end of life. While often uncomfortable to think about or discuss with others, talking about and sharing end-of-life wishes should be a common occurrence. In fact, 91% of Americans believe talking about death and dying is healthy and normal, but 1 in 4 (27%) are uncomfortable actually doing it, according to a first-of-its-kind survey commissioned by the National Funeral Directors Association (NFDA), the world’s leading and largest funeral service association. With nearly one-third (31%) of survey respondents admitting they’re uncomfortable thinking about their own mortality, Remembering A Life, the organization’s online resource for accessing grief resources and funeral planning information, is offering a free downloadable guide, Start the Conversation, to help family and friends have meaningful conversations about loved ones and how they’d like to be remembered.

Fewer deaths after serious illness in veterans treated with PARC Care Model U.S. Medicine; by LaTina Emerson; 7/11/24 After a serious illness, veterans who received medical care via the Post-Acute Recovery Center (PARC) model experienced fewer deaths and more days outside of the hospital compared to those not treated with PARC, according to a recent study. ...  Using telehealth, PARC is administered by nurse practitioners to address the complex needs of intensive care unit (ICU) survivors as they transition from hospital to home and improve access to post-ICU care for high-risk veterans, ... Each year, “more than 100,000 veterans transition from ICUs to their home after treatment for life-threatening illnesses, but this transition presents many challenges, including unresolved acute medical issues and the lingering effects of acute organ dysfunction,” according to the study authors. ... 

Judge Realty partners with Hospice Savannah to offer home modification to support aging in placeSavannah Business Journal Staff Report; 7/8/24Judge Realty recently announced a partnership with Hospice Savannah to encourage and support aging in place. Judge Property Management, a division of Judge Realty, is working in conjunction with Hospice Savannah’s CAPABLE+ program to help older adults live independently with strategic support in the privacy of their home environment. ... Hospice Savannah’s CAPABLE program provides a support team, including a Registered Nurse, an Occupational Therapist and a Handyworker who offer home visits and provide limited care for older adults, which can decrease hospitalization and reduce healthcare costs. The standard CAPABLE program is available as a free service for low-income adults age 62 or older in Chatham, Bryan Effingham or Liberty County who are cognitively intact, but experiencing some difficulty bathing, dressing, grooming, eating or walking.